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Nonprofit Overview

Causes: Cancer, Health

Mission: The mission of Us TOO International is to be the leading prostate cancer organization helping men and their families make informed decisions about prostate cancer detection and treatment through support, education and advocacy.

Programs: In addition to the 325 chapter support groups operating locally within the United States and in countries throughout the world, Us TOOs main prostate cancer patient programming and support services include: monthly newsletter, the HotSheet; monthly e-newsletter, Prostate Cancer NEWS You Can Use; bi-monthly newsletter, Chapter NEWS; toll free Patient HelpLine, 1-800-80-Us TOO (1-800-808-7866), Mon-Fri, 9am-5pm Central; 14 online topic-specific discussion communities; comprehensive, educational web site that receives more than 5 million hits a year (www.ustoo.org), is one of the most visited prostate cancer informational Web sites available; free Resource Kit for Making Prostate Cancer Decisions for newly diagnosed or recurrent disease patients; education and support program for companions and families of prostate cancer patients entitled Circles of Love, including a Care Kit and Facilitators Discussion Guide; Us TOO University, a regional patient education symposium and volunteer training workshop program; Minority and Underserved Populations Outreach Program that, in four years, has trained more than 577 community facilitators in 19 states and the District of Columbia, and reached more than 129,865 men or their family members with a message of awareness and encouragement to take personal responsibility for their prostate health; John Moenck Memorial Resource Center, which includes books, periodicals, audio/video tapes, and other educational materials available free to chapter leaders, patients and spouses alike; Sneakers@Work Day, a workplace awareness and giving program held in September during Prostate Cancer Awareness Month;
Pints for Prostates awareness events – reaching men through the universal language of beer; and a variety of educational publications and materials including DVDs, tapes, CD-ROMs, resource kits, books, pamphlets and prostate cancer blue ribbon awareness items. Special Patient Education Resources include: Pathways for New Prostate Cancer Patients; What Now?: Hope and Options When Experiencing a Rising PSA or When Prostate Cancer Is Not Responding to Treatment; What You Need to Know for Better Bone Health; The Prostate Cancer Playbook: Strategies for Building Teams, Optimizing Treatment and Living Well; and Spanish language brochures and DVDs.

Community Stories

9 Stories from Volunteers, Donors & Supporters

General Member of the Public

Rating: 5

I was diagnosed with Prostrate Cancer in May 2010 and I was totally devastated. I checked with several of my trusted doctors for advise but my urologist was new to me. I did some immediate research on Google and found my local US T00 at the Mayo Clinic. I went to my first meeting just before my Radical Prost surgery and I am so glad that I went. I met many people(couples supporting their husbands) and I was able to make up my mind to do the surgery. Thank goodness for your organization!! Three months after my surgery, I went back to an US TOO meeting to try and help someone else make up their individual minds about surgery or chemo. Your organization is worth its weight in gold and helps many people. Thanks again.

1

General Member of the Public

Rating: 5

The organization is doing a wery good job.As a prostate cancer patient I received very useful books and a lot of information about prostate cancer.They tried hard to reach many of us to help , to be an informen pacient
Les

Doug K.

General Member of the Public

Rating: 5

I found USTOO when I was diagnosed with Prostate Cancer. Its Prostatepointers "RP" site was a tremendously valuable aid for me as I waded through all the information out there to try to come to a decision regarding what treatment option I should pursue.

Then, after my surgery, its "PCAI" site was equally valuable (and continues to be) as I wrestled with the aftereffects of my surgery.

But most important to each of these sites is the camaraderie, knowledge, and spirit of giving and caring on the part of the people who regularly contribute to these sites.

General Member of the Public

Rating: 5

I attend monthly meetings of the Sun City West, AZ chapter of UsTOO. A great bunch of folks, husbands, wives, cancer survivors and people with Cancer who need help and support while making decisions for future treatment. Our leader is very knowlegable and very helpful with a library of books, websites and other resources that are helpful for our members. We have guest speakers, but the best meetings revolve around discussions, questions and answers. I can't thank the group enough for all of the help they have given me.

General Member of the Public

Rating: 4

US TOO is a excellent charitable organization that provides great information via web (hot sheets) and suppor groups in the fight against Prostate Cancer. I personally have participated in a local support group and have derived much satisfaction from the experience . I enjoy the camaraderie and knowledge sharing. US TOO seems to do an excellent job in promoting awareness.

General Member of the Public

Rating: 5

I WAS DIAGNOSED WITH PROSTATE CANCER IN AUGUST 2006 . I HAD SEED IMPLANTS IN DEC. 2006 . I HAVE HAD NO SIDE EFFECTS UNFORTUNATELY , AFTER REACHING A NADIR OF .2 IN 2009 MY LAST THREE PSA 'S HAVE RISEN SLIGHTLY. IN APRIL OF THIS YEAR IT REACHED .8 . I WILL HAVE ANOTHER PSA IN JULY AFTER A MONTH OF CIPRO. I TRULY APPRECIATE ORGANIZATIONS LIKE US TOO , SEEDPODS , AND OTHERS FOR THEIR SUPPORT AND I WILL CONTINUE TO ANTICIPATE THEIR FUTURE SUPPORT IN OUR FIGHT AGAINST THIS DISEASE.

General Member of the Public

Rating: 5

I am six months post operative from prostate cancer, traditional open radical prostatectomy and have found this support group to be very informative, supporting and has provided me with the guidance I need for on going recovery. With the support of Prostate Pointers discussion communities I have the knowledge to address my physicians questions and provide them with information I may have not addressed without the help of this community.

General Member of the Public

Rating: 5

US TOO was the first organization i consulted when i was diagnosed with prostate cancer It was so scary for me but they were there for support and advice....the prostate pointers selection is unbelievably informative.....the members experience is more informative than the medical communities opinions....the doctors that do participate, dr strum and israel barken are the most informed doctors i've met and that includes the big medical center in which i'm a patient. i religiously check this site for new information and guidance from the people who have to live with this condition

Harry H.

General Member of the Public

Rating: 4

Us Too is fabulous source of information about Prostrate Cancer. Us Too has help me and wife to be able to belong to a support group that provides reliable information. The information comes from Us Too. Us Too is extremely involved in the prevention and cure of Prostrate Cancer.