The Matty Fund aka Matthew Siravo Memorial Fundation, Inc.

Rating: 5 stars   26 reviews

Issues: Philanthropy

Location: PO Box 5300 Wakefield RI 02880 USA

Mission:
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EIN 20-0096759
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Community Reviews

Rating: 5 stars  

I donate to The Matty Fund for many reasons, but most importantly because I am confident that my donation helps children and families right here in Rhode Island. Donations support activities for children living with seizures and the side effects of strong medications and much needed support for parents to help them understand, accept and deal with this condition; as well as, to become strong and effective advocates for their children. I have seen firsthand the positve impact of their programs and services. Their school awareness program has had statewide impact among school age children to encourage an atmosphere of understanding, inclusion and safety while children are in school; support groups that are now accessible statewide connect families who share similar experiences so they can learn from and support each other through the challenging and rewarding times; workshops on epilepsy related topics help parents navigate complex educational and medical systems on behalf of their children; professional development for medical professionals encourage and improve patient safety, college scholarhips and childrens activities that are fun and safe are all examples of a local non-profit doing great work right here in Rhode Island, and I know my donation is making a difference!

Was your donation impactful?

Definitely

How likely is it that you would recommend that a friend donate to this group?

Definitely

How likely are you to donate to this group again?

Definitely

When was your last experience with this nonprofit?

2012

Was this review helpful? 
Rating: 5 stars  

The Matty Fund impacts the lives of patients with seizures both on the local and the national level. The fund's programs provide resources and outreaches to patients with seizures and families providing education on diagnosis, treatment and quality of life issues. Through the foundation's research initiative, seed fund grants allow important work in the pilot stages to be carried out in the critical initial phases. Collaboration with Brown University and Rhode Island Hospital basic and clinician neuroscientists also allows mentoring and training of the next generation of researchers. Research sponsored by the Matty Fund has been published in national neurologic journals. The Matty Fund's effect is far reaching, from community to the laboratory, improving the lives of patients with seizures and their families.

How does this organization compare with others in the same sector?

Very Well

How much of an impact do you think this organization has?

Life-changing

Will you recommend this organization to others?

Definitely

When was your last experience with this nonprofit?

2011

Was this review helpful? 
Rating: 5 stars  

My role in the mattyfund, volunteer, parent of a child with epilepsy, board member and most importantly facilitator of the Discovering My Epilepsy Support Group. I have been a part of the Mattyfund since 2004 and since then I have watched this small foundation evolve into an organization that not only raises money for research; but also provides education programing, academic scholorships, and lectures and workshops for both professional and parents. The Mattyfund continue to find new and creative ways to help support the children and families of RI. As they continue to grow I see there out reach of support spanning accross the United States.

Will you volunteer or donate to this organization beyond what is required of board members?

Definitely

How much of an impact do you think this organization has?

Life-changing

Will you tell others about this organization?

Definitely

When was your last experience with this nonprofit?

2011

Was this review helpful? 
Rating: 5 stars  

Anytime I hear about the Matty Fund and/or the Siravo family a cache of emotions arise. I am so sad that Matty passed away far too young from this loving family, while also being so happy that many folks have benefited from the Foundation's success. I am impressed with the entire Siravo family and all the details they have taken care of for others who have family members with Epilepsy. I have been blessed to be involved through the years with all of the Siravo's and their highly personal endeavor to keep the "angels" amongst us well.

I've personally experienced the results of this organization in...

the heightened awareness regarding Epilepsy, particularly in children. The text that was written and illustrated with young children in mind was so well received at the local schools. Great questions and discussions arose after reading this book.

If I had to make changes to this organization, I would...

I honestly cannot find one area of concern with this Foundation.

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Rating: 5 stars  

The Matty Fund is a unique non-profit that truly focuses on supporting children and their families affected by Epilepsy. They have helped our family significantly as we raise our daughter, Grace, who has been living with Epilepsy for seven years now. We felt isolated and scared until we met the Siravos. Through the Matty Fund, we have connected with some wonderful families that understand the struggles we face, and we don’t feel alone anymore. We feel supported and loved and know that no matter what challenge may lie ahead that the Matty Fund will be there to provide support and guidance. We are so thankful for the Matty Fund! They have truly changed our lives as well as so many others.

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2011

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Rating: 5 stars  

The Matty Fund truly embodies the best traits of a non-profit - support from the community to support those in the community! The Siravos have turned a personal tragedy into a a community supported organization and now the Matty Fund is flourishing into a resource for every family in the state who has to deal with epilepsy. Even though I am fortunate not to be affected by epilepsy, I have seen first hand the support that the Matty Fund affords those who need it. God forbid another family be inflicted the way the Siravos have, but if so, they can be assured they will have more support than they ever could have imagined.

I've personally experienced the results of this organization in...

as a volunteer.

If I had to make changes to this organization, I would...

not change a thing.

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Rating: 5 stars  

Advocacy for any patient is important, however the Siravo's have taken advocacy to another level. Matty was and is their love as well as the rest of their children. However, not every parent(s) devote their life to help fill the void that others feel given the same situation. They have gone a long way in helping children and parents dealing with the many forms of epilepsy. Their work is truly heartfelt and meaningful.

I've personally experienced the results of this organization in...

I'm personally impressed by the Siravo's.

If I had to make changes to this organization, I would...

Help them to continue their meaningful work.

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Rating: 5 stars  

I am both a volunteer in this organization and a recipient of the many support services it provides. My children were both diagnosed with epilepsy and I struggled to understand more about their condition and to help them feel as comfortable as possible with it. The matty fund sponsors the support group that we attend, they sponsor educational events that help families living with epilepsy get answers, and they promote epilepsy awareness to help people in our schools and communities understand what epilepsy is. Debra and Richard's love and dedication for this cause is a blessing to so many families, and their staff, board, and volunteers are incredible.

I've personally experienced the results of this organization in...

See above

If I had to make changes to this organization, I would...

I wouldn't.

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Rating: 5 stars  

As a board member and a mom of a child with epilepsy, I know first hand the stuggles that families go through dealing with this disease everyday. The Matty Fund has done so many wonderful things for the children and families who have joined our organization. The few fundraisers that the Matty Fund promotes every year fully funds such wonderful family events like Camp Matty, Pumpkin Fest, Easter Egg Hunt , and Support Groups each and every year. The Matty Fund also has a wonderful program that educates the community and schools about epilepsy. Research has been funded by the Matty Fund as well as lectures with world renowned doctors. If you have a child with epilepsy and are looking for a great support system and fun activities for your child, you will want to call the MATTY FUND!

I've personally experienced the results of this organization in...

many ways! Being a part of the matty fund for years has been a life changing experience.

If I had to make changes to this organization, I would...

hope that we can reach out to MORE families so they can enjoy the many programs the Matty Fund offers.

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Rating: 5 stars  

My son was recently diagnosed with epilepsy and met with challenges we weren't expecting on his first day of school. The Matty Fund was there every step of the way--offering support to our family as we negotiated this difficult step. I have no doubt that they will be an organization we will turn to again and again as our son's needs and our needs change. We are grateful for The Matty Fund.

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2011

Was this review helpful?