United Mitochondrial Disease Foundation Inc.

Rating: 4 stars   3 reviews

Address:

8085 Saltsburg Road No 201 Pittsburgh PA 15239 USA

Mission:

To promote research and education for the diagnosis, treatment and cure of mitochondrial disorders and to provide support to affected individuals and families.

Programs:

Funding research for cures and treatments of mitochondrial disorders.

providing support for affected families - parent education

promoting public awareness of mitochondrial disorders

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More Info

(412) 793-8077
http://www.umdf.org

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Reviews for United Mitochondrial Disease Foundation Inc.

Rating: 4 stars  

My husband Steve was diagnosed with Mitochondrial Myopathy in 2002 (about a year after the onset of his symptoms). Although it seems that everyone has a slightly to extremely different experience with a mitochondrial disease, the UMDF helped us know we were not alone. They also helped our friends and family have a resource to information. We even used their information to help put this disease into "english" for Social Security disability. I lost Steve 2 years ago (10 1/2 years after onset). I'm grateful for every moment I had with him and to the UMDF for helping us know we were not fighting alone. I donate in memory of my wonderful best friend. Miss you baby...everyday.

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Likely

How likely is it that you would recommend that a friend donate to this group?

Definitely

How likely are you to donate to this group again?

Definitely

When was your last experience with this nonprofit?

2012

 
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Review from The Pittsburgh Foundation