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June 24, 2010

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June 24, 2010

When our friends lost their beautiful, vibrant daughter to SIDS, our community of friends was devistated. We were given hope when we found that someone was working behind the scenes to put a stop families from suffering such a loss. The CJ Foundation for SIDS does not just educate and provide support, they are actively working with researchers and legistators to find a way to stop this epidemic. The foundation played an active support role in the walk/run and gave the community the opportunity to stop and remember this beautiful little girl, raise awarness of SIDS and raise money for research to keep this from happening to other families.

The Great!

I've personally experienced the results of this organization in...

The impact on the lives of families.

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What I've enjoyed the most about my experience with this nonprofit is...

The wonderful support team that they have.

The kinds of staff and volunteers that I met were...

awesome

If this organization had 10 million bucks, it could...

save the lives of precious children who are loved by so many.

How frequently have you been involved with the organization?

About every six months

When was your last experience with this nonprofit?

2010

June 23, 2010

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June 23, 2010

SIDS is the worst experience any parent can go through and the CJ foundation does so much to help the families and help with research as well. I lost my daughter on 5-7-10 she was 9 days old and there isnt a day that goes by i dont think of her and its organizations like this one who are there to help when you dont know where or how to start the healing process and this is exactly what the CJ foundation does helps on the road to grievence and beyond.

The Great!

I've personally experienced the results of this organization in...

the CJ foundation for SIDS helped me and my family find the support and counseling to get through this time of loss

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How frequently have you been involved with the organization?

One time

When was your last experience with this nonprofit?

2010

June 23, 2010

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June 23, 2010

Cj Foundation has done so much for me! After my loss, their site was incredibly helpful and I found it a constant source of hope with a wealth of information. I've been in contact with Linda and Wendy @ CJ Foundation on a variety of occassions, seeking help with operating my own non-profit organization, event planning, etc. I know I can call, whatever my needs, and they'll help me in any way that they can!

The Great!

I've personally experienced the results of this organization in...

...grief support, SIDS resources, assistance in funding and building my own non-profit organization.

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How frequently have you been involved with the organization?

About every month

When was your last experience with this nonprofit?

2010

June 11, 2010

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June 11, 2010

I lost my son to SIDS in August of 1996. I started with one on one counseling as well as joined Compassionate Friends. In 2001, I heard of the CJ SIDS foundation when I went into a store called WAWA in Delaware and there were a sponsor in a walk for SIDS. Since then, I have found them to be very helpful in my grieve as well as being helpful when it comes to recalls of baby/children products, helping bills getting passed in the government, not to mention the Back to Sleep campaign. I no longer go to counseling and I cannot express how much they help me during the times of my son's birthday, deathday, and Christmas. They are invaluable in my eyes. Thank you, Kimberly A Parsons

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The Great!

I've personally experienced the results of this organization in...

Whenever they having a posting warning parents of children products, I share them on my wall in Facebook.

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What I've enjoyed the most about my experience with this nonprofit is...

the support that I find when I am overwhelmed with grief.

The kinds of staff and volunteers that I met were...

kind and honest.

If this organization had 10 million bucks, it could...

educate nationwide in the importance of SIDS prevention.

How frequently have you been involved with the organization?

About every week

When was your last experience with this nonprofit?

2010

June 10, 2010

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June 10, 2010

The CJ Foundation for SIDS has been invaluable to my family since my granddaughter passed away in June, 2009. I knew very little about SIDS until it stole her away. This organization has provided educational information and emotional support. They have given us hope that one day the cause and cure for SIDS will be found.

The Great!

I've personally experienced the results of this organization in...

They've provided my family emotional and educational support since the passing of my granddaughter.

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The kinds of staff and volunteers that I met were...

wonderful, caring people.

If this organization had 10 million bucks, it could...

do more indepth research.

How frequently have you been involved with the organization?

About every month

When was your last experience with this nonprofit?

2010

June 9, 2010

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June 9, 2010

The CJ Foundation for SIDS was so supportive of my family when my niece passed away in June 2009. During this paralyzing time, the CJ foundation was there to give support, encouragement, and a listening ear. My sister and family received a book and other reading materials about SIDS, cards, and phone calls from the CJ Foundation for SIDS, letting them know that the Foundation was there for them. The Foundation was also a great support in the 1st Annual Peacock Strides for Babies, a 5k that helped raise money for SIDS research. Although we wish we had never heard of the CJ Foundation for SIDS, they have been so wonderful to my sister and her family and I am so thankful that they do what they do

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The Great!

I've personally experienced the results of this organization in...

when my niece passed away in June 2009. They were wonderful to my sister, and I couldn't have asked for a more supportive organization.

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If this organization had 10 million bucks, it could...

hopefully find the cause of SIDS and it's cure so no other family has to loss a child.

How frequently have you been involved with the organization?

One time

When was your last experience with this nonprofit?

2010

June 9, 2010

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June 9, 2010

The CJ Foundation for SIDS is an amazing organization. During the past year since our beautiful daughter passed away from SIDS, they have been there to encourage, support, and listen to my family grieve the loss of our daughter. With the help of the CJ Foundation, we organized a 5k run/walk in our area to help provide additional funding for SIDS research, an area that's severely lacking in today's world. The CJ Foundation ensures that your donation goes directly where you would like it to be. We are grateful for their support during this most difficult time our lives. Once our daughter passed away, my wife and I knew that we wanted to get involved to help determine the true cause of these senseless deaths to SIDS, and the CJ Foundation has provided opportunity for that involvement.

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The Great!

I've personally experienced the results of this organization in...

their unending support of my family during this time of loss and grief. They have provided literature and other items to help us understand why this happened to our baby girl.

Ways to make it better...

If I had to make changes to this organization, I would...

N/A

More feedback...

What I've enjoyed the most about my experience with this nonprofit is...

the caring people involved with this organization.

The kinds of staff and volunteers that I met were...

caring, helpful, and supportive.

If this organization had 10 million bucks, it could...

support research that would make a significant difference in our understanding of why and how SIDS occurs and potential ways to help prevent this terrible cause of death from afflicting other families.

Ways to make it better...

N/A

In my opinion, the biggest challenges facing this organization are...

garnering additional funding during the economic downturn and competition from other non-profits for those dollars.

One thing I'd also say is that...

this organization needs support from SIDS-affected families as well as relatives, friends, and coworkers of people who have been affected by SIDS in order to succeed. It is a great organization that should be supported to the fullest.

How frequently have you been involved with the organization?

About every month

When was your last experience with this nonprofit?

2010

June 4, 2010

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June 4, 2010

In June of 2009, my niece lost her 6 month old daughter to SIDS. I didn't know how to respond or what to say. But the CJ foundation for SIDS came to their aid. They knew personally what her and her husband were feeling. They provided information and materials, called, sent cards - they remember little things that matter so much. Most importantly, they offered a way that my niece and our family could honor Emily Peacock by contributing to the CJ Foundation for SIDS. They were able to focus on organizing the first annual run/fun walk - it helped get through those months. Many more people are now aware not only of risk but the need to support legislation and research. The CJ Foundation for SIDS was not only there in the begining but continue to support, encourage, and just understand when needed. I'm thankful that they were there when I could not help...I'm proud to support them!

The Great!

I've personally experienced the results of this organization in...

Their affect on my family can not be measured.

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How frequently have you been involved with the organization?

One time

When was your last experience with this nonprofit?

2010

June 2, 2010

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June 2, 2010

In June 2009, our 5.5 month old daughter died of SIDS during her afternoon nap. We knew what SIDS was and had followed all the "ways to reduce the risk" and our baby was still gone. Within two days of contact to the CJ Foundation, they had mailed us a book, "The SIDS & Infant Death Survival Guide" and other grief material. But it did not stop there. I was contacted by a member of the board who had also lost a child to SIDS and instantly had someone who understood what it was like. In the almost year since our daughter has been gone, the staff at the CJ Foundation has reached out to us in countless ways to assist us in our walk with grief. They remembered her birthday and the never cease to send a card or email right when we need it most. They listen to me cry when needed and give me encouragement. We recently found out we were expecting a third child and they rejoiced us with us but also acknowledged our fear and apprehension. We appreciate that they support research to find the reason behind SIDS and that they keep us posted on the latest developments. I wish that I had no reason to know about this organization, but if my daughter has to be gone, I am thankful that the CJ Foundation for SIDS is there to help us and to also assist us in pushing for more answers (from Congress passing legislation to research materials) so other parents do not have to know this type of pain.

The Great!

I've personally experienced the results of this organization in...

June 2009 and since then. They continue to help me walk through the grief of my daughters death. Now I volunteer to help them when needed and I refer other parents to them.

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The kinds of staff and volunteers that I met were...

compassionate and passionate about their job. They want to find the reason for SIDS and eliminate it.

If this organization had 10 million bucks, it could...

fund lots of research to find the answer to this mysterious killer.

How frequently have you been involved with the organization?

About every month

When was your last experience with this nonprofit?

2010

June 2, 2010

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June 2, 2010

What a wonderful organziation! My son died of SIDS and I am very active with Northwest Infant Survival and Alliance Foundation. I refer to CJ Foundation often. Thank you for everything your organziation does!

The Great!

I've personally experienced the results of this organization in...

Yes.

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How frequently have you been involved with the organization?

About every month

When was your last experience with this nonprofit?

2010

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