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319 Reviews
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October 5, 2013
1 person found this review helpful

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October 5, 2013
1 person found this review helpful

When I was diagnosed with oral cancer in February 2013 this site provided valuable support and advice. It is a place you can turn to with any question knowing that you will not be judged or your fears belittled. People are friendly and kind and will do there utmost to help and encourage you. Although the site is based in the USA people from all over the world can access the resources and help provided by the site.

Ways to make it better...

If I had to make changes to this organization, I would...

None

More feedback...

Will you volunteer or donate to this organization?

Unsure

How much of an impact do you think this organization has?

Life-changing

When was your last experience with this nonprofit?

2013

October 4, 2013
1 person found this review helpful

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October 4, 2013
1 person found this review helpful

This forum is packed with an amazing amount of information and most importantly an incredible group of support members, who have all lived through it or been a caregiver. I found it at a very scary time, and it helped me get through it.

More feedback...

Will you volunteer or donate to this organization?

Likely

How much of an impact do you think this organization has?

Life-changing

When was your last experience with this nonprofit?

2013

October 4, 2013
2 people found this review helpful

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October 4, 2013
2 people found this review helpful

When my sister was diagnosed with oral cancer she found it very difficult to share her problems and concerns with her family or friends as she felt they did not understand what she was truly going thru. She turned to the oral cancer foundation for understanding and support. She was able to share her fears, learn how to manage her treatment, and speak honestly and openly with what went from complete strangers to true friends. No other organization gave her the sense of self that this organization did. No one else shared their personal history like the members of this organization did. She was never alone as long as she had access to her computer. I could never thank this organization enough for what they gave her.

Ways to make it better...

If I had to make changes to this organization, I would...

Help them get the word out that they are there for those who have been diagnosed with this terrible disease.

More feedback...

Will you volunteer or donate to this organization?

Definitely

How much of an impact do you think this organization has?

Life-changing

When was your last experience with this nonprofit?

2013

September 19, 2013
2 people found this review helpful

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1 previous review
February 10, 2010

Facing the possibility of having my bottom teeth removed following cancer of the tongue, I decided to try and find information about whether or not this was a good idea on the web. This is when I dis... more

September 19, 2013
2 people found this review helpful

Oral cancer brings with it a host of problems, such as swallowing difficulties, learning to use stomach pegs for the first time, losing one's sense of taste - not to mention the side-effects of either chemo or radiation.
The Oral Cancer team were there for me throughout the journey. Having
access to expert opinion and to others who had travelled down the same road made all the difference.

Ways to make it better...

If I had to make changes to this organization, I would...

not change a thing.

More feedback...

Will you volunteer or donate to this organization?

Likely

How much of an impact do you think this organization has?

Life-changing

When was your last experience with this nonprofit?

2012

February 10, 2010
1 person found this review helpful

Facing the possibility of having my bottom teeth removed following cancer of the tongue, I decided to try and find information about whether or not this was a good idea on the web. This is when I discovered The Oral Cancer Foundation. After posting the enquiry, I soon heard from Brian Hill (the founder) and Gary Allsebrook (a long standing member). They both offered excellent information, for which I am extremely grateful. Had I simply gone ahead without their advice, I could have ultimately lost my jaw bone. I cannot thank them enough for their comments. The Oral Cancer Foundation also provides an invaluable forum for people all over the world to be able to communicate with and learn from others who are undergoing similar experiences, or who have walked the same road. My only regret is that I did not find them earlier, as in so doing avoided what was a very lonely road.

More feedback...

If this organization had 10 million bucks, it could...

spread its reach much wider, and in so doing help so many more people.

How frequently have you been involved with the organization?

About every week

When was your last experience with this nonprofit?

2010

April 11, 2013
1 person found this review helpful

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April 11, 2013
1 person found this review helpful

My son was diagnosed with oral cancer at the age of 27. We were devistated and knew nothing about the disease. He searched and found The Oral Cancer Foundation. All the volunteers and survivors and care givers helped my son as he went thru this horrible time. They helped him cope and told him what to expect and what questions he needed to ask his providers. They literally became his family. He passed away last July but he was trying to raise awareness and told everyone he could about the OCF. He wanted to help others as the people involved with OCF helped him. He was a amazing man and would have helped others if he had survived. We will always be grateful to this group of people that give so much to others dealing with this disease.

More feedback...

Will you volunteer or donate to this organization?

Definitely

How much of an impact do you think this organization has?

Life-changing

When was your last experience with this nonprofit?

2013

April 11, 2013
1 person found this review helpful

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April 11, 2013
1 person found this review helpful

When my partner was fighting oral cancer, the support and advice I got was incredible. I had friends to turn to for advice, ideas, and somewhere where as a caregiver I could have a rant and not be judged. Thanks for your support and the tireless work you all do to bring oral cancer to the forefront. From accross the pond I support all you do.

More feedback...

Will you volunteer or donate to this organization?

Definitely

How much of an impact do you think this organization has?

Life-changing

When was your last experience with this nonprofit?

2013

April 11, 2013
1 person found this review helpful

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April 11, 2013
1 person found this review helpful

The Oral Cancer Foundation provided comfort, support and hope to my mom as she battled a nine year fight against oral cancer. The friends my mom made through the Oral Cancer Foundation have continued to be a support to me after my mom passed away. I will support the Oral Cancer Foundation and their efforts for the rest of my life and I will always be grateful for this wonderful organization for all that they do.

More feedback...

Will you volunteer or donate to this organization?

Definitely

How much of an impact do you think this organization has?

Life-changing

When was your last experience with this nonprofit?

2013

April 9, 2013
2 people found this review helpful

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April 9, 2013
2 people found this review helpful

I am young, and found out on my 30th birthday that I had been diagnosed with oral cancer. I have never smoked, chewed, had a cavity, or excessively drank in my life, yet this terrible disease has chosen me. I can say that the people at The Oral Cancer Foundation have helped make this trying and challenging time more bearable. I am extremely grateful for their guidance, help, and counsel. This organization is a great not-for-profit that raises awareness about a terrible cancer that does not get much recognition. I thank God everyday for such a wonderful group of people.

More feedback...

Will you volunteer or donate to this organization?

No

How much of an impact do you think this organization has?

Life-changing

When was your last experience with this nonprofit?

2013

April 9, 2013
2 people found this review helpful

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April 9, 2013
2 people found this review helpful

I think I speak for many people when I say that without OCF and the hard work of Brian Hill, Christine Brader, and Eric Statler there are a lot of us who wouldn't even be here, myself one of them.
This site is an invaluable educational and supportive tool for those newly diagnosed, treating
and surviving all types and stages of Oral Cancer. This site not only provides information, it helps spread awareness and brings to the public just what a disfiguring and life altering cancer this is.
It also helps with those in a supportive role caring for victims of this cruel disease.

More feedback...

Will you volunteer or donate to this organization?

Definitely

How much of an impact do you think this organization has?

Life-changing

When was your last experience with this nonprofit?

2013

April 9, 2013
1 person found this review helpful

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1 previous review
July 23, 2009

If you want a forum which offers personal experience, empathy, advice, Care (with a capital C), kindness, and even the BEST recipes for recovering O.C. patients, The Oral Cancer Foundation is the plac... more

April 9, 2013
1 person found this review helpful

The OCF is a vital connection for people who find themselves with the numbing news of having oral cancer. It is a lifeline to offer hope, advice, empathy, friends, and to answer the infinite questions, repeatedly, to those diagnosed. There have been invaluable friendships formed among people who have lived through the treatments together and have shared their experience with newcomers. There are truly some "angels" in the forum who have guided the members for years, putting in more time than a full time job, to assist folks through the process of getting to "the new normal". OCF is a Godsend.

More feedback...

Will you volunteer or donate to this organization?

Likely

How much of an impact do you think this organization has?

Life-changing

When was your last experience with this nonprofit?

2012

July 23, 2009

If you want a forum which offers personal experience, empathy, advice, Care (with a capital C), kindness, and even the BEST recipes for recovering O.C. patients, The Oral Cancer Foundation is the place to be. These folks truly become family (sometimes even MORE understanding than family). We work together to combat this disease. Thank you Brian and Gary!

The Great!

I've personally experienced the results of this organization in...

Dentist offices across the country are now checking for oral cancer.

Ways to make it better...

If I had to make changes to this organization, I would...

never do as well as the ones in charge now.

More feedback...

What I've enjoyed the most about my experience with this nonprofit is...

The people.

The kinds of staff and volunteers that I met were...

outstanding!

If this organization had 10 million bucks, it could...

make every person on this planet aware of oral cancer and the importance of getting screened.

Ways to make it better...

Survivors should always come back occasionally.

In my opinion, the biggest challenges facing this organization are...

Getting the word out.

One thing I'd also say is that...

Please be aware of your body and what it is trying to tell you.

When was your last experience with this nonprofit?

2009

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