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78 Reviews
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September 8, 2013

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2 previous reviews - show all
November 30, 2012

For people afflicted with Spondylitis, SAA is a great source of knowledge and community, as well as funding research into causes and treatments. more

September 8, 2013

I suffer from AS and benefit greatly from the work of SAA. I also donate because of how effective they are.

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Was your donation impactful?

Definitely

How likely is it that you would recommend that a friend donate to this group?

Definitely

How likely are you to donate to this group again?

Definitely

When was your last experience with this nonprofit?

2013

November 30, 2012

For people afflicted with Spondylitis, SAA is a great source of knowledge and community, as well as funding research into causes and treatments.

More feedback...

Was your donation impactful?

Definitely

How likely is it that you would recommend that a friend donate to this group?

Definitely

How likely are you to donate to this group again?

Definitely

When was your last experience with this nonprofit?

2012

June 9, 2011

SAA has been very useful tome, filling a gap that docs don't have time for. I'm happy to support them.

The Great!

I've personally experienced the results of this organization in...

Learning about new treatments, studies, meds. Their podcasts and discussion forums are very helpful.

Ways to make it better...

If I had to make changes to this organization, I would...

More podcasts

June 27, 2011

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June 27, 2011

As one who has Ankylosing Spondylitis, I have benefited greatly from information obtained from SAA's web site and other publications. They provide helpful practical advice for people dealing with this family of diseases, which affect a surprisingly high number of people.

The Great!

I've personally experienced the results of this organization in...

...terms of helpful advice from both others suffering from this disease, and expert professionals on their advisory board.....

Ways to make it better...

If I had to make changes to this organization, I would...

None needed!

June 21, 2011

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June 21, 2011

My daughter has been diagnosed with spondyloarthritis for about one year now. The support that we have received from SAA has helped us feel not so alone. I have a different autoimmune disease and there is no national support group for my specific disease. The SAA, which deals specifically with the cluster of spondylitis disorders, has been a great and thorough resource of disease information, but more importantly for my daughter, the SAA has provided the forum and opportunity to network with others, including health care providers to get her the best comprehensive care.

The Great!

I've personally experienced the results of this organization in...

The care and health for my daughter.

Ways to make it better...

If I had to make changes to this organization, I would...

None

June 19, 2011

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June 19, 2011

After going to a chiropractor for many years, and my pain, and stiffness getting worse, I finally went to a doctor who diagnosed my symptoms as ankylosing spondylitis in 1992. Because my condition went untreated for many years, and even worse, because I went to a chiropractor who had no idea what he was doing, nor ever heard of my condition, for over 10 years I had a very difficult time managing my illness. Thank God, now, after many difficult years, I am better able to manage my condition. I credit, in large part, SAA for helping me manage, and deal with my disease. Their information, and helpful suggestions, have been a vital part of my care. I am fully comitted to this organization, and greatly encourage everyone to support this vital cause, and hopefully, someday, with their help, this dreadful illness will be curred, and not hurt anyone else. In the meantime, this wonderful organization adds tremendous knowledge to the world, who before their vital work, had vey little information about this illness.

The Great!

I've personally experienced the results of this organization in...

See above. Their assistance, and knowledge has greatly assisted me in caring/dealing with my condition.

Ways to make it better...

If I had to make changes to this organization, I would...

None. They are doing great work.

More feedback...

Was your donation impactful?

Definitely

How likely is it that you would recommend that a friend donate to this group?

Definitely

How likely are you to donate to this group again?

Definitely

When was your last experience with this nonprofit?

2011

June 15, 2011

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June 15, 2011

My now deceased father had AS and now my identical twin daughters have AS. I have found SAA an invaluable source of information and inspiration, both for understanding the disease and for learning how my daughters can live with it. Many thanks to SAA for being there for me and for my family!

The Great!

I've personally experienced the results of this organization in...

understanding the treatments available to AS patients. My daughters have also accessed the SAA sites and have been able to understand how others of their age are coping.

Ways to make it better...

If I had to make changes to this organization, I would...

In my perfect world, there would be an SAA group near where I live, which is in Vancouver Canada.

June 15, 2011

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June 15, 2011

The SAA provides valuable research and drives awareness of a terrible disease that afflicts millions of North Americans every year.

The Great!

I've personally experienced the results of this organization in...

the healthcare that I receive from my fantastic doctor who is able to connect with other doctors to share learnings through the SAA

Ways to make it better...

If I had to make changes to this organization, I would...

n/a

June 15, 2011

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June 15, 2011

SAA provides great educational sessions free of charge to persons affectd by SAA and offerings are planned in different areas of the country so that many can take part in those sessions. The learning from speakers and other attendees has been invaluable. I've developed friendships and contacts from attending sessions that have continued for several years and would not have been possible without SAA.

The Great!

I've personally experienced the results of this organization in...

Information provided through their website, chat rooms and education sessions. Learned of advances in SAA research that has resulted from SAA financial and participantion.

Ways to make it better...

If I had to make changes to this organization, I would...

Create more regional opportunities for involvement and education.

June 15, 2011

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June 15, 2011

As a disabled Veteran who is partially crippled and always having to deal with pain that was mis-diagnosed for over 20 years. . I myself who was finally diagnosed by one of the best MD's at age 39. I had to close a business which i loved but could no longer endure the pain with the Arthritis without some real hard drugs from the Doctor. Well, i got some relief but the hard drugs were destroying my life. I went through a divorce after almost 10 years of marriage. I lost everything in the courts and I was at my lowest point i think in my life at the time. My sister (Lori) who works with the Cancer Society herself became a victim last year. She is doing well now after the chemo and is considered a survivor. In 1999, she had heard about this small group for Anklyosing Spondylitis and paid for my first year as a small gift to me for my Birthday. I think it was one of the best Birthday presents i have ever received. I have gotten to know others on the internet and even submitted my story of years (16) of mis-diagnoses from Doctors who just didn't know any better. Becoming a member with SAA it helped me to start to understand what was happening to my body. I found some friends here that understood what i have been up against for most of my adult life. I consider myself to be a life long member and consider this a great way to help others who have been through the tough times as well. Now i understand to feel better that i have to deal with the pain and depression that all of us Spondy's endure everyday of our lives. Most spondy's will tell you It keeps most of us single and our friends at a distance so this website is something that helps fill the gap especially on some of our most painful days when an understanding friend just to talk with when you are hurting can make all the difference in the world. Thank You SAA and keep up the great work keeping all of us Spondy's up to date.

The Great!

I've personally experienced the results of this organization in...

Some great Spondy's and understanding people here

Ways to make it better...

If I had to make changes to this organization, I would...

I would like to have more social meetings with other Spondy's.

June 15, 2011

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June 15, 2011

I was diagnosed with AS about 10 years ago, when I was 29 years old. Soon after I found SAA online and became a member. I can't tell you how much their website and quarterly magazine have helped me over these past 10 years, not only with great articles, forums, and exercises, but SAA has given me real hope that one day there will be a cure for AS. It always lifts my spirits when I get their latest quarterly in the mail. They cover such a wide range of topics in their magazine, and it always leaves me feeling hopeful. I always look forward to reading it when it arrives in my mailbox, and I always learn something new and they are always working towards a cure. SAA also has events where you can meet other people with AS. I think anyone with AS or even someone with a friend or loved one who has AS can benefit from this incredible organization.

The Great!

I've personally experienced the results of this organization in...

SAA has given me hope that there will be a cure for AS.

Ways to make it better...

If I had to make changes to this organization, I would...

I don't think that I would change anything about SAA.

June 15, 2011

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June 15, 2011

I've been pleased with the materials and responsiveness of SAA.

The Great!

I've personally experienced the results of this organization in...

Receiving collateral material

Ways to make it better...

If I had to make changes to this organization, I would...

Mount a more involved charitable campaign

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