Oops! You must enter a search term greater than 3 characters.

Invite reviews

Invite friends and colleagues to share their experiences with this nonprofit
40 Reviews
1234.7755
Previous | 1 2 |
Write A Review
July 2, 2011

more

July 2, 2011

I found USToo after my husband's protetectomy. It has given me an avenue to discuss my frustrations and helped me to adjust to the differences after treatment for prostate cancer. The men that share their struggles and ways of overcoming them have given us excellent advice. The women who share have helped me not to feel so alone in this journey. Prostate cancer is little understood and receives very little coverage in the news. That needs to change. People need to know that this is a serious disease that can threaten relationships. It is a couple's disease. We need to find ways to prevent it and to limit the effects of treatment. Everyone needs to know how to prevent aggressive cancer long before it can cast a shadow over their lives.

The Great!

I've personally experienced the results of this organization in...

Learning to cope with my husband's cancer and overcoming emotional effects.

Ways to make it better...

If I had to make changes to this organization, I would...

Publisize it more.

July 1, 2011

more

July 1, 2011

I found UsTOO, Lancaster, PA through their website right after I was diagnosed in 2004. They are a great bunch of people with a phenomenal amount of experience which they were very happy to share.

This became even more important when my PSA started to rise 6 months after surgery.
Several member of the Executive Committee met with me and helped me sort out all my options. They had great advice and I am glad I took it.

The Great!

I've personally experienced the results of this organization in...

the treatment of my recurrence.

Ways to make it better...

If I had to make changes to this organization, I would...

None

More feedback...

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

How did you find this group?

Website

When was your last experience with this nonprofit?

2011

June 30, 2011
1 person found this review helpful

more

June 30, 2011
1 person found this review helpful

Regrettably, I did not find out about UsToo until after I had been treated for prostate cancer in 2004. I began attending meetings at Beaumont Hospital in Royal Oak, MI. First, it was most reassuring to see so many others who had gone before, survived and thrived. I had been coping already, but this made the process of continuing recovery even better.

Secondly, it gave me the opportunity to talk to men newly-diagnosed and add my reassurance to help them though the process of dealing with PCa. They could see I was doing well physically and mentally, after seven years and no sign yet of recurrence. I could tell them of my treatment (external radiation) and they could use my experience to help them in making a treatment choice.

The Great!

I've personally experienced the results of this organization in...

Being able to assist newcomers with specific info or just for reassurance.

Ways to make it better...

If I had to make changes to this organization, I would...

None

More feedback...

How would you describe the help you got from this organization?

A lot

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

How did you find this group?

Via the Internet

What, if any, change in your life has this group encouraged?

It gives me more opportunities to be be of service to my fellow man.

When was your last experience with this nonprofit?

2011

June 28, 2011

more

June 28, 2011

Us TOO and their prostate pointers web have been critical to my journey in recovery from prostate cancer and the effects of "modern" treatment for it. I read their e-mail daily and get great benefit out of listening to others in my same boat - fellow sailors in the voyage. This forum has no equal.

The Great!

I've personally experienced the results of this organization in...

helping me to understand that prostate cancer recovery is much about acceptance

Ways to make it better...

If I had to make changes to this organization, I would...

Make the e-mail content easier to read and follow

June 27, 2011

more

June 27, 2011

I am a prostate cancer survivor and a volunteer helping other survivors through support groups. Us Too has been a fantastic source of information as well as inspiration. They always have the most up to date and understandable information on this disease and treatment options. In my work with other survivors, I have met literally hundreds of Us Too volunteers from all over the country. These volunteers are very active in advocacy, which is another strength of Us Too. They fight for funding for both research and patient services.

The Great!

I've personally experienced the results of this organization in...

Researching treatment options. I also participated in peer review of research proposals at CDMRP funded sessions on prostate cancer. There I joined many Us Too volunteers

Ways to make it better...

If I had to make changes to this organization, I would...

Can't think of anything

June 27, 2011

more

June 27, 2011

when my father was dying with metastatic prostate cancer.. this organization was more helpful with suggestions on treatment than his doctors. I think he would have lived longer if I had been more forceful with the suggestions I received from this organization

The Great!

I've personally experienced the results of this organization in...

This organization was very helpful

Ways to make it better...

If I had to make changes to this organization, I would...

NONE!!!

June 27, 2011
1 person found this review helpful

more

June 27, 2011
1 person found this review helpful

UsTOO provides a wealth of current information about prostate cancer as well as provides support for those individuals and families dealing with the disease. The UsTOO website is great and there are more than 300 UsTOO Chapters around the world which offer face-to-face support.
These Chapters
also sponsor various screening and informational events. No topic is sacred, UsTOO has information on virtually every aspect of the disease. Much of the information that I learned from this group was discussed with my doctor and often became part of my treatment.
I have recommended UsTOO to many individuals, including numerous doctors, and all have thanked me.

The Great!

I've personally experienced the results of this organization in...

I was diagnosed 10 years ago with aggressive, metastatic prostate cancer. Today, I still have my prostate, have no metastatic lesions, an undetectable PSA and a good quality of life. I was very fortunate to have discovered UsTOO as well as a great doctor. The comfort that I found from the information provided by fellow UsTOO participants has been immeasurable. In addition, I have examined the finances of the organization closely, and believe that it is well managed.

Ways to make it better...

If I had to make changes to this organization, I would...

The only change that I would make is to seek greater visibility and funding for the valuable work that UsTOO does.

More feedback...

How would you describe the help you got from this organization?

A lot

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

How did you find this group?

The internet.

What, if any, change in your life has this group encouraged?

It helped give me hope when I thought there was none.

When was your last experience with this nonprofit?

2011

June 27, 2011

more

June 27, 2011

We just learned my husband has prostate cancer, we were given a card from the urologist with the information about US Too. I went on the same day and it has been a world of help for us. It is great to have a place that you can connect with other people that are going through the same situation that you are. You can ask any question and share any feelings and know that someone out there has either been there or is going through the same thing. People on this site are so helpful and informitave and caring. I have learned so much and found so much relief from this site, there have been many nights I could not sleep since we found out, when that happened, I found myself turning on the computer and coming right to the US
TOO site for comfort and answers.

The Great!

I've personally experienced the results of this organization in...

Gaining information on prostate cancer

Ways to make it better...

If I had to make changes to this organization, I would...

There is nothing to change

June 27, 2011

more

June 27, 2011

.

I found USTOO througg a web search. Received helpful info right away. I was newly diagnosed and frightened. Called a support group leader and this total stranger spent 45 minutes with me and left me with leads and some confidence in the future. Received excellent printed mterials two
days after requesting them.

The Great!

I've personally experienced the results of this organization in...

Getting information and providing support.

Ways to make it better...

If I had to make changes to this organization, I would...

Haven't found anything wanting yet.

June 27, 2011

more

June 27, 2011

I discovered this organization AFTER I had a radical prostatectomy. I wish I had learned about it before. Someone newly diagnosed can learn about treatment alternatives, competent local surgeons, possible outcomes and get a much better idea of how to proceed than from the diagnosing physician and/or a few acquaintances who have had the disease.

I would have selected a different location for treatment and possible a different treatment had I had the benefit of the wisdom of this group.

The Great!

I've personally experienced the results of this organization in...

I attend meetings - share experiences.

Ways to make it better...

If I had to make changes to this organization, I would...

Just keep it going!!!

More feedback...

How would you describe the help you got from this organization?

A lot

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

How did you find this group?

an acquaintance

What, if any, change in your life has this group encouraged?

hard to define

When was your last experience with this nonprofit?

2011

Previous | 1 2 |
Write A Review

Filter by reviewer role:

Support This Nonprofit

Help this nonprofit get more reviews

5 tips for getting reviews

5 tips for getting reviews...

  1. Sending an email to clients, volunteers, donors, board members, and other partners with a link to your profile page.
  2. Putting a link on your Web site
  3. Including a link in your email newsletter
  4. Putting a link in the signature of your email
    Putting a link on your facebook page and status updates
  5. Tweeting out a link to your twitter followers