The Oral Cancer Foundation

Rating: 4.98 stars   329 reviews

Address:

3419 Via Lido #205 Newport Beach CA 92633 USA

Mission:

The Oral Cancer Foundation is a non-profit 501c3 charity that works to provide information about this disease to the public, advocate for patients, and provide support services to them. OCF operates the world’s largest real time, patient-to-survivor interactive support service via the web, and the foundation’s main information web site, which contains thousands of pages of information, receives over 22 million hits per month. We are also sponsors of research, primarily in the area of detection mechanisms that facilitate the discovery of the disease at early stages when survival rates are the highest.

Results:

*WINNER OF THE CANCER FIGHTERS AWARD FOR SMALL NON-PROFITS* Oral Cancer Awareness Month – April Oral Cancer awareness in the American public is low. Approximately 45,750 people in the U.S. will be newly diagnosed with oral cancer this year. Dentists are often the first line of defense against oral cancer, through the process of early discovery. While smoking and tobacco use are still major risk factors, the fastest growing segment of oral cancer patients is young, healthy, nonsmoking individuals due to the connection to the HPV virus. We cannot stop this virus from spreading; our only hope to save lives is with professional involvement and public awareness. This is your opportunity to get involved and give back to your community in hopes to raise oral cancer awareness and the need for early detection in order to save lives. Together, we have the opportunity to make a difference in the world of oral cancers. Please join us. Rodeo - Tobacco Outreach - "Be Smart. Don't Start.” Rodeo cowboy, Cody Kiser, and cowgirl, Carly Twisselman, have partnered with OCF to spread a simple message to the youth at rodeo competitions, “Be Smart. Don’t Start.” The foundation is a big believer that in order to solve problems, you have to become engaged where the problem lives. Kids look up to athletes, not just in rodeo, but major league baseball and elsewhere as “heroes” that they would aspire to be like. Unfortunately no hero is ever perfect. OCF has begun to program to put alternative role models out in the world of rodeo cowboys athletes, with the intention of reaching young people before they make addictive choices that will harm them later in life. With Cody and Carly’s support, we expect to have a larger presence in the rodeo world, and reach many more young people with our anti-tobacco message. Be Part of the Change: The RDH community is uniting to be part of the much needed change in early discovery of oral cancers. With their commitment to performing oral cancer screenings and being the first line of defense they have the opportunity to find cancer in its early stages. Early discovery and diagnosis, yields better long-term outcomes, and lower morbidity to those who undergo treatments. In addition to screening patients they see in their daily practice, we have partnered with hygienists across the county to build screening teams to perform free oral cancer screenings in their community. A combined effort between professional engagement and public awareness is essential in order to raise awareness of this silent killer and educate the public about the importance of an annual oral cancer screening. If you would like to be part of the change, please email Jamie O'Day - jamie@oralcancerfoundation.org.

Target demographics:

While historically the majority of people are over the age of 40 at the time of discovery, oral cancer does occur in those under this age. It is also now confirmed that in a younger age group, including those who have never used tobacco products, have a cause which is HPV viral based. The human papilloma virus, particularly version 16, has now been shown to be sexually transmitted between partners, and is conclusively implicated in the increasing incidence of young non-smoking oral cancer patients.

Geographic areas served:

USA

Programs:

Research - Understanding the Implications of Human Papilloma Virus Infection - particularly HPV 16, which is now responsible for the fastest growing segment of the oral cancer population. For over a decade OCF has funded core science which has helped us understand this new etiology. Work that has elucidated demographics, transfer mechanisms, future trends of the infection, treatment response, adn more have been produced by our decade long collaboration with Dr. Maura Gillison and her team. Advocacy - OCF was a leader in the effort to expand the use of the HPV vaccine for cervical cancer to young boys, testifying at the CDC vaccine boards over three years. With strategic partnerships formed with other organizations such as the American Academy of Pediatrics, the foundation finally achieved this goal. At the NIH, we have advocated for clinical trials in the area of head and neck cancers that our science board deemed urgent. These have included research to determine if the HPV protective cervical cancer vaccines would work as well in other HPV cancers such as HPV16+ oropharyngeal cancer, which is the fastest growing segment of the oral cancer population.

2015 Top-Rated Nonprofit
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More Info

949-723-4400
http://www.oralcancer.org

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Reviews for The Oral Cancer Foundation

Role: General Member of the Public
Rating: 5 stars  

When my mom was diagnosed this site really helped me too become a patient advocate. Members here encouraged me to push for further treatment options for my mom. I am thankful for this wonderful group!!

Will you volunteer or donate to this organization?

Likely

How much of an impact do you think this organization has?

Life-changing

When was your last experience with this nonprofit?

2013

 
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Role: General Member of the Public
Rating: 5 stars  

2 people found this review helpful

When I was diagnosed with oral cancer in February 2013 this site provided valuable support and advice. It is a place you can turn to with any question knowing that you will not be judged or your fears belittled. People are friendly and kind and will do there utmost to help and encourage you. Although the site is based in the USA people from all over the world can access the resources and help provided by the site.

If I had to make changes to this organization, I would...

None

Will you volunteer or donate to this organization?

Unsure

How much of an impact do you think this organization has?

Life-changing

When was your last experience with this nonprofit?

2013

 
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Role: General Member of the Public
Rating: 5 stars  

2 people found this review helpful

This forum is packed with an amazing amount of information and most importantly an incredible group of support members, who have all lived through it or been a caregiver. I found it at a very scary time, and it helped me get through it.

Will you volunteer or donate to this organization?

Likely

How much of an impact do you think this organization has?

Life-changing

When was your last experience with this nonprofit?

2013

 
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Role: General Member of the Public
Rating: 5 stars  

3 people found this review helpful

When my sister was diagnosed with oral cancer she found it very difficult to share her problems and concerns with her family or friends as she felt they did not understand what she was truly going thru. She turned to the oral cancer foundation for understanding and support. She was able to share her fears, learn how to manage her treatment, and speak honestly and openly with what went from complete strangers to true friends. No other organization gave her the sense of self that this organization did. No one else shared their personal history like the members of this organization did. She was never alone as long as she had access to her computer. I could never thank this organization enough for what they gave her.

If I had to make changes to this organization, I would...

Help them get the word out that they are there for those who have been diagnosed with this terrible disease.

Will you volunteer or donate to this organization?

Definitely

How much of an impact do you think this organization has?

Life-changing

When was your last experience with this nonprofit?

2013

 
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Role: General Member of the Public
Rating: 5 stars  

2 people found this review helpful

Oral cancer brings with it a host of problems, such as swallowing difficulties, learning to use stomach pegs for the first time, losing one's sense of taste - not to mention the side-effects of either chemo or radiation.
The Oral Cancer team were there for me throughout the journey. Having access to expert opinion and to others who had travelled down the same road made all the difference.

If I had to make changes to this organization, I would...

not change a thing.

Will you volunteer or donate to this organization?

Likely

How much of an impact do you think this organization has?

Life-changing

When was your last experience with this nonprofit?

2012

 
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1 previous review
Rating: 5 stars  

1 person found this review helpful

Facing the possibility of having my bottom teeth removed following cancer of the tongue, I decided to try and find information about whether or not this was a good idea on the web. This is when I discovered The Oral Cancer Foundation. After posting the enquiry, I soon heard from Brian Hill (the founder) and Gary Allsebrook (a long standing member). They both offered excellent information, for which I am extremely grateful. Had I simply gone ahead without their advice, I could have ultimately lost my jaw bone. I cannot thank them enough for their comments. The Oral Cancer Foundation also provides an invaluable forum for people all over the world to be able to communicate with and learn from others who are undergoing similar experiences, or who have walked the same road. My only regret is that I did not find them earlier, as in so doing avoided what was a very lonely road.

If this organization had 10 million bucks, it could...

spread its reach much wider, and in so doing help so many more people.

How frequently have you been involved with the organization?

About every week

When was your last experience with this nonprofit?

2010-1-01

 
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Role: General Member of the Public
Rating: 5 stars  

2 people found this review helpful

My son was diagnosed with oral cancer at the age of 27. We were devistated and knew nothing about the disease. He searched and found The Oral Cancer Foundation. All the volunteers and survivors and care givers helped my son as he went thru this horrible time. They helped him cope and told him what to expect and what questions he needed to ask his providers. They literally became his family. He passed away last July but he was trying to raise awareness and told everyone he could about the OCF. He wanted to help others as the people involved with OCF helped him. He was a amazing man and would have helped others if he had survived. We will always be grateful to this group of people that give so much to others dealing with this disease.

Will you volunteer or donate to this organization?

Definitely

How much of an impact do you think this organization has?

Life-changing

When was your last experience with this nonprofit?

2013

 
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Rating: 5 stars  

2 people found this review helpful

When my partner was fighting oral cancer, the support and advice I got was incredible. I had friends to turn to for advice, ideas, and somewhere where as a caregiver I could have a rant and not be judged. Thanks for your support and the tireless work you all do to bring oral cancer to the forefront. From accross the pond I support all you do.

Will you volunteer or donate to this organization?

Definitely

How much of an impact do you think this organization has?

Life-changing

When was your last experience with this nonprofit?

2013

 
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Role: General Member of the Public
Rating: 5 stars  

2 people found this review helpful

The Oral Cancer Foundation provided comfort, support and hope to my mom as she battled a nine year fight against oral cancer. The friends my mom made through the Oral Cancer Foundation have continued to be a support to me after my mom passed away. I will support the Oral Cancer Foundation and their efforts for the rest of my life and I will always be grateful for this wonderful organization for all that they do.

Will you volunteer or donate to this organization?

Definitely

How much of an impact do you think this organization has?

Life-changing

When was your last experience with this nonprofit?

2013

 
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Role: General Member of the Public
Rating: 5 stars  

2 people found this review helpful

I am young, and found out on my 30th birthday that I had been diagnosed with oral cancer. I have never smoked, chewed, had a cavity, or excessively drank in my life, yet this terrible disease has chosen me. I can say that the people at The Oral Cancer Foundation have helped make this trying and challenging time more bearable. I am extremely grateful for their guidance, help, and counsel. This organization is a great not-for-profit that raises awareness about a terrible cancer that does not get much recognition. I thank God everyday for such a wonderful group of people.

Will you volunteer or donate to this organization?

No

How much of an impact do you think this organization has?

Life-changing

When was your last experience with this nonprofit?

2013

 
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Role: General Member of the Public
Rating: 5 stars  

3 people found this review helpful

I think I speak for many people when I say that without OCF and the hard work of Brian Hill, Christine Brader, and Eric Statler there are a lot of us who wouldn't even be here, myself one of them.
This site is an invaluable educational and supportive tool for those newly diagnosed, treating and surviving all types and stages of Oral Cancer. This site not only provides information, it helps spread awareness and brings to the public just what a disfiguring and life altering cancer this is.
It also helps with those in a supportive role caring for victims of this cruel disease.

Will you volunteer or donate to this organization?

Definitely

How much of an impact do you think this organization has?

Life-changing

When was your last experience with this nonprofit?

2013

 
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