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Deloris

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The Oral Cancer Foundation
August 1, 2009

This is a great website that has helped many people spread the word about oral cancer, its causes and treatment. My friend has oral cancer and this disease has irrevocably changed her life. Her doctor told her it used to be known as the "alcoholics cancer" seeing as big risk factors include smoking and drinking, but she tell me that there are so many young, non smokers posting on the forum that it gets very difficult to watch. The well established connection of this cancer to a certain strain of HPV is finally getting known in the health care community.

The Great!

I've personally experienced the results of this organization in...

How much information it has on the disease. When my friend was diagnosed I read alot on their website about oral cancer.

Ways to make it better...

If I had to make changes to this organization, I would...

Get more attention drawn to the disease, its causes and treatment. It now appears to be a cancer that is hitting those in the 30-50 age group very hard. Demographics are changing for this disease and research needs to be done.

More feedback

What I've enjoyed the most about my experience with this nonprofit is...

Again, the amount of and quality of information available. Sometimes when she would ask questions, I would tell her to go back and read a section that covered that topic. She spends more time in the forums getting support than in the factual data

The kinds of staff and volunteers that I met were...

I didn't meet any staff - just read the informative and well written articles.

If this organization had 10 million bucks, it could...

Fund more research which would lead to better earlier detection. Better inform the medical community about oral cancer. My friend's G.P. had never seen it before, and she had been in practice for 20 years.

Ways to make it better...

My friend had not gotten this cancer!

In my opinion, the biggest challenges facing this organization are...

Money and staff. I think the patients are too tapped out to really assist with the bigger goal of eradicating this disease.

One thing I'd also say is that...

Great info on a great site.

When was your last experience with this nonprofit?

2009

MY ROLE:
General Member of the Public & Friend to cancer patient.