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Nonprofit Overview

Causes: Epilepsy, Health, Philanthropy, Public Foundations

Mission: The Matty Fund® will provide family resources, raise epilepsy awareness, promote patient safety and improve the quality of life for children and families living with epilepsy.

Target demographics: Children diagnosed with seizures and epilepsy along with their families

Direct beneficiaries per year: hundreds of families

Geographic areas served: Rhode Island and beyond

Programs: Camp Matty, Family Support Groups, A Facebook support group, college scholarships, workshops, funding medical research, family events, and more

Community Stories

12 Stories from Volunteers, Donors & Supporters

Peg F.

Volunteer

Rating: 5

Out of love for the loss of their little boy Matty, the Siravo family built this organization to guide, support and connect families dealing with Epilepsy. I have had the privilege to work with the Matty Fund for over 9 years. They provided a well needed support system connecting families with medical experts, social program, and a circle of caring individuals.

Volunteer

Rating: 5

The tireless dedication of Richard and Deb Siravo is amazing. When you see the faces of these kids and their families light up at a function like their "Snow Angel Ball" it has to be extremely rewarding!

Anthony61

Volunteer

Rating: 5

The Matty Fund knows what it is about -- why it exists and how it
performs its mission.  One can know about the quality and quantity of
the Matty Fund by how it performs its mission.  It raises awareness of
epilepsy abroad to the citizens of Rhode Island; it improves the
quality of life for children and families whose daily lives are
affected by epilepsy; and is very effective raising funds for the
success of its mission.  What more may one ask of such a non-profit
foundation?  The work of the Fund changes peoples' lives for the
better.  Those who contribute financial and human resources are warmed
by their participation -- they make a decision to participate, and do
so repeatedly.

How do I know this?  I am a willing contributor and continually ask
how I can regularly participate.  I do believe in The Matty Fund and
know it to be humming along in fine fashion.  Each event turns out a
passionate group of people who participate to the highest level that
they are able. I am pleased to support this essential foundation in
the Rhode Island community.

Anthony J. (Tony) Agostinelli

1

Volunteer

Rating: 5

The Matty Fund has provided such a wonderful resource and experiences for our family. From participating on a panel discussion, attending fundraisers like the Snow Ball and Lobster bake, and creating the Alyssa Rose team to run in honor of our daughter each year - it has been really wonderful. All of the people at the Matty Fund have been amazing, and we are so fortunate to have this organization. And the events have allowed our family and friends to support our daughter when its hard for them to know how to support her. Thank you Matty Fund!

Volunteer

Rating: 5

The Matty Fund is an organization built from love and passion. My family has been touched by Epilepsy. Without the Matty Fund, our healing process would have been slower and tougher.

Volunteer

Rating: 5

The Matty Fund has been a great support system for my family. Our daughter Leslie underwent brain surgery in Septmember. Before the surgery and after members of the Matty family were there to help prepare us and support us during this difficult time. I am pleased to help to fundraiser for this organization especially since funding is being earmarked for research. Current research on the brain is making great headway and organizations like the Maty Fund help to continue that effort. Right now our daughter is seizure free and our hope increases with each passing day that her life may return to normal. Thank you Matty Fund!

Volunteer

Rating: 5

I started interning with The Matty Fund in January 2013. I can honestly say this was the best first internship I could have asked for! Not only are the people who are involved in the Matty Fund an absolute pleasure to work with, but the information about epilepsy and non-profits I have taken away from my experience has been incredible. The Matty fund helps out so many families and children and it is amazing to see how all of their efforts impact so many lives.

Volunteer

Rating: 5

Anytime I hear about the Matty Fund and/or the Siravo family a cache of emotions arise. I am so sad that Matty passed away far too young from this loving family, while also being so happy that many folks have benefited from the Foundation's success. I am impressed with the entire Siravo family and all the details they have taken care of for others who have family members with Epilepsy. I have been blessed to be involved through the years with all of the Siravo's and their highly personal endeavor to keep the "angels" amongst us well.

Seth K.

Volunteer

Rating: 5

The Matty Fund truly embodies the best traits of a non-profit - support from the community to support those in the community! The Siravos have turned a personal tragedy into a a community supported organization and now the Matty Fund is flourishing into a resource for every family in the state who has to deal with epilepsy. Even though I am fortunate not to be affected by epilepsy, I have seen first hand the support that the Matty Fund affords those who need it. God forbid another family be inflicted the way the Siravos have, but if so, they can be assured they will have more support than they ever could have imagined.

Barbara2345678910

Volunteer

Rating: 5

I am both a volunteer in this organization and a recipient of the many support services it provides. My children were both diagnosed with epilepsy and I struggled to understand more about their condition and to help them feel as comfortable as possible with it. The matty fund sponsors the support group that we attend, they sponsor educational events that help families living with epilepsy get answers, and they promote epilepsy awareness to help people in our schools and communities understand what epilepsy is. Debra and Richard's love and dedication for this cause is a blessing to so many families, and their staff, board, and volunteers are incredible.