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Nonprofit Overview

Causes: Health, Specifically Named Diseases Research

Mission: The Williams Syndrome Changing Lives Foundation was formed to enhance the lives of children and adults living with a diagnosis of Williams syndrome by providing needed financial assistance with medical, educational, therapeutic, recreational needs and other developmental resources. In addition, the Williams Syndrome Changing Lives Foundation provides support for individuals, parents and families through outreach, and sponsored functions.

Target demographics: individuals with Williams syndrome

Direct beneficiaries per year: hundreds of families with resources and information regarding Williams syndrome

Geographic areas served: United States

Programs: Family Assistance Program assisting individuals with Williams syndrome with medical, developmental, educational, therapeutic and recreational resources.

Community Stories

16 Stories from Volunteers, Donors & Supporters

7 Tyler5

Client Served

Rating: 5

Williams Syndrome Changing Lives Foundation helped us in a time when we thought there was no help. They offer educational material and HOPE for parents who first find out they have a William's Syndrome Child. They send out newsletters keeping parents informed of current WS news and inspirational stories to keep our chins up. The CEO, Penny Perez, is nothing less than a Saint. She is not only the CEO she is a parent to a child with William's Syndrome. My wife regularly seeks advice from her from advocating for our children to other general parental concerns. The non-profit is well executed and managed and makes a real difference in people's lives. Thank you Penny and William's Syndrome Changing Lives Foundation for all that you have done to help our family and our son Ethan (16mo old).

2 Kids Companions

Donor

Rating: 5

The William Syndrome Changing Lives Foundation advocates for their cause is a very professional way. We are always impressed by their Facebook posts and their web site. The people behind their newsletter have to be congratulated and thanked for publishing such a first class way of getting valuable information to their subscribers.

Previous Stories
4

General Member of the Public

Rating: 5

The Williams Syndrome Changing Lives Foundation with Penny Perez as CEO & Founder has an excellent Newsletter. Their newsletter is educational and very interesting! Ms. Perez has beneficial posts on Facebook and LinkedIn for parents with children with special needs. Families with a child with Williams syndrome must definately join this group. Our company, SentioLife Solutions, Ltd., has donated sensory chewelry necklaces for events organized by this foundation and find the folks working there very efficient and knowledgeable. Hope you have a great 2014!

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3 Becki2

General Member of the Public

Rating: 5

Williams Syndrome Changing Lives Foundation provides invaluable resources to parents to assist with their loved ones from diagnosis to adulthood through infographics and support groups. Many individuals have been provided with once in a lifetime opportunities that the may not have been possible without the assistance program or Project 7.

4 Brandi J.

General Member of the Public

Rating: 5

Williams Syndrome Changing Lives Foundation is a true blessing to many. They provide excellent educational materials, fantastic resources and a wonderful support page. WSCLF has given me the opportunity to connect with thousands of other parents & caregivers who face the same daily challenges as myself. Thank you WSCLF for the wonderful support and knowledge you provide on a consistent basis.

Previous Stories
2

General Member of the Public

Rating: 5

The care, support and information Williams Syndrome Changing Lives Foundation provides is outstanding and second to none. They offer top-notch infographics, articles and other resources age-specific for our WS children, along with their physicians and educators. It's not about contests & give-aways at CLF. It's all about getting our children the necessary care they need and their parents the much-needed support they long for. THIS is just what I've been looking for! There is true support and concern for my son and myself.

4

General Member of the Public

Rating: 5

The Williams Syndrome Changing Lives Foundation is one of the most responsible, ethical charities I have ever encountered. I have known Penny Perez, founder of WSCL, for over 30 years, and when her own son, Keith, was diagnosed with this disorder, Penny was not satisfied to just find answers for herself, but was determined to help other families affected by Williams Syndrome as well. That's the type of kind, selfless person that she is. As such, when I donate to the Williams Syndrome Changing Lives Foundation, I know without a doubt that my donation is going directly where it is supposed to go - to help families affected by Williams Syndrome. I know that we can expect impressive and great things from this foundation in the future.

3 Tanya C.

Client Served

Rating: 4

Williams Syndrome Changing Lives Foundation has been a wonderful source of information as well as inspiration. Our daughter is 11 and to know that someone is there to ask advice, offer support and be non judgemental about anything is just so comforting as we travel through this journey with our daughter. Thank WS Changing Lives Foundation for all that you do.
Tanya (daughter Nadena 11) from Australia

Previous Stories
3

General Member of the Public

Rating: 5

Williams Syndrome Changing Lives Foundation is a wonderful resource of not just knowledge and understanding but so much more. They know where a family is coming from when they get a diagnosis and how distressing it can be to suddenly find that your path in life has changed! They support families in hard times both medically, financially as well as emotionally. Thank you WS Changing Lives Foundation for the wonderful work, support, assistance and HOPE that you give to so many families including my own.

2 Elizabeth171

General Member of the Public

Rating: 4

I enjoy the newsletter that is emailed to me. There is nothing like being able to look into another parents eyes and remember that we aren't on this journey alone.

2 Alexandra13

General Member of the Public

Rating: 5

Foundations like this are so important. This one does an amazing job at bringing the truth and awareness when it comes to William's Syndrome. A lot of the general public don't fully understand the implications of William's syndrome and this foundation does a great job in properly educating. Great and loving community behind it. I can gladly say this organization is making a positive mark on the world and the lives and families it effects.

3

General Member of the Public

Rating: 5

I have come to know this organization over the past few months on facebook. I knew next to nothing about Williams Syndrome. There is so much more to learn but I am very confident my learning wil continue through this group and their terrific newsletter. The facebook group is very welcoming and I have no doubt that lives are changing through the foundation. I would highly recommend that anyone who has Williams Syndrome touch their life become a member of this group both receive and provide support to others. I will certainly recommend membership to anyone I meet. The facebook group is a great place to go to increase awareness, look for resources and help and be supportive. https://www.facebook.com/groups/williamssyndromesupport/ Thanks to Penny Perez for inviting me............ Jean Nicol

3 Joshua Shig B.

General Member of the Public

Rating: 5

This website is such a valuable tool and resource for families with WS. It has helped us so much! I hope many more people benefit from it the same way we have!

4

General Member of the Public

Rating: 5

I would recommend WS Changing Lives to anyone seeking advice and/or help and resources for a loved one with Williams Syndrome. WS Changing Lives has given me a lot of useful and factual information for my research on special needs. I have spoken to the CEO and she is always helpful. Responses to my questions have always been answered in a timely, efficient, and empathetic manner. I have learned a lot through their compassion and eagerness to help. They deserve a lot of credit for changing lives and bringing awareness.