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Nonprofit Overview

Causes: Eye Diseases, Blindness & Vision Impairments, Health, Specifically Named Diseases

Mission: Our MISSION is to increase public awareness of corneal dystrophy, potentially blinding diseases affecting the transparent front part of the eye.

Results: We have helped about 6000 people in over 70 countries with support, knowledge and inspiration to overcome their genetic sight disability

Target demographics: People around the world with corneal dystrophies. People who wish to help educate others by supporting our cause. Ophthalmologists who should check for corneal dystrophies at every eye examination with a simple slit lamp test.

Direct beneficiaries per year: 700

Geographic areas served: Nationwide

Programs: An bi-annual patient oriented Corneal Dystrophy Symposium with surgeons and researchers as speakers who are recognized authorities on Corneal Dystrophy and methods of improving quality of life. A live DVD of the proceedings is made and becomes an incentive gift for donors.

Community Stories

2 Stories from Volunteers, Donors & Supporters

1

Donor

Rating: 5

I was diagnosed with Fuchs' Corneal Dystrophy 20 years ago. For a long time I was not able to find much information regarding this illness. The Corneal Dystrophy Foundation website solved that problem. The site and the support group provide a wealth of information. Suggested questions for your doctor and explainations of the testing and disease progression are especially helpful. I was able to attend one of the bi-annual seminars where experts present the latest findings and answer questions. Eventually I made a decision to have cornea transplants in both eye and am now Fuchs' free, thanks in no small part to the Corneal Dystrophy Foundation.

1

Donor

Rating: 5

This charitable organization helped save my vision. I was suffering from seriously declining vision and, at the age of sixty with a very demanding job, I did not know what to do when I was diagnosed with Fuchs Corneal Dystrophy. Even though I lived in Manhattan and had access to the best eye doctors, few eye doctors I consulted were knowledgable about this disease which can be corrected by a corneal transplant. I found Fuchs Friends when searching the Internet for information about the disease. Because of the helpful information posted by the group I found an excellent surgeon and today my vision is 20/20 corrected. I can navigate the world, read, and use the computer without glasses. The Board of Directors are hands on and devoted a great deal of time to the Foundation. I cannot think of a single negative thing to say about this organization.