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June 23, 2011

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1 previous review
June 15, 2010

Daniel was born at 32 ½ weeks. At first with only a 8 day NICU stay we didn’t think much then about what he would be faced with later. When he was in preschool he didn’t communicate and... more

June 23, 2011

Daniel was born almost 8 weeks early. We waited to see what if any complications were to follow. He suffered many hospitalizations in the first year of life that we didn't even remember we had a real house to go home to. As the next few years went by we spent more time in doctors offices and therapy centers to provide him with the best quality of life as possible. Then we found out that he suffered a tramitic brain injury somewhere in the first year of life. We shifted gears over the next several years to continue our efforts on doing what was best for him but we started to forget about ourselves and what we needed. Our other two kids were always put on the back burner becuase we had to get their brother to a doctors appt or therapy appt. When Daniel was about 7 we were introduced to the Starlight Family. OUr first outing was to the circus. We hadn't been in years. We all had a great time and for the first time in a long time we heard all 3 kids laughing and having a good time. We knew that wihout Starlight we would not have made the time. We also didn't have to worry about how to pay for this as they covered everything so that we could attend. We no longer had to make a choice about to go out as a family or pay for extra medications or therapies. Starlight has always stepped in when we needed it the most. When the stress at home from the day to day struggles get to be so much that you just have to shift gears and enjoy each other. The great escapes and day brightners have proivded our family with opportunities that we could not have done without their support. They have become part of our family that we will never forget about.

The Great!

I've personally experienced the results of this organization in...

As stated above

Ways to make it better...

If I had to make changes to this organization, I would...

I would only wish that there was more funding for this organization so they could reach out to so many more families

June 15, 2010

Daniel was born at 32 ½ weeks. At first with only a 8 day NICU stay we didn’t think much then about what he would be faced with later. When he was in preschool he didn’t communicate and was not social with the other kids. At 5 he was diagnosed with a condition called non-verbal learning disorder and at 7 the MRI showed damage to the right hemisphere indicative of a traumatic brain injury. I was working at our local children’s when I was first approached by great escapes offering a new service in town. As I learned about it I also told them that I had their first client with my own son and I have been a family member since. Each day my son struggles to do what comes naturally to most of us. He doesn’t see himself as different just someone that leans differently and he has always set out to do the best that he can. However, that doesn’t come without being discouraged when he can’t, for being isolated from his peers who don’t understand or when he is pointed to when he acts different. Starlight has become a second family to him as well as all of us. He is free to participate as is without prejudice and he has met other children who share his some struggles. As a family we have met many wonderful families who have been down the same path as we have and only they can understand how sometimes the smallest of steps of access are nothing short that a major triumph in our world. We moved a couple of years ago, and despite leaving friends behind Daniel said is there are starlight group where we were going and I was happy to tell him yes. He was so happy to meet his new family and it was a a familiar atmosphere to him making the move a little easier for him and all of us. The time we spend with our Starlight Family gives us the opportunity to step back and just enjoy each other and see everyone laugh and have a good time. This doesn’t replace the daily challenges that Daniel faces or that we all face with him but for a few hours each month, it assures that we all focus on a fun family time atmosphere. We have been very lucky to participate in a host of events from ice skating, to the circus, to major leagues sporting events and a host of other activities. Raising a child with an life long illness is a major financial and emotional undertaking that without Starlight family we could not either afford to do on our own much less carve out the time to go do it. The Smith Family

The Great!

I've personally experienced the results of this organization in...

We have been very lucky to participate in a host of events from ice skating, to the circus, to major leagues sporting events and a host of other activities. Raising a child with an life long illness is a major financial and emotional undertaking that without Starlight family we could not either afford to do on our own much less carve out the time to go do it.

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How frequently have you been involved with the organization?

About every month

When was your last experience with this nonprofit?

2010

June 21, 2011

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June 21, 2011

Our family received a devastating diagnosis of childhood cancer almost 4 years ago that completely changed our lives. We lost income, freedom and the "normalcy" we once enjoyed as a family. Slowly we began to adjust to our "new normal" that included caring for our young daughter as she fought for her life. We had no energy, nor the means to plan activities or excursions for our family of 5. We learned of Starlight Children's Foundation through a cancer wellness center in our area. Starlight made it possible for us to enjoy family time again...time to reconnect...time to forget about childhood cancer for a while...time to experience new people, new places and new friends. Starlight's Great Escapes and Day Brighteners are aptly named; we have experienced both - a time to escape the realities of childhood cancer and days full of brightness...THANKS Starlight!!

The Great!

I've personally experienced the results of this organization in...

my own family's life...Starlight gaves us opportunities we would not have otherwise been afforded and we have been very grateful.

Ways to make it better...

If I had to make changes to this organization, I would...

find a way to raise more funds to expand the progrm to include more families.

June 21, 2011

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June 21, 2011

Hi, my name is Irene meyers I have a 16 year old daughter just last year was diagnosed with crohn's disease i or my family never heard this disease shes been hospitalized 3 times and had 3 colon oscopy a endoscopy 2 times numerous blood work done and this december had to get a endoscopy done a chest x ray blood work ultrasound on her chest because they found she had a infection of her lungs because she was taking steroids for her crohn's wich caused her infection. she also had mono ontop of everything else and a enlarge spllen this all happened at same time in december. we dont get any help threw government we make to much monety how when i'm still paying for previous medical bills from last december well anyway Starlight foundation has helped my family. to forget about our problems and enjoy our time together as a family Thank you the meyers family.

The Great!

I've personally experienced the results of this organization in...

july were my family is going to have fun and forget about my daughters disease and let her enjoy herself.

Ways to make it better...

If I had to make changes to this organization, I would...

none!

June 20, 2011

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June 20, 2011

Starlight has changed our quality of life. Thanks to Starlight Greatescapes Progam we have had the opportunity to attend wonderful, fun filled local events free of cost! Thank you starlight for all that you do!

The Great!

I've personally experienced the results of this organization in...

Time and time again starlight plans events for our family to attend free of cost. We have attened Smuckers on Ice, Back to School event, Halloween party with DJ and lunch, just to name a few!

Ways to make it better...

If I had to make changes to this organization, I would...

Provide healthy food choices at events.

June 20, 2011

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June 20, 2011

After our son was diagnosed with cancer at age 9 we heard about Starlight. Our family is so grateful for the events and how Starlight includes all the siblings in everything they do. Thank you Starlight!

The Great!

I've personally experienced the results of this organization in...

Our family appreciates the unique opportunities to do some thing fun together especially during such a difficult time in our lives.

Ways to make it better...

If I had to make changes to this organization, I would...

Share the word with everyone who has a child with cancer.

June 20, 2011

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June 20, 2011

Starlight gives these sick children a chance at "normal" events and things regular children do. My son enjoys every event we have been a part of.

The Great!

I've personally experienced the results of this organization in...

My child has more confidence when attending places and can sociably interact with his peers.

Ways to make it better...

If I had to make changes to this organization, I would...

nothing only more donations in order to accommodate more children.

June 16, 2011

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June 16, 2011

I am mother of a daughter with a Primary Immune Deficiency Disorder. Her first Great Escape was in May 2011 and we went to a Mother Daughter Princess Tea. My daughter spends a lot of her life in a hospital room to receive treatments that keep her alive. That in May of the Tea I will probably always remember as a mother. My daughter did not stop smiling the entire time. All the people there went above and beyond to make sure that my daughter and I were having a great time. My little princess that is 3 1/2 still talks about that day all the time. She created happy memories and had quality time with her mother. This day is absolutely priceless. Words cannot how thankful I am for the Great Escape Program.

The Great!

I've personally experienced the results of this organization in...

I have experienced the results of this organization through my daughter. She was smiling from ear to ear the entire time. They provided a child who spends so much time in the hospital happy memories. Priceless!

Ways to make it better...

If I had to make changes to this organization, I would...

I would no change anything about this program.

June 15, 2011

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June 15, 2011

My son Jorden has Bilaterl Polymicrogyria. Starlight NW has allowed him to do things that he normally would not be able to do because of his condition and also because of the financial strain on our family. Starlight has allowed our family to enjoy events as a family. Whether it is events like going to see Elmo or Trick or suite for Halloween. These past two years have been really hard for my family as my wife has been dealing with many medical issues herself. This has made the financial strain even herder as I am the sole provider and had to take alot of time off to help take care of Jorden. So when christmas came around this last year we did not have much to make a Christmas for our four kids. Starlight helped out to make our Christmas better. We also had an unknown person who heard about our situation through somebody assocaited through Starlight sponsor us for Christmas. Starlight foundation has made it so much easier for us to enjoy ourselves and for Jorden to enjoy freindship and be as normal as he can be. Jorden has spent alot of time in the hospital and with the help of Erin Behen director for Starlight NW he has been able to have things to play with and not be bored with just me being in his room. It made his stays in the hospital easier for both of us.

The Great!

I've personally experienced the results of this organization in...

If it was not for Starlight my son would not be able to do alot of things that he does with the organization. It has made his quality of life better.

Ways to make it better...

If I had to make changes to this organization, I would...

Nothing I kind think of

June 14, 2011

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June 14, 2011

My son was born with a life threatening immune deficiency. Our lives are not what one would consider "normal" in getting to do lots of activities outside of our home. One reason for this is purely medical, however, the other major constraint is financial. Starlight has given my son and our family many fun "great escapes" to participate in over the years. We have been able to attend the Aquarium, The Rangers baseball game, Six Flags Holiday in the Park, The Ice Show, the rodeo, parties, and most recently, we were able to attend a cooking class at Le Cordon Bleu! My family has been very blessed to get to do these fun outings, as we never would have been able to do so if not for Starlight! My son has really enjoyed every Starlight function we have attended and we are very grateful for their organization!

The Great!

I've personally experienced the results of this organization in...

Attending many different functions and seeing my son's eyes brighten up with getting to do a really fun outing with his family!

Ways to make it better...

If I had to make changes to this organization, I would...

none

June 14, 2011

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June 14, 2011

M y daughter Alexandria has retinoblastoma & lost her left eye to cancer. She LOVES going to the Broward Arts Center, in her words "to go to the theater" (yes, she is 3 years old).
Starlight has made sure that she can forget the MRI's EUA's and prosthetic eye appointments with the "theater".
It is our special girl time to get dressed up & go to a show.
Thank you Starlight because I would not be able to afford this luxury with all of her other medical bills.

The Great!

I've personally experienced the results of this organization in...

This is a wonderful organization

Ways to make it better...

If I had to make changes to this organization, I would...

I would make no changes

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