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November 30, 2011

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November 30, 2011

Anytime I hear about the Matty Fund and/or the Siravo family a cache of emotions arise. I am so sad that Matty passed away far too young from this loving family, while also being so happy that many folks have benefited from the Foundation's success. I am impressed with the entire Siravo family and all the details they have taken care of for others who have family members with Epilepsy. I have been blessed to be involved through the years with all of the Siravo's and their highly personal endeavor to keep the "angels" amongst us well.

The Great!

I've personally experienced the results of this organization in...

the heightened awareness regarding Epilepsy, particularly in children. The text that was written and illustrated with young children in mind was so well received at the local schools. Great questions and discussions arose after reading this book.

Ways to make it better...

If I had to make changes to this organization, I would...

I honestly cannot find one area of concern with this Foundation.

November 21, 2011

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November 21, 2011

The Matty Fund is a unique non-profit that truly focuses on supporting children and their families affected by Epilepsy. They have helped our family significantly as we raise our daughter, Grace, who has been living with Epilepsy for seven years now. We felt isolated and scared until we met the Siravos. Through the Matty Fund, we have connected with some wonderful families that understand the struggles we face, and we don’t feel alone anymore. We feel supported and loved and know that no matter what challenge may lie ahead that the Matty Fund will be there to provide support and guidance. We are so thankful for the Matty Fund! They have truly changed our lives as well as so many others.

More feedback...

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2011

November 13, 2011

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November 13, 2011

The Matty Fund truly embodies the best traits of a non-profit - support from the community to support those in the community! The Siravos have turned a personal tragedy into a a community supported organization and now the Matty Fund is flourishing into a resource for every family in the state who has to deal with epilepsy. Even though I am fortunate not to be affected by epilepsy, I have seen first hand the support that the Matty Fund affords those who need it. God forbid another family be inflicted the way the Siravos have, but if so, they can be assured they will have more support than they ever could have imagined.

The Great!

I've personally experienced the results of this organization in...

as a volunteer.

Ways to make it better...

If I had to make changes to this organization, I would...

not change a thing.

November 12, 2011

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November 12, 2011

Advocacy for any patient is important, however the Siravo's have taken advocacy to another level. Matty was and is their love as well as the rest of their children. However, not every parent(s) devote their life to help fill the void that others feel given the same situation. They have gone a long way in helping children and parents dealing with the many forms of epilepsy. Their work is truly heartfelt and meaningful.

The Great!

I've personally experienced the results of this organization in...

I'm personally impressed by the Siravo's.

Ways to make it better...

If I had to make changes to this organization, I would...

Help them to continue their meaningful work.

November 10, 2011

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November 10, 2011

I am both a volunteer in this organization and a recipient of the many support services it provides. My children were both diagnosed with epilepsy and I struggled to understand more about their condition and to help them feel as comfortable as possible with it. The matty fund sponsors the support group that we attend, they sponsor educational events that help families living with epilepsy get answers, and they promote epilepsy awareness to help people in our schools and communities understand what epilepsy is. Debra and Richard's love and dedication for this cause is a blessing to so many families, and their staff, board, and volunteers are incredible.

The Great!

I've personally experienced the results of this organization in...

See above

Ways to make it better...

If I had to make changes to this organization, I would...

I wouldn't.

November 9, 2011

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November 9, 2011

As a board member and a mom of a child with epilepsy, I know first hand the stuggles that families go through dealing with this disease everyday. The Matty Fund has done so many wonderful things for the children and families who have joined our organization. The few fundraisers that the Matty Fund promotes every year fully funds such wonderful family events like Camp Matty, Pumpkin Fest, Easter Egg Hunt , and Support Groups each and every year. The Matty Fund also has a wonderful program that educates the community and schools about epilepsy. Research has been funded by the Matty Fund as well as lectures with world renowned doctors. If you have a child with epilepsy and are looking for a great support system and fun activities for your child, you will want to call the MATTY FUND!

The Great!

I've personally experienced the results of this organization in...

many ways! Being a part of the matty fund for years has been a life changing experience.

Ways to make it better...

If I had to make changes to this organization, I would...

hope that we can reach out to MORE families so they can enjoy the many programs the Matty Fund offers.

November 9, 2011

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November 9, 2011

My son was recently diagnosed with epilepsy and met with challenges we weren't expecting on his first day of school. The Matty Fund was there every step of the way--offering support to our family as we negotiated this difficult step. I have no doubt that they will be an organization we will turn to again and again as our son's needs and our needs change. We are grateful for The Matty Fund.

More feedback...

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2011

November 9, 2011

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November 9, 2011

Matty Fund is fantastic support. They are always there when you have a question,, concerrn, or just need someone to talk to that knows what your going through! They raise awareness for epilepsy which most people know nothing about, but with their help it's becoming more and more known. I can't say enough good things about them they are GREAT!

The Great!

I've personally experienced the results of this organization in...

Having support in my journey through epilepsy and meeting lots of people that know exactly what im going though.

Ways to make it better...

If I had to make changes to this organization, I would...

I would not make any changes I love them!

October 27, 2011

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October 27, 2011

I am so proud to be a member of the Matty Fund staff. The devotion that the Siravo's have to the foundation's mission and their desire to help others in memory of their son Matty is reflected in all that they do to "put smiles on the faces of children with epilepsy".

The Great!

I've personally experienced the results of this organization in...

By attending and being a part of many Resource Center events and programs.

Ways to make it better...

If I had to make changes to this organization, I would...

***

September 11, 2011

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September 11, 2011

It's hard to put into words the compassion Deb and Richard Siravo possess. Prior to the creation of the Matty Fund, there was minimal local support for those touched by Epilepsy. After losing their youngest son, Matty, the Siravo's dedicated themselves fully to helping others. While the Matty Fund supports ground breaking research, its biggest accomplishment is bringing normalcy back into these Children's lives. The Matty Fund offers an escape from hospitals and doctors through programs such as a therapeutic summer camp. Richard and Deb have created more than an ordinary support group. They have created a family which continues to grow and inspire.

The Great!

I've personally experienced the results of this organization in...

The Siravo's welcome several interns each year. During my time at the Matty Fund I was able to learn from their success, and bring what i've learned in the classroom to life.

Ways to make it better...

If I had to make changes to this organization, I would...

None

More feedback...

Would you volunteer for this group again?

Definitely

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