The Oral Cancer Foundation

Rating: 4.98 stars   319 reviews

Issues:

Location: 3419 Via Lido #205 Newport Beach CA 92633 USA

Mission: The Oral Cancer Foundation is a non-profit 501c3 charity that works to provide information about this disease to the public, advocate for patients, and provide support services to them. OCF operates the world’s largest real time, patient-to-survivor interactive support service via the web, and the foundation’s main information web site, which contains thousands of pages of information, receives over 22 million hits per month. We are also sponsors of research, primarily in the area of detection mechanisms that facilitate the discovery of the disease at early stages when survival rates are the highest.
Results: *WINNER OF THE 2009 CANCER FIGHTERS AWARD FOR SMALL NON-PROFITS* CURRENT CAMPAIGNS Rodeo - Tobacco Outreach - "Be Smart. Don't Start." In 2014 our first rodeo spokesperson joined OCF; Cody Kiser, a young, personable, up and coming bareback bronc rider. Cody and OCF founder Brian Hill began a program of doing interviews at rodeos or by phone after Cody’s competition in the arena with local print media. The message from Hill, an oral cancer survivor, and Cody, a rodeo cowboy that believed in rodeo as a family oriented event where tobacco wasn’t a contributing part of the mix, was simple. Tobacco eventually brings bad things into your life, and you can be a great competitor and cowboy/athlete without it. The foundation worked with photographers to not only capture the excitement of a wild 8 second ride on a horse that wants to put you on the ground, to showcasing the message and branding that Cody wears on his safety vest and shirts into the arena competition. The idea, particularly Cody’s compelling story of wanting to do good in the world while following his passion of traveling to rodeos to compete each weekend, was an immediate success. That human interest story, coupled with facts about tobacco and nicotine addiction, and the dire oral cancer element, was a story that resonated with people. Almost immediately it attracted national attention in venues like the largest print magazine in circulation in America; Parade, to front page stories in local newspapers like the The Idaho Press Tribune and PRC Rodeo. Part of the Change: The RDH community is uniting to be part of the much needed change in early discovery of oral cancers. With their commitment to performing oral cancer screenings and being the first line of defense you have an opportunity to find cancer in its early stages. Early discovery and diagnosis, yields better long-term outcomes, and lower morbidity to those who undergo treatments. Together, we can make a difference! Together, we can give oral cancer a voice! If you would like to be part of the change, please email Jamie O'Day - jamie@oralcancerfoundation.org. Oral Cancer Awareness Month - April Oral Cancer awareness in the American public is low. Approximately 43,250 people in the U.S. will be newly diagnosed with oral cancer this year. Dentists are often the first line of defense against oral cancer, through the process of early discovery. While smoking and tobacco use are still major risk factors, the fastest growing segment of oral cancer patients is young, healthy, nonsmoking individuals due to the connection to the HPV virus. We cannot stop this virus from spreading; our only hope to save lives is with professional involvement and public awareness. This is your opportunity to get involved and give back to your community in hopes to raise oral cancer awareness and the need for early detection in order to save lives. Together, we have the opportunity to make a difference in the world of oral cancers. Please join us.
Target demographics: While historically the majority of people are over the age of 40 at the time of discovery, oral cancer does occur in those under this age. It is also now confirmed that in a younger age group, including those who have never used tobacco products, have a cause which is HPV viral based. The human papilloma virus, particularly version 16, has now been shown to be sexually transmitted between partners, and is conclusively implicated in the increasing incidence of young non-smoking oral cancer patients.
Geographic areas served: USA
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EIN 33-0969026
949-723-4400
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Community Reviews

Rating: 5 stars  

2 people found this review helpful

My husband is a 3 time Oral Cancer Survivor and this website has been a life-line for me. In the first bout, I went to the site nearly everyday, finding answers to my questions regarding his sickness. The others who had already been through, or were currently going through treatments were full of information and tips and tricks on how to make life easier for the patient. We are active in the OCF community and have made quite a few virtual friends through it, but we have also gained some real friends. Because of the information on the site we were able to take part in our first oral cancer walk in Seattle, WA. We live on the other side of the state and we gathered more than 20 friends to caravan over to Seattle and participate in the event. Our team raised nearly 10,000 and thankfully we know that the greatest portion possible is used for awareness campaigns and research.

Was your donation impactful?

Likely

How likely is it that you would recommend that a friend donate to this group?

Definitely

How likely are you to donate to this group again?

Definitely

When was your last experience with this nonprofit?

2012

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1 previous review
Rating: 5 stars  

1 person found this review helpful

The Oral Cancer Foundation is an amazing group of individuals that have experienced through thier own battle, or through the battle of loved ones the devestation and victories of Oral Cancer. My husband was diagnosed in 2005 as a 33 year old man. As his cancer is very rare in his age group, there was not a lot of information available as to it. Through the OCF I was able to research and be apart of a community that had experience in this disease. There were others going through the same caregiving tasks as me, and we were able to connect and give eachother support. I really appreciated the amount of knowledge that was present. I have seen that OCF has been doing a steady job of increasing awareness of this disease.

I've personally experienced the results of this organization in...

Increasing awareness about Tobacco use and in HPV connections to Oral Cancer.

If I had to make changes to this organization, I would...

Be a mess- Brian Hill is one of the most amazing coordinators and has a real sense of this disease. I couldnt do anything better.

What I've enjoyed the most about my experience with this nonprofit is...

The entire community and amount of knowledge and information available through the OFC.

The kinds of staff and volunteers that I met were...

I have only had communication via phone and internet. That would be Brian Hill and spoke via internet with many of the contributers to the site.

If this organization had 10 million bucks, it could...

Continue to make the public aware of Oral Cancer and it's contributing factors.

Ways to make it better...

If I hadnt experienced so many of the members die from this disease.

In my opinion, the biggest challenges facing this organization are...

Recieving financial support from the communities that it serves.

One thing I'd also say is that...

I have had amazing support, tons of information to bounce off my husbands doctors with and the knowledge that this disease affects all kinds of people. Old, young, smokers, non smokers, dentists, athletes and will forever be grateful

When was your last experience with this nonprofit?

2009-7-01

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Rating: 5 stars  

1 person found this review helpful

My husband was diagnosed with oral cancer on 8/13/08. Since that time, the OCF has been instrumental in lending their support and time to answer questions and give information to my husband and I. Their organization gave us extreme relief in knowing that there were others out there who could understand exactly what we were going through with the type of cancer my husband had. We are very grateful that Brian Hill founded this organization. He, especially, was a wonderful source of support and lended his time freely whenever we were concerned about something and had a question for him.

What I've enjoyed the most about my experience with this nonprofit is...

the interaction with the people who understand what we were/are going through.

The kinds of staff and volunteers that I met were...

willing to offer their support during their personal time.

If this organization had 10 million bucks, it could...

educate and offer materials to every dental office in America about the importantance of oral screenings.

How frequently have you been involved with the organization?

About every month

When was your last experience with this nonprofit?

2009-8-01

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Rating: 5 stars  

1 person found this review helpful

I contribute to the organization due to the tremendous potential they have to save lives. Seeing how they have grown and helped so many people is very satisfying. The Oral Cancer Foundation has been instumental in educating as many phycicians and the public as they can. Remarkably, they do this on a shoe string or less budget. It would be very gratifying to see what they could accomplish with some respectable funding.

I've personally experienced the results of this organization in...

the 6 million or more hits it gets everyday on its web site.

If I had to make changes to this organization, I would...

What I've enjoyed the most about my experience with this nonprofit is...

all the donations go to a cause of improving education, outreaches to the dentists, helping its members, promoting and partcipating in research being conducted at the most recognized hospitals.

The kinds of staff and volunteers that I met were...

professional and very bright

Ways to make it better...

my brother had not to suffer as he did. If dentists were a bit more proactive back then. Instead of "well lets wait and see, we'llkeep an eye on it"

In my opinion, the biggest challenges facing this organization are...

They need to be funded generously now. There is whole army of young people coming up that will be getting this dreaded disease.

One thing I'd also say is that...

oral cancer is rising steadily higher while smoking is dramaticaly going down.

When was your last experience with this nonprofit?

2009-2-01

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Rating: 5 stars  

1 person found this review helpful

I am a medical provider and a patient who has been treated for Stage IV oral cancer. I have found the Oral Cancer Foundation to be a wonderful resource to allow me the opportunity to learn about my disease, stay abreast of new research and developments, direct questions to my Cancer providers, and allow me the opportunity to NOT feel alone, isolated or without a sense of support. I cannot stress how important they have been in a disease that does not receive the prominence of other more common diseases. First Rate!!!!

I've personally experienced the results of this organization in...

My personal experiences with this disease!

If I had to make changes to this organization, I would...

I would try to get more national recognition, as they are doing now.

What I've enjoyed the most about my experience with this nonprofit is...

The opportunity to review threads and learn of others with similar experiences to mine as well as to review the most current research and information on my disease.

The kinds of staff and volunteers that I met were...

I have interacted, on line, and have been very pleased with the information I've received!

If this organization had 10 million bucks, it could...

Help to increase awareness to those at risk before the disease develops, to improve screening by making the individual a more vocal advocate for that screening to be done.

Ways to make it better...

I had been able to find out about the organization sooner, due to better awareness of a relatively uncommon form of cancer.

In my opinion, the biggest challenges facing this organization are...

Oral Cancer is so relatively small in incidence relative to other more heavily publicized diseases.

One thing I'd also say is that...

I appreciate all they do!!!!

When was your last experience with this nonprofit?

2009-7-01

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Rating: 5 stars  

1 person found this review helpful

The OCF has been instrumental in helping my sister-in-law Suzanne Gallo in her fight against oral cancer! I donated money and participated in a walk in May 2009 w/ Suzanne and other family members to support efforts at finding a cure for this disease!

I've personally experienced the results of this organization in...

the support they show my sister-in-law

What I've enjoyed the most about my experience with this nonprofit is...

the walk in may 2009

The kinds of staff and volunteers that I met were...

very nice and inspiring

When was your last experience with this nonprofit?

2009-5-01

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