Spondylitis Association Of America

Rating: 4.87 stars   78 reviews

Issues: Health

Location: PO Box 5872 Sherman Oaks CA 91413 USA

Mission: Our mission is to be a leader in the quest to cure AS and related diseases, and to empower those affected to live life to the fullest. There are more than 100 types of arthritis. For over 25 years, SAA has focused on just one - yours. So that no one has to face spondylitis alone.
Programs: SAA provides public and patient education programs to facilitate early diagnosis, promote effective treatment, and encourage self-help care for optimal quality of life. 

SAA’s website, www.spondylitis.org, is updated regularly with the latest news and information about spondylitis treatment, medications and research. In addition, information about SAA events and seminars, supportive programs and the online Message Board community can also be found here.

SAA hosts free educational seminars in different metropolitan areas throughout the United States each year. All seminars include an experienced rheumatologist who provides an overview of spondyloarthritis along with current medications and other available treatments. Secondary speakers complement the program with presentations on other topics of interest including exercise, physical therapy, occupational therapy, the emotional impact of living with spondylitis, etc. These seminars provide an opportunity for attendees to ask questions and meet other people from the area impacted by spondylitis.

SAA offers free online seminar events, referred to as webinars. These webinars allow people to learn about specific spondylitis-related topics in the comfort of their home without having to travel. SAA hosts approximately 3 webinars each year; the live event is free and open to everyone in the spondylitis community. 

SAA provides a library of audio interviews (podcasts) to SAA members, which include questions posed to spondylitis experts to provide information on a wide range of topics including spondylitis symptoms, medications, treatment, complications, etc. Members are also asked to submit their own questions to be answered during future podcasts.

2013 Top-Rated Nonprofit
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More Info

EIN 95-3890767
(800) 777 - 8189
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Role: Professional with expertise in this field
Rating: 5 stars  

1 person found this review helpful

I am biased - I have been a contributing member of SAA for 20 years and joined the staff 1 1/2 yrs ago. I have an MBA in non-profit management and have been honored to work at many amazing non-profits over the last 25 years. So, from an inside, outside and professional viewpoint, SAA is a truly wonderful organization. EVERYONE on the staff is professional, dedicated and knowledgeable. SAA stays focused on the mission with every decision - to be a leader in the quest to cure AS and related diseases and to empower those affected to live life to the fullest. 2.7 million people live with SpA. Yet it is often an invisible and lonely disease that does not get the attention & funding that other issues get. With a relatively small budget -all from donations- the staff and volunteers produce high quality programs and continuous support. SAA is behind the scenes everyday pushing for advancement in the search for cure and care for people living with SpA. In this age, with so much mis-information circulating, SAA is a beacon of correct information. It's such a blessing to be a part of this team. When people are diagnosed, it is the SAA that provides an opportunity to meet others with AS. It was & continues to be the SAA that provides the information needed to manage the disease.

If I had to make changes to this organization, I would...

increase it's funding.

How does this organization compare with others in the same sector?

Very Well

How much of an impact do you think this organization has?

Life-changing

Will you recommend this organization to others?

Definitely

When was your last experience with this nonprofit?

2013

Was this review helpful? 
profile
Role: Professional with expertise in this field
Rating: 5 stars  

As a longtime employee of the Spondylitis Association, I may be biased in my opinion but I hear everyday the firsthand outpouring of gratitude from the people who turn to SAA for information, resources, support, and sometimes just someone to listen who understands what they're going through. Knowing that the organization is making a difference is a powerful motivator and all of us here are honored to do our part for the spondylitis community.

If I had to make changes to this organization, I would...

Increase funding.

How does this organization compare with others in the same sector?

Very Well

How much of an impact do you think this organization has?

Life-changing

Will you recommend this organization to others?

Definitely

When was your last experience with this nonprofit?

2013

Was this review helpful?