The Oral Cancer Foundation

Rating: 4.98 stars   319 reviews

Issues:

Location: 3419 Via Lido #205 Newport Beach CA 92633 USA

Mission: The Oral Cancer Foundation is a non-profit 501c3 charity that works to provide information about this disease to the public, advocate for patients, and provide support services to them. OCF operates the world’s largest real time, patient-to-survivor interactive support service via the web, and the foundation’s main information web site, which contains thousands of pages of information, receives over 22 million hits per month. We are also sponsors of research, primarily in the area of detection mechanisms that facilitate the discovery of the disease at early stages when survival rates are the highest.
Results: *WINNER OF THE 2009 CANCER FIGHTERS AWARD FOR SMALL NON-PROFITS* CURRENT CAMPAIGNS Rodeo - Tobacco Outreach - "Be Smart. Don't Start." In 2014 our first rodeo spokesperson joined OCF; Cody Kiser, a young, personable, up and coming bareback bronc rider. Cody and OCF founder Brian Hill began a program of doing interviews at rodeos or by phone after Cody’s competition in the arena with local print media. The message from Hill, an oral cancer survivor, and Cody, a rodeo cowboy that believed in rodeo as a family oriented event where tobacco wasn’t a contributing part of the mix, was simple. Tobacco eventually brings bad things into your life, and you can be a great competitor and cowboy/athlete without it. The foundation worked with photographers to not only capture the excitement of a wild 8 second ride on a horse that wants to put you on the ground, to showcasing the message and branding that Cody wears on his safety vest and shirts into the arena competition. The idea, particularly Cody’s compelling story of wanting to do good in the world while following his passion of traveling to rodeos to compete each weekend, was an immediate success. That human interest story, coupled with facts about tobacco and nicotine addiction, and the dire oral cancer element, was a story that resonated with people. Almost immediately it attracted national attention in venues like the largest print magazine in circulation in America; Parade, to front page stories in local newspapers like the The Idaho Press Tribune and PRC Rodeo. Part of the Change: The RDH community is uniting to be part of the much needed change in early discovery of oral cancers. With their commitment to performing oral cancer screenings and being the first line of defense you have an opportunity to find cancer in its early stages. Early discovery and diagnosis, yields better long-term outcomes, and lower morbidity to those who undergo treatments. Together, we can make a difference! Together, we can give oral cancer a voice! If you would like to be part of the change, please email Jamie O'Day - jamie@oralcancerfoundation.org. Oral Cancer Awareness Month - April Oral Cancer awareness in the American public is low. Approximately 43,250 people in the U.S. will be newly diagnosed with oral cancer this year. Dentists are often the first line of defense against oral cancer, through the process of early discovery. While smoking and tobacco use are still major risk factors, the fastest growing segment of oral cancer patients is young, healthy, nonsmoking individuals due to the connection to the HPV virus. We cannot stop this virus from spreading; our only hope to save lives is with professional involvement and public awareness. This is your opportunity to get involved and give back to your community in hopes to raise oral cancer awareness and the need for early detection in order to save lives. Together, we have the opportunity to make a difference in the world of oral cancers. Please join us.
Target demographics: While historically the majority of people are over the age of 40 at the time of discovery, oral cancer does occur in those under this age. It is also now confirmed that in a younger age group, including those who have never used tobacco products, have a cause which is HPV viral based. The human papilloma virus, particularly version 16, has now been shown to be sexually transmitted between partners, and is conclusively implicated in the increasing incidence of young non-smoking oral cancer patients.
Geographic areas served: USA
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EIN 33-0969026
949-723-4400
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Community Reviews

Rating: 5 stars  

1 person found this review helpful

I came to work for OCF from a well known surf brand. I specialize in everything "web 2.0" aka Social Media. At the foundation I spread awareness reaching out to those in need of aid and those who maybe never heard of oral cancer. The largest challenge that we face are the lack of people screened annually for oral cancer- which in turn equals to the lack of people that are aware. As stated on the OCF website- one person every hour of every day dies from oral cancer. No one is excluded from that statistic, even if you don't smoke. Before working with OCF, I had no idea. What many people do not know is that OCF's ability to help people does not stop with oral cancer. I have never had oral cancer. I haver never had a family member with oral cancer. I have never even had a close friend with oral cancer... but OCF has helped me. This foundation, the founder, the volunteers and the people on the forum have all helped to make me a better person. I have spoken to people who have survived oral cancer, are going through oral cancer, have recently been diagnosed with oral cancer and have lost loved ones from oral cancer. Hearing their stories gives me the momentum and pushes me to fight harder everyday to help them and prevent anyone from having to go through this. The experience I have working at OCF is truly priceless and has made me cognizant of the importance of helping others. Because of OCF I go to sleep every night proud of who I am.

What I've enjoyed the most about my experience with this nonprofit is...

Being given the opportunity to help people in need.

If this organization had 10 million bucks, it could...

Wow $10 million, OCF could do a lot but the most influential would be to have the ability to plant awareness of oral cancer in every American's mind. Survival comes with early detection and 10 million would drop the death rate down a lot.

When was your last experience with this nonprofit?

2009-7-01

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Rating: 5 stars  

1 person found this review helpful

I am 45 and female No one can describe the treatment for oral cancer and its terrible side affects unless you have been there. i was devastated at the end of my treatment. I had no saliva which to others does not sound to much of a price to pay for your life but you can not talk, eat or stop gaging along with my neck all sunken in and the burn marks on my face from the radiation i went into depression with severe panick attacks. Tonsil cancer is rare and i was given no support from local organizations. no one at my doctors surgery had ever been diagnoised with this cancer. i began to search the internet for other suffers and found The oral Cancer Foudation. i found other suffers and was able to get excellent advice on how to live with the scars and various side effects. The people were fantastic. without them i really dont think i would be here today. There are plenty of cancer charities but oral cancer and head and neck cancers have very little support. You feel totally on your own. The site is easy to use when your brain is all over the place and the advice is quick and caring. i am 2 years 5 months post treatment and do not visit the site that often now as it brings back awful memories when i read patients stories. i have regained some of my life back but have to constantly work at keeping the depression at bay. i hope to one day get my old self back and be able to help others like they helped me. but for now i am trying to keep my mimd on other things. Please recogonise this foundation for the great work that it achieves.

I've personally experienced the results of this organization in...

only on the internet

If I had to make changes to this organization, I would...

try to set up local support groups where sufferes could meet

What I've enjoyed the most about my experience with this nonprofit is...

other peoples experiences and thier advice

The kinds of staff and volunteers that I met were...

I never met the staff. i only had advice from the web site.

If this organization had 10 million bucks, it could...

set up support groups at more hospitals. supply information booklets on how to cope after treatment ends

Ways to make it better...

It could not be better.

In my opinion, the biggest challenges facing this organization are...

I dont know as i was extremly ill at the time and used them purely for my own benifit

One thing I'd also say is that...

When was your last experience with this nonprofit?

2009-5-01

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Rating: 5 stars  

1 person found this review helpful

My beautiful young daughter (age 43) fought and finally succumbed to this dreadful oral cancer. Throughout our 2-1/2 year ordeal of surgeries, chemo's & radiations I sought advice and comfort at the Oral Cancer Foundation site. I don't know how I would have made it without the wonderful people who answered my ever question & guided me through the long terrible days and nights. I am now honored to offer my help and support to those who continue to fight the valiant fight against this horrible nightmare of a disease with my experiences. The Oral Cancer Foundation is a multitude of angels waiting here on the internet to hold your hand!

I've personally experienced the results of this organization in...

providing unending support to those going through cancer

What I've enjoyed the most about my experience with this nonprofit is...

the online friends made and the heartfelt support

If this organization had 10 million bucks, it could...

help in the research toward finding a cure for oral cancer

When was your last experience with this nonprofit?

2008-9-01

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Rating: 5 stars  

1 person found this review helpful

I am mainly an in the background type person and I was a friendly caregiver to my boss who had a FT caregiver so I helped out when I was needed. Without this site I wouldn't have understood what my boss or his wife were going through so it was priceless when I needed it. I continue to visit from time to time and I just find the people amazing in their desire to help others that are about to go through their fight with oral cancer. Anyone who thinks or knows they have oral cancer would benefit greatly by logging on to this site.

I've personally experienced the results of this organization in...

the people who post on it

If I had to make changes to this organization, I would...

not change a thing

What I've enjoyed the most about my experience with this nonprofit is...

the tremendous amount of information available and the experienced posters that are always helping others in need.

If this organization had 10 million bucks, it could...

funnel that money to the most worthy research projects available

Ways to make it better...

my boss would not have had cancer

In my opinion, the biggest challenges facing this organization are...

One thing I'd also say is that...

great great site

When was your last experience with this nonprofit?

2009-7-01

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Rating: 5 stars  

1 person found this review helpful

The Oral Cancer Foundation has provided me with valuable information since my husband was diagnosed with oral cancer. The information and resources helped us understand this relatively unknown cancer. The patient/caregiver fourum gives you almost real time answers to any question you may have from people who are or have been dealing with this disease and the side effects from treatment.

I've personally experienced the results of this organization in...

They have given hope to many.

What I've enjoyed the most about my experience with this nonprofit is...

The encouragement and advice they offer

The kinds of staff and volunteers that I met were...

Very helpful

If this organization had 10 million bucks, it could...

Raise awareness and help fund research of oral cancer

When was your last experience with this nonprofit?

2009-7-01

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Role: General Member of the Public
Rating: 5 stars  

1 person found this review helpful

I found the Oral Cancer Foundation website after I had been diagnosed with tonsil cancer. I had just had a preliminary visit with a radiation oncologist. When I saw him, I really knew nothing about the disease and its treatment. By the following week, when I had a preliminary consultation with the medical oncologist, I had learned a great deal about the the disease and treatment protocols. I was able to ask intelligent questions and could make an informed decision about ;the drug to be used in the clinical trial I enrolled in.

What I've enjoyed the most about my experience with this nonprofit is...

the access to current medical knowledge about oral cancer and the vast searchable comments and questions from other oral cancer patients.

When was your last experience with this nonprofit?

2009-7-01

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Rating: 5 stars  

1 person found this review helpful

I was diagnosed with Oral Cancer in April 2007 and had surgery in June 2007 followed by radiation and chemo. I came across the OCF in my search for information regarding oral cancer. I continue to use the sight and read the forums on a regulard basis looking for more information that may be relative to or help me in my experiences. It's a great site! And everyone that participates in the forum seems to be very caring and knowledgable.

What I've enjoyed the most about my experience with this nonprofit is...

The great knowledge base that is available regarding oral cancer.

When was your last experience with this nonprofit?

2009-7-01

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Rating: 5 stars  

1 person found this review helpful

When I come to the Oral Cancer Foundation, I was scare, confused and had so many questions. The people at this site helped me so much, They told me the truth and let me know what to expect, they put my mind at ease and helped me get thur it. I looked around before coming here and found this site had the most complete information, that was easy to find and understand. 67 year old female, Oral cancer, in chin and gum area. 39 Radiation and 8 Chemo treaments.

What I've enjoyed the most about my experience with this nonprofit is...

the people and the way they let you know that it will get better.

The kinds of staff and volunteers that I met were...

very helpful, alway told the truth. This was very inportent to me, because, The doctors was not telling me all and it was causeing me to worry. I can deal better if I know what I'm dealing with.

If this organization had 10 million bucks, it could...

grow and help more people.

When was your last experience with this nonprofit?

2009-7-01

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Rating: 5 stars  

1 person found this review helpful

There are currently ~6,150 members of the Oral Cancer Foundation and I am proud to say my member number is #11. I joined the foundation it was in it's formative stages and look where it is today. The forums were of so much help to me, not only by gaining knowledge and understanding of Oral Cancer, but being able to vent and provide experience, strength and hope to others. The Oral Cancer Foundation was and still is my main source of information about the disease, the options for treatment and number one source for support and hope.

I've personally experienced the results of this organization in...

providing hope and information to new and recurring cancer patients.

If I had to make changes to this organization, I would...

What I've enjoyed the most about my experience with this nonprofit is...

working with Brian Hill the founder in the early/formative days of the organization.

If this organization had 10 million bucks, it could...

do even more for the eradication of Oral Cancer than it does today.

Ways to make it better...

I had not be a victim of this disease

In my opinion, the biggest challenges facing this organization are...

One thing I'd also say is that...

When was your last experience with this nonprofit?

2009-7-01

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Rating: 5 stars  

1 person found this review helpful

CANCER! What a horrible word. Although I was surrounded by a caring loving husband and family, I felt all alone. I had been diagnosed with tonsil cancer. Following 7 weeks of radiation, with one day each week of chemo, my treatments were complete. I was left with fear, doubt, and questions concerning my type cancer. This was all new to me. Then, thankfully, I discovered the Oral Cancer Foundation web site. How wonderful to know there was a place to go where you actually could correspond with others who had been through practically everything you had in dealing with the disease, but also dealing with the treatment and after effects. It is a privilege to know others have experienced mostly the same things I have, and at least I feel NOT ALONE. GOD BLESS everyone who is part of this wonderful site and I hope it continues forever! Julieann

I've personally experienced the results of this organization in...

helping me cope with the many questions I had concerning my treatment side effects

If I had to make changes to this organization, I would...

What I've enjoyed the most about my experience with this nonprofit is...

Hearing and learning that I AM NOT ALONE

The kinds of staff and volunteers that I met were...

So very informative

If this organization had 10 million bucks, it could...

Keep helping others "forever."

Ways to make it better...

Maybe give more instructions on how to input information for those, like me, who are computer illiterate :(

In my opinion, the biggest challenges facing this organization are...

One thing I'd also say is that...

When was your last experience with this nonprofit?

2009-7-01

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