Williams Syndrome Changing Lives Foundation

Rating: 4.96 stars   85 reviews

Issues: Health

Location: PO Box 76021 Saint Petersburg FL 33734 USA

Mission: The Williams Syndrome Changing Lives Foundation was formed to enhance the lives of children and adults living with a diagnosis of Williams syndrome by providing needed financial assistance with medical, educational, therapeutic, recreational needs and other developmental resources. In addition, the Williams Syndrome Changing Lives Foundation provides support for individuals, parents and families through outreach, and sponsored functions.
Target demographics: individuals with Williams syndrome
Direct beneficiaries per year: hundreds of families with resources and information regarding Williams syndrome
Geographic areas served: United States
Programs: Family Assistance Program assisting individuals with Williams syndrome with medical, developmental, educational, therapeutic and recreational resources.
2014 Top-Rated Nonprofit
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Community Reviews

Rating: 5 stars  

4 people found this review helpful

Williams Syndrome Changing Lives Foundation provides assistance to families finding solutions for family members diagnosed with Williams syndrome. This foundation helps many families by providing financial assistance in addition to providing vital information to parents and medical professionals helping those diagnosed with this rare disorder.

This organization was founded on the belief that a community of families could help other families dealing with this rare disorder by sharing information and experiences. With this in mind, and through collective experience, we can help educate medical professionals and parents with children diagnosed with Williams syndrome in order to enable those diagnosed with Williams syndrome live life to its fullest potential.

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1 previous review
Rating: 5 stars  

3 people found this review helpful

I am proud to be a part of this organization for various reasons. This organization has been able to provide information and support to parents and caregivers of individuals with Williams syndrome.

Consequently, over a short period of time, this organization has managed to corral the community to create a support group to help others handle the daily challenges and collectively cheer when milestones are met.

Above all, this organization has assisted financially challenged families with their needs to help their children with Williams syndrome live better lives.

We are truly changing lives.

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1 previous review
Rating: 5 stars  

5 people found this review helpful

What a truly rewarding experience this has been in such a short time. We are helping families touched by Williams syndrome by providing financial assistance, informational and therapeutic resources. Additionally, we are spreading awareness throughout the educational and medical communities.

Will you volunteer or donate to this organization beyond what is required of board members?

Definitely

How much of an impact do you think this organization has?

Life-changing

Will you tell others about this organization?

Definitely

When was your last experience with this nonprofit?

2012

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