1 person found this review helpful
Williams Syndrome Changing Lives Foundation
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Featured Review
April 5, 2013
1 person found this review helpful
Williams Syndrome Changing Lives Foundation helped us in a time when we thought there was no help. They offer educational material and HOPE for parents who first find out they have a William's Syndrome Child. They send out newsletters keeping parents informed of current WS news and inspirational stories to keep our chins up. The CEO, Penny Perez, is nothing less than a Saint. She is not only the CEO she is a parent to a child with William's Syndrome. My wife regularly seeks advice from her from advocating for our children to other general parental concerns. The non-profit is well executed and managed and makes a real difference in people's lives. Thank you Penny and William's Syndrome Changing Lives Foundation for all that you have done to help our family and our son Ethan (16mo old).
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How would you describe the help you got from this organization?
Life-changing
How likely are you to recommend this organization to a friend?
Definitely
How do you feel you were treated by this organization?
Very Well
When was your last experience with this nonprofit?
2013
April 9, 2013
1 person found this review helpful
Williams Syndrome Changing Lives has been there for my son when no one else was. Davion was having blood pressure issues and I needed a monitor for home to chart it. Telling Penny what was going on with Davion gave me someone to talk to that knew what I was going through since her son also ha WS and Autism which is unique for our children. Without even asking I had a monitor at my door step within 2 days, and a pre- designed chart to let me know when I should be concerned about his pressure. She also assisted with pull-ups since he had bladder issues and a sensory ball chair for school and home to help with his concentration while he worked. She is currently assisting me in getting Davion into summer camp for the second year. WSCLF is more then an asset to me and my sons life, they are irreplaceable.
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How would you describe the help you got from this organization?
Life-changing
How likely are you to recommend this organization to a friend?
Definitely
How do you feel you were treated by this organization?
Very Well
When was your last experience with this nonprofit?
2013
September 26, 2012
3 people found this review helpful
Listened to my concerns regarding my son and took action. Excellent service, made me feel like family.
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How would you describe the help you got from this organization?
Life-changing
How likely are you to recommend this organization to a friend?
Definitely
How do you feel you were treated by this organization?
Very Well
When was your last experience with this nonprofit?
2012
April 8, 2013
1 person found this review helpful
Williams Syndrome Changing Lives Foundation assisted my family and continues to be a resource for our concerns and needs. This is such a needed service and has made such a positive impact for our family. We are forever indebted to them.
Penny Perez, the founder continues to be available for us and any concerns. It has truly made a difference. Thank you.
More feedback...
How would you describe the help you got from this organization?
Life-changing
How likely are you to recommend this organization to a friend?
Definitely
How do you feel you were treated by this organization?
Very Well
When was your last experience with this nonprofit?
2013
November 8, 2012
1 person found this review helpful
Williams Syndrome Changing Lives Foundation helped my child with therapy needs and services. I am so thankful. We are struggling and there is no help out there for children to help with these services. Thanks to them, we have a plan for the remainder of the year for therapy services and other behavioral needs.
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How would you describe the help you got from this organization?
Life-changing
How likely are you to recommend this organization to a friend?
Definitely
How do you feel you were treated by this organization?
Very Well
When was your last experience with this nonprofit?
2012
April 5, 2013
1 person found this review helpful
I am very thankful for this foundation and it's work with my family. We knew very little about Williams Syndrome and what to expect. They walked us through so much and Penny was available to answer so many questions and provide information to our family.
We can't thank you enough and thank you for the resources.
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How would you describe the help you got from this organization?
Life-changing
How likely are you to recommend this organization to a friend?
Definitely
How do you feel you were treated by this organization?
Very Well
When was your last experience with this nonprofit?
2013
September 26, 2012
2 people found this review helpful
I am pleased to find the Williams Syndrome Changing Lives Foundation. My grandson has Williams Syndrome and the support this foundation offers is unbelievable. They have been available for answers and concerns for my grandson and they are available to provide financial assistance if it is needed for him. I am so thankful this is here and available for our family.
The Great!
I've personally experienced the results of this organization in...
My grandson's needs and this foundation helping his parents with their questions and concerns.
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Will you volunteer or donate to this organization?
Definitely
How much of an impact do you think this organization has?
Life-changing
When was your last experience with this nonprofit?
2012
How did you learn about this organization?
2 people found this review helpful
November 16, 2012
2 people found this review helpful
This is a wonderful organization that is doing some much to spread awareness and assist family with Williams Syndrome.
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How would you describe the help you got from this organization?
A lot
How likely are you to recommend this organization to a friend?
Definitely
How do you feel you were treated by this organization?
Very Well
When was your last experience with this nonprofit?
2012
2 people found this review helpful
November 16, 2012
2 people found this review helpful
I can't say enough about Williams Syndrome Changing Lives Foundation. My son has so many medical concerns and I contacted them for resources. They had someone call me and gave me hope for the future, talked to me about resources available and provided me so much information we didn't know. They helped us with WS Clinic services and resources and walked me through how to have my son seen and finally get some answers. We could never have hoped to get to see these specialists without their assistance. They have checked back in with us and let us know they are available for my family. Thank you for all you have done.
More feedback...
How would you describe the help you got from this organization?
Life-changing
How likely are you to recommend this organization to a friend?
Definitely
How do you feel you were treated by this organization?
Very Well
When was your last experience with this nonprofit?
2012
2 people found this review helpful
November 12, 2012
2 people found this review helpful
This is an amazing foundation. When our daughter tested positive for a serious infection following surgery, Penny and the WSCLF helped us out. They provided us with a weighter blanket that has helped tremendously with anxiety and pain issues, Preschool Prep DVDs since our daughter cannot attend school, various homeschooling resources, reusable Gtube pads, and further help in accessing a Williams Syndrome clinic. I am so grateful for the help and support from this foundation. Penny continues to ask how our daughter is doing and genuinely cares about the people and famiies she helps.
More feedback...
How would you describe the help you got from this organization?
Life-changing
How likely are you to recommend this organization to a friend?
Definitely
How do you feel you were treated by this organization?
Very Well
When was your last experience with this nonprofit?
2012
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