The Corneal Dystrophy Foundation

Rating: 4.91 stars   78 reviews

Issues: Health

Location: 6066 McAbee Rd San Jose CA 95120 USA

Mission: Our MISSION is to increase public awareness of corneal dystrophy, potentially blinding diseases affecting the transparent front part of the eye.
Results: We have helped about 6000 people in over 70 countries with support, knowledge and inspiration to overcome their genetic sight disability
Target demographics: People around the world with corneal dystrophies. People who wish to help educate others by supporting our cause. Ophthalmologists who should check for corneal dystrophies at every eye examination with a simple slit lamp test.
Direct beneficiaries per year: 700
Geographic areas served: Nationwide
Programs: An bi-annual patient oriented Corneal Dystrophy Symposium with surgeons and researchers as speakers who are recognized authorities on Corneal Dystrophy and methods of improving quality of life. A live DVD of the proceedings is made and becomes an incentive gift for donors.
2013 Top-Rated Nonprofit
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Community Reviews

Rating: 5 stars  

1 person found this review helpful

I was diagnosed with Fuchs' Corneal Dystrophy 20 years ago. For a long time I was not able to find much information regarding this illness. The Corneal Dystrophy Foundation website solved that problem. The site and the support group provide a wealth of information. Suggested questions for your doctor and explainations of the testing and disease progression are especially helpful. I was able to attend one of the bi-annual seminars where experts present the latest findings and answer questions. Eventually I made a decision to have cornea transplants in both eye and am now Fuchs' free, thanks in no small part to the Corneal Dystrophy Foundation.

I've personally experienced the results of this organization in...

dealing with the disease over the last 5 years and coming to the decision in 2009 to undergo cornea transplants.

How frequently have you been involved with the organization?

About every week

When was your last experience with this nonprofit?

2010-5-01

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Rating: 5 stars  

1 person found this review helpful

This charitable organization helped save my vision. I was suffering from seriously declining vision and, at the age of sixty with a very demanding job, I did not know what to do when I was diagnosed with Fuchs Corneal Dystrophy. Even though I lived in Manhattan and had access to the best eye doctors, few eye doctors I consulted were knowledgable about this disease which can be corrected by a corneal transplant. I found Fuchs Friends when searching the Internet for information about the disease. Because of the helpful information posted by the group I found an excellent surgeon and today my vision is 20/20 corrected. I can navigate the world, read, and use the computer without glasses. The Board of Directors are hands on and devoted a great deal of time to the Foundation. I cannot think of a single negative thing to say about this organization.

I've personally experienced the results of this organization in...

Yes, as explained above.

How frequently have you been involved with the organization?

About every week

When was your last experience with this nonprofit?

2010-12-01

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