I'm continually encouraged by the work the institute is doing to help patients with neuro-immune diseases. The institute is committed to finding answers. I'm proud to regularly donate to the institute.
I think that the WPI and its founders/employees are trying their very best in a very difficult field. I am glad that they are persevering despite the theft of their documents and continue to do research regardless of people's misunderstandings.
Visited the WPI a year ago, but picked up on a few red flags: inquired about Dr. Peterson's office, but there wasn't one. They failed to mention he was in no way benefiting from the institute. And, took our donations. Also; there were no beds anywhere to be found, while Mrs. Whittemore's office had spared no expense! For the Whittemore's to even be associated with the Seeno family speaks volumes... Crooks!
The WPI have grossly mislead the ME community. They offered us hope in the form of research being done by Dr. Judy Mikovits. The patient community donated funding in the hope of receiving some treatment, donations many could ill afford but did it in the hope of a better future. We also spent precious energy voting for charitable donations for them.How we were taken in. We are left with no hope of treatment after the firing of Dr. Mikovits. The WPI are unwilling to return our donations which we now believe did not even reach the research lab. To say they have damaged the ME community is putting it mildly and in my own opinion the raise in ME suicides during this time I would cite WPI as one of the causes. Shame on them using their sick daughter to sucker money into an already very wealthy family. How can this fall under a non profit organisation when they were selling invalidated test for PROFIT?
The WPI has damaged ME Research attempts and many in the ME community have gone dramatically downhill healthwise in the past few months because of the WPI's ineptitude, callous treatment of patients and overall self serving attitude. I was a devoted donar and campaigner for all that I thought the WPI was until they showed their true colours sacking, dragging through the courts and jailing their only real hope of finding what ME really is. I will never support WPI again...it has done so much damage without even realising what they were doing. They are oblivious to this day, continuing to send out thank you cards to people who have openly voiced their dissatisfaction with the WPI. They are not to be trusted!
The WPI entered the world scientific stage in October 2009 with the discovery of a retrovirus, then known as XMRV in patients with ME/CFS. The discovery gave hope to millions suffering from neuro-immune diseases. The controversies that followed attest to the fact that truth is stranger than fiction. No one could have dreamed up what has happened. After encouraging family and friends to donate to WPI as I had, I now refuse to donate. The WPI has broken its trust with patients and I cannot see that trust ever being restored. We should have taken not when Dr. Dan Peterson left WPI shortly after the publication. He knew things the rest of us did not.
Since the firing of Dr. Mikovits the Whittemore Peterson Institute no longer has a retrovirologist on staff. Other remaining staff members are not qualified to carry out the research.
Since the firing of Dr. Mikovits the Whittemore Peterson Institute has neglected to answer numerous questions to the satisfaction of patients, donors, supporters, and the general public. The closing of the Whittemore Peterson Institute's facebook page has served to further severely restrict patient inquiry and two way communication. This lack of transparency is disrespectful and unacceptable.
I have changed from an ardent supporter to no longer supporting the wpi.
The Whittemore Peterson Institute carries out research into Neuro-immune disease and will soon open a clinic to serve patients. People with neuro-immune diseases such as myalgic encephalomyelitis ("CFS"), fibromyalgia, atypical MS and autism have long been ignored or poorly served by medical and research institutions.
I have an MS from Cornell University and an MA from the University of East Anglia in the UK. Contracting ME while working in East Africa in 2007, my career was brought to a sudden halt. I now have hope for recovery thanks to the work of the WPI. Like many other patients, I support them with a small monthly donation. However much larger contributions are needed if research is to continue, and for the clinic to serve the approximately one million + patients in the US with neuro-immune disease.
The WPI is the best institute wordwide to research and advocate for patients with ME/CFS.
Their dedication and honesty should set an example for others in the field.
I support their work 100%.
Review from Guidestar
WPI is an excellent institution. It is performing cutting edge research into neuro-immune diseases and will be opening clinical faciilities later this year.
Review from Guidestar