Williams Syndrome Changing Lives Foundation

Rating: 4.96 stars   85 reviews

Issues: Health

Location: PO Box 76021 Saint Petersburg FL 33734 USA

Mission: The Williams Syndrome Changing Lives Foundation was formed to enhance the lives of children and adults living with a diagnosis of Williams syndrome by providing needed financial assistance with medical, educational, therapeutic, recreational needs and other developmental resources. In addition, the Williams Syndrome Changing Lives Foundation provides support for individuals, parents and families through outreach, and sponsored functions.
Target demographics: individuals with Williams syndrome
Direct beneficiaries per year: hundreds of families with resources and information regarding Williams syndrome
Geographic areas served: United States
Programs: Family Assistance Program assisting individuals with Williams syndrome with medical, developmental, educational, therapeutic and recreational resources.
2014 Top-Rated Nonprofit
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Community Reviews

Role: Professional with expertise in this field
Rating: 5 stars  

2 people found this review helpful

I am honored to work with Williams Syndrome Changing Lives Foundation. Their awareness efforts and community reach is frowing rapidly and very muxh needed.

Support services are outstanding and we look forward to our continued work with them.

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1 previous review
Rating: 5 stars  

3 people found this review helpful

I have worked with Williams Syndrome Changing Lives Foundation on a couple of projects and have found them to be completely professional and with a very clear vision.

I am honored to assist them with their efforts and will continue to do so. We will continue to reach out to them for information about Williams syndrome and their resources.

How does this organization compare with others in the same sector?

Very Well

How much of an impact do you think this organization has?

Life-changing

Will you recommend this organization to others?

Definitely

When was your last experience with this nonprofit?

2013

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Role: Professional with expertise in this field
Rating: 5 stars  

3 people found this review helpful

Penny Perez and the Williams Syndrome Changing Lives Foundation does exactly what its name suggests! They actually use the funds they acquire to directly help people and families in need who are affected by Williams syndrome to help change their lives in a positive manner. In addition to raising awareness, the foundation runs support groups, sends children to camp, features newsletters, holds webinars with professionals who can provide guidance to families, and interacts directly with their members on a daily basis and much, much more. The non-profit organization is run professionally and transparently as well as with passion and love. Penny's inspiration for starting this foundation came from her own adorable son who was born with Williams syndrome. Faced with this, she soon recognized the need for additional support within the Williams syndrome community and founded the Williams Syndrome Changing Lives Foundation. The foundation has helped so many people in so many ways. If you are looking to donate to a worthy cause, please consider the Williams Syndrome Changing Lives Foundation.

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Role: Professional with expertise in this field
Rating: 5 stars  

2 people found this review helpful

This organization has been on the forefront of getting information and services to parents with Williams Syndrome. I was contacted to provide a legal seminar regarding education for individuals with disabilities. I was very impressed.

Mario M. Blanch, Esq.

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Role: Professional with expertise in this field
Rating: 5 stars  

2 people found this review helpful

We are honored to be working with this wonderful foundation. As a foundation partner, we look for organizations with a similar mission and we believe that this Foundation far exceeds that. They have a commitment to the individuals they serve and are an invaluable asset to the Williams syndrome community.

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Role: Professional with expertise in this field
Rating: 5 stars  

2 people found this review helpful

Williams Syndrome Changing Lives Foundation continues to make an impact in the Williams Syndrome Community. They offer great support, resources and assistance. We would be lost without them!

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Role: Professional with expertise in this field
Rating: 5 stars  

3 people found this review helpful

Williams Syndrome Changing Lives Foundation goes above and beyond to provide great information and resources. I have collaborated with them on a few projects and I appreciate how professional and personable they all are.

How does this organization compare with others in the same sector?

Very Well

How much of an impact do you think this organization has?

Life-changing

Will you recommend this organization to others?

Definitely

When was your last experience with this nonprofit?

2014

Was this review helpful? 
Rating: 5 stars  

2 people found this review helpful

I am a volunteer and advisor for the Foundation and they are truly changing lives for families. They are dedicated and provide so many needed resources that are not otherwise available.

The also make sure that they have a variety of resources for parents and families.

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2014

Was this review helpful? 
1 previous review
Rating: 5 stars  

4 people found this review helpful

This organization has done so much for the Williams syndrome community. They know the needs and care about the families. Great Job!

How does this organization compare with others in the same sector?

Very Well

How much of an impact do you think this organization has?

Life-changing

Will you recommend this organization to others?

Definitely

When was your last experience with this nonprofit?

2013

Was this review helpful? 
1 previous review
Rating: 5 stars  

4 people found this review helpful

The Mission of the foundation is very much needed in our small community of parents of kids with Williams Syndrome. They seem to understand what the needs are.

Would you volunteer for this group again?

Likely

For the time you spent, how much of an impact did you feel your work or activity had?

A lot

Did the organization use your time wisely?

Quite well

Would you recommend this group to a friend?

Likely

When was your last experience with this nonprofit?

2012

Was this review helpful? 
Rating: 5 stars  

4 people found this review helpful

We have been working with Williams Syndrome Changing Lives Foundation to join forces in spreading awareness about Williams syndrome and other Rare Genetic Disorders. We have found them to be a group of dedicated individuals committed to their cause and purpose.

How does this organization compare with others in the same sector?

Very Well

How much of an impact do you think this organization has?

Life-changing

Will you recommend this organization to others?

Definitely

When was your last experience with this nonprofit?

2012

Was this review helpful?