The CFIDS Association of America, Inc.

Rating: 4.09 stars   80 reviews

Issues: Health

Location: PO Box 220398 Charlotte NC 28222 USA

Mission: CFIDS is a serious and complex illness that affects over one million U.S. adults, more than multiple sclerosis (MS), AIDS or lung cancer. The illness is characterized by incapacitating fatigue, problems with information processing and memory, flu-like symptoms, pain in the joints and muscles, dizziness, nausea, sleep disorders, severe headache and numerous other symptoms. Our mission: For CFS to be widely understood, diagnosable, curable and preventable.
Results: Since 1987, the Association has invested more than $30 million in programs to end the pain, disability and suffering caused by CFS.
Programs: The Association is proud to lead national efforts in CFIDS awareness and education, public policy and research and we are grateful to those who support our work. The CFIDS Association offers information and resources to patients, family members, caregivers, support groups, media professionals the general public and health care professionals. The Association focuses its resources on research, policy and communications that will advance understanding, diagnosis, treatment and prevention of CFS. We are grateful to all those who support our vital work.
2014 Top-Rated Nonprofit
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EIN 56-1683450
704-365-2343
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Community Reviews

Rating: 5 stars  

We are very impressed with this organization's wise use of funds that are donated to them. Their actions support a resolve to use the money in the smartest way possible to understand ME/CFS and contribute to medical advances that we can hope will one day lead to a cure.

Chronic Fatigue can be a devastating illness for patient's and their families. The Solve ME/CFS Initiative has offered real hope that lives can restored.

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Role: General Member of the Public
Rating: 5 stars  

I strongly support the Solve ME/CFS Initiative (SMCI) -- their mission -- their advocacy, their research, but most importantly the help and hope they continue to provide to countless patients and their families. This is what a good good non-profit organization has to do. They have to with great purpose and meaning educate the general public; help establish a sufficient level of quality research; and be a strong voice for those patients and children who struggle each and every day with a misunderstood and often poorly treated medical condition. My family personally knows a family that has found support, resources and a sense of community from Solve ME/CFS Initiative (SMCI). We have seen first-hand the difference that this advocacy organization has made in their lives. Generous donations are critical to the success of this outstanding organization so make one today! Duchy Trachtenberg, MSW

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Review from Guidestar
Rating: 5 stars  

1 person found this review helpful

My sister has struggled with CFIDS for more years than I can count and has flown all over the United States trying to get the optimum treatment. I have watched how this disease has impacted her. She talks about this organization and all that it has done for her in finding information so that she can understand what is going on with her and help to find ways to make her family understand as well.

Keep up the good work!

Abby Eibel, MA.Ed, LPC/MHSP

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Review from Guidestar
Role: General Member of the Public
Rating: 5 stars  

1 person found this review helpful

I am extremely grateful for SMCI and the work they are doing to help solve the heartwrenching disease called CFS. My daughter has suffered for over 6 years with CFS. Knowing that excellent, trustworthy research is being funded and supported by SMCI gives us hope that a treatment will be found. This organization is doing essential work for ME/CFS sufferers around the world.

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Rating: 5 stars  

The CFIDS Association of America has provided me with invaluable information over the years. Without the guidance of the research done, the research collected and the reasearch shared we would have been like a ship without a rudder.

If I had to make changes to this organization, I would...

Give them more grant money for more research.

When was your last experience with this nonprofit?

2014

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Review from Guidestar
Role: General Member of the Public
Rating: 5 stars  

I have a very close friend who has depended on your organization for years. She has often told me how helpful it has been for information and support. Struggling with this illness is stressful and sadly, often unrelenting.

I am hopeful that the work you do will continue.

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Review from Guidestar
Rating: 5 stars  

1 person found this review helpful


CFIDS is a huge problem that needs our attention , affects many and ruins lives. This org. Does the necessary work that no one else is doing. Smart dedicated people trying to efficiently solve big problems. I am pleased to give review and make donations when I can.

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Review from Guidestar
Rating: 5 stars  

1 person found this review helpful

Our family knows firsthand the debilitation of CFIDS, now better known as ME/CFS, as both my husband and oldest daughter suffered from it for years and still battle lingering effects and occasional relapses. Too little is known about the disease and especially about ways to cure people so we have been deeply impressed by the decision to devote far more attention to research and less to patient advocacy. Of particular interest is the idea of a research institute without walls, that is, funding focused, useful research at different institutions under the coordination of a scientific director. This approach seems excellent value for money and offers the promise that research by different scientists in different locations can be tapped to finally provide insights into solving and curing people of this debilitating disease.

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Review from Guidestar
Role: General Member of the Public
Rating: 5 stars  

1 person found this review helpful

I have been following the CAA ((Solve ME/CFS) for decades. I can rely on SolveME/CFS to take a rigorous approach to the issues facing the ME/CFS community and produce thoughtful analyses of them.

I have been impressed throughout with their dedication to producing innovative research projejcts Their research program has supported several pilot projects which have opened up vital areas of ME/CFS research. One was their early support of using exercise testing to highlight abnormalities - an approach that is used throughout the field now. From their Biovista to their Logosomix to their recent exercise-cognition-fMRI study, Solve ME/CFS is on the cutting edge of innovative research in this field.

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Review from Guidestar