SAA has been a great resource for me since finding out about their organization in early 2007.
I suffer from AS and up until I found them, most people didn't know or care about AS, including many people in the health profession. For years I was misdiagnosed until I finally went and saw a rheumatologist in 1995 and got confirmation from the Mayo clinic that I had AS. Back then, the treatments were not nearly as advanced until several of these new biologic injections became available. I started on Enbrel in early 2007 and the relief was immediate but the cost was very high even with my health insurance and deductible. It was SAA that unlocked the opportunity to be able to purchase on a copay program, which drastically reduced my out of pocket cost. Since that time, I had to change medications and I've been on Humira now for 8 years. These drugs were life changing for me and I only have mild AS, unlike many others who have a chronic case of it. The SAA newsletters and emails have helped to provide me much information on AS that offer me support in my continual battle with the disease. I encourage anyone dealing with AS or many of the other inflammatory disorders that are in the same family to utilize SAA as their resource in dealing with these diseases. Thank you SAA!
My mother has AS, and SAA has been a fantastic resource for us these past few years. There's so little out there for patients and caregivers, but this resource is great quality and I would recommend it to anyone affected by AS. Thank you SAA!
I have RA and SpA , this organization has helped so much.When I was first diagnosed, I knew so little about the diseases, thanks to SAA, I am better informed and therefore better able to cope.
SAA is a bunch of whiners who listen to the medical profession's prescriptive bs, while ignoring the causes of AS, and the only natural solution... elimination of starch in the diet.
I have received a lot of helpful information and updates at the disease. I was on two online support groups until it became too difficult listening to people argue, watching members die, and hearing that members committed suicide. This is a way for me to receive updates without all of that.
I love receiving information that will benefit me in my area. I enjoy finding others in my area that are like me and places my family can join me for support and learn more about my condition. I also love finding information about new medicines that I can review with my rhumeytologist.
W H Y !... charities must stop funding the historical failure of animal research (youtube.com/ms4mulla1). B I L L I O N S of dollars every year prove the failure of animal research. a l s o, the TRUTH about polio by albert sabin, m.d., no LIE can live forever!... animal research has never been validated.
Both my daughter and I have Ankylosing Spondylitis. They have been a fund of accurate information and support. I do not hesitate to recommend them and my wife and I support their ongoing work
I have been able to participate in research on SA. My daughter was able to participate in a research project, she was able to receive aggressive treatment and when she moved out of state was able to locate a specialist because of SAA.
SAA has been wonderful in all aspects of my having AS. The organization mailed me a FREE ice-chest with ice packs inside for travel purposes, a FREE container to dispose of my injection (Enbrel) syringes, many FREE pamphlets and brochures. SAA also assisted me in obtaining financial relief for the cost of Enbrel. I have supported SAA with financial contributions, albeit small donations at times as my finances are tight. The toll-free phone assistance is PRICELESS as there is ALWAYS someone there to answer questions and have a person there to help me through emotionally rough times. SAA is a God-send!!!!
My indentical twin sister has AS, and I'm very glad that she has an organization such as this to turn to. It is a relatively unknown diease that most people don't even know exists. This organization not only provides her with info and advice, but allows her friends and family the benefit of info, as well.