Whittemore Peterson Institute

Rating: 4.16 stars   79 reviews

Issues:

Location: University of Nevada, Reno - MS 0552 1664 N. Virginia Street Reno NV 89557-0552 USA

Mission: The Whittemore Peterson Institute for Neuro-Immune Disease exists to bring discovery, knowledge, and effective treatments to patients with illnesses that are caused by acquired dysregulation of both the immune system and the nervous system, often resulting in life long disease and disability.
Results: WPI has devoted millions of dollars directly to research for neuro-immune diseases. Whether you are a patient, a volunteer, or someone impacted by the disease, there are many ways you can make a difference in the quest for answers. Contact us at any time about how you can help. Contact us: info@wpinstitute.org
Target demographics: HELP WPI FIND A CURE 17,000,000 suffer from neuro-immune disease. There is no cure or any treatment approved by the FDA. 1 in 300 suffers from ME and CFS 1 in 150 suffers from fibromyalgia 1 in 110 children falls within autism spectrum disorder Lyme disease is a fast growing epidemic in the U.S. (Many sufferers go on to develop a chronic illness identical to ME and CFS) 225,000 service men of the 600,000 from the 1991 Gulf War have a multisymptom illness similar to ME and CFS called Gulf War illness (GWI)
Geographic areas served: Worldwide
Programs: Research is the key to understanding how and why these complex diseases occur. In addition to our own labs, we are leveraging an international network of dedicated virologists, immunologists, geneticists and other highly skilled researchers. Our driving goal is to translate this work into meaningful treatments, and someday a cure, for the patients who inspire us. http://www.wpinstitute.org/research/research_overview.html
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EIN 20-5904991
775-682-8250
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Community Reviews

Rating: 5 stars  

1 person found this review helpful

It's a shame that personal comments by overly emotional individuals are allowed on Guidestar, jeopardizing the rating of an institute that is only trying to help the ME community. WPI's goal has always been to help severly ill people by solving the mysteries surrounding ME. WPI has helped legitimize a seriously debilitating disease and I believe they will continue to make a difference.

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2012

Was this review helpful? 

Thank you so much for your very kind review of Whittemore Peterson Institute. Thank you for your hard work and dedication to our volunteer committee as well.

Rating: 5 stars  

1 person found this review helpful

I have personally volunteered for WPI and I am confident that they are making a difference. It is sad that there are such harsh and bitter reviews. Just remember that most people review to complain rather than to say something positive.

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2009

Was this review helpful? 
Rating: 5 stars  

1 person found this review helpful

I am a proud volunteeer and supporter of the Whittemore Peterson Institute. From the day-to-day work to the annual fundraiser event "I Hope You Dance", I have seen how many lives this organzitation positively touches and gives hope to so many people that didn't have answers before.

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2012

Was this review helpful? 
Rating: 4 stars  

2 people found this review helpful

I have volunteered with WPI for many years now. There are many different times during the year to help. Whether it's asking others to donate, advocate on a patients behalf, or help get auction items for the annual I Hope You Dance event, they always appreciate the help. WPI is trying to find answers for my family members who suffer from neuro-immune disease. I am grateful to give back anyway I can as they give so much to me. This place gives me hope. That is a wonderful gift to give and receive.

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

A lot

Did the organization use your time wisely?

Quite well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2011

Was this review helpful? 
Rating: 4 stars  

1 person found this review helpful

I love volunteering with this organization . These are the kindest hardest working people I know. They are so helpful and thankful for anything you can do. They personally write , call and interact with as many people as they can. They receive 100's of emails Amd phonecalls and one person I watched listened to a patient for 30 minutes who literally said she had no one else to talk to. I've volunteered before but WPI makes you feel at home.

I've personally experienced the results of this organization in...

Watching how they interact with friends , family and with very sick individuals. I've watched their event from the very beginning . I've watched how they've interacted through social media sites and do the very best they can.

If I had to make changes to this organization, I would...

Give them more money for imperative research and clinic. hire more staff they have so few people to do such an amazing large job! Their budget is way too small for what an impact they have made worldwide!!!

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Rating: 5 stars  

1 person found this review helpful

Most research organizations exclude severely ill CFS patients from their studies, by making participation difficult for patients who are unable to leave their homes or their beds to donate specimens. The WPI includes these patients by sending phlebotomists into the homes to collect the specimens. The WPI understands that CFS is not caused by "false illness beliefs."

I've personally experienced the results of this organization in...

I’ve personally experienced the hope engendered by this organization, which takes the disease seriously and is fighting to find a treatment.

If I had to make changes to this organization, I would...

This is the best organization in the history of this disease--the sort of organization I dreamed about for years.

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Review from Guidestar
Rating: 5 stars  

1 person found this review helpful

WPI is a small, but mighty group of dedicated scientists and doctors who are one of the few institutions actually looking at the biological basis and science behind many neuroimmune illnesses including CFS/ME, autism, parkinson's, MS, and more. Looking at how the rates of "autism" have soarded- now estimated to be affecting one in every 91 children in the US, it's clear there's an infectious basis. While other organizationss waste time and money looking to exercise the demons from the CFS patients, WPI found a retrovirus that's causing persisten infection. This is a ground breaking discovery that urgently needs and deserves funding. It's esitmated 17 million individuals are living, and dying of CFS/ME- and that's not including other neuro-immune disorders like autism and MS. There is no worthier cause.

I've personally experienced the results of this organization in...

WPI has helped me make decisions about my health and has consulted with my doctors to ensure I am getting medical treatments, not just useless psychobabble

If I had to make changes to this organization, I would...

provide them with more staff and more funding. They are doing an excellent job! Clone them!

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2011

Was this review helpful? 
Review from Guidestar
Rating: 5 stars  

I have been on disability over 15 years and until WPI discovered XMRV I had no hope of finding a cause for my illness in my lifetime. I tested positive for XMRV so every time someone tries to bury it the WPI fights back. They are my hero!

I've personally experienced the results of this organization in...

I am positive so am looking forward to any treatments that come out of this discovery.

If I had to make changes to this organization, I would...

Give them more money for research!

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Review from Guidestar
Rating: 5 stars  

The WPI is a shining star in a very dark world!

Thank you WPI for your groundbreaking work!!

I've personally experienced the results of this organization in...

lab testing

If I had to make changes to this organization, I would...

give them more funding!

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Review from Guidestar
Rating: 5 stars  

I am impressed with The Whittemore Peterson Institute because of the Whittemores dedication to finding a cure for M.E., along with other neuroimmune diseases such as autism, MS, Fibromyalgia, etc. The Whittemores have personally donated over 3 million dollars of their own money to fund the research into the cause, cure, and/or treatment of M.E.

For the first time in 27 years, patients with M.E. have hope, and this is because the WPI has dedicated themselves to finding a cure for M.E. WPI is the one true organization who truly represents all of us with M.E. worldwide.

I've personally experienced the results of this organization in...

I have personally experienced the results of this organization in the area of research, and the dedication that WPI extends to all of us affected by neuroimmune diseases. One of the most important things i have experienced is hope, which I have not had for 27 previous years.

If I had to make changes to this organization, I would...

The only changes i would make to this organization would be to give them more money, so that they may open hospitals and clinics all over the world.

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