One of NTxPCC’s activities is the “Let’s Talk on Tuesday … About Prostate Cancer” survivor chat where newly diagnosed and recurring survivors can talk face to face with long term survivors providing valuable information on their experiences, side effects and related issues.
Other activities last year included volunteer work during 30 special events, concentrating on awareness and education.
NTxPCC’s strength is an all volunteer organization with no funds used for salaries.
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Will you volunteer or donate to this organization beyond what is required of board members?
Definitely
How much of an impact do you think this organization has?
Life-changing
Will you tell others about this organization?
Definitely
When was your last experience with this nonprofit?
2013
Having support groups across the country is appreciated by all prostate cancer survivors.
The Great!
I've personally experienced the results of this organization in...
Talking with a number of cancer survivors.
Ways to make it better...
If I had to make changes to this organization, I would...
- Make a greater effort to assure that there will be, at the end, only one prostate cancer organization that will represent current and future survivors on the political scene.
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Would you volunteer for this group again?
Likely
For the time you spent, how much of an impact did you feel your work or activity had?
A lot
Did the organization use your time wisely?
Okay
Would you recommend this group to a friend?
Likely
What one change could this group make that would improve your volunteer experience?
Get more involved with state wide organizations and medical institutions (especially those that sponsor the support groups) to help the cause as well as other survivors.
Did your volunteer experience have an effect on you? (teaching you a new skill, or introducing new friends, etc.)
It showed me the need that these organizations need more survivors actively engaging in prostate cancer awareness, helping other survivors and their families.
How did this volunteer experience make you feel?
Frustrated.
When was your last experience with this nonprofit?
2011
SGK is suing, amongst others, a little girls foundation who is trying to help, for the use of the "for the cure" phrase. Give me a break! The use of this phrase doesn't create confusion as Susan G. Komen is the group where the money goes to.
I am disgusted!
The Great!
I've personally experienced the results of this organization in...
80% of the results go to extremely high salaries and plush offices. There is little to experience.
Ways to make it better...
If I had to make changes to this organization, I would...
Cut the staff; Make sure that 80% of the income GOES FOR WHAT YOU ARE ADVERTISING: "FOR A CURE". If you can't do that, close down.
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Will you volunteer or donate to this organization?
No
How much of an impact do you think this organization has?
A lot
How did you learn about this organization?
Through false advertisement, law suits. Other than that, its all over the internet and news.
When was your last experience with this nonprofit?
2011
The Great!
I've personally experienced the results of this organization in...
By attending two annual meetings of this organization.
Ways to make it better...
If I had to make changes to this organization, I would...
enforce that members have to represent an organized coalition with written bylaws and a board of at least 3 active members; these members should represent a geographic area, but not necessarily an entire State.
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Will you volunteer or donate to this organization beyond what is required of advisors?
Likely
How much of an impact do you think this organization has?
A lot
Will you tell others about this organization?
Definitely
How did you learn about this organization?
Through a health care professional in my area
What is this organization's top short-term priority?
Get coalitions within all 50 US States (plus DC)
What is its top priority in the long run?
Building strong state based coalitions who have enough clout to influence state and nation wide legislation related to prostate cancer; to spread prostate cancer awareness, all leading to comfortable survival of prostate cancer.
When was your last experience with this nonprofit?
2011
- Running an annual event (Dadfest); this event includes prostate cancer risk assessment and screening, a 5K run (fund raising), family activities (awareness), etc.
- Organizing a yearly golf tournament (awareness, fundraising)
- Facilitating the Texas Health Us TOO Education & Support group (with speakers and monthly meetings)
- Performing prostate cancer related research
- Running their own website
The Great!
I've personally experienced the results of this organization in...
participating in a video taping as a prostate cancer survivor
Ways to make it better...
If I had to make changes to this organization, I would...
Join the North Texas Prostate Cancer Coalition (www.ntxpcacoalition.org) to demonstrate joined efforts to fight prostate cancer in Texas
More feedback
Would you volunteer for this group again?
Definitely
For the time you spent, how much of an impact did you feel your work or activity had?
Some
Did the organization use your time wisely?
Very Well
Would you recommend this group to a friend?
Definitely
What one change could this group make that would improve your volunteer experience?
Volunteers would like to be recognized; indirect recognition is just fine.
Did your volunteer experience have an effect on you? (teaching you a new skill, or introducing new friends, etc.)
Introduction to other cancer survivors; different aspect to prostate cancer from the clinical side
How did this volunteer experience make you feel?
It is rewarding to be able to help
When was your last experience with this nonprofit?
2011
We have earned the trust of related medical institutions reflected through invitations to their events and through financial assistance.
We earned the respect of newly diagnosed men who are coming back to our let's Talk on Tuesday program and who are bringing other newly diagnosed. To quote one newly diagnosed: "When I found out that I will be talking to prostate cancer survivors, I knew through my experience with AA, that I am at the right place. They gave me more help than the doctors did". Well, we are not doctors, we provide information, but we do not give medical advice.
The Great!
I've personally experienced the results of this organization in...
receiving positive feedback from survivors we were able to talk to as well as from the and the general public about our accomplishments and programs.
Ways to make it better...
If I had to make changes to this organization, I would...
concentrate and spreading the word to doctors' offices who are dealing with prostate cancer.
More feedback
Will you volunteer or donate to this organization beyond what is required of board members?
Definitely
How much of an impact do you think this organization has?
A lot
Will you tell others about this organization?
Definitely
How did you learn about this organization?
Well, I helped organize it.
What is this organization's top short-term priority?
Spreading awareness.
What is its top priority in the long run?
Making prostate cancer awareness a top priority in Texas.
When was your last experience with this nonprofit?
2011