Oops! You must enter a search term greater than 3 characters.

Invite reviews

Invite friends and colleagues to share their experiences with this nonprofit
19 Reviews
12345
| 1 2 | Next
Write A Review
November 10, 2011

more

November 10, 2011

I am both a volunteer in this organization and a recipient of the many support services it provides. My children were both diagnosed with epilepsy and I struggled to understand more about their condition and to help them feel as comfortable as possible with it. The matty fund sponsors the support group that we attend, they sponsor educational events that help families living with epilepsy get answers, and they promote epilepsy awareness to help people in our schools and communities understand what epilepsy is. Debra and Richard's love and dedication for this cause is a blessing to so many families, and their staff, board, and volunteers are incredible.

The Great!

I've personally experienced the results of this organization in...

See above

Ways to make it better...

If I had to make changes to this organization, I would...

I wouldn't.

November 9, 2011

more

November 9, 2011

As a board member and a mom of a child with epilepsy, I know first hand the stuggles that families go through dealing with this disease everyday. The Matty Fund has done so many wonderful things for the children and families who have joined our organization. The few fundraisers that the Matty Fund promotes every year fully funds such wonderful family events like Camp Matty, Pumpkin Fest, Easter Egg Hunt , and Support Groups each and every year. The Matty Fund also has a wonderful program that educates the community and schools about epilepsy. Research has been funded by the Matty Fund as well as lectures with world renowned doctors. If you have a child with epilepsy and are looking for a great support system and fun activities for your child, you will want to call the MATTY FUND!

The Great!

I've personally experienced the results of this organization in...

many ways! Being a part of the matty fund for years has been a life changing experience.

Ways to make it better...

If I had to make changes to this organization, I would...

hope that we can reach out to MORE families so they can enjoy the many programs the Matty Fund offers.

November 9, 2011

more

November 9, 2011

My son was recently diagnosed with epilepsy and met with challenges we weren't expecting on his first day of school. The Matty Fund was there every step of the way--offering support to our family as we negotiated this difficult step. I have no doubt that they will be an organization we will turn to again and again as our son's needs and our needs change. We are grateful for The Matty Fund.

More feedback...

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2011

November 9, 2011

more

November 9, 2011

Matty Fund is fantastic support. They are always there when you have a question,, concerrn, or just need someone to talk to that knows what your going through! They raise awareness for epilepsy which most people know nothing about, but with their help it's becoming more and more known. I can't say enough good things about them they are GREAT!

The Great!

I've personally experienced the results of this organization in...

Having support in my journey through epilepsy and meeting lots of people that know exactly what im going though.

Ways to make it better...

If I had to make changes to this organization, I would...

I would not make any changes I love them!

October 27, 2011

more

October 27, 2011

I am so proud to be a member of the Matty Fund staff. The devotion that the Siravo's have to the foundation's mission and their desire to help others in memory of their son Matty is reflected in all that they do to "put smiles on the faces of children with epilepsy".

The Great!

I've personally experienced the results of this organization in...

By attending and being a part of many Resource Center events and programs.

Ways to make it better...

If I had to make changes to this organization, I would...

***

September 11, 2011

more

September 11, 2011

It's hard to put into words the compassion Deb and Richard Siravo possess. Prior to the creation of the Matty Fund, there was minimal local support for those touched by Epilepsy. After losing their youngest son, Matty, the Siravo's dedicated themselves fully to helping others. While the Matty Fund supports ground breaking research, its biggest accomplishment is bringing normalcy back into these Children's lives. The Matty Fund offers an escape from hospitals and doctors through programs such as a therapeutic summer camp. Richard and Deb have created more than an ordinary support group. They have created a family which continues to grow and inspire.

The Great!

I've personally experienced the results of this organization in...

The Siravo's welcome several interns each year. During my time at the Matty Fund I was able to learn from their success, and bring what i've learned in the classroom to life.

Ways to make it better...

If I had to make changes to this organization, I would...

None

More feedback...

Would you volunteer for this group again?

Definitely

September 8, 2011

more

September 8, 2011

As someone who is involved with various organizations, I have as much respect for the Matty Fund as I do for any other.

What started as an organization of one family to prevent a similar tragedy to any other family, has grown into a community organization and a vehicle that supports so
many families now - whether it be through support groups or research.

The Matty Fund now embodies the spirit of its namesake and will carry on for years to come to help families deal with epilepsy. And through the hard work of its founders, the Siravo family, it will continue not only supporting families, but funding research to hopefully rid families of this dreaded disease.

The Great!

I've personally experienced the results of this organization in...

by witnessing first hand the wonderful spirit that this entire organization carries in their every day work.

Ways to make it better...

If I had to make changes to this organization, I would...

not change a thing.

August 9, 2011

more

August 9, 2011

As an intern for The Matty Fund, I was able to witness first hand the willingness from the Siravo's to make sure Epilepsy Awareness was constantly reaching new boarders. The dedication of the organization is top notch and they're always looking for new ways to expand. Not to mention the connection they share with the children is a completely different experience within itself. Although they focus on raising Epilepsy Awareness, it is clear the relationships with the children is their main focus, which I believe is extremely important in an organization of their type. The Matty Fund's desire to reach out to families suffering through problems with Epilepsy is unbelievable, and I strongly believe they are far and away the best Epilepsy Resource Center in Rhode Island and the surrounding New England area.

The Great!

I've personally experienced the results of this organization in...

Seeing first hand the way The Matty Fund effects the surrounding community was an experience I've never had before. Just about everyone in Rhode Island knows about the organization and the way local businesses and volunteers connect with the organization is amazing. The constant and rising turnout for events such as the Snow Angel Ball and the Matthew Siravo Memorial 5K Run/Walk are tangible results that The Matty Fund is a growing and well-rounded organization.

Ways to make it better...

If I had to make changes to this organization, I would...

I wouldn't make any major changes to the organization as they've done a great job at reaching and exceeding some of the goals they've made for themselves.

August 9, 2011

more

August 9, 2011

The Matthew Siravo Memorial Foundation is a Wonderful nonprofit organization commited to helping families deal with the realities and uncertainties of epilepsy and seizure disorders. All staff members at the foundation, including Mr and Mrs Siravo have been a great help to my family from the moment that we began our long journey to get a diagnosis for my daughter. Each and every time I have contacted the foundation with a question or just feeling frustrated, someone has answered the phone or responded very quickly to any message that I have left via phone or email. The activities that are offered for the families served under this Non profit are outstanding also. Camp Matty and the other activities, including the M.E. Support group give children and families dealing with seizure disorders a place to go where they can interact with other families dealing with the same and/or similar issues and also have a safe and fun atmosphere where the children can still feel "normal". This has to be one of the best non profits ever created, especially if you are looking for one dealing with seizure disorders. I am grateful to have The Matthew Siravo Memorial Foundation in my families life, and I know many other families feel the same way.

The Great!

I've personally experienced the results of this organization in...

My family participates in Camp Matty, the M.E. (My Epilepsy) support group, The Matty 5K and Mighty Dash, and many other activities the Matthew Siravo memorial Foundation offers throughout the year.

Ways to make it better...

If I had to make changes to this organization, I would...

There is not really much that could be changed about this organization. There is a wonderful staff and great resources.

More feedback...

How would you describe the help you got from this organization?

A little

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

How did you find this group?

Internet search

What, if any, change in your life has this group encouraged?

Second opinions and just trying to keep things as "normal" as I can.

When was your last experience with this nonprofit?

2011

Filter by reviewer role:

Support This Nonprofit

Help this nonprofit get more reviews

5 tips for getting reviews

5 tips for getting reviews...

  1. Sending an email to clients, volunteers, donors, board members, and other partners with a link to your profile page.
  2. Putting a link on your Web site
  3. Including a link in your email newsletter
  4. Putting a link in the signature of your email
    Putting a link on your facebook page and status updates
  5. Tweeting out a link to your twitter followers