Whittemore Peterson Institute

Rating: 4.16 stars   79 reviews

Issues:

Location: University of Nevada, Reno - MS 0552 1664 N. Virginia Street Reno NV 89557-0552 USA

Mission: The Whittemore Peterson Institute for Neuro-Immune Disease exists to bring discovery, knowledge, and effective treatments to patients with illnesses that are caused by acquired dysregulation of both the immune system and the nervous system, often resulting in life long disease and disability.
Results: WPI has devoted millions of dollars directly to research for neuro-immune diseases. Whether you are a patient, a volunteer, or someone impacted by the disease, there are many ways you can make a difference in the quest for answers. Contact us at any time about how you can help. Contact us: info@wpinstitute.org
Target demographics: HELP WPI FIND A CURE 17,000,000 suffer from neuro-immune disease. There is no cure or any treatment approved by the FDA. 1 in 300 suffers from ME and CFS 1 in 150 suffers from fibromyalgia 1 in 110 children falls within autism spectrum disorder Lyme disease is a fast growing epidemic in the U.S. (Many sufferers go on to develop a chronic illness identical to ME and CFS) 225,000 service men of the 600,000 from the 1991 Gulf War have a multisymptom illness similar to ME and CFS called Gulf War illness (GWI)
Geographic areas served: Worldwide
Programs: Research is the key to understanding how and why these complex diseases occur. In addition to our own labs, we are leveraging an international network of dedicated virologists, immunologists, geneticists and other highly skilled researchers. Our driving goal is to translate this work into meaningful treatments, and someday a cure, for the patients who inspire us. http://www.wpinstitute.org/research/research_overview.html
2011 Top-Rated Nonprofit
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EIN 20-5904991
775-682-8250
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Community Reviews

Rating: 5 stars  

1 person found this review helpful

The Whittemore-Peterson Institute provides hope for patients with ME through hard work of research. I am thankful for the Whittemore and their research team led by Dr Lombardi because their hard work to build the institute from ground zero is paying off.

Recently Dr Lombardi published a paper in collaboration with other scientists from around the world. This cutting edge work provides new clues for patho-physiology and ethiology of our illmess. i am sure more work is under way and I am looking forward to the next publication.

i am convinced that the work of WPI will make a difference for all patients. Thank you and keep upthe good work!

Will you volunteer or donate to this organization?

Likely

How much of an impact do you think this organization has?

Life-changing

When was your last experience with this nonprofit?

2013

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Thank you Kati for your very helpful and kind review.

Rating: 5 stars  

1 person found this review helpful

The Whittemore Peterson Institute is dedicated to finding answers for people with diseases that for most of their lives, were told do not exist. My sister has had ME/CFS for over 20 years, and the WPI remains one of the only places she can turn to for answers and real hope for the future. Thank you WPI for the work you are doing on behalf of my sister, and all the patients looking for answers!!

Will you volunteer or donate to this organization?

Definitely

How much of an impact do you think this organization has?

Life-changing

When was your last experience with this nonprofit?

2012

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Review from Guidestar
Role: General Member of the Public
Rating: 1 stars  

8 people found this review helpful

What a huge disappointment Mr. & Mrs. Whittemore have been on the whole ME (CFS) community. I feel bad for everyone who has invested in them. Hope is still out there, just no longer at the WPI.

Will you volunteer or donate to this organization?

No

How much of an impact do you think this organization has?

A little

When was your last experience with this nonprofit?

2012

Was this review helpful? 

We are sorry that you feel this way. The Whittemore's continue to support the WPI, on behalf of all those who suffer from neuro-immune diseases, through their donations and hard work. The Whittemore's past business related conflicts have been settled and have not interfered with the important work of the institute or its critical mission. To learn more about the institute please visit our website. If you have other questions, comments or concerns please write to info@wpinstitute.org. Thank you, WPI staff

Rating: 1 stars  

13 people found this review helpful

All I have to say is I hope Harvey Whittemore goes to prison, and his wife Annette is forced to live in a trailer for taking so much from this entire community. Although; they seem to believe they've done them a favor!

Will you volunteer or donate to this organization?

No

How much of an impact do you think this organization has?

Life-changing

When was your last experience with this nonprofit?

2012

Was this review helpful? 
Rating: 5 stars  

2 people found this review helpful

Other organizations, especially those who deal with chronic illnesses, should take note. WPI gives us something we have never had before: HOPE.
May God bless each and every one of you.
Thank you for all you do.

I've personally experienced the results of this organization in...

The WPI has helped educate me, and everyone who reads their updates, and the all of the information they provide to those of us who suffer from ME. Never in history (that I am aware of) have patients had to do their own research, and learn as much as we have to learn about the disease we suffer from. Many of us know more about it than our doctors. The WPI is an invaluable resource.

If I had to make changes to this organization, I would...

Win the lottery to really, really help fund the WPI's research!

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Rating: 4 stars  

When no one else would do the hard work to help all those afflicted with ME/CFS, this organization decided to tackle the illusive answers. They have been dedicated to helping the sufferers find relief from a life stealing illness even when some in the scientific community did not back their hard work. They have persevered with more science and more research, and are doing incredible work toward helping millions! I am very grateful for these goals and WPI's steadfast dedication.

I've personally experienced the results of this organization in...

benefiting from the results of life changing research into the immune system and viral activation, expanding the knowledge base of physicians and researchers worldwide.

If I had to make changes to this organization, I would...

Give them more money so they had more resources to continue and expand the work they do.

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Rating: 5 stars  

1 person found this review helpful

WPI discovered XMRV and as a result put to rest the idea that Chronic Fatigue Syndrome and Autism are psychiatric conditions. They want to find the answers for all of us affected. They need the funds to do the science so they may continue their efforst bring new treatments for both of these conditions and possibly all kinds of cancers They are extremely dedicated to finding the answers that will give our children a future.
Marcia Hinds

I've personally experienced the results of this organization in...

Seen the results of their research and their dedication to finding the answers

If I had to make changes to this organization, I would...

Help them get the funds so this will finally be done for all of us.

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Review from Guidestar
Role: General Member of the Public
Rating: 5 stars  

WPI's claim to fame is the discovery of XMRV in ME/CFS and a growing list of neuro-immune diseases such as Fibromyalgia, chronic Lyme, Gulf War Syndrome, autism, Parkinson's, etc. The list is growing.

Interesting is that they also found it in the general population at a 4% rate. That's about 12 million people in the USA. This is a sleeping epidemic of Gargantuan implications.

WPI is the right organization to investigate further into the effects of this retrovirus (XMRV) in neuro-immune diseases.

I've personally experienced the results of this organization in...

Results are pending further research efforts.

If I had to make changes to this organization, I would...

Ensure they have ample funding for their research and clinical efforts.

Will you volunteer or donate to this organization?

Definitely

How much of an impact do you think this organization has?

Life-changing

How did you learn about this organization?

news

When was your last experience with this nonprofit?

2011

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Review from Guidestar
Role: General Member of the Public
Rating: 5 stars  

The team of dedicated scientists at the Whittemore Peterson Institute is working to find a cure or effective treatment for the neuroimmune disease ME/CFS. They have provided hope to the estimated 25% of suffers who are severely affected, bedridden and unable to communicate or tolerate light and sound. My family has benefited from the WPI's ground breaking research published in Science and its informative lectures delivered over the web.

I've personally experienced the results of this organization in...

My everyday life. The WPI has provided hope where there was none.

If I had to make changes to this organization, I would...

replicate the institute so patients throughout the US and internationally could have access to the WPI's expertise.

Will you volunteer or donate to this organization?

Definitely

How much of an impact do you think this organization has?

Life-changing

How did you learn about this organization?

Through the internet and media reports of the WPI's research.

When was your last experience with this nonprofit?

2010

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Review from Guidestar
Role: General Member of the Public
Rating: 5 stars  

Our deepest thanks to the WPI for accepting our Grandson, Ryan Baldwin, for XMRV testing. The results provided to our family were
extremely beneficial . I hope that the WPI also gained additional knowledge concerning ME/CFS through the use of his blood sample.

The results helped in our fight to free Ryan from the Department of
Social Services' (DSS) unauthorized medical experiment that they
conducted for 10 months, attempting to prove that he was not truly
ill and did not have CFS.

I've personally experienced the results of this organization in...

My Grandson was involved in the XMRV testing by the WPI.

If I had to make changes to this organization, I would...

Attempt to get more funding for their important research.

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