Whittemore Peterson Institute

Rating: 4.16 stars   79 reviews

Issues:

Location: University of Nevada, Reno - MS 0552 1664 N. Virginia Street Reno NV 89557-0552 USA

Mission: The Whittemore Peterson Institute for Neuro-Immune Disease exists to bring discovery, knowledge, and effective treatments to patients with illnesses that are caused by acquired dysregulation of both the immune system and the nervous system, often resulting in life long disease and disability.
Results: WPI has devoted millions of dollars directly to research for neuro-immune diseases. Whether you are a patient, a volunteer, or someone impacted by the disease, there are many ways you can make a difference in the quest for answers. Contact us at any time about how you can help. Contact us: info@wpinstitute.org
Target demographics: HELP WPI FIND A CURE 17,000,000 suffer from neuro-immune disease. There is no cure or any treatment approved by the FDA. 1 in 300 suffers from ME and CFS 1 in 150 suffers from fibromyalgia 1 in 110 children falls within autism spectrum disorder Lyme disease is a fast growing epidemic in the U.S. (Many sufferers go on to develop a chronic illness identical to ME and CFS) 225,000 service men of the 600,000 from the 1991 Gulf War have a multisymptom illness similar to ME and CFS called Gulf War illness (GWI)
Geographic areas served: Worldwide
Programs: Research is the key to understanding how and why these complex diseases occur. In addition to our own labs, we are leveraging an international network of dedicated virologists, immunologists, geneticists and other highly skilled researchers. Our driving goal is to translate this work into meaningful treatments, and someday a cure, for the patients who inspire us. http://www.wpinstitute.org/research/research_overview.html
2011 Top-Rated Nonprofit
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EIN 20-5904991
775-682-8250
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Community Reviews

Role: General Member of the Public
Rating: 5 stars  

The Whittemore Peterson institute has basically kept me alive since October, 2009 with their discovery of a new human retrovirus. This has given me new hope, that possibly I won't have to feel this sick for the rest of my life. They are the most caring and compassionate people one could hope for when suffering from a terrible illness. I can't thank them enough for all their hard work during such trying times. James Hall

I've personally experienced the results of this organization in...

feedback, testing and a wealth of knowledge

If I had to make changes to this organization, I would...

fight to get them more research money to continue their extraordinary work

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Review from Guidestar
Rating: 5 stars  

Millions of people world wide are debilitated with an illness that has no treatment, and little meaningful research and funding from our federal health agencies.

The Whittemore Peterson Institute has taken it upon themselves to conduct solid research and seek effective treatment for M.E. Because of the work they do, I have hope that I may be able to recover from M.E. and one day lead a normal life.

I've personally experienced the results of this organization in...

My doctor now has better understanding of M.E., thanks to the WPI's research.

If I had to make changes to this organization, I would...

No changes, just get them more funding to keep doing what they are doing.

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Review from Guidestar
Rating: 5 stars  

WPI stands alone in it's approach to the science of ME and the suffering endured by millions - as a result of the disease and the policy of UK and US governments. Those with ME have been their own researchers, physicians and donors for research for decades. I have very little state benefit but send what money I can to WPI whilst doing all I can to campaign for a change in policy. To say that the WPI is like a beacon in the dark is an understatement - and there are more than 17 million ME sufferers that are hidden from most people's view. Please help the WPI to help us, the sufferers, for there is virtually no other organisation/ charity that can do such an effective job. The Lombardi et al 2009 paper was groundbreaking research and may lead to treatments for other folk effected by XMRV/ MLV such as those with autism, prostate cancer, atypical MS, Fibromyalgia, Lyme Disease and others.

I've personally experienced the results of this organization in...

helping to lobby the UK and Scottish governments to change their policy on ME - without their work, I could not be as effective in my campaigning.

If I had to make changes to this organization, I would...

have WPI representation in every country on the planet. I would also like to clone their staff for the benefit of mankind!

Was your donation impactful?

Definitely

How likely is it that you would recommend that a friend donate to this group?

Definitely

How likely are you to donate to this group again?

Definitely

What specific problem, purpose, priority, or project prompted your gift?

the fact that government funding is not being made available and that they are dependent on impoverished ME sufferers and their friends/ families. No one else is fighting as hard as they are to improve or save my life and millions of others affected by ME/ XMRV/ MLV. I also believe that they can radically progress the quality of life for those affected by autism.

Why did you make your donation at this time?

I am making regular donations - there is little else that I am capable of doing.

What would you tell others about this organization?

if you want to help the ME cause, WPI is the only option.

When was your last experience with this nonprofit?

2011

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Review from Guidestar
Rating: 5 stars  

Thanks solely to the WPI, people with Myalgic Encephalomyelitis (ME/CFS) and other poorly understood neuro-immune illnesses finally have hope of understanding the disease processes and treatment that works.

They are almost entirely privately funded, and yet they are doing work that is vital to millions around the world.

The WPI is where the money should go.

I've personally experienced the results of this organization in...

Changing the outlook for people like me with ME/CFS

If I had to make changes to this organization, I would...

Give them loads of money to continue doing their important work

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Review from Guidestar
Role: General Member of the Public
Rating: 5 stars  

This institute has done stunning work in the face of much adversity. The best thing to have happened in the US in the past 50 years.

I've personally experienced the results of this organization in...

many ways.

If I had to make changes to this organization, I would...

I can't criticize it

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Review from Guidestar
Role: General Member of the Public
Rating: 5 stars  

I am one of millions worldwide diagnosed with myalgic encephalomyelitis (also known as CFS), and have been mostly bedbound or housebound for 25 years. Such severity and chronicity of illness is not unusual for this condition yet despite the enormous burden for sufferers, families and society, little research is done and we are left without any effective treatment.

In a short period of time, the WPI has discovered the possibility that a new retrovirus (XMRV) might be causing our illness. This has transformed the situation; suddenly, top-level researchers such as those virologists who discovered Hepatitis C have entered the research field and for the first time in my lifetime, I feel that there is a chance of some help for us all.

I live in the UK and like other countries around the world we are looking to the WPI to help. Our own governments and research institutions are doing nothing. It is impossible to overstate the importance of the WPI in the hopes of millions of patients all over the world.

I've personally experienced the results of this organization in...

Giving me hope for effective treatment for my illness and for getting my life back - and the same for other patients.

If I had to make changes to this organization, I would...

I would make no changes - they are already amazing.

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Review from Guidestar
Rating: 5 stars  

Just a couple of years after its founding, WPI is the clear world leader in the science of neuro-immune diseases including ME. They were founded with a $5M donation from the Whittemore family, whose daughter Andrea suffers from ME. They do incredible high-level science, collaborating on studies with NCI and Cleveland Clinic. Their work has been also been confirmed by NIH, FDA, Harvard and Cornell Med Schools.

Unfortunately, NIH has not granted WPI any money, so it must rely on patient donations. PLEASE SUPPORT WPI any way you can including financially!

I've personally experienced the results of this organization in...

being positively impacted by WPI's work, like every pwME.

If I had to make changes to this organization, I would...

get them a lot more funding.!

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Review from Guidestar