United Mitochondrial Disease Foundation Inc.

Rating: 4 stars   3 reviews

Nonprofit Issues:

Health

Address:

8085 Saltsburg Rd Ste 201 Pittsburgh PA 15239 USA

Mission:

UMDF''s mission is to promote research and education for the diagnosis, treatment and cure of mitochondrial disorders and provide support to affected individuals and families.

Programs:

The United Mitochondrial Disease Foundation has made it a priority to reach out to physicians through Grand Rounds.  The program introduces and/or broadens the knowledge base on mitochondrial diseases.  The primary purpose of the Grand Rounds is to provide continuing education to health care providers on topics specific to mitochondrial disorders, which also furthers the UMDF mission to promote research and education for the diagnosis, treatment and cure of mitochondrial disorders and to provide support to affected individuals and families.   The Grand Rounds are also coupled with a special family meeting to help educate patients/families about mitochondrial disease - and many times, the family meetings are suitable for outreach to nurses, therapists, educators, and various allied health professionals.

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www.umdf.org

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Reviews for United Mitochondrial Disease Foundation Inc.

Rating: 4 stars  

My husband Steve was diagnosed with Mitochondrial Myopathy in 2002 (about a year after the onset of his symptoms). Although it seems that everyone has a slightly to extremely different experience with a mitochondrial disease, the UMDF helped us know we were not alone. They also helped our friends and family have a resource to information. We even used their information to help put this disease into "english" for Social Security disability. I lost Steve 2 years ago (10 1/2 years after onset). I'm grateful for every moment I had with him and to the UMDF for helping us know we were not fighting alone. I donate in memory of my wonderful best friend. Miss you baby...everyday.

Was your donation impactful?

Likely

How likely is it that you would recommend that a friend donate to this group?

Definitely

How likely are you to donate to this group again?

Definitely

When was your last experience with this nonprofit?

2012

 
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Review from The Pittsburgh Foundation