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July 24, 2009

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July 24, 2009

I have been a volunteer for the American Cancer Society for 8 years. It is great to be part of such an amazing organization that values lives and is working for a better tomorrow.

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What I've enjoyed the most about my experience with this nonprofit is...

the amazing people I have met, and the difference I have made.

When was your last experience with this nonprofit?

2009

July 24, 2009

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July 24, 2009

I was involved with the Relay For Life for 6 years before my 13 year old daughter was diagnosed with cancer in 2004. While she was in treatment I kept a website to keep people informed. Here is an entry from 2004: Tuesday, September 28, 2004 9:30 AM CDT Sat. Sept. 25: Nausea's ugly brother, mouth sores, appeared in the middle of the night. She was in crying, screaming pain. It was awful. Thank the Lord for continuous drip pain medication. It almost helps relieve the pain. It won't help with the open sores. Mostly the pain med and the anitmedics help her sleep and then she's not crying in pain. She can't talk, open her mouth more than a slit or even swallow her own spit. It hurts her to cry. I hate the mouth sores more than the nausea. Let me explain the mouth sore thing. The chemo drugs kill the fast growing cancer cells, but since they can't distinguish between the bad (cancer) and good fast growing cells they kill them all. That's why their hair falls out too. The cells inside your mouth, throat, and gut area are all fast growing. Three of her chemo drugs cause mouth sores plus in the doses she's getting it was pretty much a sure thing. There isn't much they can do. She swabs her mouth with a gel to try to prevent the sores from getting infected and swishes a mouthwash with Benadryl and Lidocane. She hates it and it hurts, but she's a good patient and she does what she's supposed to do. She just keeps on enduring. I'm going to hop up on my soapbox: Having helped with the Relay For Life and the American Cancer Society I thought the research had come a long way (and it has) and bragged about how much better treatments are today (and they are). But, I am now the mother of a 13 year old cancer patient and I've changed my goal: Cancer just needs to be eliminated! There is never a good age to get cancer and as I found out (I thought I already knew, but I didn't really) cancer can happen to anyone at any age. We need to keep funding the research until they can determine who has cells that are going to mutate into cancer and provide a way to prevent it. I am so grateful they know how to cure Hannah's cancer, but the process is beyond what I ever imagined. I am now 100% behind the ACS goal to eradicate cancer. Just wait until the Relay For Life comes around again. You'll be hearing from me. Okay, I'm off my soapbox. Thanks for listening. She endured 7 more months of chemo only to have her cancer return 2 months later. There was no proven treatment available and she had a less than 20% chance of survival so she was enrolled in a clinical trial for the drug Rituxan. This is one of the drugs that helped save her life! It kept her cancer at bay during an infection when she couldn't receive traditional chemo. This drug was funded by the Relay For Life! Relay For Life really does save live! I know because my daughter is alive to tell her story.

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What I've enjoyed the most about my experience with this nonprofit is...

being a part of a community that is passionate about eradicating cancer, educating America about cancer prevention, raising awareness and supporting those in our own community. It's an event to be shared with others who share your passion!

The kinds of staff and volunteers that I met were...

PASSIONATE!

If this organization had 10 million bucks, it could...

save more lives!

When was your last experience with this nonprofit?

2009

July 24, 2009

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July 24, 2009

American Cancer Society Relay for Life is a great way to fight back against cancer and remember the people it takes away from us. My grandpa died when I was only 2, but I still have memories of him, and always wished that I would have had more memories of my grandpa. Through Relay for Life, I have been able to relive those memories, and help fund research that could possibly prevent my loved ones to lose the fight against cancer as my grandpa did. Getting involved as a high school student has been life changing. I want to continue to fight back against this terrible disease. American Cancer Society makes that possible!

The Great!

I've personally experienced the results of this organization in...

The life changing technology that ACS funded, and in the amount of cancer awareness

Ways to make it better...

If I had to make changes to this organization, I would...

make everything that ACS does a little more known. The only downfall I see is that there are still many people who do not understand what ACS does.

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What I've enjoyed the most about my experience with this nonprofit is...

the sense of community and everyone coming together and whole-heartedly working for this great cause

The kinds of staff and volunteers that I met were...

all wonderful. Everyone is so passionate, and genuinely wants to make a difference.

If this organization had 10 million bucks, it could...

do so much. Save lives, fund research, new technology, and treatments.

Ways to make it better...

nothing. I couldn't have asked for my experience to be any better.

In my opinion, the biggest challenges facing this organization are...

abolishing cancer. Is are still a lot of steps to be taken to reach this goal.

One thing I'd also say is that...

ACS is an incredible organization that is changing lives, and there aren't a lot of ways to make it better than it already is.

When was your last experience with this nonprofit?

2009

July 24, 2009

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July 24, 2009

As a mom, who lost her eldest son Douglas, at age 17 to Ewing's Sarcoma, I needed a place to work through my grief. I found it with the American Cancer Society (ACS). My first ACS experience was as a volunteer leader with the Relay For Life in my community. This opportunity led to volunteer leadership at the New England level, an opportunity to exercise my teacher training skills when I joined the National Training Team. As a member of this team, I have traveled to Dublin, Ireland and many places in the U.S. to share information on how to make Relay For Life more successful and how we ALL can make a difference in the Fight against cancer. I'm also a member of the Connecticut Advocacy team, traveling to meet with legislators in Washington, D.C. and my state capitol in Hartford, CT. I am now a mentor to local Relays. I focus on being sure that people know that through their participation with the Relay For Life, that they are a valued member of the American Cancer Society -- and that they are helping people they may never meet to get well, stay well, find cures and fight back!!! There aren't many organizations that you can be a part of that have this level of impact!! I Relay for Douglas and the many others I have met in my journey in fighting back against Cancer.

The Great!

I've personally experienced the results of this organization in...

raising awareness about the programs and services, the mission and advocacy of the American Cancer Society and the Cancer Action Network -- in letting our legislators know that we care about cancer and we will be heard!

Ways to make it better...

If I had to make changes to this organization, I would...

not have waited so long to get out an ad campaign like "Official Sponsor of Birthdays" -- as too many people do NOT know what the American Cancer Society does, or what Relay For Life is.

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What I've enjoyed the most about my experience with this nonprofit is...

That through my efforts that I am making a difference in the lives of many. I share the 1-800-ACS-2345 number of the National Cancer Information Center and of the Hope Lodges, so that donors know that their donations make an impact!

The kinds of staff and volunteers that I met were...

most often those who have great passion towards the mission of the ACS and are great partners to work with.

If this organization had 10 million bucks, it could...

assure sure that more research was funded, that more information on quality of care, info. about the 1-800-ACS-2345 number was shared and that more advertising about what Relay For Life IS and ISN'T was made available (e.g. no athletic ability needed).

Ways to make it better...

I had more personal time to give to the American Cancer Society.

In my opinion, the biggest challenges facing this organization are...

the continuous turnover of the ID Staff - the ones who are the primary face of the ACS to the community Relays. The turn-over, results in need for continuous training at the beginning levels and impacts the ability to grow Relays to the next level.

One thing I'd also say is that...

The nos. regarding the number of us who will be directly impacted by cancer in our lifetime is daunting (1 in 3)! We need to care enough to make a difference, we need to know that our valuable discretionary income is spent wisely -- and it is w/the ACS!!

When was your last experience with this nonprofit?

2009

July 23, 2009

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July 23, 2009

I have been an American Cancer Society Volunteer for 13 years. It is an organization that truly values its volunteers. ACS gives us the information and skills that we need to fight this deadly disease. They honor us and support us.

The Great!

I've personally experienced the results of this organization in...

keeping governmental cancer research dollars.

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What I've enjoyed the most about my experience with this nonprofit is...

the opportunity to interact with other cancer survivors.

The kinds of staff and volunteers that I met were...

organized and dedicated to the cause.

If this organization had 10 million bucks, it could...

increase the awareness of opportunities for cancer prevention and fund more research

When was your last experience with this nonprofit?

2009

July 23, 2009

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July 23, 2009

The first time I saw all of those survivors on the track I wept. What an awe inspiring time I had that night as I walked around the track for the first time as a survivor. Each year the sea of purple grows and grows because of the research and programs that this great organization provides!!!

The Great!

I've personally experienced the results of this organization in...

the research that is being funded for cancer.

Ways to make it better...

If I had to make changes to this organization, I would...

make cancer a national priority.

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What I've enjoyed the most about my experience with this nonprofit is...

The uniting of those fighting or helping fight cancer.

The kinds of staff and volunteers that I met were...

WONDERFUL!!!!!

If this organization had 10 million bucks, it could...

help more people diagnosed with cancer.

Ways to make it better...

we had EVEN MORE people involved.

In my opinion, the biggest challenges facing this organization are...

the economy

When was your last experience with this nonprofit?

2009

July 23, 2009

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July 23, 2009

Cancer affects everybody. The American Cancer Society not only communicates this message in their education and advocacy efforts, but also illustrates this message through their diversity of volunteers and their diversity of volunteer positions. I have worked with high school students, business professionals, and retirees that have all come together in solidarity to fight against cancer and are equally as passionate about the cause. There is a range of ways to get involved in terms of time commitment and variation of activities such as setting up for events, writing thank you cards, driving cancer patients to treatments, or training new volunteers about the American Cancer Society's mission.

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What I've enjoyed the most about my experience with this nonprofit is...

meeting survivors that have directly benefited from ACS's efforts.

When was your last experience with this nonprofit?

2009

July 23, 2009

more

July 23, 2009

Great time for a great cause. When else could we camp out overnight in beautiful downtown Plymouth? Ir really was a fun time as well as constructive.

Ways to make it better...

If I had to make changes to this organization, I would...

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The kinds of staff and volunteers that I met were...

inspirational.

Ways to make it better...

I had gotten even more neighbors involved.

When was your last experience with this nonprofit?

2009

July 23, 2009

more

July 23, 2009

The American Cancer Society helps in so many ways. Of course the research end is so important, but ACS goes way beyond that. It provides a 24-hour helpline, where anyone can call with any question or concern. I am involved in the Relay for Life. Our mission is to bring awareness to the community. On a personal note, I believe that the 20 years between my father's lung cancer diagnosis and my mother's lung cancer diagnosis made all the difference. In those 20 years so much progress was made that my mother is a 9-year survivor. In fact, she has survived breast and lung cancer. My review is an attempt to assure that the American Cancer Society gets the recognition it deserves for all that it does.

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I've personally experienced the results of this organization in...

the available resources to the community.

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What I've enjoyed the most about my experience with this nonprofit is...

the sense of pride I've gained.

The kinds of staff and volunteers that I met were...

very enthusiastic.

If this organization had 10 million bucks, it could...

save more lives, help more people with general needs.

When was your last experience with this nonprofit?

2009

July 23, 2009

more

July 23, 2009

I feel the American Cancer Society should receive all awards possilby given for being the philanthropists of fighting cancer, cancer research and all things related to end this horrible disease.

The Great!

I've personally experienced the results of this organization in...

my community. The children are more aware of what smoking does to their health.

Ways to make it better...

If I had to make changes to this organization, I would...

change nothing. They truly do this for the right reasons, cancer research.

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What I've enjoyed the most about my experience with this nonprofit is...

The friendship I have now because of meeting so many great volunteers.

The kinds of staff and volunteers that I met were...

dedicated, hard working and great friends.

If this organization had 10 million bucks, it could...

probably find a cure for this deadly disease.

Ways to make it better...

Michigan was always a smoke-free state. Legislators need to get off their butts and fix this problem.

In my opinion, the biggest challenges facing this organization are...

legislators digging thier feet in the sand and not passing bills in a timely fashion.

One thing I'd also say is that...

this is the only non-profit cancer fighting organization that I support because they are dedicated to the cause.

When was your last experience with this nonprofit?

2009

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