Us Too International, Inc.

Rating: 4.78 stars   40 reviews

Issues: Cancer

Location: 5003 Fairview Ave Downers Grove IL 60515 USA

Mission: The mission of Us TOO International is to be the leading prostate cancer organization helping men and their families make informed decisions about prostate cancer detection and treatment through support, education and advocacy.
Programs: In addition to the 325 chapter support groups operating locally within the United States and in countries throughout the world, Us TOOs main prostate cancer patient programming and support services include: monthly newsletter, the HotSheet; monthly e-newsletter, Prostate Cancer NEWS You Can Use; bi-monthly newsletter, Chapter NEWS; toll free Patient HelpLine, 1-800-80-Us TOO (1-800-808-7866), Mon-Fri, 9am-5pm Central; 14 online topic-specific discussion communities; comprehensive, educational web site that receives more than 5 million hits a year (www.ustoo.org), is one of the most visited prostate cancer informational Web sites available; free Resource Kit for Making Prostate Cancer Decisions for newly diagnosed or recurrent disease patients; education and support program for companions and families of prostate cancer patients entitled Circles of Love, including a Care Kit and Facilitators Discussion Guide; Us TOO University, a regional patient education symposium and volunteer training workshop program; Minority and Underserved Populations Outreach Program that, in four years, has trained more than 577 community facilitators in 19 states and the District of Columbia, and reached more than 129,865 men or their family members with a message of awareness and encouragement to take personal responsibility for their prostate health; John Moenck Memorial Resource Center, which includes books, periodicals, audio/video tapes, and other educational materials available free to chapter leaders, patients and spouses alike; Sneakers@Work Day, a workplace awareness and giving program held in September during Prostate Cancer Awareness Month;
Pints for Prostates awareness events – reaching men through the universal language of beer; and a variety of educational publications and materials including DVDs, tapes, CD-ROMs, resource kits, books, pamphlets and prostate cancer blue ribbon awareness items. Special Patient Education Resources include: Pathways for New Prostate Cancer Patients; What Now?: Hope and Options When Experiencing a Rising PSA or When Prostate Cancer Is Not Responding to Treatment; What You Need to Know for Better Bone Health; The Prostate Cancer Playbook: Strategies for Building Teams, Optimizing Treatment and Living Well; and Spanish language brochures and DVDs.
2011 Top-Rated Nonprofit
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Community Reviews

Rating: 5 stars  

I found this site 18 months after my radical prostatectomy. I wish I had found it 8 days after! The users of this site have been incredibly responsive to my questions, and their replies are always thoughtful. Almost everyone who contributes information is careful to attribute sources or say that it's opinion rather that research-based. From the very first time I submitted a question and had answers within a matter of hours, I knew this community was compassionate, caring, nurturing and affirming. I've learned much more in the past couple of months than I have from my surgeon who's been seeing me every 3 months for the past two years!

I've personally experienced the results of this organization in...

I'm much more familiar now than ever before with research-based information on erectile dysfunction, the types and efficacy of treatments, and referrals to ED specialists.

If I had to make changes to this organization, I would...

make it much more widely known! One out of six men in the U.S. is diagnosed with prostate cancer. That's a lot of men wondering what to do before, and what to do after the treatment they've selected.

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Rating: 4 stars  

I am status post high dose conformal radiation plus a year of Zoladex in 2006. I was steered to Us Too's local chapter and have been receiving the 8 pg monthly leaflet now from the national packaged with the local chapter's two page leaflet. I am thus apprised what is going on in prostate cancer research and treatment from both the national and local level. I am glad there are these efforts being sustained on a continuing basis. I believe the information is from reliable experts in the field. I can give Us TOO a positive vote for their efforts. I currently have a near zero PSA.

I've personally experienced the results of this organization in...

The chief results of my interactions are to remain informed about my diagnosis in the event it recurs.

If I had to make changes to this organization, I would...

schedule more informative meetings with treatment and research authorities at the local level.

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Rating: 5 stars  

My name is Manuel "Manny" Vazquez from the Houston, TX, area.
Us TOO International has been invaluable to me, both at the local Houston, TX, chapter. named Tex Us TOO, and the parent organization, Us TOO International, Inc. Both my local and the national chapters have been invaluable to me, providing information and support. I, in turn, have been able to help many others that eventually came on board. Without Us TOO, my life after prostate cancer would have been very rough. We can help each other out in our capacity of "Professional Survivors". Medical professionals are very good at what they do in terms of therapies. However, with very few exceptions, they are absolutely unable or unwilling to deal with the consequences of those therapies. We can complement each other addressing the "whole man" , not just a diseased gland.

I've personally experienced the results of this organization in...

The invaluable aid that can be given to men with prostate cancer in this country and abroad.

If I had to make changes to this organization, I would...

All things can be improved. However, I am very satisfied with the Mission and Vision of Us TOO International, Inc.

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

How did you find this group?

Through word of mouth

What, if any, change in your life has this group encouraged?

Acceptance of your condition and the tools to overcome the side effects of prostate cancer.

When was your last experience with this nonprofit?

2011

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Rating: 5 stars  

US Too International has been a huge help to my husband and myself as we have gone through the prostate cancer journey. There is help for everyone on this site - those who are spiritual, those who want facts, those who want very personal and useful information about intimacy, and every other aspect of this very trying disease. It is the one site we recommend to friends who are newly diagnosed. It seems like the best thing we can do for them.

I've personally experienced the results of this organization in...

Making decisions every day about how to live with cancer and treatment.

If I had to make changes to this organization, I would...

They should toot their own horn more!

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Rating: 5 stars  

There is no way I could begin to relate all the ways UsTOO International has helped me to battle my prostate cancer. The insights and information I have received from the truly caring doctors, like Dr. Strum, et al, advocate, Chuck Maack, and other fellow cancer victims, have given me the necessary information to continue this endless battle.

I've personally experienced the results of this organization in...

See above

If I had to make changes to this organization, I would...

"If it ain't broke, don't fix it !"

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Rating: 5 stars  

After being diagnosed with Protate Cancer, I spent a lot of time perusing various sites on the internet for info on PCa. Not only did the Us TOO site provide what seemed to be a lot of level headed info

Over the months, I have come across various sites that while once current, the interest in maintaining the site has dropped off or they have an agenda. This does not appear to be the case with the US TOO site.

They also maintain the ProtatePointer mailing lists (over a dozen different topics).

I've personally experienced the results of this organization in...

Attending the monthly support groups has been a positive experience, and it is quite uplifting to see a bewildered man come in, just diagnosed, and go out with some game plan on how to proceed next!

If I had to make changes to this organization, I would...

Keep up the good work!

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Rating: 5 stars  

I have been following patient conversation and the recommendations of medical doctors through this site for nearly a decade. This is an invaluable resource for men who face a very difficult disease. Beyond that, the site has helped me to be better informed and more conscious of how my diagnosis and treatment schedule should proceed. Thanks to all of the volunteers, medical doctors and patients who share their knowledge. I cannot say enough positive things here to express the feeling of gratitude I have for this resource.

I've personally experienced the results of this organization in...

My treatment

If I had to make changes to this organization, I would...

Change nothing. Were I able, I would support US TOO in any way possible.

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Rating: 5 stars  

I am the wife of a Prostate Cancer survivor. Through US TOO and its online support groups, I have received information about the disease which was vital in helping us to choose the appropriate form of treatment. In addition, the support that we have received during the course of my husband's diaagnosis, treatment and recovery has been invaluable. Although my husband's diagnosis occured over 14 years ago, I remain involved with an US TOO support group so that I can extend a helping hand to others. I have recommended US TOO groups to other men and their partners.

I've personally experienced the results of this organization in...

The guidance that came from the US TOO online support group steered us in the right direction. The group has been a lifeline for me and my husband.

If I had to make changes to this organization, I would...

As far as I'm concerned, the group met our needs, and no changes are necessary.

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