United Mitochondrial Disease Foundation Inc.

Rating: 4 stars   3 reviews

Issues:

Location: 8085 Saltsburg Rd Ste 201 Pittsburgh PA 15239 USA

Mission:

UMDF''s mission is to promote research and education for the diagnosis, treatment and cure of mitochondrial disorders and provide support to affected individuals and families.


Programs:

The United Mitochondrial Disease Foundation has made it a priority to reach out to physicians through Grand Rounds.  The program introduces and/or broadens the knowledge base on mitochondrial diseases.  The primary purpose of the Grand Rounds is to provide continuing education to health care providers on topics specific to mitochondrial disorders, which also furthers the UMDF mission to promote research and education for the diagnosis, treatment and cure of mitochondrial disorders and to provide support to affected individuals and families.   The Grand Rounds are also coupled with a special family meeting to help educate patients/families about mitochondrial disease - and many times, the family meetings are suitable for outreach to nurses, therapists, educators, and various allied health professionals.

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Community Reviews

Role: General Member of the Public
Rating: 3 stars  

Hello ,i am from india.my son is 1 year old now.he was diagnosed with leigh's disease when he was 4 monyh old.shortly after that he stopped crying,smiling and recognizing us.for two months after that he was on thiamine iv and he had lot of pricks .we made friends with many parents whose babies were in same coondition.now we arre looking forward to go for trial,but molecular diagnosis is neede we dont have that.me and all others around the globbe pray that some medicine will be developed by some ome around the globe to save little ones from endless suffering

Will you volunteer or donate to this organization?

Definitely

How much of an impact do you think this organization has?

Life-changing

When was your last experience with this nonprofit?

2012

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