1 person found this review helpful
Williams Syndrome Changing Lives Foundation
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Featured Review
April 5, 2013
1 person found this review helpful
Williams Syndrome Changing Lives Foundation helped us in a time when we thought there was no help. They offer educational material and HOPE for parents who first find out they have a William's Syndrome Child. They send out newsletters keeping parents informed of current WS news and inspirational stories to keep our chins up. The CEO, Penny Perez, is nothing less than a Saint. She is not only the CEO she is a parent to a child with William's Syndrome. My wife regularly seeks advice from her from advocating for our children to other general parental concerns. The non-profit is well executed and managed and makes a real difference in people's lives. Thank you Penny and William's Syndrome Changing Lives Foundation for all that you have done to help our family and our son Ethan (16mo old).
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How would you describe the help you got from this organization?
Life-changing
How likely are you to recommend this organization to a friend?
Definitely
How do you feel you were treated by this organization?
Very Well
When was your last experience with this nonprofit?
2013
April 9, 2013
1 person found this review helpful
Williams Syndrome Changing Lives has been there for my son when no one else was. Davion was having blood pressure issues and I needed a monitor for home to chart it. Telling Penny what was going on with Davion gave me someone to talk to that knew what I was going through since her son also ha WS and Autism which is unique for our children. Without even asking I had a monitor at my door step within 2 days, and a pre- designed chart to let me know when I should be concerned about his pressure. She also assisted with pull-ups since he had bladder issues and a sensory ball chair for school and home to help with his concentration while he worked. She is currently assisting me in getting Davion into summer camp for the second year. WSCLF is more then an asset to me and my sons life, they are irreplaceable.
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How would you describe the help you got from this organization?
Life-changing
How likely are you to recommend this organization to a friend?
Definitely
How do you feel you were treated by this organization?
Very Well
When was your last experience with this nonprofit?
2013
September 26, 2012
3 people found this review helpful
Listened to my concerns regarding my son and took action. Excellent service, made me feel like family.
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How would you describe the help you got from this organization?
Life-changing
How likely are you to recommend this organization to a friend?
Definitely
How do you feel you were treated by this organization?
Very Well
When was your last experience with this nonprofit?
2012
April 9, 2013
The William Syndrome Changing Lives Foundation with Penny Perez as CEO is a valuable source of parenting information. Their Newsletter is just as eye-catching and well organized as many magazines. Parents raising children with special needs appreciate the information on their site, the Newsletter, their LinkedIn Group, Facebook Page, etc. This non-profit foundation is truly centered on increasing Williams syndrome awareness, increasing education for families, the public, physicians and therapists.
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Will you volunteer or donate to this organization?
Unsure
How much of an impact do you think this organization has?
Life-changing
When was your last experience with this nonprofit?
2013
October 1, 2012
2 people found this review helpful
We are happy to donate KidCompanions Chewelry to the William Syndrome Changing Lives Foundation for their fundraising project. We were impressed with the professional look of their Facebook page and web site. We felt this foundation has capable, caring parents behind it trying to make the lives of others easier and better. Glad to collaborate with such a group!
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Was your donation impactful?
Definitely
How likely is it that you would recommend that a friend donate to this group?
Definitely
How likely are you to donate to this group again?
Definitely
When was your last experience with this nonprofit?
2012
1 person found this review helpful
April 9, 2013
1 person found this review helpful
This website is such a valuable tool and resource for families with WS. It has helped us so much! I hope many more people benefit from it the same way we have!
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When was your last experience with this nonprofit?
2013
1 person found this review helpful
April 9, 2013
1 person found this review helpful
Williams Syndrome Changing Lives Foundation has been a huge savior for my family and I. I specially want to thank Penny Perez (CEO) for all the help she has supported me with! My gratitude to her and this foundation is infinite. Thank you Williams Syndrome Changing Lives Foundation. You have literally changed our lives :)
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Would you volunteer for this group again?
Definitely
For the time you spent, how much of an impact did you feel your work or activity had?
Life-changing
Did the organization use your time wisely?
Very Well
Would you recommend this group to a friend?
Definitely
When was your last experience with this nonprofit?
2013
April 9, 2013
I have worked with Williams Syndrome Changing Lives Foundation on a couple of projects and have found them to be completely professional and with a very clear vision.
I am honored to assist them with their efforts and will continue to do so. We will continue to reach out to them for information about Williams syndrome and their resources.
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How does this organization compare with others in the same sector?
Very Well
How much of an impact do you think this organization has?
Life-changing
Will you recommend this organization to others?
Definitely
When was your last experience with this nonprofit?
2013
1 person found this review helpful
April 9, 2013
1 person found this review helpful
Williams Syndrome Changing Lives Foundation is a wonderful resource of not just knowledge and understanding but so much more. They know where a family is coming from when they get a diagnosis and how distressing it can be to suddenly find that your path in life has changed! They support families in hard times both medically, financially as well as emotionally. Thank you WS Changing Lives Foundation for the wonderful work, support, assistance and HOPE that you give to so many families including my own.
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Will you volunteer or donate to this organization?
Definitely
How much of an impact do you think this organization has?
Life-changing
When was your last experience with this nonprofit?
2013
April 8, 2013
1 person found this review helpful
I am honored to assist WSCLF again this year in their awareness campaign. What a worthy cause! Thank you for allowing me to be part of it.
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Was your donation impactful?
Definitely
How likely is it that you would recommend that a friend donate to this group?
Definitely
How likely are you to donate to this group again?
Definitely
When was your last experience with this nonprofit?
2013
November 8, 2012
1 person found this review helpful
I am proud to donate to this wonderful organization that is committed to helping these kids and adults in need. I will continue to donate as I see the impact it is making in the life of so many families.
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Was your donation impactful?
Definitely
How likely is it that you would recommend that a friend donate to this group?
Definitely
How likely are you to donate to this group again?
Definitely
When was your last experience with this nonprofit?
2012
April 8, 2013
1 person found this review helpful
Williams Syndrome Changing Lives Foundation assisted my family and continues to be a resource for our concerns and needs. This is such a needed service and has made such a positive impact for our family. We are forever indebted to them.
Penny Perez, the founder continues to be available for us and any concerns. It has truly made a difference. Thank you.
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How would you describe the help you got from this organization?
Life-changing
How likely are you to recommend this organization to a friend?
Definitely
How do you feel you were treated by this organization?
Very Well
When was your last experience with this nonprofit?
2013
November 8, 2012
1 person found this review helpful
Williams Syndrome Changing Lives Foundation helped my child with therapy needs and services. I am so thankful. We are struggling and there is no help out there for children to help with these services. Thanks to them, we have a plan for the remainder of the year for therapy services and other behavioral needs.
More feedback...
How would you describe the help you got from this organization?
Life-changing
How likely are you to recommend this organization to a friend?
Definitely
How do you feel you were treated by this organization?
Very Well
When was your last experience with this nonprofit?
2012
April 8, 2013
1 person found this review helpful
I am completely impressed by the dedication of this foundation. The resources, the personal commitment and the work that is being done is amazing. I am honored to be able to be of assistance. Great work!
More feedback...
Was your donation impactful?
Definitely
How likely is it that you would recommend that a friend donate to this group?
Definitely
How likely are you to donate to this group again?
Definitely
When was your last experience with this nonprofit?
2013
September 28, 2012
1 person found this review helpful
Great organization that is doing great things for people with Williams Syndrome. I have donated and will continue to do so.
More feedback...
Was your donation impactful?
Definitely
How likely is it that you would recommend that a friend donate to this group?
Definitely
How likely are you to donate to this group again?
Definitely
When was your last experience with this nonprofit?
2012
What would you tell others about this organization?
Doing great things for others with Williams Syndrome
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