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319 Reviews
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July 9, 2014

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July 9, 2014

My healthy and active husband (46) was diagnosed with Stage IVa throat cancer (SCC) on January 31, 2014. I am very thankful to have found the OCF website and its Patient Forum. The website has informative and thorough answers to my questions concerning my husband's diagnosis, treatment, and recovery. The OCF's Patient Forum contains advice and personal accounts which provide me with relief that my fear, worry, frustration and anger as his caregiver is normal and has been felt before by others. The contributing members graciously offer their experience and insight, sometimes humorous, but also sometimes heartbreaking. But knowing I am not alone at 3:30 am with a question about peg tube feeding, radiation burns, or cisplatin is of great comfort to this caregiver. Thank you OCF.

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Will you volunteer or donate to this organization?

Likely

How much of an impact do you think this organization has?

A lot

When was your last experience with this nonprofit?

2014

July 2, 2014

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July 2, 2014

This website has been so helpful to me. Diagnosed in April 2014 with squamous cell carcinoma on base of tongue, still in treatment awaiting radiation. So great to know you are not alone in facing this awful disease.

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Will you volunteer or donate to this organization?

Definitely

How much of an impact do you think this organization has?

Life-changing

When was your last experience with this nonprofit?

2014

June 28, 2014

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June 28, 2014

I found the Oral Cancer Foundation in 2009 after major tongue surgery and returned there this year after a recurrence, another surgery and radiotherapy. My life would be a lot harder if I didn't have the Patient Forum to call on when times get tough. Other patients and dedicated volunteers give advice and support about all manner of treatments, especially radiotherapy which can be particularly dire when directed at the head and neck.

I'm impressed by the overall philosophy and tone of the site. The Forum is beautifully moderated and newcomers are welcomed with sympathy and ready answers to their questions.

It's also heartwarming to feel a link to oral cancer patients all over the world. No one wants to join the oral cancer community but if your life takes this path, the Oral Cancer Foundation makes it so much more bearable.

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Will you volunteer or donate to this organization?

Definitely

How much of an impact do you think this organization has?

Life-changing

When was your last experience with this nonprofit?

2014

October 17, 2013
2 people found this review helpful

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October 17, 2013
2 people found this review helpful

The most amazing forum with very knowledgeable and supportive people. I wish I had found it earlier...

Ways to make it better...

If I had to make changes to this organization, I would...

No changes

More feedback...

Will you volunteer or donate to this organization?

Definitely

How much of an impact do you think this organization has?

Life-changing

When was your last experience with this nonprofit?

2013

October 15, 2013
2 people found this review helpful

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1 previous review
July 22, 2009

My only regret is that I did not find the OCF website until several months after my treatments ended. The forum has been incredible for me, putting me in touch with many others who have gone through t... more

October 15, 2013
2 people found this review helpful

This site was such a blessing after my treatments for stage 4 head and neck cancer, and continues to be a part of my life as a place to go to give and receive moral support, Love everyone on the forum and Brian Hill does a great job keeping us all up to date on developments in research and developments.

More feedback...

Will you volunteer or donate to this organization?

Definitely

How much of an impact do you think this organization has?

A lot

When was your last experience with this nonprofit?

2013

July 22, 2009

My only regret is that I did not find the OCF website until several months after my treatments ended. The forum has been incredible for me, putting me in touch with many others who have gone through the same experiences and are dealing with the same after affects of treatment. The information available on the site and especially the forum helped me get through the toughest time of my life. I will always be grateful for this wonderful foundation.

The Great!

I've personally experienced the results of this organization in...

Boosting my morale when I was really down.

Ways to make it better...

If I had to make changes to this organization, I would...

Try to reach out to patients while they are going through treatment to let them know there's a place they can come for info and support.

More feedback...

What I've enjoyed the most about my experience with this nonprofit is...

The wonderful people on the forum.

The kinds of staff and volunteers that I met were...

I've only "met" them on line but they have been informative and supportive and generally wonderful people.

If this organization had 10 million bucks, it could...

overcome those challenges.

Ways to make it better...

I had found it sooner.

In my opinion, the biggest challenges facing this organization are...

Getting word out to the public about early detection of oral cancer. Getting the dental profession to make oral cancer screenings part of their routine.

One thing I'd also say is that...

Cancer is horrible and nothing can change that but OCF has helped me deal with it.

When was your last experience with this nonprofit?

2009

October 9, 2013

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October 9, 2013

I found this site after my boyfriend was diagnosed with cancer. The site and the members have been extremely helpful over the past 3 months, both in the emotional support and the information about treatments. This is an awesome organization, and I feel so blessed that they are available for all of us struggling as patients, and caregivers!!

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Will you volunteer or donate to this organization?

Unsure

How much of an impact do you think this organization has?

A lot

When was your last experience with this nonprofit?

2013

October 9, 2013
1 person found this review helpful

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October 9, 2013
1 person found this review helpful

I learned about this site from a web search 7years ago when I was first told about my oral cancer. For me it has been very helpful from there forum pages. If you have a question or a concern just type up your note and you will get replies back to help. It great to have a strong support system like this out there.

Ways to make it better...

If I had to make changes to this organization, I would...

Try to get information out to doctors to be passed to new oral cancer patients

More feedback...

Will you volunteer or donate to this organization?

Likely

How much of an impact do you think this organization has?

Life-changing

When was your last experience with this nonprofit?

2013

October 8, 2013

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October 8, 2013

Going through oral cancer a few years ago, I learned about OCF from my oncologist. Since then I've been a frequent visitor to the forums, read nearly all the educational material and become a regular donor. I can't say enough about the amazing support and expertise offered by both the Foundation itself and the wonderful people who comprise its members, volunteers and just plain Joe and Jane Public Citizens. I've been to many similar sites dealing with other personal medical issues. The Oral Cancer Foundation is the gold standard.

Ways to make it better...

If I had to make changes to this organization, I would...

Give it a million bucks... if I had it. I hope more people will become aware of the organization, because it deserves to be in the forefront of education and support for anyone with head and neck cancer, or who knows someone so afflicted.

More feedback...

Will you volunteer or donate to this organization?

Definitely

How much of an impact do you think this organization has?

Life-changing

When was your last experience with this nonprofit?

2013

October 8, 2013
1 person found this review helpful

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October 8, 2013
1 person found this review helpful

I found the ocf site soon after I was diagnosed I learned more in the next couple days than my doctors told me over the following weeks I had answers to my own questions and doctors agreed when asked remarkable site with incredible angels waiting to help you with your struggles even when they are going through there own, I still visit ( lurk) to learn new treatments and keep informed thank you ocf

Ways to make it better...

If I had to make changes to this organization, I would...

Pay them

More feedback...

Will you volunteer or donate to this organization?

Likely

How much of an impact do you think this organization has?

Life-changing

When was your last experience with this nonprofit?

2013

October 7, 2013

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October 7, 2013

When my mom was diagnosed this site really helped me too become a patient advocate. Members here encouraged me to push for further treatment options for my mom. I am thankful for this wonderful group!!

More feedback...

Will you volunteer or donate to this organization?

Likely

How much of an impact do you think this organization has?

Life-changing

When was your last experience with this nonprofit?

2013

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