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July 30, 2009

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July 30, 2009

The Heart Connection first changed my life when my baby brother was diagnosed with neuroblastoma in 1996, and has made my world a better place every day since then. Their support while we were going through treatment was invaluable, but the support they have given us in the time since my brother has been in remission has been amazing. There are few organizations that exist to help families navigate a post-cancer world, and the Heart Connection does it best!

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What I've enjoyed the most about my experience with this nonprofit is...

their focus on the whole family, recognizing that when a kid has cancer, the whole family hurts.

When was your last experience with this nonprofit?

2009

July 29, 2009

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July 29, 2009

Our son was diagnosed with ALL in January of 1994 when he was 8 years old. The Heart Connection was a blessing for our family in that it gave my wife and I much needed repite time when our son went to their oncology camp. He always had a fantastic time at camp and every year he would watch for the camp application in the mail so he wouldn't miss getting into camp. This is a wonderful organization that also provides a camp and other programs for siblings of chilren living with cancer. Many times the siblings feel left out because so much attention is focused on the child with cancer. Just a wonderful organization that does so much good in our world!

The Great!

I've personally experienced the results of this organization in...

making families, siblings and oncology patients feel needed and loved. The Heart Connection provides wonderful support of all parts of the family.

Ways to make it better...

If I had to make changes to this organization, I would...

Keep working to find more and more programs to offer.

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What I've enjoyed the most about my experience with this nonprofit is...

loving and care shared by volunteers, participants and staff.

The kinds of staff and volunteers that I met were...

loving, caring, nurturing and very giving of themselves. They are awesome people!!!

If this organization had 10 million bucks, it could...

Provide more programs for both children living with cancer, siblings and the parents. There is an unlimited list of ideas for more programs to offer. We could have a winter time camp. We could provide sports programs for kids with cancer, etc.

Ways to make it better...

Can't think of anything.

In my opinion, the biggest challenges facing this organization are...

funding sources to keep providing programs.

One thing I'd also say is that...

This organization provides wonderful support and programs for families of children living with cancer.

When was your last experience with this nonprofit?

2009

July 29, 2009

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July 29, 2009

We were introduced to The Heart Connection 6 years ago when my son was diagnosed with cancer. They have given our family outings that we would have never been able to afford. The camps they hold are top notch and the support they give the parents, children and siblings is incredible. A great organization that cares about the WHOLE family!

The Great!

I've personally experienced the results of this organization in...

the camps they put together.

Ways to make it better...

If I had to make changes to this organization, I would...

hope to help the children.

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What I've enjoyed the most about my experience with this nonprofit is...

the outings that they are able to give the families.

The kinds of staff and volunteers that I met were...

very kind and helpful.

If this organization had 10 million bucks, it could...

find a cure for kid's cancer :-)

Ways to make it better...

my child would have survived and I was still using this group more often.

In my opinion, the biggest challenges facing this organization are...

funds.

One thing I'd also say is that...

I hope they win!

When was your last experience with this nonprofit?

2008

July 22, 2009

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July 22, 2009

I have been involved with the Heart Connection since I was diagnosed with Leukemia in 1989 at the age of 9. The Heart Connection is the bright spot in a very hard time in many children's lives. The Heart Connection focuses on not just the cancer fighter, but the siblings and parents too. Programs are in place to support the needs of the entire family throughout and after their cancer fight. I have made numerous friends who continue to be very special to me through the survivorship program. I also volunteer for this wonderful organization every chance I get.

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The Great!

I've personally experienced the results of this organization in...

myself and my family. My family volunteers and participates in Heart Connection Programs.

Ways to make it better...

If I had to make changes to this organization, I would...

be sure to keep the mission of the Heart Connection the top priority.

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What I've enjoyed the most about my experience with this nonprofit is...

being a mentor for other young cancer fighters.

The kinds of staff and volunteers that I met were...

one of a kind.

Ways to make it better...

I had more time to volunteer for The Heart Connection.

In my opinion, the biggest challenges facing this organization are...

pressure to change the name of the organization.

When was your last experience with this nonprofit?

2009

July 22, 2009

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July 22, 2009

The Heart Connection is an amazing camp that has helped me so much in my life. I live to go to this camp in the summer mostly because i don't have to worry about anything while i'm there. Everyone there knows what it's like and will talk to you about anything. Going to camp is a time to get away from friends, family, and most importantly doctors. The things we do at camp is amazing! we get to do everything and more that you would usually do at a normal summer camp. Not only are the campers great friends but the staff is amazing and are some of my great friends now. I have been going to this camp for 10 years and am also going back as a staff member now that I am to old to be a camper. I love this camp so much and I don't think i could imagine life without the Heart Connection.

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The kinds of staff and volunteers that I met were...

amazing.They have become a huge part in my life.They have become more like family than a staff that I only see yearly.

When was your last experience with this nonprofit?

2009

July 21, 2009

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July 21, 2009

My daughter, 14 months old when diagnosed with cancer has been a family member of the Heart Connection Children's Cancer Programs since the day she was diagnosed. This organization is a family, once a member, always a member with services that not only serve my daughter, but also her siblings and other family members. Camp is someting that she looks forward to every year, along with the many activities that are offered throughout the year involving families and friends that can only understnad you. I can't say enough, The Heart Connection is there any time when needed for support, advice and just plain fun and is definitly a part of our extended family.

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The Great!

I've personally experienced the results of this organization in...

My daughters attitude and self-esteem

Ways to make it better...

If I had to make changes to this organization, I would...

Feel quite good about the affect it has on everyone.

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What I've enjoyed the most about my experience with this nonprofit is...

The people I've met that have become friends through a common thread

The kinds of staff and volunteers that I met were...

Caring, efficient, fun

If this organization had 10 million bucks, it could...

Do absolute miracles

Ways to make it better...

Can't think of anything

In my opinion, the biggest challenges facing this organization are...

Growing with the increased numbers of diagnosis's

One thing I'd also say is that...

WE are glad to be a part of the Heart Connection Children's Cancer Programs

When was your last experience with this nonprofit?

2009

July 20, 2009

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July 20, 2009

My daughter was diagnosed with cancer 2 years ago and Heart Connection has played a big role in our lives throughout her treatment and even after including them helping with Club HOPE, Camp, beads for bravery the list could go on and on. They make lives for families who have children with cancer to much better and they make sure to include siblings as well. They truly care about the kids and the families.

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The kinds of staff and volunteers that I met were...

AMAZING! They all truly care about our kids and the families and try to do whatever they can to help.

When was your last experience with this nonprofit?

2009

July 20, 2009

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July 20, 2009

I've gone to the Heart Connection for 11 years now and it is truly a part of me. It makes me who I am and helps numerous kids, like me, deal with cancer and make the truest of friends they could ever even imagine having. Even the people on staff are friendly, nice, loving, hugable people. (and who doesn't love hugs?) I LOVE THE HEART CONNECTION =]]

The Great!

I've personally experienced the results of this organization in...

the lives of my friends from camp and family. This organization has touched us all.

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What I've enjoyed the most about my experience with this nonprofit is...

the people that are involved in it.

The kinds of staff and volunteers that I met were...

the nicest people I'll probably meet in my whole life.

If this organization had 10 million bucks, it could...

make itself more noticed in order to help even more families. It could find a way to possibly make camp even longer which would be my dream!

When was your last experience with this nonprofit?

2009

July 18, 2009

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July 18, 2009

I had always heard about the Heart Connection growing up, but I really didn't know much about it until my own son was diagnosed with brain cancer. The Heart Connection stepped in and forever became a part of our lives. From all the fun activities, camps, beads for bravery, Club HOPE...the list goes on! The volunteers that dedicate their time are truly amazing! This organization truly cares about the kids and their families!

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The Great!

I've personally experienced the results of this organization in...

the look in my son's eyes after camp. He has a great time there every year and looks forward to the next year the day we pick him up!

More feedback...

What I've enjoyed the most about my experience with this nonprofit is...

getting to know everyone. They become a part of your "family"

The kinds of staff and volunteers that I met were...

amazing!!!!

When was your last experience with this nonprofit?

2009

July 17, 2009

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July 17, 2009

The Heart Connection Camp is a place that is impossible to describe its meaning and magnitude. The organization works so hard all year long to touch hundreds of children's and families' lives in and out of Iowa. I've attended the Oncology Camp since I was five and have been there for 14 summers, and I am still in awe of the experiences I've had. It's a week where kids with any type of cancer, regardless of the stage of their treatment, can go and be kids. They don't have to worry about being gawked at because they have no hair or they have only one leg. These kids get to have a week all to them, and just be a normal kid. The staff works incredibly hard to get every kid to participate in everything possible. I've seen a girl in a wheelchair do the zipline, and kids with prosthetic legs ride a horse. These kids can choose to ignore the fact that they have cancer, or they can bond with those around them who know what's going on. I've seen a group of young girls talk about their ports and what they named them. It's an incredible week, that for many of these kids, is one of the best weeks out of their year. It's a loving atmosphere where kids can talk with others who can truly say "I understand."

The Great!

I've personally experienced the results of this organization in...

mothers' eyes as they tear up just talking about the indescribable week their child had at camp, and how thankful they are that their child was able to have that experience.

Ways to make it better...

If I had to make changes to this organization, I would...

make sure the campers and families were my first priority. I would want them to feel safe and excited as they plan for and experience camp.

More feedback...

What I've enjoyed the most about my experience with this nonprofit is...

Growing with the organization. I started with it 14 years ago, and am now happy to say I have come back on staff to serve the camp that gave so much to me.

The kinds of staff and volunteers that I met were...

incredible people with the biggest hearts. They are there to give, give, give to these kids.

If this organization had 10 million bucks, it could...

Help ease the costs it takes to put camp on every summer. It could take some money and spread awareness about their program, as well as childhood cancer. It could give a push to finding a cure.

Ways to make it better...

I'd had more time there.

In my opinion, the biggest challenges facing this organization are...

raising awareness of the organization itself, and also the concept of childhood cancer.

One thing I'd also say is that...

this week is treasured by so many. It's phenomenal!

When was your last experience with this nonprofit?

2009

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