The Oral Cancer Foundation

Rating: 4.98 stars   327 reviews

Issues: Health, Cancer

Location: 3419 Via Lido #205 Newport Beach CA 92633 USA

Mission: The Oral Cancer Foundation is a non-profit 501c3 charity that works to provide information about this disease to the public, advocate for patients, and provide support services to them. OCF operates the world’s largest real time, patient-to-survivor interactive support service via the web, and the foundation’s main information web site, which contains thousands of pages of information, receives over 22 million hits per month. We are also sponsors of research, primarily in the area of detection mechanisms that facilitate the discovery of the disease at early stages when survival rates are the highest.
Results: *WINNER OF THE 2009 CANCER FIGHTERS AWARD FOR SMALL NON-PROFITS* CURRENT CAMPAIGNS Rodeo - Tobacco Outreach - "Be Smart. Don't Start." In 2014 our first rodeo spokesperson joined OCF; Cody Kiser, a young, personable, up and coming bareback bronc rider. Cody and OCF founder Brian Hill began a program of doing interviews at rodeos or by phone after Cody’s competition in the arena with local print media. The message from Hill, an oral cancer survivor, and Cody, a rodeo cowboy that believed in rodeo as a family oriented event where tobacco wasn’t a contributing part of the mix, was simple. Tobacco eventually brings bad things into your life, and you can be a great competitor and cowboy/athlete without it. The foundation worked with photographers to not only capture the excitement of a wild 8 second ride on a horse that wants to put you on the ground, to showcasing the message and branding that Cody wears on his safety vest and shirts into the arena competition. The idea, particularly Cody’s compelling story of wanting to do good in the world while following his passion of traveling to rodeos to compete each weekend, was an immediate success. That human interest story, coupled with facts about tobacco and nicotine addiction, and the dire oral cancer element, was a story that resonated with people. Almost immediately it attracted national attention in venues like the largest print magazine in circulation in America; Parade, to front page stories in local newspapers like the The Idaho Press Tribune and PRC Rodeo. Part of the Change: The RDH community is uniting to be part of the much needed change in early discovery of oral cancers. With their commitment to performing oral cancer screenings and being the first line of defense you have an opportunity to find cancer in its early stages. Early discovery and diagnosis, yields better long-term outcomes, and lower morbidity to those who undergo treatments. Together, we can make a difference! Together, we can give oral cancer a voice! If you would like to be part of the change, please email Jamie O'Day - jamie@oralcancerfoundation.org. Oral Cancer Awareness Month - April Oral Cancer awareness in the American public is low. Approximately 43,250 people in the U.S. will be newly diagnosed with oral cancer this year. Dentists are often the first line of defense against oral cancer, through the process of early discovery. While smoking and tobacco use are still major risk factors, the fastest growing segment of oral cancer patients is young, healthy, nonsmoking individuals due to the connection to the HPV virus. We cannot stop this virus from spreading; our only hope to save lives is with professional involvement and public awareness. This is your opportunity to get involved and give back to your community in hopes to raise oral cancer awareness and the need for early detection in order to save lives. Together, we have the opportunity to make a difference in the world of oral cancers. Please join us.
Target demographics: While historically the majority of people are over the age of 40 at the time of discovery, oral cancer does occur in those under this age. It is also now confirmed that in a younger age group, including those who have never used tobacco products, have a cause which is HPV viral based. The human papilloma virus, particularly version 16, has now been shown to be sexually transmitted between partners, and is conclusively implicated in the increasing incidence of young non-smoking oral cancer patients.
Geographic areas served: USA
2014 Top-Rated Nonprofit
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EIN 33-0969026
949-723-4400
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Community Reviews

Role: General Member of the Public
Rating: 5 stars  

1 person found this review helpful

My healthy and active husband (46) was diagnosed with Stage IVa throat cancer (SCC) on January 31, 2014. I am very thankful to have found the OCF website and its Patient Forum. The website has informative and thorough answers to my questions concerning my husband's diagnosis, treatment, and recovery. The OCF's Patient Forum contains advice and personal accounts which provide me with relief that my fear, worry, frustration and anger as his caregiver is normal and has been felt before by others. The contributing members graciously offer their experience and insight, sometimes humorous, but also sometimes heartbreaking. But knowing I am not alone at 3:30 am with a question about peg tube feeding, radiation burns, or cisplatin is of great comfort to this caregiver. Thank you OCF.

Will you volunteer or donate to this organization?

Likely

How much of an impact do you think this organization has?

A lot

When was your last experience with this nonprofit?

2014

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Role: General Member of the Public
Rating: 5 stars  

This website has been so helpful to me. Diagnosed in April 2014 with squamous cell carcinoma on base of tongue, still in treatment awaiting radiation. So great to know you are not alone in facing this awful disease.

Will you volunteer or donate to this organization?

Definitely

How much of an impact do you think this organization has?

Life-changing

When was your last experience with this nonprofit?

2014

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Rating: 5 stars  

1 person found this review helpful

I found the Oral Cancer Foundation in 2009 after major tongue surgery and returned there this year after a recurrence, another surgery and radiotherapy. My life would be a lot harder if I didn't have the Patient Forum to call on when times get tough. Other patients and dedicated volunteers give advice and support about all manner of treatments, especially radiotherapy which can be particularly dire when directed at the head and neck.

I'm impressed by the overall philosophy and tone of the site. The Forum is beautifully moderated and newcomers are welcomed with sympathy and ready answers to their questions.

It's also heartwarming to feel a link to oral cancer patients all over the world. No one wants to join the oral cancer community but if your life takes this path, the Oral Cancer Foundation makes it so much more bearable.

Will you volunteer or donate to this organization?

Definitely

How much of an impact do you think this organization has?

Life-changing

When was your last experience with this nonprofit?

2014

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Role: General Member of the Public
Rating: 5 stars  

3 people found this review helpful

The most amazing forum with very knowledgeable and supportive people. I wish I had found it earlier...

If I had to make changes to this organization, I would...

No changes

Will you volunteer or donate to this organization?

Definitely

How much of an impact do you think this organization has?

Life-changing

When was your last experience with this nonprofit?

2013

Was this review helpful? 
Rating: 5 stars  

2 people found this review helpful

This site was such a blessing after my treatments for stage 4 head and neck cancer, and continues to be a part of my life as a place to go to give and receive moral support, Love everyone on the forum and Brian Hill does a great job keeping us all up to date on developments in research and developments.

Will you volunteer or donate to this organization?

Definitely

How much of an impact do you think this organization has?

A lot

When was your last experience with this nonprofit?

2013

Was this review helpful? 
1 previous review
Rating: 5 stars  

1 person found this review helpful

My only regret is that I did not find the OCF website until several months after my treatments ended. The forum has been incredible for me, putting me in touch with many others who have gone through the same experiences and are dealing with the same after affects of treatment. The information available on the site and especially the forum helped me get through the toughest time of my life. I will always be grateful for this wonderful foundation.

I've personally experienced the results of this organization in...

Boosting my morale when I was really down.

If I had to make changes to this organization, I would...

Try to reach out to patients while they are going through treatment to let them know there's a place they can come for info and support.

What I've enjoyed the most about my experience with this nonprofit is...

The wonderful people on the forum.

The kinds of staff and volunteers that I met were...

I've only "met" them on line but they have been informative and supportive and generally wonderful people.

If this organization had 10 million bucks, it could...

overcome those challenges.

Ways to make it better...

I had found it sooner.

In my opinion, the biggest challenges facing this organization are...

Getting word out to the public about early detection of oral cancer. Getting the dental profession to make oral cancer screenings part of their routine.

One thing I'd also say is that...

Cancer is horrible and nothing can change that but OCF has helped me deal with it.

When was your last experience with this nonprofit?

2009-7-01

Was this review helpful? 
Rating: 5 stars  

I found this site after my boyfriend was diagnosed with cancer. The site and the members have been extremely helpful over the past 3 months, both in the emotional support and the information about treatments. This is an awesome organization, and I feel so blessed that they are available for all of us struggling as patients, and caregivers!!

Will you volunteer or donate to this organization?

Unsure

How much of an impact do you think this organization has?

A lot

When was your last experience with this nonprofit?

2013

Was this review helpful? 
Rating: 5 stars  

1 person found this review helpful

I learned about this site from a web search 7years ago when I was first told about my oral cancer. For me it has been very helpful from there forum pages. If you have a question or a concern just type up your note and you will get replies back to help. It great to have a strong support system like this out there.

If I had to make changes to this organization, I would...

Try to get information out to doctors to be passed to new oral cancer patients

Will you volunteer or donate to this organization?

Likely

How much of an impact do you think this organization has?

Life-changing

When was your last experience with this nonprofit?

2013

Was this review helpful? 
Rating: 5 stars  

1 person found this review helpful

Going through oral cancer a few years ago, I learned about OCF from my oncologist. Since then I've been a frequent visitor to the forums, read nearly all the educational material and become a regular donor. I can't say enough about the amazing support and expertise offered by both the Foundation itself and the wonderful people who comprise its members, volunteers and just plain Joe and Jane Public Citizens. I've been to many similar sites dealing with other personal medical issues. The Oral Cancer Foundation is the gold standard.

If I had to make changes to this organization, I would...

Give it a million bucks... if I had it. I hope more people will become aware of the organization, because it deserves to be in the forefront of education and support for anyone with head and neck cancer, or who knows someone so afflicted.

Will you volunteer or donate to this organization?

Definitely

How much of an impact do you think this organization has?

Life-changing

When was your last experience with this nonprofit?

2013

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Role: General Member of the Public
Rating: 5 stars  

2 people found this review helpful

I found the ocf site soon after I was diagnosed I learned more in the next couple days than my doctors told me over the following weeks I had answers to my own questions and doctors agreed when asked remarkable site with incredible angels waiting to help you with your struggles even when they are going through there own, I still visit ( lurk) to learn new treatments and keep informed thank you ocf

If I had to make changes to this organization, I would...

Pay them

Will you volunteer or donate to this organization?

Likely

How much of an impact do you think this organization has?

Life-changing

When was your last experience with this nonprofit?

2013

Was this review helpful? 
Rating: 5 stars  

When my mom was diagnosed this site really helped me too become a patient advocate. Members here encouraged me to push for further treatment options for my mom. I am thankful for this wonderful group!!

Will you volunteer or donate to this organization?

Likely

How much of an impact do you think this organization has?

Life-changing

When was your last experience with this nonprofit?

2013

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