Us Too International, Inc.

Rating: 4.78 stars   40 reviews

Issues: Cancer

Location: 5003 Fairview Ave Downers Grove IL 60515 USA

Mission: The mission of Us TOO International is to be the leading prostate cancer organization helping men and their families make informed decisions about prostate cancer detection and treatment through support, education and advocacy.
Programs: In addition to the 325 chapter support groups operating locally within the United States and in countries throughout the world, Us TOOs main prostate cancer patient programming and support services include: monthly newsletter, the HotSheet; monthly e-newsletter, Prostate Cancer NEWS You Can Use; bi-monthly newsletter, Chapter NEWS; toll free Patient HelpLine, 1-800-80-Us TOO (1-800-808-7866), Mon-Fri, 9am-5pm Central; 14 online topic-specific discussion communities; comprehensive, educational web site that receives more than 5 million hits a year (www.ustoo.org), is one of the most visited prostate cancer informational Web sites available; free Resource Kit for Making Prostate Cancer Decisions for newly diagnosed or recurrent disease patients; education and support program for companions and families of prostate cancer patients entitled Circles of Love, including a Care Kit and Facilitators Discussion Guide; Us TOO University, a regional patient education symposium and volunteer training workshop program; Minority and Underserved Populations Outreach Program that, in four years, has trained more than 577 community facilitators in 19 states and the District of Columbia, and reached more than 129,865 men or their family members with a message of awareness and encouragement to take personal responsibility for their prostate health; John Moenck Memorial Resource Center, which includes books, periodicals, audio/video tapes, and other educational materials available free to chapter leaders, patients and spouses alike; Sneakers@Work Day, a workplace awareness and giving program held in September during Prostate Cancer Awareness Month;
Pints for Prostates awareness events – reaching men through the universal language of beer; and a variety of educational publications and materials including DVDs, tapes, CD-ROMs, resource kits, books, pamphlets and prostate cancer blue ribbon awareness items. Special Patient Education Resources include: Pathways for New Prostate Cancer Patients; What Now?: Hope and Options When Experiencing a Rising PSA or When Prostate Cancer Is Not Responding to Treatment; What You Need to Know for Better Bone Health; The Prostate Cancer Playbook: Strategies for Building Teams, Optimizing Treatment and Living Well; and Spanish language brochures and DVDs.
2011 Top-Rated Nonprofit
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Community Reviews

Role: General Member of the Public
Rating: 5 stars  

I was diagnosed with Prostrate Cancer in May 2010 and I was totally devastated. I checked with several of my trusted doctors for advise but my urologist was new to me. I did some immediate research on Google and found my local US T00 at the Mayo Clinic. I went to my first meeting just before my Radical Prost surgery and I am so glad that I went. I met many people(couples supporting their husbands) and I was able to make up my mind to do the surgery. Thank goodness for your organization!! Three months after my surgery, I went back to an US TOO meeting to try and help someone else make up their individual minds about surgery or chemo. Your organization is worth its weight in gold and helps many people. Thanks again.

I've personally experienced the results of this organization in...

going to meetings and participating in all activities such as erectile disfunction advisaries and the like.

If I had to make changes to this organization, I would...

I can't see the need for changes at this time with the organization. It helps people both with moral and spiritual support.

 
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Rating: 5 stars  

1 person found this review helpful

The organization is doing a wery good job.As a prostate cancer patient I received very useful books and a lot of information about prostate cancer.They tried hard to reach many of us to help , to be an informen pacient
Les

I've personally experienced the results of this organization in...

Choosing the treatment I got help from US TOO

If I had to make changes to this organization, I would...

I will not make any changes

 
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Rating: 5 stars  

I found USTOO when I was diagnosed with Prostate Cancer. Its Prostatepointers "RP" site was a tremendously valuable aid for me as I waded through all the information out there to try to come to a decision regarding what treatment option I should pursue.

Then, after my surgery, its "PCAI" site was equally valuable (and continues to be) as I wrestled with the aftereffects of my surgery.

But most important to each of these sites is the camaraderie, knowledge, and spirit of giving and caring on the part of the people who regularly contribute to these sites.

I've personally experienced the results of this organization in...

I've personally experienced the results of this organization in the way that I have approached my diagnosis and reaction to being diagnosed with prostate cancer. Without the support of the people and resources of USTOO it would have been a much more difficult journey for me.

If I had to make changes to this organization, I would...

... the only suggestion I would make is to develop archive function for the PCAI portion of the prostatepointers website.

 
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Role: General Member of the Public
Rating: 5 stars  

I attend monthly meetings of the Sun City West, AZ chapter of UsTOO. A great bunch of folks, husbands, wives, cancer survivors and people with Cancer who need help and support while making decisions for future treatment. Our leader is very knowlegable and very helpful with a library of books, websites and other resources that are helpful for our members. We have guest speakers, but the best meetings revolve around discussions, questions and answers. I can't thank the group enough for all of the help they have given me.

I've personally experienced the results of this organization in...

being able to adjust to the fact taht I have cancer, but can still hope for a long and useful life.

If I had to make changes to this organization, I would...

do nothing to change it, but encourage more friends and acquaintances with prostate cancer to attend the meetings and to spread the word of the group.

 
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Role: General Member of the Public
Rating: 4 stars  

US TOO is a excellent charitable organization that provides great information via web (hot sheets) and suppor groups in the fight against Prostate Cancer. I personally have participated in a local support group and have derived much satisfaction from the experience . I enjoy the camaraderie and knowledge sharing. US TOO seems to do an excellent job in promoting awareness.

I've personally experienced the results of this organization in...

Use of their materials via web and local support group.

If I had to make changes to this organization, I would...

None off the top of my head without me analysis.

How much of an impact do you think this organization has?

A lot

How did you learn about this organization?

Web & via a Local Cancer Org

When was your last experience with this nonprofit?

2011

 
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Rating: 5 stars  

I WAS DIAGNOSED WITH PROSTATE CANCER IN AUGUST 2006 . I HAD SEED IMPLANTS IN DEC. 2006 . I HAVE HAD NO SIDE EFFECTS UNFORTUNATELY , AFTER REACHING A NADIR OF .2 IN 2009 MY LAST THREE PSA 'S HAVE RISEN SLIGHTLY. IN APRIL OF THIS YEAR IT REACHED .8 . I WILL HAVE ANOTHER PSA IN JULY AFTER A MONTH OF CIPRO. I TRULY APPRECIATE ORGANIZATIONS LIKE US TOO , SEEDPODS , AND OTHERS FOR THEIR SUPPORT AND I WILL CONTINUE TO ANTICIPATE THEIR FUTURE SUPPORT IN OUR FIGHT AGAINST THIS DISEASE.

I've personally experienced the results of this organization in...

ADVICE ABOUT P CA

If I had to make changes to this organization, I would...

JUST CONTINUE TO DRAW UPON THEIR RESOURCES AND SUPPORT

 
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Rating: 5 stars  

I am six months post operative from prostate cancer, traditional open radical prostatectomy and have found this support group to be very informative, supporting and has provided me with the guidance I need for on going recovery. With the support of Prostate Pointers discussion communities I have the knowledge to address my physicians questions and provide them with information I may have not addressed without the help of this community.

I've personally experienced the results of this organization in...

Recovery and rehabilitation techniques that I wouldn't have considered without them.

If I had to make changes to this organization, I would...

Get more local groups started within my region.

 
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Role: General Member of the Public
Rating: 5 stars  

US TOO was the first organization i consulted when i was diagnosed with prostate cancer It was so scary for me but they were there for support and advice....the prostate pointers selection is unbelievably informative.....the members experience is more informative than the medical communities opinions....the doctors that do participate, dr strum and israel barken are the most informed doctors i've met and that includes the big medical center in which i'm a patient. i religiously check this site for new information and guidance from the people who have to live with this condition

I've personally experienced the results of this organization in...

this organization has kept me grounded and pointed me in the direction to make clear decisions

If I had to make changes to this organization, I would...

none

 
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Rating: 4 stars  

Us Too is fabulous source of information about Prostrate Cancer. Us Too has help me and wife to be able to belong to a support group that provides reliable information. The information comes from Us Too. Us Too is extremely involved in the prevention and cure of Prostrate Cancer.

I've personally experienced the results of this organization in...

I personally have experienced thru Us Too to be able to belong to Prostrate Support Group that has given me and wife the support we have needed. I am Prostrate Cancer survior. I feel that one reason I am survior is thru the research that Us Too has accomplished with other organizations.

If I had to make changes to this organization, I would...

Us Too is a great organization and at the present I do not feel that Us Too does not need to make any changes.

 
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