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February 17, 2011
1 person found this review helpful

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Review from Guidestar
February 17, 2011
1 person found this review helpful

I am a parent of two very special girls. The both have a chronic illness that will follow them for the rest of their lives. When they were younger we discovered the Hole in the Wall Gang Camp. This place was unbelievable, but then as the girls grew up and "aged" out of camp we were lucky enough to stay in touch with "Next Step's" founder, Bill Kubicek. This program has fill a void where nothing else can compare. We discovered an organization that will be there for the girls as the become adults. It provides all sorts of programs that allows them to still enjoy their lives and provide the many answers to questions they face growing up with a chronic illness.

The Great!

I've personally experienced the results of this organization in...

I have been lucky enough to attend a "Next Step" weekend. During this weekend, everyone there is engaged in making sure they live life to it's fullest

Ways to make it better...

If I had to make changes to this organization, I would...

Clone Bill Kubicek and make "Next Step" a world Wide organiztion!

February 17, 2011

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Review from Guidestar
February 17, 2011

Next Step is an amazing entity.
They recognized and filled a void in services provided to young adults with life threatening illnesses. Young adults without these diseases have enough challenges in the mystifying journey of self-awareness in late adolescence. There are opportunities for
children to meet and interact but just when needed most, these opportunities vanish.

As a physician volunteer, I have personally accompanied 4 Next Step weekend retreats for YA's with blood disorders and been amazed at their results in a short period of time. Watching their programming allow the participants to open up at their own pace ad confront issues has been amazing. Then, with more amazement, watching them grow to learn new "adult" skills that they can take forward.

NextStep is small..... but sooo energetic and enthusiastic. I am lucky to have witnessed their work, and even luckier to have them as a resource to my patients.

The Great!

I've personally experienced the results of this organization in...

Massachussetts. I have seen my patients change after attending an event or taking part in their mentor services. It is a wonderful thing.

Ways to make it better...

If I had to make changes to this organization, I would...

Make it bigger! Expand their programming to reach more YAs with life-threatening illnesses.

February 17, 2011

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Review from Guidestar
February 17, 2011

I was fortunate enough to discover Next Step while in my first remission from cancer and was lucky to attend one of their retreats in Boston, MA. I really didn't know what to expect and it turned out to be a great experience that has produced some great friends and supporters. Having cancer at a young age can make you feel isolated and confused about the future. Next Step provided the right situation and guidance to meet, share, laugh, and learn from others with similar struggles and make you feel like you weren't alone. The team was amazing! They made everyone feel comfortable and were very understanding and caring and provided a great atmosphere to talk to others who "get it". I'm so thankful for the entire experience.

The Great!

I've personally experienced the results of this organization in...

Participating in a weekend retreat. I was treated to a weekend at the Park Plaza in Boston that included meals, massage, crafts, discussions, plenty of laughs, and some serious conversation about our lives. And all I paid for was my ride there!

Ways to make it better...

If I had to make changes to this organization, I would...

I don't know enough about the organization itself to advise, except that they should be given more opportunities to help more people like myself.

More feedback...

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

How did you find this group?

dana farber cancer institute boston, ma

What, if any, change in your life has this group encouraged?

provided me with an extended support network of friends and survivors

When was your last experience with this nonprofit?

2008

February 17, 2011

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Review from Guidestar
February 17, 2011

The Next Step is an exemplary organization that makes it possible for young adults with devastating illnesses find hope. Their programs/retreat provide opportunities for these young adults to network with others, challenge themselves to new possibilities, and to find out that anything is possible. All the Next Step staff are wonderful professional individuals who are with this organization because they care and seek to make the lives of young adults with many challenges better. I have seen first hand at my attended retreats with survivors of cancer, how they foster the self esteem and success in young adult cancer survivors who otherwise would never have believed "they can do it." (ROPES and ART).

The Great!

I've personally experienced the results of this organization in...

My direct observation and collaboration with The Next Step in many young adult cancer and cancer survivor retreats. I have seen individual survivor who came to the retreats without any potential hope for... and go away with resources, and self empowerment.

Ways to make it better...

If I had to make changes to this organization, I would...

continue to make it even better if that is possible, and be sure that The Next Step efforts continue to be funded for the sake of the young adults with devastating illnesses or circumstances.

February 17, 2011

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Review from Guidestar
February 17, 2011

I witnessed the vision for Next Step evolving more than a decade ago, as Founder Bill Kubicek wrestled with how to continue serving a population of seriously ill children who were fast becoming young adults. We worked together at The Hole in the Wall Gang Camp. His dream has become a healing reality for thousands of teens and young adults battling serious illness. Today, Bill and his staff are a resource for this population of young people throughout the country - both in service and in education for the care providers. I am deeply moved and inspired by Next Step's authentic quest to improve lives by creating healing communities and teaching concrete and valuable life skills. They have my lifelong support.
James Canton, CEO The Hole in the wall Gang Camp

The Great!

I've personally experienced the results of this organization in...

As a volunteer in their Cancer Survivor Weekend and from many reports of young people I once served as campers who are served today by Next Step.

Ways to make it better...

If I had to make changes to this organization, I would...

Strengthen development operation

February 17, 2011

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Review from Guidestar
February 17, 2011

This is an extraordinary non-profit! I am the mother of a 17 year old female, who has aged out of the camp she had attended for many years. She has a rare, genetic bone disease that affects only 1 in 2 million individuals worldwide. Her muscles are turning into bone, forming a 2nd immobilizing skeleton. There is currently no treatment or cure for this disease. She, like anyone her age, has a great need to socialize, be accepted, respected and loved for who she is, to feel good about herself, gain more independence and confidence for the rest of her life. I believe Next Step is indispensable to further her success and happiness in life. All the staff are incredible individuals, professional in every sense of the word, yet extremely fun to be around. How can it be any better than that? I wish there were more places in the world, available to her. It doesn't cost anything. Next Step is a gift to her and a huge blessing in her life!

The Great!

I've personally experienced the results of this organization in...

how my daughter lives her life. She counts the days until she can attend these retreats. She lights up when she talks about her experiences and is more confident, secure and open to trying new things. It is my belief that she is being challenged to be a better person, and she doesn't even know that that is occurring! :)

Ways to make it better...

If I had to make changes to this organization, I would...

try to have more branches of this organization put in place. This would be so my daughter could be more involved on a regular basis, with peers, instead of just for the Young Adult/Caregiver Retreats, currently available to her. It would be wonderful for Next Step to actually have a large camp-like facility, fully funded and available for year-round activities!

February 17, 2011

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February 17, 2011

I attended a young adults cancer survivors retreat that Next Step facilitated, and I was blown away. The Next Step personnel on-site were amazing - they made us all feel welcome and as if we were family they hadn't met yet. They were professional (with regards to sticking to the agenda for the retreat) and yet allowed us to proceed organically, taking the cues from us on what the group needed to heal emotionally. They also provided us with free time activities to let us essentially be kids again, giving us the freedom to express what was in our hearts and on our mind. Overall, I couldn't be happier\with Next Step, and I hope to be able to attend another retreat soon.

The Great!

I've personally experienced the results of this organization in...

my emotional well-being after this conference. Prior to this event, I was feeling along in my survivorship - they all helped me to realize that I was one of many, and welcome in this group I'm proud to be part off.

Ways to make it better...

If I had to make changes to this organization, I would...

They had a local office in Phoenix, so that I could take part in more activities. I would also change their funding, and provide them with more so that they could continue to make a difference in the lives of the people they touch. Other than that - I would change NOTHING.

February 17, 2011

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Review from Guidestar
February 17, 2011

I am a young adult who is battling brain cancer. I have been on a few of the Next Step retreats and I find these retreats in one way or another to make me stronger. The people that you meet are really unbelievable and they also make you feel better about yourself knowing that your not the only one. I would highly reccommend Next Step to anyone.

The Great!

I've personally experienced the results of this organization in...

Boston, MA

Ways to make it better...

If I had to make changes to this organization, I would...

not change anything! They are great people and are very organized.

February 17, 2011

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Review from Guidestar
February 17, 2011

Next Step provides an upbeat, affirming experience for many who feel alone and invisible. They provide fun, inspiration, hope, community!

The Great!

I've personally experienced the results of this organization in...

I've attended Next Step events and witnessed the overcoming of obstacles through the building of connections.

Ways to make it better...

If I had to make changes to this organization, I would...

Provide additional resources so they could reach even more young adults.

February 17, 2011

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Review from Guidestar
February 17, 2011

This organization fills an important clinical and social gap for a highly disenfranchised and lonely population. Medicine has enable these kids to grow up, next step helps them to have a life.

The Great!

I've personally experienced the results of this organization in...

Continuing to expand servicees nationwide. Making a huge impact on individuals and couples.

Ways to make it better...

If I had to make changes to this organization, I would...

NONE!!!

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3 hours of volunteer time for this nonprofit will...

-Administrative/Office assistance
-Grant research
-Photography
-Teach educational workshop centering on a professional field to youth at one of our programs
-Assistance at special events (wine tastings and Falmouth Road Race)