Twin To Twin Transfusion Syndrome Foundation, Inc.

Rating: 4.79 stars   39 reviews

Issues: Health

Location: 411 Longbeach Parkway Bay Village OH 44140 USA

Mission: An international nonprofit organization solely dedicated to providing lifesaving educational, emotional, and financial support for families, medical professionals, and other caregivers before, during and after a pregnancy diagnosed with twin to twin transfusion syndrome. Dedicated to saving the babies, improving their future health and care, furthering medical research, providing NICU, special needs and bereavement support, and keeping families together the way twins are meant to be.
2014 Top-Rated Nonprofit
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Community Reviews

Rating: 5 stars  

4 people found this review helpful

I was diagnosed with TTTS in 2010, I called the TTTS Foundatino and requested the inforamtion packet and it was at my door in 2 days! The compassion that this Foundation and its owner has is the most amazing thing I have seen. The Foundation works with many families all over the world day and night, all hours of the day! This is the owners life's conviction and she is doing an amazing job. The tax documents show nothing but support and love to others, as this is the sold purpose of the President/owner of this foundations LIFE! I couldn't be more happy with this Foundation and will continue to volunteer as the Awareness Coordinator and Conference Commitee member. If it wasnt for the knowledge and commpassion that this Foundation has, I would have never know what TTTS was. Thank you so much for you help and much love to you!!

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2012

 
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Rating: 5 stars  

4 people found this review helpful

I do graphic work for the TTTS Foundation from time to time as a volunteer. I owe the TTTS Foundation so much for all they did for me. I was suspected TTTS from 8weeks on but did not "get" TTTS until 3 days before I had to deliver at 28weeks. At 16weeks I was sent to a local "specialist" for TTTS. All that to say that I knew NOTHING about TTTS - it was just letters to me - until I reached out to Mary at the Foundation who promptly replied and gave me a TON of information on boost and bedrest as well as what questions to ask my Dr and what to be looking for and aware of. Had I not known that informaiton I would have been blind throughout. Mary played a key roll in supporting, as my husband was deployed during my pregnancy. Also she gave me contact info bywhich I was able to reachout to Dr DeLia who called me back from his own vacation to give me information and talk with me about my concerns. After my girls were born and home from the NICU I made myself available to the TTTS Foundation however needed as my way of "giving back" to them for all they did for me. At that time I became more and more aware of what all they do and even more-so loved and appreciated all they do!

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2011

 
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