The Sickle Cell Awareness Foundation Inc serves as a support system within the community. To educate those who weren't aware about the the sickle cell disease. The founders Mr. and Mrs Sotillo have made it their duty to educate not only those suffering, but health care providers who may not have much experience with dealing in sickle cell. I recommend anyone who has a family member or friend suffering with this disease to contact the Sickle Cell Awareness Foundation Inc.
This organization was started because of the love of family, while growing up I always see my sister go in and out of Hospitals, and I could not help her but I promised when I am old enough I will be able to do something, starting this organization is a blessing to my family, as we are able to offer an essential service to many families and individuals, educating and counseling them with a current understanding of sickle cell disease, and other genetic conditions. In addition, the community outreach regarding sickle cell disease has been outstanding. We believe that proper medical knowledge and good health is lifelong power. We work to bring people who are looking to get help, are looking to give help, or those seeking to learn more about sickle cell together, connect them with the tools and resources they need.
Our goal is to enhance the quality of life for people suffering from sickle cell disease and their families.
Sickle Cell Awareness Foundation Corp Intl, Was founded by Syd and Merlene Sotillo, we started this organization because he(SYD) and sister Cathy were tired of the treatment by ER and Hospital staff, Sickle Cell Disease can be devastating, people with SCD often experience debilitating pain episodes, entrapment of blood within the spleen, severe anemia, septicemia, meningitis, stroke, acute lung complications, acute chest syndrome, bacterial infections and other life threatening complications. It is a complex disorder, which can affect several of the body's system. It requires specialized comprehensive and continuous medical care to achieve the best possible health outcome for the individual. Currently, the most effective methods to treat or prevent the most severe complications are monthly blood transfusions, or where possible, a Bone Marrow Transplant. We provide Genetic counseling, blood drive, health fairs, 5 k walk/run, monthly support group, On April 20th of last year Syd passed away from complications of this disease, he was funny, loving, and a great motivator.
To my knowledge and what I know now about sickle cell, my cousin would have beeen alive as of today. I know that this organization "Sickle Cell Awarness Foundation Inc". is doing a great job of educating people in this world about this deadly disease which can affect anyone. It can be frustrating, tiring, and draining to each and every family who is going through with this diseases but with this organization existing will help family members to cope. Having good resources and strong support will help fight this disease. Hope the organzation will continue to bring awareness to those out there who are seeking for help because you are not alone.
I believe that the Sickle Cell Awareness Foundation Int. is a great organization. It shows the views and struggles of people with this disease in a good manner. It also provides different ways in which people with this disease can get help. Sickle cell is a very hard and frustrating disease to live with. I hope that the research for this disease provides easier ways for people living with this disease to get help.
I have known some people who were born with sickle cell and by volunteering to help out in the walk-a-thon, by giving out water and snacks to our participants, I help others to become more aware of sickle cell disease. My family and I joined on the walk around the park in the sickle cell awareness T-shirt and talked to local joggers about who we are and what we were doing. The sickle cell organization helps to provide scholarships for high school graduates and give out toys to children on Christmas.
This foundation is most important and needed in the community and in all cities to bring awarness to families who may be suffering from this disease. I am a volunteer and Iearned a lot since I have been attending the meetings. I realize that there are many families who are not educated in the facts about sickle cell. Like any other disease, when people do not get the proper care and the correct information, many suffer needlessly. Educating the public is what this foundation does and they are grasping at very opportunity to get the word out to the public. I believe that with continued support and funds, this foundation will reach many who will not have to die from this disease. Hats off to the founders for the unselfish job they are doing.
my experience towards this sickle cell awareness, was a brief i have learnt the true meaning of sickle cell, my experience was your signs and a way to cure this disease.
my name is molino .I have two grown kids with sickle cell Disease.I got involved with scaf about four years ago.because of my personnal experience with there up bringing i volunteer with the foundation as the event oganizer to provide comprehensive health sducation,counseling testing services while striving to improve the quality of life for clients and their families.Merlene is doing a wonderful job increasing knowledge to those who may not be informed about the disease.
There is so much to say about the Sickle-Cell Awareness Foundation Inc. and the great work that they have been perfoming community wise. Not only are they working on expanding the community knowledge base about how Sickle-Cell affects, individuals on a daily basis but how to better take care of oneself. As they work on generating support by promoting, walks, blood drives, & bike-a-thons amongst many other things. Through they are working on establishing community support, and generating constructive feedback throught the hospital system to get sicklers the help they need if they have to go to the ER. With all this in sight the founders are not stopping there they are constantly looking for new ways to improve their services both here an abroad...