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79 Reviews
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April 3, 2013
1 person found this review helpful

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April 3, 2013
1 person found this review helpful

The Whittemore-Peterson Institute provides hope for patients with ME through hard work of research. I am thankful for the Whittemore and their research team led by Dr Lombardi because their hard work to build the institute from ground zero is paying off.

Recently Dr Lombardi published a
paper in collaboration with other scientists from around the world. This cutting edge work provides new clues for patho-physiology and ethiology of our illmess. i am sure more work is under way and I am looking forward to the next publication.

i am convinced that the work of WPI will make a difference for all patients. Thank you and keep upthe good work!

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Will you volunteer or donate to this organization?

Likely

How much of an impact do you think this organization has?

Life-changing

When was your last experience with this nonprofit?

2013

July 24, 2012
1 person found this review helpful

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Review from Guidestar
July 24, 2012
1 person found this review helpful

The Whittemore Peterson Institute is dedicated to finding answers for people with diseases that for most of their lives, were told do not exist. My sister has had ME/CFS for over 20 years, and the WPI remains one of the only places she can turn to for answers and real hope for the future. Thank you WPI for the work you are doing on behalf of my sister, and all the patients looking for answers!!

More feedback...

Will you volunteer or donate to this organization?

Definitely

How much of an impact do you think this organization has?

Life-changing

When was your last experience with this nonprofit?

2012

April 27, 2012
8 people found this review helpful

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April 27, 2012
8 people found this review helpful

What a huge disappointment Mr. & Mrs. Whittemore have been on the whole ME (CFS) community. I feel bad for everyone who has invested in them. Hope is still out there, just no longer at the WPI.

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Will you volunteer or donate to this organization?

No

How much of an impact do you think this organization has?

A little

When was your last experience with this nonprofit?

2012

April 24, 2012
13 people found this review helpful

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April 24, 2012
13 people found this review helpful

All I have to say is I hope Harvey Whittemore goes to prison, and his wife Annette is forced to live in a trailer for taking so much from this entire community. Although; they seem to believe they've done them a favor!

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Will you volunteer or donate to this organization?

No

How much of an impact do you think this organization has?

Life-changing

When was your last experience with this nonprofit?

2012

April 18, 2011
2 people found this review helpful

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April 18, 2011
2 people found this review helpful

Other organizations, especially those who deal with chronic illnesses, should take note. WPI gives us something we have never had before: HOPE.
May God bless each and every one of you.
Thank you for all you do.

The Great!

I've personally experienced the results of this organization in...

The WPI has helped educate me, and everyone who reads their updates, and the all of the information they provide to those of us who suffer from ME. Never in history (that I am aware of) have patients had to do their own research, and learn as much as we have to learn about the disease we suffer from. Many of us know more about it than our doctors. The WPI is an invaluable resource.

Ways to make it better...

If I had to make changes to this organization, I would...

Win the lottery to really, really help fund the WPI's research!

April 18, 2011

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April 18, 2011

When no one else would do the hard work to help all those afflicted with ME/CFS, this organization decided to tackle the illusive answers. They have been dedicated to helping the sufferers find relief from a life stealing illness even when some in the scientific community did not back their hard work. They have persevered with more science and more research, and are doing incredible work toward helping millions! I am very grateful for these goals and WPI's steadfast dedication.

The Great!

I've personally experienced the results of this organization in...

benefiting from the results of life changing research into the immune system and viral activation, expanding the knowledge base of physicians and researchers worldwide.

Ways to make it better...

If I had to make changes to this organization, I would...

Give them more money so they had more resources to continue and expand the work they do.

February 28, 2011
1 person found this review helpful

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Review from Guidestar
February 28, 2011
1 person found this review helpful

WPI discovered XMRV and as a result put to rest the idea that Chronic Fatigue Syndrome and Autism are psychiatric conditions. They want to find the answers for all of us affected. They need the funds to do the science so they may continue their efforst bring new treatments for both of these conditions and possibly all kinds of cancers They are extremely dedicated to finding the answers that will give our children a future.
Marcia Hinds

The Great!

I've personally experienced the results of this organization in...

Seen the results of their research and their dedication to finding the answers

Ways to make it better...

If I had to make changes to this organization, I would...

Help them get the funds so this will finally be done for all of us.

February 28, 2011

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Review from Guidestar
February 28, 2011

WPI's claim to fame is the discovery of XMRV in ME/CFS and a growing list of neuro-immune diseases such as Fibromyalgia, chronic Lyme, Gulf War Syndrome, autism, Parkinson's, etc. The list is growing.

Interesting is that they also found it in the general population at a 4% rate. That's
about 12 million people in the USA. This is a sleeping epidemic of Gargantuan implications.

WPI is the right organization to investigate further into the effects of this retrovirus (XMRV) in neuro-immune diseases.

The Great!

I've personally experienced the results of this organization in...

Results are pending further research efforts.

Ways to make it better...

If I had to make changes to this organization, I would...

Ensure they have ample funding for their research and clinical efforts.

More feedback...

Will you volunteer or donate to this organization?

Definitely

How much of an impact do you think this organization has?

Life-changing

How did you learn about this organization?

news

When was your last experience with this nonprofit?

2011

February 27, 2011

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Review from Guidestar
February 27, 2011

The team of dedicated scientists at the Whittemore Peterson Institute is working to find a cure or effective treatment for the neuroimmune disease ME/CFS. They have provided hope to the estimated 25% of suffers who are severely affected, bedridden and unable to communicate or tolerate light and sound. My family has benefited from the WPI's ground breaking research published in Science and its informative lectures delivered over the web.

The Great!

I've personally experienced the results of this organization in...

My everyday life. The WPI has provided hope where there was none.

Ways to make it better...

If I had to make changes to this organization, I would...

replicate the institute so patients throughout the US and internationally could have access to the WPI's expertise.

More feedback...

Will you volunteer or donate to this organization?

Definitely

How much of an impact do you think this organization has?

Life-changing

How did you learn about this organization?

Through the internet and media reports of the WPI's research.

When was your last experience with this nonprofit?

2010

February 21, 2011

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February 21, 2011

Our deepest thanks to the WPI for accepting our Grandson, Ryan Baldwin, for XMRV testing. The results provided to our family were
extremely beneficial . I hope that the WPI also gained additional knowledge concerning ME/CFS through the use of his blood sample.

The results helped
in our fight to free Ryan from the Department of
Social Services' (DSS) unauthorized medical experiment that they
conducted for 10 months, attempting to prove that he was not truly
ill and did not have CFS.

The Great!

I've personally experienced the results of this organization in...

My Grandson was involved in the XMRV testing by the WPI.

Ways to make it better...

If I had to make changes to this organization, I would...

Attempt to get more funding for their important research.

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