Spondylitis Association Of America

Rating: 4.85 stars   92 reviews

Nonprofit Issues:

Health

Address:

PO Box 5872 Sherman Oaks CA 91413 USA

Mission:

Our mission is to be a leader in the quest to cure AS and related diseases, and to empower those affected to live life to the fullest. There are more than 100 types of arthritis. For over 25 years, SAA has focused on just one - yours. So that no one has to face spondylitis alone.

Programs:

SAA provides public and patient education programs to facilitate early diagnosis, promote effective treatment, and encourage self-help care for optimal quality of life. 

SAA’s website, www.spondylitis.org, is updated regularly with the latest news and information about spondylitis treatment, medications and research. In addition, information about SAA events and seminars, supportive programs and the online Message Board community can also be found here.

SAA hosts free educational seminars in different metropolitan areas throughout the United States each year. All seminars include an experienced rheumatologist who provides an overview of spondyloarthritis along with current medications and other available treatments. Secondary speakers complement the program with presentations on other topics of interest including exercise, physical therapy, occupational therapy, the emotional impact of living with spondylitis, etc. These seminars provide an opportunity for attendees to ask questions and meet other people from the area impacted by spondylitis.

SAA offers free online seminar events, referred to as webinars. These webinars allow people to learn about specific spondylitis-related topics in the comfort of their home without having to travel. SAA hosts approximately 3 webinars each year; the live event is free and open to everyone in the spondylitis community. 

SAA provides a library of audio interviews (podcasts) to SAA members, which include questions posed to spondylitis experts to provide information on a wide range of topics including spondylitis symptoms, medications, treatment, complications, etc. Members are also asked to submit their own questions to be answered during future podcasts.

2015 Top-Rated Nonprofit
Write a Review
Donate
Invite Reviews Share This Nonprofit

More Info

(800) 777 - 8189
http://www.spondylitis.org

Promote This Nonprofit

GreatNonprofits badges allow you to raise awareness of your favorite nonprofits on your own web sites!

Review this charity on
GreatNonprofits

Reviews for Spondylitis Association Of America

Rating: 5 stars  

1 person found this review helpful

When my son was diagnosed with AS I wanted to get all the information I could. The web site is a great source of useful information; and it has links to support groups, doctors, written material, and seminars. As a parent, and advocate I'm grateful for all the knowledge I've gained. And I know any donations made go where they can do the most good.

 
Flag review
Rating: 5 stars  

1 person found this review helpful

This is a website I go to frequently as we navigate my son's treatment.

 
Flag review
Rating: 5 stars  

1 person found this review helpful

SAA is at the forefront of research and information for Spondyloarthritis and its' family of diseases. With as little as 2 million dollars a year, they are succeeding in their quests. This, however is a very little known autoimmune disease and needs a bigger spotlight so more funding can be donated by the general public. This disease effects more people than Lou Gehrig's disease, MS, and Cystic Fibrosis combined, but is very unknown it seems. SAA calls every single person that makes a donation to the association. Not just a typed form letter, but a phone call from a real person that truly cares about what he/she is doing. I am a proud supporter of SAA and a patient with Ankylosing Spondylitis.

 
Flag review
Rating: 5 stars  

1 person found this review helpful

When my husband was diagnosed we found great resources on SAA's website. It was nice to feel part of a community instead of all alone. We have donated for the last 4 years and feel the money is well spent. They honestly care and do everything they can. I could hardly believe it when we had a personal thank you on out answering machine for making a donation. Great organization with great people.

 
Flag review
Rating: 5 stars  

1 person found this review helpful

I was diagnosed with Ankylosing Spondylitis 3 1/2 years ago, and, despite having a great doctor, felt like I was in a raft in the middle of the ocean with no rescue in sight. Then, the SAA formed a local support group, and I started attending monthly gatherings, and eventually joined the organization and became a monthly donor. The support group, seminars and educational material provided by SAA has been a lifeline as I deal with the day-to-day reality of living with this chronic illness. It is amazing how much this organization does to educate the medical community and the public about Ankylosing Spondylitis and related diseases, and also fund research to help those with the illnesses have a better life. I can't recommend it highly enough.

 
Flag review
Rating: 5 stars  

2 people found this review helpful

I suffer from AS and benefit greatly from the work of SAA. I also donate because of how effective they are.

Was your donation impactful?

Definitely

How likely is it that you would recommend that a friend donate to this group?

Definitely

How likely are you to donate to this group again?

Definitely

When was your last experience with this nonprofit?

2013

 
Flag review
1 previous review
Rating: 5 stars  

2 people found this review helpful

For people afflicted with Spondylitis, SAA is a great source of knowledge and community, as well as funding research into causes and treatments.

Was your donation impactful?

Definitely

How likely is it that you would recommend that a friend donate to this group?

Definitely

How likely are you to donate to this group again?

Definitely

When was your last experience with this nonprofit?

2012

 
Flag review
1 previous review
Rating: 5 stars  

1 person found this review helpful

SAA has been very useful tome, filling a gap that docs don't have time for. I'm happy to support them.

I've personally experienced the results of this organization in...

Learning about new treatments, studies, meds. Their podcasts and discussion forums are very helpful.

If I had to make changes to this organization, I would...

More podcasts

 
Flag review
Rating: 5 stars  

As one who has Ankylosing Spondylitis, I have benefited greatly from information obtained from SAA's web site and other publications. They provide helpful practical advice for people dealing with this family of diseases, which affect a surprisingly high number of people.

I've personally experienced the results of this organization in...

...terms of helpful advice from both others suffering from this disease, and expert professionals on their advisory board.....

If I had to make changes to this organization, I would...

None needed!

 
Flag review
Rating: 5 stars  

My daughter has been diagnosed with spondyloarthritis for about one year now. The support that we have received from SAA has helped us feel not so alone. I have a different autoimmune disease and there is no national support group for my specific disease. The SAA, which deals specifically with the cluster of spondylitis disorders, has been a great and thorough resource of disease information, but more importantly for my daughter, the SAA has provided the forum and opportunity to network with others, including health care providers to get her the best comprehensive care.

I've personally experienced the results of this organization in...

The care and health for my daughter.

If I had to make changes to this organization, I would...

None

 
Flag review
Rating: 5 stars  

After going to a chiropractor for many years, and my pain, and stiffness getting worse, I finally went to a doctor who diagnosed my symptoms as ankylosing spondylitis in 1992. Because my condition went untreated for many years, and even worse, because I went to a chiropractor who had no idea what he was doing, nor ever heard of my condition, for over 10 years I had a very difficult time managing my illness. Thank God, now, after many difficult years, I am better able to manage my condition. I credit, in large part, SAA for helping me manage, and deal with my disease. Their information, and helpful suggestions, have been a vital part of my care. I am fully comitted to this organization, and greatly encourage everyone to support this vital cause, and hopefully, someday, with their help, this dreadful illness will be curred, and not hurt anyone else. In the meantime, this wonderful organization adds tremendous knowledge to the world, who before their vital work, had vey little information about this illness.

I've personally experienced the results of this organization in...

See above. Their assistance, and knowledge has greatly assisted me in caring/dealing with my condition.

If I had to make changes to this organization, I would...

None. They are doing great work.

Was your donation impactful?

Definitely

How likely is it that you would recommend that a friend donate to this group?

Definitely

How likely are you to donate to this group again?

Definitely

When was your last experience with this nonprofit?

2011

 
Flag review
Rating: 5 stars  

My now deceased father had AS and now my identical twin daughters have AS. I have found SAA an invaluable source of information and inspiration, both for understanding the disease and for learning how my daughters can live with it. Many thanks to SAA for being there for me and for my family!

I've personally experienced the results of this organization in...

understanding the treatments available to AS patients. My daughters have also accessed the SAA sites and have been able to understand how others of their age are coping.

If I had to make changes to this organization, I would...

In my perfect world, there would be an SAA group near where I live, which is in Vancouver Canada.

 
Flag review