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18 Reviews
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December 5, 2013

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December 5, 2013

This foundation, who I did not know about this time last year, has possibly saved my daughters life.
What a supportive group of volunteers.
My daughter received an earlier diagnosis than most children with her disorder and will be medicated sooner as well because of what I've learned at the
Magic Convention and through their support networks and volunteers.

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How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2013

October 11, 2013

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October 11, 2013

As a first time mother and a mother of a child with soRussell Silver, the Magic Foundation has
Given me accurate , valid information, helpful resourses and and great support!!
Thank you Magic!

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How would you describe the help you got from this organization?

A lot

How likely are you to recommend this organization to a friend?

Likely

How do you feel you were treated by this organization?

Okay

When was your last experience with this nonprofit?

2013

October 10, 2013

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October 10, 2013

In early 2000, we found the MAGIC Foundation ... and that introduction has changed our daughter's life, and our family's, for the better. With a relatively small budget, small staff in Chicago, and wide base of volunteers, the MAGIC organization is able to help thousands of families whose children are not growing well, for one reason or another. From practical treatment information to talking on the phone with a volunteer who has "been there, done that", from lobbying on behalf of our children at the federal and state levels to providing an annual national convention in Chicago every where -- MAGIC does it all and covers so many bases. Thank you, thank you, thank you from the bottom of our hearts.

More feedback...

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2013

October 5, 2013

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October 5, 2013

The MAGIC Foundation is a wonderful organization dedicated to supporting and educating families and children affected by various growth disorders. Their annual convention is an amazing time of education, networking and an opportunity for kids to feel "just like everyone else" when the rest of their experiences tell them they are "different". MAGIC's Russell Silver Syndrome Division is the only source of education and support for families affected with RSS. Without the dedication of this organization, many families would feel lost and alone. I applaud their ongoing efforts to provide top notch information and recently their steps into making long lasting changes in our nation's legislation.

More feedback...

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2013

October 4, 2013

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October 4, 2013

My now 25 year-old daughter was a medical "mystery" when she was born in 1988.
Great doctors and nurses at an awesome NICU here in Portland, Oregon, but they were just
unfamiliar with Russel-Silver Syndrome (RSS).
Mary at MAGIC was incredibly helpful helping us get to all of the
limited-- very limited--
knowledge available back then.
We were, have been, are, and will always be SOOO grateful!
Ellie's Daddy

Ways to make it better...

If I had to make changes to this organization, I would...

Hmmmmm...... I wouldn't!

More feedback...

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2013

October 4, 2013

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October 4, 2013

The MAGIC Foundation came into my life during a very difficult time... Just after my sweet baby was diagnosed with a rare disorder known as Septo-Optic Dysplasia. I didn't know up from down, and their friendly staff and members comforted me and shared their experiences and knowledge. MAGIC is one of few places to get accurate and reliable information pertaining to this information and the only place to find hundreds of other parents like myself. Everyone is so kind, and dedicated to what they do! I am honored to be a part of this organization. I have met so many wonderful people, and watched some amazing kids grow, and even though the goal is to help kids grow I am even more amazed at how much MAGIC has helped the parents grow! There just isn't another place like it

Ways to make it better...

If I had to make changes to this organization, I would...

Make it a household name... If some said something something MAGIC Foundation. Everyone's response would be "Oh yeah, I've heard of them!"

More feedback...

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2013

September 13, 2011
1 person found this review helpful

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September 13, 2011
1 person found this review helpful

My son was just newly diagnosed a with Growth Hormone deficiency a couple months ago and this foundation has been such a great help. The first week I knew so much about his condition his doctors were amazed! It's nice have so many supportive individual to go to any time of the day to ask questions or vent or post pictures or to just share. It's a wonderful foundation.

The Great!

I've personally experienced the results of this organization in...

sharing experience with others

Ways to make it better...

If I had to make changes to this organization, I would...

make it more widely known about

September 9, 2011

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September 9, 2011

We have been with the Magic Foundation for a little over a year now. WE LOVE THEM. They all have been so helpful with our sons GHD. When Ethan stopped growing and things turned south it was all so scary. We felt like no one really understood. Then through our great doctor we found The Magic Foundation. Ever since we don't feel alone anymore. Thank you so much Magic Foundation for helping us along our way. Thank you for helping us see that we are not alone! :)

The Great!

I've personally experienced the results of this organization in...

They have been nothing but fantastic!

Ways to make it better...

If I had to make changes to this organization, I would...

Nothing! They all do such a good job!

September 9, 2011

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September 9, 2011

Magic Foundation from the start has been our back bone in dealing with our sons condition. He is GHD and was diagnosed 9 years ago, his pituitary gland is not producing enough hormones to keep his body healthy. Once we had a diagnoses, everything else fell into place, we had answers. The foundation was instrumental in providing us with the answers we were not receiving from the doctors or in terms we could understand. They assured us that we are not alone and that they are there for us whenever we need them, and they were. They continue to help us as our insurances change in knowing ways to provide the proper information to our insurance company so that we could obtain the best coverage possible. They have been our support for the past 9 years and I know I can count on them in the future as well. Thank you Magic Foundation, we appreciate everything you do!

The Great!

I've personally experienced the results of this organization in...

Support! They are here for me as if I am the only one...... But I know there are alot of families out there that the do the same for... They are amazing. I could not have gotten through the early stages of my sons condition without their support.

Ways to make it better...

If I had to make changes to this organization, I would...

Not sure I would change anything that they are doing. They are amazing.

November 20, 2009

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November 20, 2009

I just found the MAGIC Foundation this year when I was faced with a medical mystery with my son who is now 3. He stopped growing properly when he was less than six months old and after a parade of doctors I realized that it was up to me to find out how to help him. This has been my philosophy until this year when I discovered MAGIC and began to communicate with an amazing parent who volunteers her time to help newbees like me understand this very rare disorder, Russell Silver Syndrome. My son is finally diagnosed officially and now, again, I am turning to MAGIC for the most current information on what I can do to help him grow and prevent damage to his development due to the complicated effects of this disorder. I am finding one doctor after the next that DOES NOT KNOW what we are dealing with. But thanks to MAGIC I have a network of parents to communicate with, the awesome volunteer who has given me her cell phone, and a 300 page book that they produced to tell me what I need to know right now. They have given me an important road map and an ongoing resource to continue helping my son and it is extremely reassuring.

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What I've enjoyed the most about my experience with this nonprofit is...

the reassurance it provides me by being so knowledgeable and connected to experts on these disorders. It is one place where I know I can get answers after having seen literally dozens of doctors who couldn't explain my son's issues.

How frequently have you been involved with the organization?

About every month

When was your last experience with this nonprofit?

2009

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