Williams Syndrome Changing Lives Foundation

Rating: 4.96 stars   85 reviews

Issues: Health

Location: PO Box 76021 Saint Petersburg FL 33734 USA

Mission: The Williams Syndrome Changing Lives Foundation was formed to enhance the lives of children and adults living with a diagnosis of Williams syndrome by providing needed financial assistance with medical, educational, therapeutic, recreational needs and other developmental resources. In addition, the Williams Syndrome Changing Lives Foundation provides support for individuals, parents and families through outreach, and sponsored functions.
Target demographics: individuals with Williams syndrome
Direct beneficiaries per year: hundreds of families with resources and information regarding Williams syndrome
Geographic areas served: United States
Programs: Family Assistance Program assisting individuals with Williams syndrome with medical, developmental, educational, therapeutic and recreational resources.
2014 Top-Rated Nonprofit
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Role: General Member of the Public
Rating: 5 stars  

3 people found this review helpful

Williams Syndrome Changing Lives Foundation provides invaluable resources to parents to assist with their loved ones from diagnosis to adulthood through infographics and support groups. Many individuals have been provided with once in a lifetime opportunities that the may not have been possible without the assistance program or Project 7.

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Rating: 5 stars  

4 people found this review helpful

Williams Syndrome Changing Lives Foundation is a true blessing to many. They provide excellent educational materials, fantastic resources and a wonderful support page. WSCLF has given me the opportunity to connect with thousands of other parents & caregivers who face the same daily challenges as myself. Thank you WSCLF for the wonderful support and knowledge you provide on a consistent basis.

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1 previous review
Rating: 5 stars  

2 people found this review helpful

The care, support and information Williams Syndrome Changing Lives Foundation provides is outstanding and second to none. They offer top-notch infographics, articles and other resources age-specific for our WS children, along with their physicians and educators. It's not about contests & give-aways at CLF. It's all about getting our children the necessary care they need and their parents the much-needed support they long for. THIS is just what I've been looking for! There is true support and concern for my son and myself.

Will you volunteer or donate to this organization?

Definitely

How much of an impact do you think this organization has?

Life-changing

When was your last experience with this nonprofit?

2013

Was this review helpful? 
Rating: 5 stars  

4 people found this review helpful

The Williams Syndrome Changing Lives Foundation is one of the most responsible, ethical charities I have ever encountered. I have known Penny Perez, founder of WSCL, for over 30 years, and when her own son, Keith, was diagnosed with this disorder, Penny was not satisfied to just find answers for herself, but was determined to help other families affected by Williams Syndrome as well. That's the type of kind, selfless person that she is. As such, when I donate to the Williams Syndrome Changing Lives Foundation, I know without a doubt that my donation is going directly where it is supposed to go - to help families affected by Williams Syndrome. I know that we can expect impressive and great things from this foundation in the future.

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Rating: 4 stars  

2 people found this review helpful

I enjoy the newsletter that is emailed to me. There is nothing like being able to look into another parents eyes and remember that we aren't on this journey alone.

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Rating: 5 stars  

2 people found this review helpful

Foundations like this are so important. This one does an amazing job at bringing the truth and awareness when it comes to William's Syndrome. A lot of the general public don't fully understand the implications of William's syndrome and this foundation does a great job in properly educating. Great and loving community behind it. I can gladly say this organization is making a positive mark on the world and the lives and families it effects.

When was your last experience with this nonprofit?

2014

Was this review helpful? 
Rating: 5 stars  

2 people found this review helpful

The William Syndrome Changing Lives Foundation advocates for their cause is a very professional way. We are always impressed by their Facebook posts and their web site. The people behind their newsletter have to be congratulated and thanked for publishing such a first class way of getting valuable information to their subscribers.

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1 previous review
Rating: 5 stars  

4 people found this review helpful

The Williams Syndrome Changing Lives Foundation with Penny Perez as CEO & Founder has an excellent Newsletter. Their newsletter is educational and very interesting! Ms. Perez has beneficial posts on Facebook and LinkedIn for parents with children with special needs. Families with a child with Williams syndrome must definately join this group. Our company, SentioLife Solutions, Ltd., has donated sensory chewelry necklaces for events organized by this foundation and find the folks working there very efficient and knowledgeable. Hope you have a great 2014!

Will you volunteer or donate to this organization?

Likely

How much of an impact do you think this organization has?

A lot

When was your last experience with this nonprofit?

2014

Was this review helpful? 
1 previous review
Rating: 5 stars  

3 people found this review helpful

The William Syndrome Changing Lives Foundation with Penny Perez as CEO is a valuable source of parenting information. Their Newsletter is just as eye-catching and well organized as many magazines. Parents raising children with special needs appreciate the information on their site, the Newsletter, their LinkedIn Group, Facebook Page, etc. This non-profit foundation is truly centered on increasing Williams syndrome awareness, increasing education for families, the public, physicians and therapists.

Will you volunteer or donate to this organization?

Unsure

How much of an impact do you think this organization has?

Life-changing

When was your last experience with this nonprofit?

2013

Was this review helpful? 
1 previous review
Rating: 5 stars  

4 people found this review helpful

We are happy to donate KidCompanions Chewelry to the William Syndrome Changing Lives Foundation for their fundraising project. We were impressed with the professional look of their Facebook page and web site. We felt this foundation has capable, caring parents behind it trying to make the lives of others easier and better. Glad to collaborate with such a group!

Was your donation impactful?

Definitely

How likely is it that you would recommend that a friend donate to this group?

Definitely

How likely are you to donate to this group again?

Definitely

When was your last experience with this nonprofit?

2012

Was this review helpful? 
Rating: 5 stars  

3 people found this review helpful

I have come to know this organization over the past few months on facebook. I knew next to nothing about Williams Syndrome. There is so much more to learn but I am very confident my learning wil continue through this group and their terrific newsletter. The facebook group is very welcoming and I have no doubt that lives are changing through the foundation. I would highly recommend that anyone who has Williams Syndrome touch their life become a member of this group both receive and provide support to others. I will certainly recommend membership to anyone I meet. The facebook group is a great place to go to increase awareness, look for resources and help and be supportive. https://www.facebook.com/groups/williamssyndromesupport/ Thanks to Penny Perez for inviting me............ Jean Nicol

Will you volunteer or donate to this organization?

Likely

How much of an impact do you think this organization has?

A lot

When was your last experience with this nonprofit?

2014

Was this review helpful? 
Rating: 5 stars  

3 people found this review helpful

This website is such a valuable tool and resource for families with WS. It has helped us so much! I hope many more people benefit from it the same way we have!

When was your last experience with this nonprofit?

2013

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Rating: 4 stars  

3 people found this review helpful

Williams Syndrome Changing Lives Foundation has been a wonderful source of information as well as inspiration. Our daughter is 11 and to know that someone is there to ask advice, offer support and be non judgemental about anything is just so comforting as we travel through this journey with our daughter. Thank WS Changing Lives Foundation for all that you do.
Tanya (daughter Nadena 11) from Australia

If I had to make changes to this organization, I would...

Wish they were here in Australia as well.

When was your last experience with this nonprofit?

2014

Was this review helpful? 
1 previous review
Rating: 5 stars  

3 people found this review helpful

Williams Syndrome Changing Lives Foundation is a wonderful resource of not just knowledge and understanding but so much more. They know where a family is coming from when they get a diagnosis and how distressing it can be to suddenly find that your path in life has changed! They support families in hard times both medically, financially as well as emotionally. Thank you WS Changing Lives Foundation for the wonderful work, support, assistance and HOPE that you give to so many families including my own.

Will you volunteer or donate to this organization?

Definitely

How much of an impact do you think this organization has?

Life-changing

When was your last experience with this nonprofit?

2013

Was this review helpful? 
Rating: 5 stars  

4 people found this review helpful

I would recommend WS Changing Lives to anyone seeking advice and/or help and resources for a loved one with Williams Syndrome. WS Changing Lives has given me a lot of useful and factual information for my research on special needs. I have spoken to the CEO and she is always helpful. Responses to my questions have always been answered in a timely, efficient, and empathetic manner. I have learned a lot through their compassion and eagerness to help. They deserve a lot of credit for changing lives and bringing awareness.

Will you volunteer or donate to this organization?

Definitely

How much of an impact do you think this organization has?

Life-changing

When was your last experience with this nonprofit?

2012

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