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What others are saying:

Scott 6262 wrote:

There is nothing easy about having a child with a rare disease. It took years of trying and failing to find someone to ... more »

MaryOrphan wrote:

This is an organization with a big heart that provides one-on-one help to families struggling with very difficult issues... more »

Anna99 wrote:

I am so thankful to have The Rhode Island Rare Disease Foundation fighting for parents of children with rare disease. I... more »

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Rumford, RI USA

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