The Matty Fund aka Matthew Siravo Memorial Fundation, Inc.

Rating: 5 stars   26 reviews

Issues: Philanthropy

Location: PO Box 5300 Wakefield RI 02880 USA

Mission:
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EIN 20-0096759
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Community Reviews

Rating: 5 stars  

The Matty Fund is an organization built from love and passion. My family has been touched by Epilepsy. Without the Matty Fund, our healing process would have been slower and tougher.

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Rating: 5 stars  

The Matty Fund has been a great support system for my family. Our daughter Leslie underwent brain surgery in Septmember. Before the surgery and after members of the Matty family were there to help prepare us and support us during this difficult time. I am pleased to help to fundraiser for this organization especially since funding is being earmarked for research. Current research on the brain is making great headway and organizations like the Maty Fund help to continue that effort. Right now our daughter is seizure free and our hope increases with each passing day that her life may return to normal. Thank you Matty Fund!

If I had to make changes to this organization, I would...

Increase research funding

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

A lot

Did the organization use your time wisely?

Quite well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2013

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Rating: 5 stars  

I started interning with The Matty Fund in January 2013. I can honestly say this was the best first internship I could have asked for! Not only are the people who are involved in the Matty Fund an absolute pleasure to work with, but the information about epilepsy and non-profits I have taken away from my experience has been incredible. The Matty fund helps out so many families and children and it is amazing to see how all of their efforts impact so many lives.

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

A lot

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2013

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Rating: 5 stars  

Anytime I hear about the Matty Fund and/or the Siravo family a cache of emotions arise. I am so sad that Matty passed away far too young from this loving family, while also being so happy that many folks have benefited from the Foundation's success. I am impressed with the entire Siravo family and all the details they have taken care of for others who have family members with Epilepsy. I have been blessed to be involved through the years with all of the Siravo's and their highly personal endeavor to keep the "angels" amongst us well.

I've personally experienced the results of this organization in...

the heightened awareness regarding Epilepsy, particularly in children. The text that was written and illustrated with young children in mind was so well received at the local schools. Great questions and discussions arose after reading this book.

If I had to make changes to this organization, I would...

I honestly cannot find one area of concern with this Foundation.

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Rating: 5 stars  

The Matty Fund truly embodies the best traits of a non-profit - support from the community to support those in the community! The Siravos have turned a personal tragedy into a a community supported organization and now the Matty Fund is flourishing into a resource for every family in the state who has to deal with epilepsy. Even though I am fortunate not to be affected by epilepsy, I have seen first hand the support that the Matty Fund affords those who need it. God forbid another family be inflicted the way the Siravos have, but if so, they can be assured they will have more support than they ever could have imagined.

I've personally experienced the results of this organization in...

as a volunteer.

If I had to make changes to this organization, I would...

not change a thing.

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Rating: 5 stars  

I am both a volunteer in this organization and a recipient of the many support services it provides. My children were both diagnosed with epilepsy and I struggled to understand more about their condition and to help them feel as comfortable as possible with it. The matty fund sponsors the support group that we attend, they sponsor educational events that help families living with epilepsy get answers, and they promote epilepsy awareness to help people in our schools and communities understand what epilepsy is. Debra and Richard's love and dedication for this cause is a blessing to so many families, and their staff, board, and volunteers are incredible.

I've personally experienced the results of this organization in...

See above

If I had to make changes to this organization, I would...

I wouldn't.

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Rating: 5 stars  

It's hard to put into words the compassion Deb and Richard Siravo possess. Prior to the creation of the Matty Fund, there was minimal local support for those touched by Epilepsy. After losing their youngest son, Matty, the Siravo's dedicated themselves fully to helping others. While the Matty Fund supports ground breaking research, its biggest accomplishment is bringing normalcy back into these Children's lives. The Matty Fund offers an escape from hospitals and doctors through programs such as a therapeutic summer camp. Richard and Deb have created more than an ordinary support group. They have created a family which continues to grow and inspire.

I've personally experienced the results of this organization in...

The Siravo's welcome several interns each year. During my time at the Matty Fund I was able to learn from their success, and bring what i've learned in the classroom to life.

If I had to make changes to this organization, I would...

None

Would you volunteer for this group again?

Definitely

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Rating: 5 stars  

As an intern for The Matty Fund, I was able to witness first hand the willingness from the Siravo's to make sure Epilepsy Awareness was constantly reaching new boarders. The dedication of the organization is top notch and they're always looking for new ways to expand. Not to mention the connection they share with the children is a completely different experience within itself. Although they focus on raising Epilepsy Awareness, it is clear the relationships with the children is their main focus, which I believe is extremely important in an organization of their type. The Matty Fund's desire to reach out to families suffering through problems with Epilepsy is unbelievable, and I strongly believe they are far and away the best Epilepsy Resource Center in Rhode Island and the surrounding New England area.

I've personally experienced the results of this organization in...

Seeing first hand the way The Matty Fund effects the surrounding community was an experience I've never had before. Just about everyone in Rhode Island knows about the organization and the way local businesses and volunteers connect with the organization is amazing. The constant and rising turnout for events such as the Snow Angel Ball and the Matthew Siravo Memorial 5K Run/Walk are tangible results that The Matty Fund is a growing and well-rounded organization.

If I had to make changes to this organization, I would...

I wouldn't make any major changes to the organization as they've done a great job at reaching and exceeding some of the goals they've made for themselves.

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