The Oral Cancer Foundation

Rating: 4.98 stars   329 reviews

Issues: Health, Cancer

Location: 3419 Via Lido #205 Newport Beach CA 92633 USA

Mission: The Oral Cancer Foundation is a non-profit 501c3 charity that works to provide information about this disease to the public, advocate for patients, and provide support services to them. OCF operates the world’s largest real time, patient-to-survivor interactive support service via the web, and the foundation’s main information web site, which contains thousands of pages of information, receives over 22 million hits per month. We are also sponsors of research, primarily in the area of detection mechanisms that facilitate the discovery of the disease at early stages when survival rates are the highest.
Results: *WINNER OF THE 2009 CANCER FIGHTERS AWARD FOR SMALL NON-PROFITS* CURRENT CAMPAIGNS Rodeo - Tobacco Outreach - "Be Smart. Don't Start." In 2014 our first rodeo spokesperson joined OCF; Cody Kiser, a young, personable, up and coming bareback bronc rider. Cody and OCF founder Brian Hill began a program of doing interviews at rodeos or by phone after Cody’s competition in the arena with local print media. The message from Hill, an oral cancer survivor, and Cody, a rodeo cowboy that believed in rodeo as a family oriented event where tobacco wasn’t a contributing part of the mix, was simple. Tobacco eventually brings bad things into your life, and you can be a great competitor and cowboy/athlete without it. The foundation worked with photographers to not only capture the excitement of a wild 8 second ride on a horse that wants to put you on the ground, to showcasing the message and branding that Cody wears on his safety vest and shirts into the arena competition. The idea, particularly Cody’s compelling story of wanting to do good in the world while following his passion of traveling to rodeos to compete each weekend, was an immediate success. That human interest story, coupled with facts about tobacco and nicotine addiction, and the dire oral cancer element, was a story that resonated with people. Almost immediately it attracted national attention in venues like the largest print magazine in circulation in America; Parade, to front page stories in local newspapers like the The Idaho Press Tribune and PRC Rodeo. Part of the Change: The RDH community is uniting to be part of the much needed change in early discovery of oral cancers. With their commitment to performing oral cancer screenings and being the first line of defense you have an opportunity to find cancer in its early stages. Early discovery and diagnosis, yields better long-term outcomes, and lower morbidity to those who undergo treatments. Together, we can make a difference! Together, we can give oral cancer a voice! If you would like to be part of the change, please email Jamie O'Day - jamie@oralcancerfoundation.org. Oral Cancer Awareness Month - April Oral Cancer awareness in the American public is low. Approximately 43,250 people in the U.S. will be newly diagnosed with oral cancer this year. Dentists are often the first line of defense against oral cancer, through the process of early discovery. While smoking and tobacco use are still major risk factors, the fastest growing segment of oral cancer patients is young, healthy, nonsmoking individuals due to the connection to the HPV virus. We cannot stop this virus from spreading; our only hope to save lives is with professional involvement and public awareness. This is your opportunity to get involved and give back to your community in hopes to raise oral cancer awareness and the need for early detection in order to save lives. Together, we have the opportunity to make a difference in the world of oral cancers. Please join us.
Target demographics: While historically the majority of people are over the age of 40 at the time of discovery, oral cancer does occur in those under this age. It is also now confirmed that in a younger age group, including those who have never used tobacco products, have a cause which is HPV viral based. The human papilloma virus, particularly version 16, has now been shown to be sexually transmitted between partners, and is conclusively implicated in the increasing incidence of young non-smoking oral cancer patients.
Geographic areas served: USA
2015 Top-Rated Nonprofit
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EIN 33-0969026
949-723-4400
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Community Reviews

Rating: 5 stars  

1 person found this review helpful

I came to work for OCF from a well known surf brand. I specialize in everything "web 2.0" aka Social Media. At the foundation I spread awareness reaching out to those in need of aid and those who maybe never heard of oral cancer. The largest challenge that we face are the lack of people screened annually for oral cancer- which in turn equals to the lack of people that are aware. As stated on the OCF website- one person every hour of every day dies from oral cancer. No one is excluded from that statistic, even if you don't smoke. Before working with OCF, I had no idea. What many people do not know is that OCF's ability to help people does not stop with oral cancer. I have never had oral cancer. I haver never had a family member with oral cancer. I have never even had a close friend with oral cancer... but OCF has helped me. This foundation, the founder, the volunteers and the people on the forum have all helped to make me a better person. I have spoken to people who have survived oral cancer, are going through oral cancer, have recently been diagnosed with oral cancer and have lost loved ones from oral cancer. Hearing their stories gives me the momentum and pushes me to fight harder everyday to help them and prevent anyone from having to go through this. The experience I have working at OCF is truly priceless and has made me cognizant of the importance of helping others. Because of OCF I go to sleep every night proud of who I am.

What I've enjoyed the most about my experience with this nonprofit is...

Being given the opportunity to help people in need.

If this organization had 10 million bucks, it could...

Wow $10 million, OCF could do a lot but the most influential would be to have the ability to plant awareness of oral cancer in every American's mind. Survival comes with early detection and 10 million would drop the death rate down a lot.

When was your last experience with this nonprofit?

2009-7-01

 
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Role: Professional with expertise in this field
Rating: 5 stars  

1 person found this review helpful

The Oral Cancer Foundation provides many helps to communities around the US to raise the awareness of Oral Cancer. Their walks help involve many and raise money for needed research and imortant information. It is very helpful to have an organization as well informed, active, and caring as the OCF involved in helping patients and professionals.

I've personally experienced the results of this organization in...

The web site provides up to date, quality information that helps people understand how to deal with oral cancer and how to help avoid it.

If I had to make changes to this organization, I would...

Keep up all the efforts they are doing

What I've enjoyed the most about my experience with this nonprofit is...

the caring way they support people suffering with oral cancer and its effects.

The kinds of staff and volunteers that I met were...

Everyone at the organization is wonderful and dedicated to helping others.

If this organization had 10 million bucks, it could...

Save a lot more lives and give relief to many more people.

Ways to make it better...

They are doing great!

In my opinion, the biggest challenges facing this organization are...

Raising awareness of the disease

One thing I'd also say is that...

This organization is fdeserving of the highest accolades for their efforts.

When was your last experience with this nonprofit?

2009-4-01

 
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Role: Professional with expertise in this field
Rating: 5 stars  

1 person found this review helpful

I have sent all of my patients to this web site with great results. Everyone has thanked me for hooking them up to such an informative and open forum. I believe this site has all the elements that can assist a patient when face with the news of possible cancer and its effects on their life.

I've personally experienced the results of this organization in...

patients that I have referred to the site

If I had to make changes to this organization, I would...

raise more money

What I've enjoyed the most about my experience with this nonprofit is...

its open discussion about this disease.

The kinds of staff and volunteers that I met were...

excellent

If this organization had 10 million bucks, it could...

expand its message and reach.

Ways to make it better...

More people knew about the site

In my opinion, the biggest challenges facing this organization are...

funding.

One thing I'd also say is that...

When was your last experience with this nonprofit?

2009-5-01

 
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Role: Professional with expertise in this field
Rating: 5 stars  

1 person found this review helpful

I have had the pleasure and honor of writing several website articles, news releases and other communications materials for the Oral Cancer Foundation over the past year or so. I could not be more in awe of the commitment of the Foundation and its founder, Brian Hill, to promoting early detection of the disease and to serving as a vital resource to oral cancer victims and their families and friends. Before Brian created the Foundation, public awareness of this surprisingly common and fatal disease was extremely low, and victims had very little access to desperately-needed information and advice. All one has to do is talk with an oral cancer victim to appreciate what a spectacular job the Foundation has done in filling this void. Particularly impressive to me is how the Foundation's online forums brilliantly allow oral cancer survivors to provide insight, counsel and comfort to more recently-diagnosed patients. The pain and suffering these amazing people have experienced is exceeded only by their compassion for their fellow victims. What many people do not realize is how tirelessly Brian works on behalf of the Foundation. For Brian it is virtually a 24/7 obsession, and his wife Ingrid also volunteers a great deal of her time despite the fact that she works full-time elsewhere. Moreover, the Hills' personal financial commitment to the Foundation has been truly above-and-beyond the call of duty, particularly when you consider that Brian's impressive track record as an entrepreneur would make it easy for him to accept a high-paying offer to run a private or public company. The impact that Brian Hill and the Oral Cancer Foundation have made to date is probably impossible to measure. However, if you speak to Brian, it is clear that this impact pales in comparison to what will be accomplished in the years to come.

I've personally experienced the results of this organization in...

the passionate feedback from oral cancer victims documenting the invaluable support the Foundation provided in helping them cope with their disease.

If I had to make changes to this organization, I would...

hire additional support for Brian Hill so that he can reduce his hours to "only" 60 per week.

What I've enjoyed the most about my experience with this nonprofit is...

witnessing the wonderful spirit of giving back demonstrated by founder Brian Hill and the many oral cancer victims who are so eager to comfort other victims.

The kinds of staff and volunteers that I met were...

deeply passionate about the Foundation's mission.

If this organization had 10 million bucks, it could...

significantly reduce the incidence of oral cancer, saving thousands of lives in the process.

Ways to make it better...

the Foundation had additional financial resources to better spread the word about its cause.

In my opinion, the biggest challenges facing this organization are...

raising additional funds to help them do even greater things and reduce the financial burder shouldered by the Hills.

One thing I'd also say is that...

Brian Hill is an extremely special human being.

When was your last experience with this nonprofit?

2009-8-01

 
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Role: Professional with expertise in this field
Rating: 5 stars  

1 person found this review helpful

Thank god for the Oral Cancer Foundation. Although oral cancer kills one American an hour, it is disease which has been largely unknown by the general public. However, this is slowly beginning to change based in part on the great website that OCF runs, but more importantly by all of the public awareness that has been generated in recent years by OCF. OCF has also lobbied effectively for more funds for oral cancer research, and for the American Dental Association to pay more attention to the condition. Arguably, nothing a dentist does for a patient is more valuable than an oral cancer exam, and too few dentists do this exam on a routine basis. OCF is helping to change all of that.

I've personally experienced the results of this organization in...

enhancing public awareness of oral cancer and engaging more dentists in the early diagnosis of the disease. It is also one of the few places where Oral Cancer sufferers can go to for excellent advice.

What I've enjoyed the most about my experience with this nonprofit is...

watching the organization grow in size, effectiveness and comprehensive services.

The kinds of staff and volunteers that I met were...

bright, empathetic people dedicated to helping those who suffer from oral cancer.

If this organization had 10 million bucks, it could...

dramatically improve public awareness of the disease.

When was your last experience with this nonprofit?

2009-3-01

 
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