The Oral Cancer Foundation

Rating: 4.99 stars   338 reviews

Address:

3419 Via Lido #205 Newport Beach CA 92633 USA

Mission:

The Oral Cancer Foundation is a non-profit 501c3 charity that works to provide information about this disease to the public, advocate for patients, and provide support services to them. OCF operates the world’s largest real time, patient-to-survivor interactive support service via the web, and the foundation’s main information web site, which contains thousands of pages of information, receives over 22 million hits per month. We are also sponsors of research, primarily in the area of detection mechanisms that facilitate the discovery of the disease at early stages when survival rates are the highest.

Results:

*WINNER OF THE CANCER FIGHTERS AWARD FOR SMALL NON-PROFITS* Oral Cancer Awareness Month – April Oral Cancer awareness in the American public is low. Approximately 45,750 people in the U.S. will be newly diagnosed with oral cancer this year. Dentists are often the first line of defense against oral cancer, through the process of early discovery. While smoking and tobacco use are still major risk factors, the fastest growing segment of oral cancer patients is young, healthy, nonsmoking individuals due to the connection to the HPV virus. We cannot stop this virus from spreading; our only hope to save lives is with professional involvement and public awareness. This is your opportunity to get involved and give back to your community in hopes to raise oral cancer awareness and the need for early detection in order to save lives. Together, we have the opportunity to make a difference in the world of oral cancers. Please join us. Rodeo - Tobacco Outreach - "Be Smart. Don't Start.” Rodeo cowboy, Cody Kiser, and cowgirl, Carly Twisselman, have partnered with OCF to spread a simple message to the youth at rodeo competitions, “Be Smart. Don’t Start.” The foundation is a big believer that in order to solve problems, you have to become engaged where the problem lives. Kids look up to athletes, not just in rodeo, but major league baseball and elsewhere as “heroes” that they would aspire to be like. Unfortunately no hero is ever perfect. OCF has begun to program to put alternative role models out in the world of rodeo cowboys athletes, with the intention of reaching young people before they make addictive choices that will harm them later in life. With Cody and Carly’s support, we expect to have a larger presence in the rodeo world, and reach many more young people with our anti-tobacco message. Be Part of the Change: The RDH community is uniting to be part of the much needed change in early discovery of oral cancers. With their commitment to performing oral cancer screenings and being the first line of defense they have the opportunity to find cancer in its early stages. Early discovery and diagnosis, yields better long-term outcomes, and lower morbidity to those who undergo treatments. In addition to screening patients they see in their daily practice, we have partnered with hygienists across the county to build screening teams to perform free oral cancer screenings in their community. A combined effort between professional engagement and public awareness is essential in order to raise awareness of this silent killer and educate the public about the importance of an annual oral cancer screening. If you would like to be part of the change, please email Jamie O'Day - jamie@oralcancerfoundation.org.

Target demographics:

While historically the majority of people are over the age of 40 at the time of discovery, oral cancer does occur in those under this age. It is also now confirmed that in a younger age group, including those who have never used tobacco products, have a cause which is HPV viral based. The human papilloma virus, particularly version 16, has now been shown to be sexually transmitted between partners, and is conclusively implicated in the increasing incidence of young non-smoking oral cancer patients.

Geographic areas served:

USA

Programs:

Research - Understanding the Implications of Human Papilloma Virus Infection - particularly HPV 16, which is now responsible for the fastest growing segment of the oral cancer population. For over a decade OCF has funded core science which has helped us understand this new etiology. Work that has elucidated demographics, transfer mechanisms, future trends of the infection, treatment response, adn more have been produced by our decade long collaboration with Dr. Maura Gillison and her team. Advocacy - OCF was a leader in the effort to expand the use of the HPV vaccine for cervical cancer to young boys, testifying at the CDC vaccine boards over three years. With strategic partnerships formed with other organizations such as the American Academy of Pediatrics, the foundation finally achieved this goal. At the NIH, we have advocated for clinical trials in the area of head and neck cancers that our science board deemed urgent. These have included research to determine if the HPV protective cervical cancer vaccines would work as well in other HPV cancers such as HPV16+ oropharyngeal cancer, which is the fastest growing segment of the oral cancer population.

2015 Top-Rated Nonprofit
Write a Review
Donate
Invite Reviews Share This Nonprofit

More Info

949-723-4400
http://www.oralcancer.org

Promote This Nonprofit

GreatNonprofits badges allow you to raise awareness of your favorite nonprofits on your own web sites!

Review this charity on
GreatNonprofits

Reviews for The Oral Cancer Foundation

Role: Professional with expertise in this field
Rating: 5 stars  

2 people found this review helpful

As a dental hygienist, part of my daily job is to educate patients about oral cancer. The Oral Cancer Foundation has been an incredible resource for vetted, up to date, and reliable information related to trends, risk factors, current research and best practices. After volunteering at community screening events, one of my own family members was diagnosed with oral cancer and I was blessed that I was able to refer him to this foundation as he fought one of the toughest battles of his life. Information he received truly made a difference in his treatment decisions and thankfully he is alive and thriving today! With 24/7/365 access, OCF is truly a top rated non-profit serving the public, patients, and the dental/medical communities!

 
Flag review
Role: Professional with expertise in this field
Rating: 5 stars  

3 people found this review helpful

Words could not express the value of the Oral Cancer Foundation and it's impact on the lives of oral cancer patients and their families. As a speaker on the subject of oral cancer, I direct all healthcare professionals to the site. It is meticulously updated with the most current information complemented by a vast array of educational resources. However much more than that, is the ability of the foundation to advocate, relate and support those who are going through tremendous challenges in their lives.
The founder, Brian Hill knows first hand the devastation of the disease. His empathy and compassion are exemplary. He has had the ability to instill the same kindness and warmth in the team that he works with. This became evident when one of our own family members was stricken with late stage oral cancer and eventually succumbed to the illness. The team rallied and supported through every phase of treatment. Our world is a much better place with having the Oral Cancer Foundation in it.
Jo-Anne Jones, RDH

 
Flag review
Role: Professional with expertise in this field
Rating: 5 stars  

2 people found this review helpful

I just just gave a patient the news that her biopsy came back positive for dyslasia and possible early invasive squamous cell carcinoma in her mouth. I referred her to an excellent oral surgeon and to this amazing website. I suspect she'll be logging in before she meets with the surgeon, and I'm grateful that I could connect her to this resource. It's comprehensive scope and obvious commitment to providing understandable, timely, and reliable information to those who need it most of all, patients, is amazing. Thank you for being a solid link in the chain of care for this awful disease.

I've personally experienced the results of this organization in...

my practice

If I had to make changes to this organization, I would...

Look for more ways to make health care providers and patients aware of its existence.

 
Flag review
Role: Professional with expertise in this field
Rating: 4 stars  

2 people found this review helpful

Loved this site, as a Dental Hygienist. I realize more and more that my role is not only to clean the teeth, more importantly to check for oral cancer and save a life. I would love a video showing each step of a through screening process. Thank you Kim

I've personally experienced the results of this organization in...

I can pass this site along to my pts! Thanks for being here-loved the slides showing oral lesions- very helpful!!

If I had to make changes to this organization, I would...

Ways to make it better...

I would love a video showing each step of a throught clinical exam being done on a pt. As a dental professional, this could aid me in my examination- as well as prepare the pt.

In my opinion, the biggest challenges facing this organization are...

One thing I'd also say is that...

How frequently have you been involved with the organization?

One time

When was your last experience with this nonprofit?

2010-1-01

 
Flag review
Role: Professional with expertise in this field
Rating: 5 stars  

1 person found this review helpful

I am a Oral Hygenist. One of my patients referred me to The Oral Cancer Foundation site to learn more about the increasing occurance of oral cancer especially in younger people. This site was extemely informative. I have had many discussions with the Dentist I work for since then. Early detection is critical.

I've personally experienced the results of this organization in...

upgrading our examinations of patients for oral cancer during routine checkups and cleanings.

What I've enjoyed the most about my experience with this nonprofit is...

is the technical information for clinicians.

When was your last experience with this nonprofit?

2009-1-01

 
Flag review
Role: Professional with expertise in this field
Rating: 5 stars  

3 people found this review helpful

I am a dental professional that is very familiar with the oral cancer issue in the US, including the reasons that the disease is too often found late, and the impact of this fact on both survival and treatment related morbidity, as well as long term quality of life issues for patients. I have watched this small organization from its inception, and am amazed at how much it is able to accomplish with a mostly volunteer based staff, significant lack of funding, and significant obstacles in its path that are both political/professional related and science based issues. Many of the impressive list of achievements that OCF has racked up, are the result of innovative use of technology platforms that are effective and cost efficient, combined with highly creative approaches to accomplishing its mission and tasks by the management of the organization. The behemoth cancer organizations that take in hundreds of millions of dollars a year could learn something from this micro funded non profit. My guess is that if someone matched end result metrics dollar for dollar between OCF and any of the large organizations, they would become supporters of this entity as the best opportunity for their philanthropic investments. I have, before writing this, reviewed several organizations and the many comments made about them. One thing seems obvious to me. The 150+ reviews of this organization at the time of my writing come predominantly from people who have been served by OCF, and when looking at other larger organizations, volunteers, donors and staff dominate the reviews. That tells me a lot, and why I decided to take the time to write this review. These guys are in the trenches with those in need, and get the job done. The postings from those served are decidedly heartfelt, and as passionate as OCF itself. I have attended a lecture given to research professionals, in which OCF's founder was one of the presenters. I was impressed with his grasp of the complexity of the science of the viral etiology of the disease. I was even more impressed that his depth of understanding allowed him to speak without notes or the crutch of a PowerPoint presentation for two hours, but none of that compared to his passion. To a room full of scientists and researchers he brought the too often missing human component to the presentation, in a manner that was the combination of patient insight and a tactful "call to action" to those in attendance. Imagine my surprise after listening to someone delve the complex nature of oncoprotein messengers ability to alter cellular function, to find out that he was a lay person with a high school diploma. What this organization lacks in infrastructure it makes up in the development of strategic alliances. What it lacks in raw dollars to get their message out, it makes up for in creative and innovative approaches, often convincing celebrity spokespeople to deliver its message. What it does not lack in, is a true passion to serve the needs of others.

I've personally experienced the results of this organization in...

pushing the dental profession to be more engaged in the early detection process, and championing a little noticed viral connection to a relatively unheard of disease, into the public spotlight

If I had to make changes to this organization, I would...

hope that I could do as much with so little

What I've enjoyed the most about my experience with this nonprofit is...

watching their ability to effect change in the professional sector

The kinds of staff and volunteers that I met were...

knowledgeable and passionate

If this organization had 10 million bucks, it could...

it would be unstoppable

Ways to make it better...

could not have been

In my opinion, the biggest challenges facing this organization are...

getting on the radar of an corporate sponsor, philanthropic organization, or donor angel that will realize what potential there is within them

One thing I'd also say is that...

The big guys should try to do it this well.

When was your last experience with this nonprofit?

2009-6-01

 
Flag review
Role: Professional with expertise in this field
Rating: 5 stars  

1 person found this review helpful

This Organization provides up to date information on all aspects of oral cancer, including scientific as well as patient and recovery oriented issues

If I had to make changes to this organization, I would...

Pretty much leave it as it is

What I've enjoyed the most about my experience with this nonprofit is...

The caring people

The kinds of staff and volunteers that I met were...

Very caring and helpful

If this organization had 10 million bucks, it could...

Definitely do more. Money well spent!

Ways to make it better...

I had known about this earlier

In my opinion, the biggest challenges facing this organization are...

One thing I'd also say is that...

When was your last experience with this nonprofit?

2009-5-01

 
Flag review
Role: Professional with expertise in this field
Rating: 3 stars  

1 person found this review helpful

I understand this forum was very helpful for one individual with an afflicted family member. Support services are always needed in such times.

If this organization had 10 million bucks, it could...

Support outreach progams to provide assistance to members and family members which need support in their time of uncertainty. Support and outreach programs are essential for family members and afflicted individuals. Providing understanding and expectati

When was your last experience with this nonprofit?

2009-7-01

 
Flag review
Role: Professional with expertise in this field
Rating: 5 stars  

1 person found this review helpful

As a dentist in private practice I know the importance of having frequent reminders to routinely screen every single patient for signs/ symptoms of oral cancer. Thank you for the great work and helping an noble cause.

If I had to make changes to this organization, I would...

The kinds of staff and volunteers that I met were...

care about the work they do.

Ways to make it better...

they were on the east coast

In my opinion, the biggest challenges facing this organization are...

One thing I'd also say is that...

When was your last experience with this nonprofit?

2009-7-01

 
Flag review
Rating: 5 stars  

1 person found this review helpful

As a private practicing dentist and lecturer oral cancer I had the great fortune to stumble on the OCF website several years ago. The quality and level of knowledge that was directed toward both the healthcare professional and the public, especially to those individuals afflicted with some stage of the disease process, was extremely impressive. The dissemination of this accurate up to date information is curial on this “Forgotten Disease” and what I found on the OCF website immediately motivated me to become a member and volunteer to assist the OCF to do whatever I could to make a difference. The very small original OCF lapel pin I received for my membership is one of my prize possessions, which I wear proudly to help promote discussions about oral cancer and the OCF, as awareness is how a positive difference will be made. A few years later in 2005, I was again fortunate, and had the opportunity to meet and get to know the founder and executive director of the OCF, Brian Hill, a survivor of Stage 4 Oral Cancer himself. His tireless energy, dedication, and perseverance to promote awareness, sensitivity, and research is truly remarkable and a model for us all and has been an inspiration for me. As a presenter on clinical evaluation, case management, and oral cancer; the key point I always start and end all of my presentations with is that the OCF the most value resources they have and the OCF website is also a valuable resource for their patients and their families. If they only learn that fact they have greatly benefited from the course. Society’s awareness of oral cancer is how this disease state will be changed. Brian Hill and the people of the OCF are making a positive difference. The more assistance we can give to the OCF, the sooner we can move this terrible disease process in a positive direction. I have never seen an organization with so little resources do so much. THE OCF IS MAKING A DIFFERENCE

I've personally experienced the results of this organization in...

raising the health professional awareness and knowledge which is leading to earlier discovery of the disease. Patient’s being comforted by peer to peer experience and information sharing.

If I had to make changes to this organization, I would...

keep doing the same things that Brian Hill is doing.

What I've enjoyed the most about my experience with this nonprofit is...

having a place to refer healthcare professionals, patients, and their families to for accurate up to date information. Knowing that there is a place to refer patients to for quality peer to peer support that is accurate and relevant.

The kinds of staff and volunteers that I met were...

The people of the OCF are the most dedicated to changing a disease state and compassionate and reassuring to the patients that I’ve ever experienced. Brian Hill's dedication, and perseverance is truly remarkable.

If this organization had 10 million bucks, it could...

change the state of a type of cancer that is common, but virtually unknown, by rising the awareness to it and the risk factors that cause it. This would enable early discovery of the disease process, by routine, low cost, non invasive screening.

Ways to make it better...

if the OCF had the funds to spread their knowledge through out the general public and the oral health community.

In my opinion, the biggest challenges facing this organization are...

the lack of exposure and funds.

One thing I'd also say is that...

THE OCF IS MAKING A HUGE DIFFERENCE!!

When was your last experience with this nonprofit?

2009-7-01

 
Flag review