The Progeria Research Foundation, Inc.
Rating: 5 stars 1 review
Location: PO Box 3453 Peabody MA 01961 USA
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This is the only organization that I know of which is solely devoted to research leading to treatments and/or a cure for this very rare disease. In the span of only 10 years they've discovered the gene responsible for this tragic disease which takes the lives of children far before their time and they are already doing controlled studies for possible treatments.
I've personally experienced the results of this organization in...
I do not have anyone in my family who suffers from progeria but the good folks at this organization are doing great work for families with children who have this disease.
If I had to make changes to this organization, I would...
I don't know that I would change anything.