Spina Bifida Association Of America

Rating: 4.42 stars   12 reviews

Issues: Cancer

Location: 4590 MacArthur Blvd Nw Ste 250 Washington DC 20007 USA

Mission: TO PROVIDE INFORMATION RELATED TO THE BIRTH DEFECT OF SPINA BIFIDA, INCLUDING PROGRESS IN THE AREAS OF MEDICINE, EDUCATION, LEGISLATION AND FINANCIAL SUPPORT; TO HELP FUND RESEARCH INTO THE CAUSES, EFFECTS AND TREATMENT OF SPINA BIFIDA; TO ENCOURAGE THE TRAINING OF PROFESSIONALS INVOLVED IN THE TREATMENT OF SPINA BIFIDA.
2011 Top-Rated Nonprofit
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Community Reviews

Rating: 5 stars  

1 person found this review helpful

I am 42 year old women that has SB. I have had well over 20 surgeries I walk with braces and have used crutches off and on,I also use manual wheelchair when I need it. I have a AA degree. I worked with People that also disable to show tham that Just becasue we are Disable dose not mean that we are not Able.

I've personally experienced the results of this organization in...

I love all the Info. that come from SB on Facebook. It help me know what to ask the Doctors

If I had to make changes to this organization, I would...

none

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Rating: 5 stars  

This is a wonderful non-profit. It has helped to further the awareness of Spina Bifida to the general public. This is a great way for us to reach out to those who have it and their families.

I've personally experienced the results of this organization in...

By seeing how it has helped friends with children who have Spina Bifida.

If I had to make changes to this organization, I would...

Just make sure it stays a prominent entity.

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Rating: 4 stars  

I find many of the resources and information invaluable to my daily life. As a Father of a 6 yr old with Spina Bifida, and as a Husband to a Wife with Spina Bifida, I find help, hope and a sense of community within the SBAA. Thank you!

I've personally experienced the results of this organization in...

Their research on genetics, and other areas related to spina bifida.

If I had to make changes to this organization, I would...

I feel the organization meets all my family's expectations

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