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Lizz L.

236 profile views
3 reviews

Review for Cherubs - The Association Of Congenital Diaphragmatic Hernia Research, Wake Forest, NC, USA

Rating: 5 stars  

As an adult CDH survivor, I had never in my life known anyone else who had heard of the condition, much less had experienced it. As far as I knew, I stood alone. When I found CHERUBS, I immediately became connected to thousands of families who had been through the nightmare of CDH and gave me insight into what my own parents went through.
As a parent myself, I have had to face the possibility that my own children may also be victims of CDH. Thankfully, they were all born perfectly healthy. This also enables me to give hope to other survivors that they will be able to become parents themselves and lead "normal" lives.
Through CHERUBS I have made some of the best friends a person could ask for and I cherish that.

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

A lot

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2013

Role:  Volunteer

Review for Cherubs - The Association Of Congenital Diaphragmatic Hernia Research, Wake Forest, NC, USA

Rating: 5 stars  

I am an adult CDH survivor. Until I stumbled upon CHERUBS in a late-night, curiosity-filled internet search session about the mysterious birth defect with which I had been born, I had never met anyone else who had it or even had heard of it. Now, thanks to this wonderful charity, I have met many families who have struggled through the devastation that CDH has wrought upon thier lives. I was extremely lucky to have survived. I have met many surviving children and a couple of adults, but I have also met families who have had to face the overwhelming tragedy of losing their children. One of the reasons there are more young children survivors than adults is due to the research that CHERUBS has helped fund, making the survival rate increase. The members of CHERUBS are like a big, international family, connected not by DNA, but by CDH. As a volunteer, I have seen first hand the tireless dedication that is put into CHERUBS and the shoestring budget on which it is run. Due to financial reasons, I am not able to donate to CHERUBS like I'd love to be able to do, but when I am able, I will be sure to put them at the top of the list. Until then, I volunteer when & where I can & I enjoy every minute of it!

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2012

Role:  Volunteer

Review for Cherubs - The Association Of Congenital Diaphragmatic Hernia Research, Wake Forest, NC, USA

Rating: 5 stars  

I was born in 1972 with CDH. Until I found CHERUBS, I had never known anyone who has ever heard of CDH, much less known of anyone else who'd been born with it. Thanks to this wonderful charity, there is an international network of families who support each other.
When I was born, the survival rate was barely over 10%. Thanks to CHERUBS and the dedication of the volunteers who rasie awareness everyday and help raise funds for research, the survival rate today is 50%. We still have a long way to go!

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Some

Did the organization use your time wisely?

Quite well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2011

Role:  Volunteer & I help plan our biggest annual fundraiser.