My Nonprofit Reviews

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Linda

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1 reviews

Review for The Oral Cancer Foundation, Newport Beach, CA, USA

Rating: 5 stars  

I can't explain the significant impact this site had on my daughter and myself. At 31 y/o she was diagnosed w/ tongue cancer. No known risk factor....shocking and devastating. Young Mom of one and pregnant w/ her second baby.... Had to terminate pregnancy to begin treatment. She battled this evil disease for 10 months before losing her fight against it. During that time OCF was a God send to us. She found a 'soulmate' who also was fighting the disease, her age and became support for each other! Pete helped them find each other, then we lost him to the disease. It becomes a 'family' of sorts between comrades in this horrendous battle, between patients and caregivers. Peace, education, support, and sincere caring is shared on this site. It is the most accurate in educational info of any site. Being a nurse for 30 yrs. I was so satisfied with the information given. What we need to do is reach even further to assist the public and medical/dental community to become more aware of this rapidly occuring cancer.

What I've enjoyed the most about my experience with this nonprofit is...

The sincere caring and sharing, and the education reaped from the many who have experienced this disease.

The kinds of staff and volunteers that I met were...

wonderful, caring and supportive. Offering help to many questions.

If this organization had 10 million bucks, it could...

Reach out to general public and educate. Perhaps spreading the word will help to eliminate some of the advanced cancers that could have been recognized earlier.

Ways to make it better...

I have no suggestions for the site itself, only that it can reach out to more.

In my opinion, the biggest challenges facing this organization are...

being able to spread the information to many who have no knowledge of the site nor the awareness of the threat oral cancer has. More education and screening.

When was your last experience with this nonprofit?

2009

Role:  Client Served & Obtained information and shared the education/experience my daughter had to help others.