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February 16, 2012

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February 16, 2012

I attended the Face Forward program through Next Step for the first time last summer. I have Mitochondrial Disease which is a progressive energy metabolism disorder that causes multiple organ failure. I was a little hesitant when I first got to the camp, but it was probably one of the best weeks of my life. I met so many amazing kids and after just 4 days it felt like we had known each other for a year. The staff were all so kind and awesome and the environment was incredible, very supportive, encouraging and positive. I love that there is a camp where I could go even with all my medical needs and one where all the other kids understand what it's like to live with a disease that changes your life and still keep on going and living a happy life. I made good friends who I am in regular touch with. Overall it was incredible and I am counting down till the next summer session! Face Forward gets me through the hard times!

More feedback...

How would you describe the help you got from this organization?

A lot

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2011

August 16, 2012

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August 16, 2012

I have been associated with Next Step since it’s beginning. My daughter, Emily was one of it’s very first members, and actually attended the first retreat on Thompson Island back in June 2004. Em was diagnosed with a brain tumor at age 12. She attended an incredible camp which gave her love, support and understanding like no other. When she aged out, we tried in vein to find a place for her. That was a useless, frustrating endeavor. Then wonderful Bill Kubicek founded Next Step. She was no longer alone. Next Step gave her a community when there wasn’t one. Next Step gave her the love, support and understanding she needed. Next Step, with Bill and his wonderful staff, opened another world for her, and for us. Our beautiful Emily lost her battle with her brain tumor, and passed away almost 3 years ago, but Em’s spirit will always be with Next Step. We want to share her story, so you will know how very important Next Step was to Em, and still continues to be for other young adults who are struggling and feeling very much alone.

More feedback...

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2012

February 28, 2011

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Review from Guidestar
February 28, 2011

Next Step is one of the best program my daughter ever participated. We have learned so much in their two-day program. I sincerely hope that we can join its program again in the future. Thanks so much! You are the ONE!!

Daniel Szeto
Weston, MA

The Great!

I've personally experienced the results of this organization in...

Hole in the wall gang camp in CT.

Ways to make it better...

If I had to make changes to this organization, I would...

do nothing! They are one of the best indeed.

February 28, 2011

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Review from Guidestar
February 28, 2011

I was diagnosed at 28 with acute leukemia. At that time I knew literally no-one of my age who had been diagnosed with cancer. I attended a Next Step event a couple of years after my diagnosis and it was of tremendous help to me. Sharing experiences and stories with others in a similar situation was priceless to me. I still have friends from the event and am so very and fortunate that I attended !

The Great!

I've personally experienced the results of this organization in...

Being able to share my experiences with other young cancer survivors.

Ways to make it better...

If I had to make changes to this organization, I would...

Make more events available to this under-served population...but that requires funding !

February 28, 2011

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Review from Guidestar
February 28, 2011

My name is Kathy and I have been diagnosed with three different cancers at young age. Next step included me in their young survivors group and the expereince is truly an expereince I will never forget. relationships and friends are made and these are the kind of programs that truly need to continue to be funded. Thnak you Next Step for stepping up. kathy

The Great!

I've personally experienced the results of this organization in...

Boston

Ways to make it better...

If I had to make changes to this organization, I would...

nothing, it is great the way it is.

February 28, 2011

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Review from Guidestar
February 28, 2011

I am a brain tumor survivor of 10 years and I had the wonderful opportunity to go to a young adult survivors retreat held by next step and had a chance to meet other survivors as well as others who are still in treatment. This was my first time attending any cancer related retreat and I truly benefited from it. I made life long friendships and got the chance to understand what life is for other survivors. I look forward to attending Next Step events in the future. The staff members are amazing and made my experince unforgettable.

The Great!

I've personally experienced the results of this organization in...

I attened different sessions over the weekend that where informative and creative.

Ways to make it better...

If I had to make changes to this organization, I would...

not know what I would because they are amazing.

February 28, 2011

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Review from Guidestar
February 28, 2011

My husband and I had the pleasure of attending the NextStep/Livestrong Cancer Couples Retreat in New Orleans this past November. This retreat really helped us in understanding the difficulty of each others roles during his cancer treatment. Being the caregiver I was especially relieved to have been able to meet other caregivers as well and to be able to express the difficulties in having this role freely. I also learned a lot about what my husband was going through as well. This really strengthened our marriage and helped us become stronger as whole. Being around other couples that had similar experiences was great as well. There was this certain camaraderie that was pretty unique and strengthening. To have been around couples that actually do know what you went through was a relief. This retreat was such an amazing experience.

The Great!

I've personally experienced the results of this organization in...

Attended NextStep/Livestrong Cancer Couples Retreat

Ways to make it better...

If I had to make changes to this organization, I would...

expand it

February 28, 2011

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Review from Guidestar
February 28, 2011

My name is John Thorne and I live in Carver MA At the age of 11 I was diagnoised with a cancerous brain tumor. I had the chance to go to the next step program and learn about the wonderful work they do for diaabled people. I was able to go to CT thru the next step and meet surviors of different kinds of sickness. Being with next step people helped me forget my sickness and have fun doing outdoor activities like rock climbing zip line and walking and sitting around a fire and telling about each other progress I always have fun being with the next step people and the staff. Long live next step because they help people above and beyond the call of duty.

The Great!

I've personally experienced the results of this organization in...

Being able to talk about myself and meet new people and help them cope with their sickness and daily lives

Ways to make it better...

If I had to make changes to this organization, I would...

make this organization bigger in order to help more people

February 28, 2011

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Review from Guidestar
February 28, 2011

We have known Next Step's founder, Bill Kubicek, for more than 20 years. We first met him at Paul Newman's Hole in the Wall Gang Camp, where he was the assistant camp director. Bill started his own program to serve the needs of young cancer survivors as they aged out of the camp program, the "Next Step" in their lives. We feel blessed to know Bill and the wonderful staff at his programs. He is a big part of our lives. My daughter is a brain tumor survivor since 1982. We look forward to the Next Step weekends to learn from other patients and caregivers, and to just have fun! Kara's Mom

The Great!

I've personally experienced the results of this organization in...

Weekend events and a fundraiser

Ways to make it better...

If I had to make changes to this organization, I would...

Move it closer to my home

February 28, 2011

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Review from Guidestar
February 28, 2011

Hi, my name is Paul and I have three children with Sanfilippo Syndrome.
We had the honor of being guests at one of Bill's weekend retreats. Immediately we felt part of the group. Often when we go places we feel judged but as a part of this community we felt the love and caring from Bill and
his volunteers.

The Great!

I've personally experienced the results of this organization in...

We were able to relax and enjoy time with our children

Ways to make it better...

If I had to make changes to this organization, I would...

I wouldn't. It worked very effectively for us

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