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June 28, 2011

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June 28, 2011

I was diagnosed with Prostrate Cancer in May 2010 and I was totally devastated. I checked with several of my trusted doctors for advise but my urologist was new to me. I did some immediate research on Google and found my local US T00 at the Mayo Clinic. I went to my first meeting just before my Radical Prost surgery and I am so glad that I went. I met many people(couples supporting their husbands) and I was able to make up my mind to do the surgery. Thank goodness for your organization!! Three months after my surgery, I went back to an US TOO meeting to try and help someone else make up their individual minds about surgery or chemo. Your organization is worth its weight in gold and helps many people. Thanks again.

The Great!

I've personally experienced the results of this organization in...

going to meetings and participating in all activities such as erectile disfunction advisaries and the like.

Ways to make it better...

If I had to make changes to this organization, I would...

I can't see the need for changes at this time with the organization. It helps people both with moral and spiritual support.

June 28, 2011

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June 28, 2011

The organization is doing a wery good job.As a prostate cancer patient I received very useful books and a lot of information about prostate cancer.They tried hard to reach many of us to help , to be an informen pacient
Les

The Great!

I've personally experienced the results of this organization in...

Choosing the treatment I got help from US TOO

Ways to make it better...

If I had to make changes to this organization, I would...

I will not make any changes

June 27, 2011

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June 27, 2011

I found USTOO when I was diagnosed with Prostate Cancer. Its Prostatepointers "RP" site was a tremendously valuable aid for me as I waded through all the information out there to try to come to a decision regarding what treatment option I should pursue.

Then, after my surgery, its
"PCAI" site was equally valuable (and continues to be) as I wrestled with the aftereffects of my surgery.

But most important to each of these sites is the camaraderie, knowledge, and spirit of giving and caring on the part of the people who regularly contribute to these sites.

The Great!

I've personally experienced the results of this organization in...

I've personally experienced the results of this organization in the way that I have approached my diagnosis and reaction to being diagnosed with prostate cancer. Without the support of the people and resources of USTOO it would have been a much more difficult journey for me.

Ways to make it better...

If I had to make changes to this organization, I would...

... the only suggestion I would make is to develop archive function for the PCAI portion of the prostatepointers website.

June 27, 2011

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June 27, 2011

I attend monthly meetings of the Sun City West, AZ chapter of UsTOO. A great bunch of folks, husbands, wives, cancer survivors and people with Cancer who need help and support while making decisions for future treatment. Our leader is very knowlegable and very helpful with a library of books, websites and other resources that are helpful for our members. We have guest speakers, but the best meetings revolve around discussions, questions and answers. I can't thank the group enough for all of the help they have given me.

The Great!

I've personally experienced the results of this organization in...

being able to adjust to the fact taht I have cancer, but can still hope for a long and useful life.

Ways to make it better...

If I had to make changes to this organization, I would...

do nothing to change it, but encourage more friends and acquaintances with prostate cancer to attend the meetings and to spread the word of the group.

June 27, 2011

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June 27, 2011

US TOO is a excellent charitable organization that provides great information via web (hot sheets) and suppor groups in the fight against Prostate Cancer. I personally have participated in a local support group and have derived much satisfaction from the experience . I enjoy the camaraderie and knowledge sharing. US TOO seems to do an excellent job in promoting awareness.

The Great!

I've personally experienced the results of this organization in...

Use of their materials via web and local support group.

Ways to make it better...

If I had to make changes to this organization, I would...

None off the top of my head without me analysis.

More feedback...

How much of an impact do you think this organization has?

A lot

How did you learn about this organization?

Web & via a Local Cancer Org

When was your last experience with this nonprofit?

2011

June 27, 2011

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June 27, 2011

I WAS DIAGNOSED WITH PROSTATE CANCER IN AUGUST 2006 . I HAD SEED IMPLANTS IN DEC. 2006 . I HAVE HAD NO SIDE EFFECTS UNFORTUNATELY , AFTER REACHING A NADIR OF .2 IN 2009 MY LAST THREE PSA 'S HAVE RISEN SLIGHTLY. IN APRIL OF THIS YEAR IT REACHED .8 . I WILL HAVE ANOTHER PSA IN JULY AFTER A MONTH OF CIPRO. I TRULY APPRECIATE ORGANIZATIONS LIKE US TOO , SEEDPODS , AND OTHERS FOR THEIR SUPPORT AND I WILL CONTINUE TO ANTICIPATE THEIR FUTURE SUPPORT IN OUR FIGHT AGAINST THIS DISEASE.

The Great!

I've personally experienced the results of this organization in...

ADVICE ABOUT P CA

Ways to make it better...

If I had to make changes to this organization, I would...

JUST CONTINUE TO DRAW UPON THEIR RESOURCES AND SUPPORT

June 27, 2011

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June 27, 2011

I am six months post operative from prostate cancer, traditional open radical prostatectomy and have found this support group to be very informative, supporting and has provided me with the guidance I need for on going recovery. With the support of Prostate Pointers discussion communities I have the knowledge to address my physicians questions and provide them with information I may have not addressed without the help of this community.

The Great!

I've personally experienced the results of this organization in...

Recovery and rehabilitation techniques that I wouldn't have considered without them.

Ways to make it better...

If I had to make changes to this organization, I would...

Get more local groups started within my region.

June 27, 2011

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June 27, 2011

US TOO was the first organization i consulted when i was diagnosed with prostate cancer It was so scary for me but they were there for support and advice....the prostate pointers selection is unbelievably informative.....the members experience is more informative than the medical communities opinions....the doctors that do participate, dr strum and israel barken are the most informed doctors i've met and that includes the big medical center in which i'm a patient. i religiously check this site for new information and guidance from the people who have to live with this condition

The Great!

I've personally experienced the results of this organization in...

this organization has kept me grounded and pointed me in the direction to make clear decisions

Ways to make it better...

If I had to make changes to this organization, I would...

none

June 27, 2011

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June 27, 2011

Us Too is fabulous source of information about Prostrate Cancer. Us Too has help me and wife to be able to belong to a support group that provides reliable information. The information comes from Us Too. Us Too is extremely involved in the prevention and cure of Prostrate Cancer.

The Great!

I've personally experienced the results of this organization in...

I personally have experienced thru Us Too to be able to belong to Prostrate Support Group that has given me and wife the support we have needed. I am Prostrate Cancer survior. I feel that one reason I am survior is thru the research that Us Too has accomplished with other organizations.

Ways to make it better...

If I had to make changes to this organization, I would...

Us Too is a great organization and at the present I do not feel that Us Too does not need to make any changes.

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