The MAGIC Foundation
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October 31, 2012
I found MAGIC a few years ago and have attended every one of their Educational Conventions they have had since. MAGIC has been a true blessing for me. I was diagnosed with Fibrous Dysplasia(FD) at the age of 5. It is a very rare disease and it is very hard to get good accurate information on; however through MAGIC and their annual conventions I have been able to obtain a growth of knowledge. I have also grown to have an extended family through MAGIC. I started out feeling very alone and at the age of 25 had finally, thanks to MAGIC, met somone with the same condition as me. This was a very heartwarming and emotional experience that I will never forget. Now, I have a network of friends with FD whom I can reach out to at any given time via MAGIC's facebook page, phone or e-mail. MAGIC has been life changing for me in so many ways. I am very very thankful that I was introduced to it.
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Would you volunteer for this group again?
Definitely
For the time you spent, how much of an impact did you feel your work or activity had?
Life-changing
Did the organization use your time wisely?
Very Well
Would you recommend this group to a friend?
Definitely
When was your last experience with this nonprofit?
2012
1 person found this review helpful
September 13, 2011
1 person found this review helpful
My son was just newly diagnosed a with Growth Hormone deficiency a couple months ago and this foundation has been such a great help. The first week I knew so much about his condition his doctors were amazed! It's nice have so many supportive individual to go to any time of the day to ask questions or vent or post pictures or to just share. It's a wonderful foundation.
The Great!
I've personally experienced the results of this organization in...
sharing experience with others
Ways to make it better...
If I had to make changes to this organization, I would...
make it more widely known about
September 9, 2011
We have been with the Magic Foundation for a little over a year now. WE LOVE THEM. They all have been so helpful with our sons GHD. When Ethan stopped growing and things turned south it was all so scary. We felt like no one really understood. Then through our great doctor we found The Magic Foundation. Ever since we don't feel alone anymore. Thank you so much Magic Foundation for helping us along our way. Thank you for helping us see that we are not alone! :)
The Great!
I've personally experienced the results of this organization in...
They have been nothing but fantastic!
Ways to make it better...
If I had to make changes to this organization, I would...
Nothing! They all do such a good job!
September 9, 2011
Magic Foundation from the start has been our back bone in dealing with our sons condition. He is GHD and was diagnosed 9 years ago, his pituitary gland is not producing enough hormones to keep his body healthy. Once we had a diagnoses, everything else fell into place, we had answers. The foundation was instrumental in providing us with the answers we were not receiving from the doctors or in terms we could understand. They assured us that we are not alone and that they are there for us whenever we need them, and they were. They continue to help us as our insurances change in knowing ways to provide the proper information to our insurance company so that we could obtain the best coverage possible. They have been our support for the past 9 years and I know I can count on them in the future as well. Thank you Magic Foundation, we appreciate everything you do!
The Great!
I've personally experienced the results of this organization in...
Support! They are here for me as if I am the only one...... But I know there are alot of families out there that the do the same for... They are amazing. I could not have gotten through the early stages of my sons condition without their support.
Ways to make it better...
If I had to make changes to this organization, I would...
Not sure I would change anything that they are doing. They are amazing.
November 20, 2009
I just found the MAGIC Foundation this year when I was faced with a medical mystery with my son who is now 3. He stopped growing properly when he was less than six months old and after a parade of doctors I realized that it was up to me to find out how to help him. This has been my philosophy until this year when I discovered MAGIC and began to communicate with an amazing parent who volunteers her time to help newbees like me understand this very rare disorder, Russell Silver Syndrome. My son is finally diagnosed officially and now, again, I am turning to MAGIC for the most current information on what I can do to help him grow and prevent damage to his development due to the complicated effects of this disorder. I am finding one doctor after the next that DOES NOT KNOW what we are dealing with. But thanks to MAGIC I have a network of parents to communicate with, the awesome volunteer who has given me her cell phone, and a 300 page book that they produced to tell me what I need to know right now. They have given me an important road map and an ongoing resource to continue helping my son and it is extremely reassuring.
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What I've enjoyed the most about my experience with this nonprofit is...
the reassurance it provides me by being so knowledgeable and connected to experts on these disorders. It is one place where I know I can get answers after having seen literally dozens of doctors who couldn't explain my son's issues.
How frequently have you been involved with the organization?
About every month
When was your last experience with this nonprofit?
2009
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