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North Texas Prostate Cancer Coalition
April 7, 2013

In its 4-th year of existence, North Texas Prostate Cancer Coalition (NTxPCC) is looking forward to its 3rd annual prostate cancer symposium on April 20. After having been privileged to listen to Dr. Partin and Dr. Moyad, this year’s keynote speakers are Dave and Jan Dravecky. Dave is a former major league pitcher for the SF Giants who lost his pitching arm to cancer. Dave and his wife Jan are speaking about “Journeying through cancer together”.
One of NTxPCC’s activities is the “Let’s Talk on Tuesday … About Prostate Cancer” survivor chat where newly diagnosed and recurring survivors can talk face to face with long term survivors providing valuable information on their experiences, side effects and related issues.
Other activities last year included volunteer work during 30 special events, concentrating on awareness and education.
NTxPCC’s strength is an all volunteer organization with no funds used for salaries.

More feedback

Will you volunteer or donate to this organization beyond what is required of board members?

Definitely

How much of an impact do you think this organization has?

Life-changing

Will you tell others about this organization?

Definitely

When was your last experience with this nonprofit?

2013

MY ROLE:
Board Member

Us TOO International, Inc.
June 27, 2011

This organization provides a great service to men with prostate cancer and their families.
Having support groups across the country is appreciated by all prostate cancer survivors.

The Great!

I've personally experienced the results of this organization in...

Talking with a number of cancer survivors.

Ways to make it better...

If I had to make changes to this organization, I would...

- Make a greater effort to assure that there will be, at the end, only one prostate cancer organization that will represent current and future survivors on the political scene.

More feedback

Would you volunteer for this group again?

Likely

For the time you spent, how much of an impact did you feel your work or activity had?

A lot

Did the organization use your time wisely?

Okay

Would you recommend this group to a friend?

Likely

What one change could this group make that would improve your volunteer experience?

Get more involved with state wide organizations and medical institutions (especially those that sponsor the support groups) to help the cause as well as other survivors.

Did your volunteer experience have an effect on you? (teaching you a new skill, or introducing new friends, etc.)

It showed me the need that these organizations need more survivors actively engaging in prostate cancer awareness, helping other survivors and their families.

How did this volunteer experience make you feel?

Frustrated.

When was your last experience with this nonprofit?

2011

MY ROLE:
Volunteer & Volunteered to help with some health fairs run by institutions sponsoring Us TOO support groups. .

Susan G. Komen Breast Cancer Foundation, Inc., National Office
June 13, 2011

SGK started with a great cause and a great goal. The money now goes to office expenses, inflated salaries and luxury travel - oh yeah, and legal fees for frivolous law suits, initiated by SGK . 20% of the funds are used for "the cure". That is false advertising!
SGK is suing, amongst others, a little girls foundation who is trying to help, for the use of the "for the cure" phrase. Give me a break! The use of this phrase doesn't create confusion as Susan G. Komen is the group where the money goes to.
I am disgusted!

The Great!

I've personally experienced the results of this organization in...

80% of the results go to extremely high salaries and plush offices. There is little to experience.

Ways to make it better...

If I had to make changes to this organization, I would...

Cut the staff; Make sure that 80% of the income GOES FOR WHAT YOU ARE ADVERTISING: "FOR A CURE". If you can't do that, close down.

More feedback

Will you volunteer or donate to this organization?

No

How much of an impact do you think this organization has?

A lot

How did you learn about this organization?

Through false advertisement, law suits. Other than that, its all over the internet and news.

When was your last experience with this nonprofit?

2011

MY ROLE:
General Member of the Public & I have contributed financially to the walking campaigns in the past.

National Alliance of State Prostate Cancer Coalitions
June 13, 2011

This group provides invaluable information needed to form state coalitions and it is, amongst other things, heavily involved in spreading awareness of prostate cancer as well in prostate cancer advocacy.

The Great!

I've personally experienced the results of this organization in...

By attending two annual meetings of this organization.

Ways to make it better...

If I had to make changes to this organization, I would...

enforce that members have to represent an organized coalition with written bylaws and a board of at least 3 active members; these members should represent a geographic area, but not necessarily an entire State.

More feedback

Will you volunteer or donate to this organization beyond what is required of advisors?

Likely

How much of an impact do you think this organization has?

A lot

Will you tell others about this organization?

Definitely

How did you learn about this organization?

Through a health care professional in my area

What is this organization's top short-term priority?

Get coalitions within all 50 US States (plus DC)

What is its top priority in the long run?

Building strong state based coalitions who have enough clout to influence state and nation wide legislation related to prostate cancer; to spread prostate cancer awareness, all leading to comfortable survival of prostate cancer.

When was your last experience with this nonprofit?

2011

MY ROLE:
Advisor & I provided information for Texas and assisted in updating some of their material.

UROLOGY RESEARCH AND EDUCATION FOUNDATION
June 7, 2011

One of the most active organizations in the DFW area for prostate cancer. This group is
- Running an annual event (Dadfest); this event includes prostate cancer risk assessment and screening, a 5K run (fund raising), family activities (awareness), etc.
- Organizing a yearly golf tournament (awareness, fundraising)
- Facilitating the Texas Health Us TOO Education & Support group (with speakers and monthly meetings)
- Performing prostate cancer related research
- Running their own website

The Great!

I've personally experienced the results of this organization in...

participating in a video taping as a prostate cancer survivor

Ways to make it better...

If I had to make changes to this organization, I would...

Join the North Texas Prostate Cancer Coalition (www.ntxpcacoalition.org) to demonstrate joined efforts to fight prostate cancer in Texas

More feedback

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Some

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

What one change could this group make that would improve your volunteer experience?

Volunteers would like to be recognized; indirect recognition is just fine.

Did your volunteer experience have an effect on you? (teaching you a new skill, or introducing new friends, etc.)

Introduction to other cancer survivors; different aspect to prostate cancer from the clinical side

How did this volunteer experience make you feel?

It is rewarding to be able to help

When was your last experience with this nonprofit?

2011

MY ROLE:
Volunteer & Assisted in the administration of Dadfest as a volunteer.

North Texas Prostate Cancer Coalition
June 7, 2011

This is the third year of our existence. We are proud of the accomplishments in this time period through our participating volunteers.
We have earned the trust of related medical institutions reflected through invitations to their events and through financial assistance.
We earned the respect of newly diagnosed men who are coming back to our let's Talk on Tuesday program and who are bringing other newly diagnosed. To quote one newly diagnosed: "When I found out that I will be talking to prostate cancer survivors, I knew through my experience with AA, that I am at the right place. They gave me more help than the doctors did". Well, we are not doctors, we provide information, but we do not give medical advice.

The Great!

I've personally experienced the results of this organization in...

receiving positive feedback from survivors we were able to talk to as well as from the and the general public about our accomplishments and programs.

Ways to make it better...

If I had to make changes to this organization, I would...

concentrate and spreading the word to doctors' offices who are dealing with prostate cancer.

More feedback

Will you volunteer or donate to this organization beyond what is required of board members?

Definitely

How much of an impact do you think this organization has?

A lot

Will you tell others about this organization?

Definitely

How did you learn about this organization?

Well, I helped organize it.

What is this organization's top short-term priority?

Spreading awareness.

What is its top priority in the long run?

Making prostate cancer awareness a top priority in Texas.

When was your last experience with this nonprofit?

2011

MY ROLE:
Board Member & My previous professional experience helped me in creating an organization that is helpful to prostate cancer survivors and their families.