United Mitochondrial Disease Foundation Inc.
Rating: 4 stars 3 3 reviews
8085 Saltsburg Road No 201 Pittsburgh PA 15239 USA
To promote research and education for the diagnosis, treatment and cure of mitochondrial disorders and to provide support to affected individuals and families.
Funding research for cures and treatments of mitochondrial disorders.
providing support for affected families - parent education
promoting public awareness of mitochondrial disorders
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Reviews for United Mitochondrial Disease Foundation Inc.
My husband Steve was diagnosed with Mitochondrial Myopathy in 2002 (about a year after the onset of his symptoms). Although it seems that everyone has a slightly to extremely different experience with a mitochondrial disease, the UMDF helped us know we were not alone. They also helped our friends and family have a resource to information. We even used their information to help put this disease into "english" for Social Security disability. I lost Steve 2 years ago (10 1/2 years after onset). I'm grateful for every moment I had with him and to the UMDF for helping us know we were not fighting alone. I donate in memory of my wonderful best friend. Miss you baby...everyday.
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