The Parent Project for Muscular Dystrophy Research Inc

Rating: 5 stars   6 reviews


1012 North University Blvd. Middletown OH 45042 USA


Parent Project Muscular Dystrophy's mission is to improve the treatment, quality of life and long-term outlook for all individuals affected by Duchenne muscular dystrophy (DMD) through research, advocacy, education and compassion.


Support for research to accelerate treatments and a cure for duchenne muscular dystrophy including studies in the following areas: fda draft policy guidance, combined therapeutics, serca2 gene therapy, aon-induced exon skipping ips cells and therapeutic applications, and failed regeneration in md, to name a few.

educational initiatives including online resources an annual conference held in chicago that brought scientists and families in the duchenne community together to discuss and expedite treatments, patient care, and research for a cure for the disease. Other educational efforts were promoted through a new initiative called transforming duchenne care, f. A. C. E. S. , decode duchenne, and duchnne connect.

advocacy is promoted on an annual basis through a legislative conference held in washington, d. C. Under the leadership of a consulting firm based in the area. Parents take a hands-on role in communicating with legislators during this process, for the purpose of promoting awareness and encouraging government funding for research and patient care.

Write a Review
Invite Reviews Share This Nonprofit

More Info

(513) 424-0696

Filter Reviews by Role

Promote This Nonprofit

GreatNonprofits badges allow you to raise awareness of your favorite nonprofits on your own web sites!

Review this charity on

Reviews for The Parent Project for Muscular Dystrophy Research Inc

Get discovered. Invite people to share their experiences about this nonprofit!