The Oral Cancer Foundation
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I am in the medical field, and I have professionally, and personally dealt with this cancer. I lost a friend Minnie Ashworth leaving behind children, and grandchildren who loved who deeply, and dearly!!!! She fought a courageous fight, but lost her battle. But with this foundation, I believe that she had a great chance with their help, and support. I also had a patient with tongue cancer that is alive, and well. So this Foundation is not in vain!!!!
The Great!
I've personally experienced the results of this organization in...
personally, and professionally
Ways to make it better...
If I had to make changes to this organization, I would...
I would do anything to bring in more fund's for advancement in treatment.
More feedback...
What I've enjoyed the most about my experience with this nonprofit is...
Seeing that there is help, and survior's
The kinds of staff and volunteers that I met were...
were supportive, and caring
If this organization had 10 million bucks, it could...
Save not just one life, but the sky could be the limit.
Ways to make it better...
If our friend Minnie Ashworth would have had alittle more time for further treatment
In my opinion, the biggest challenges facing this organization are...
Getting the word out, and more fund's.
One thing I'd also say is that...
I believe if one life could be saved, and everyone gave of theirselve's, it would make a major difference.
When was your last experience with this nonprofit?
2009
my mom had oral cancer and i know that her being able to talk to some of the people on here helped her get through a lot of it .
Photos
The Great!
I've personally experienced the results of this organization in...
my mother. it helped her so much !
Ways to make it better...
If I had to make changes to this organization, I would...
organize more walks.
More feedback...
What I've enjoyed the most about my experience with this nonprofit is...
my mom's experience
The kinds of staff and volunteers that I met were...
my mom
If this organization had 10 million bucks, it could...
help so many families.
Ways to make it better...
it was great, nothing different.
In my opinion, the biggest challenges facing this organization are...
nothing
One thing I'd also say is that...
i appreciate you guys.
When was your last experience with this nonprofit?
2009
I am a caregiver. My wife Donna is a two time oral cancer survivor. She first had cancer in 2004 and then again in 2007. This has been a very rough time for us, but I know she spends alot of time on the Oral Cancer board and I know there are times when she has been helped alot by other people who have the same disease. So far I have not needed to go there to find out what other helpers are doing because our medical system provides alot of support.
The Great!
I've personally experienced the results of this organization in...
My wife gets great support from the foundation and that has helped how she deals with the family.
Ways to make it better...
If I had to make changes to this organization, I would...
Tongue cancer isn't very well known. My coworders know nothing about it. I think if I ran this organization I would let more people know about the disease and its causes. Hopefully by doing that, fewer people would get it.
More feedback...
What I've enjoyed the most about my experience with this nonprofit is...
I have liked that my wife had someone to talk to and that we could for brief times return to a normal existence.
The kinds of staff and volunteers that I met were...
I haven't met any.
If this organization had 10 million bucks, it could...
Better serve those with tongue cancer and be less reliant on those with the disease to fund the foundation.
Ways to make it better...
I think if I had used the boards myself to help to deal with how I felt too, it would have been good. If the cancer comes back, I will do that.
In my opinion, the biggest challenges facing this organization are...
This cancer isn't one of the big name cancers, it doesn't seem to get the attention it should. Getting the funding to spread the word is this organizations biggest challenge. I know my wife has made donations and bought things to help with fundraising.
One thing I'd also say is that...
My wife becomes very close to the other members. They refer to each other as their family members. This is very valuable as I know she often feels very alone with this cancer.
When was your last experience with this nonprofit?
2009
This organization really helped out my friends in their time of need and I am thankful for that. They are also very thankful and have only good things to say about it.
The Great!
I've personally experienced the results of this organization in...
helping my friends
Ways to make it better...
If I had to make changes to this organization, I would...
not change anything
More feedback...
What I've enjoyed the most about my experience with this nonprofit is...
seeing the work they have done
The kinds of staff and volunteers that I met were...
very friendsly and helpful
If this organization had 10 million bucks, it could...
do even more than it does now
Ways to make it better...
nothing changed
In my opinion, the biggest challenges facing this organization are...
funding to help it get better
One thing I'd also say is that...
it's great and very helpful
When was your last experience with this nonprofit?
2009
I was diagnosed with base of tongue cancer a few years ago. Initially, my ENT talked of cutting out my tongue, then radiation and chemo, followed by slicing or disecting my neck near the jugular vein. Quite frankly I contemplated suicide. I will be forever be grateful to the Oral Cancer Foundation. We learned how to talk to the ENT by learning a so much from this site. The ENT saved my tongue, didn't slice up my neck, but I did go through some of the roughest chemo and radiation treatments according to him. I made it, and have been cancer free for 4 years.
The Great!
I've personally experienced the results of this organization in...
my continuing to live without too severe of quality of life issues
Ways to make it better...
If I had to make changes to this organization, I would...
More feedback...
What I've enjoyed the most about my experience with this nonprofit is...
how helpful the members are.
Ways to make it better...
I never had cancer to begin with.
When was your last experience with this nonprofit?
2005
My niece, a non-smoker, developed oral cancer in 2005. No one in our family ever had this disease so we could not offer her much advice or guidance. Fortunately she found the OCF website and forum to help her get outstanding advice and guidance. This really helped her deal with her disease and ask informed questions of her doctors.
The Great!
I've personally experienced the results of this organization in...
the advice, guidance and support giving to my neice.
More feedback...
If this organization had 10 million bucks, it could...
do a lot more good and help more people.
When was your last experience with this nonprofit?
2009
OCF was such a great help to my daughter. She would set for hours talking to friends she had made thru this org. I know that this was a great help to her
The Great!
I've personally experienced the results of this organization in...
The happy times that were brought to my daughter because of this org
Ways to make it better...
If I had to make changes to this organization, I would...
More feedback...
Ways to make it better...
nothing needs to change
When was your last experience with this nonprofit?
2009
Having cancer is taints you forever. Even if you are lucky enough to survive you are damaged. Your physicians are pretty much useless at that point. What is helpful is a community of cancer patients. This keeps you grounded and humble, the fact that I can write this makes me one of the lucky fews! As bad as it is it can change you for the better!
The Great!
I've personally experienced the results of this organization in...
my recovery, post surgery, post radiation, post chemo.
Ways to make it better...
If I had to make changes to this organization, I would...
More feedback...
Ways to make it better...
Someone had made me aware of this at the beginning of the treatments. HINT HINT> Physicians ??????
When was your last experience with this nonprofit?
2009
this organization helped my aunt and her family soo very much we thank you all soo much for all you do for familes that are dealing with oral cancer
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What I've enjoyed the most about my experience with this nonprofit is...
that they helped my aunt soo much through out her battel with cancer.
When was your last experience with this nonprofit?
2008
I have oral cancer. This is a frightening experience, it is central. you do not get to just cut a little piece of tissue off... it affects speech, swallowing, taste etc.
The Great!
I've personally experienced the results of this organization in...
my personal experience. This disease want to you to stick your head in a microwave to get away from it. Thanks to OCT I found out that: a) I am not the only one b) there are people who understand this c) others are far less lucky d) I was lucky after all.
Ways to make it better...
If I had to make changes to this organization, I would...
More feedback...
Ways to make it better...
I have been aware of this resource BEFORE the experience.
When was your last experience with this nonprofit?
2008
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