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September 12, 2013

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September 12, 2013

Sickle Cell Awareness Foundation Corp Intl, Was founded by Syd and Merlene Sotillo, we started this organization because he(SYD) and sister Cathy were tired of the treatment by ER and Hospital staff, Sickle Cell Disease can be devastating, people with SCD often experience debilitating pain episodes, entrapment of blood within the spleen, severe anemia, septicemia, meningitis, stroke, acute lung complications, acute chest syndrome, bacterial infections and other life threatening complications. It is a complex disorder, which can affect several of the body's system. It requires specialized comprehensive and continuous medical care to achieve the best possible health outcome for the individual. Currently, the most effective methods to treat or prevent the most severe complications are monthly blood transfusions, or where possible, a Bone Marrow Transplant. We provide Genetic counseling, blood drive, health fairs, 5 k walk/run, monthly support group, On April 20th of last year Syd passed away from complications of this disease, he was funny, loving, and a great motivator.

Ways to make it better...

If I had to make changes to this organization, I would...

I would design more educational programs, aim to increase awareness and enhance preventative measures of sickle cell. Collaborate with other community based organizations to participate in awareness programs concerning sickle cell disease.

More feedback...

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2012

June 30, 2011

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June 30, 2011

To my knowledge and what I know now about sickle cell, my cousin would have beeen alive as of today. I know that this organization "Sickle Cell Awarness Foundation Inc". is doing a great job of educating people in this world about this deadly disease which can affect anyone. It can be frustrating, tiring, and draining to each and every family who is going through with this diseases but with this organization existing will help family members to cope. Having good resources and strong support will help fight this disease. Hope the organzation will continue to bring awareness to those out there who are seeking for help because you are not alone.

The Great!

I've personally experienced the results of this organization in...

great

Ways to make it better...

If I had to make changes to this organization, I would...

nothing

June 30, 2011

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June 30, 2011

I believe that the Sickle Cell Awareness Foundation Int. is a great organization. It shows the views and struggles of people with this disease in a good manner. It also provides different ways in which people with this disease can get help. Sickle cell is a very hard and frustrating disease to live with. I hope that the research for this disease provides easier ways for people living with this disease to get help.

The Great!

I've personally experienced the results of this organization in...

which anemia can cause shortness of breath, fatigue and delayed growth and development in children. The rapid break down of red blood cells may also cause yellowing of the eyes and skin which are signs of jaundice. Signs and symptoms of sickle cell is caused by the sickling of the red blood cells.

Ways to make it better...

If I had to make changes to this organization, I would...

To make changes to the organization I would provide an emergency ID card program. This will aid in the quick response and treatment in the event of a sickle cell related health crisis. With my help I would be able to help expand the support footprint for this organization.

June 29, 2011

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June 29, 2011

I have known some people who were born with sickle cell and by volunteering to help out in the walk-a-thon, by giving out water and snacks to our participants, I help others to become more aware of sickle cell disease. My family and I joined on the walk around the park in the sickle cell awareness T-shirt and talked to local joggers about who we are and what we were doing. The sickle cell organization helps to provide scholarships for high school graduates and give out toys to children on Christmas.

The Great!

I've personally experienced the results of this organization in...

I have seen the joy on the children faces when they received the gifts at Christmas time. I have also seen how people are excited to hear about sickle cell.

Ways to make it better...

If I had to make changes to this organization, I would...

I would try to get more sponsors so that I can help children who are born with the disease to ease their pain.

June 29, 2011

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June 29, 2011

This foundation is most important and needed in the community and in all cities to bring awarness to families who may be suffering from this disease. I am a volunteer and Iearned a lot since I have been attending the meetings. I realize that there are many families who are not educated in the facts about sickle cell. Like any other disease, when people do not get the proper care and the correct information, many suffer needlessly. Educating the public is what this foundation does and they are grasping at very opportunity to get the word out to the public. I believe that with continued support and funds, this foundation will reach many who will not have to die from this disease. Hats off to the founders for the unselfish job they are doing.
Paulette Perry

The Great!

I've personally experienced the results of this organization in...

seeing people come together who are hungry for information by the questions they ask.

Ways to make it better...

If I had to make changes to this organization, I would...

be more available to offer my support and attend meeting.

More feedback...

Would you volunteer for this group again?

Likely

For the time you spent, how much of an impact did you feel your work or activity had?

Some

Did the organization use your time wisely?

Quite well

Would you recommend this group to a friend?

Definitely

What one change could this group make that would improve your volunteer experience?

none

Did your volunteer experience have an effect on you? (teaching you a new skill, or introducing new friends, etc.)

yes

How did this volunteer experience make you feel?

helpful

When was your last experience with this nonprofit?

2011

June 28, 2011

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June 28, 2011

my experience towards this sickle cell awareness, was a brief i have learnt the true meaning of sickle cell, my experience was your signs and a way to cure this disease.

The Great!

I've personally experienced the results of this organization in...

In many ways by me teaching people who has this common illness.

Ways to make it better...

If I had to make changes to this organization, I would...

i would try to find a cure for it.

June 28, 2011

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June 28, 2011

my name is molino .I have two grown kids with sickle cell Disease.I got involved with scaf about four years ago.because of my personnal experience with there up bringing i volunteer with the foundation as the event oganizer to provide comprehensive health sducation,counseling testing services while striving to improve the quality of life for clients and their families.Merlene is doing a wonderful job increasing knowledge to those who may not be informed about the disease.

The Great!

I've personally experienced the results of this organization in...

By introducing support group bringing awareness about sickle cell disease.

Ways to make it better...

If I had to make changes to this organization, I would...

The organization is doing a wonderfull job at this time

June 26, 2011

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June 26, 2011

There is so much to say about the Sickle-Cell Awareness Foundation Inc. and the great work that they have been perfoming community wise. Not only are they working on expanding the community knowledge base about how Sickle-Cell affects, individuals on a daily basis but how to better take care of oneself. As they work on generating support by promoting, walks, blood drives, & bike-a-thons amongst many other things. Through they are working on establishing community support, and generating constructive feedback throught the hospital system to get sicklers the help they need if they have to go to the ER. With all this in sight the founders are not stopping there they are constantly looking for new ways to improve their services both here an abroad...

The Great!

I've personally experienced the results of this organization in...

helped planned different activities.

Ways to make it better...

If I had to make changes to this organization, I would...

I would like to help with more blood drives

June 26, 2011

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June 26, 2011

With so many in our community affected by sickle cell it's great to have a foundation out there to educate. Mrs. Sotillo and her team have done an excellent job in getting the word out there about sickle cell awareness. Through her own personal family experience ,and tireless research from various doctor I have watched this organization grow tremendously within the past three years.

The Great!

I've personally experienced the results of this organization in...

Seeing the results in fundraisers. The scholarships provided to the youth.

Ways to make it better...

If I had to make changes to this organization, I would...

I would not make any changes to this organization.

June 24, 2011

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June 24, 2011

Merlene Sotillo is an indefatigable President and Chief Executive Oficer of the Sickle Cell Awareness Foundation Int. who strives very hard to keep the organization in the public's eye. She knows first-hand about sickle-cell disease through her education and because she has nursed members of her family through bouts of it. The organization grants scholarships to students and gives Christmas parties to children, and this is done from funds which are obtained from its membership and through fund-raising activities as theater parties. It is visible to the community by the health fairs, 5K runs and blood drives which it conducts. This association is so far-reaching that it holds blood drives in Trinidad and Tobago.

The Great!

I've personally experienced the results of this organization in...

I attended last year's Christmas party.

Ways to make it better...

If I had to make changes to this organization, I would...

I have no plans to make changes to this organization.

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