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17 Reviews
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October 24, 2014

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October 24, 2014

SCAF has been serving the borough of Queens for several years sharing information about Sickle Cell Disease. Even though SCAF membership is small in numbers their impact has been felt throughout the other boroughs as well. SCAF has been working with Elected Officials, Medical Professionals, Spiritual Leaders and Community Leaders to increase funding, treatment, awareness and support for victims of the dreaded Sickle Cell Disease.
As a non profit organization SCAF's main desire is to enhance the lives of patients suffering with Sickle Cell Disease.
October 13, 2014

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October 13, 2014

The Sickle Cell Awareness Foundation Inc serves as a support system within the community. To educate those who weren't aware about the the sickle cell disease. The founders Mr. and Mrs Sotillo have made it their duty to educate not only those suffering, but health care providers who may not have much experience with dealing in sickle cell. I recommend anyone who has a family member or friend suffering with this disease to contact the Sickle Cell Awareness Foundation Inc.
October 2, 2014

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October 2, 2014

This organization was started because of the love of family, while growing up I always see my sister go in and out of Hospitals, and I could not help her but I promised when I am old enough I will be able to do something, starting this organization is a blessing to my family, as we are able to offer an essential service to many families and individuals, educating and counseling them with a current understanding of sickle cell disease, and other genetic conditions. In addition, the community outreach regarding sickle cell disease has been outstanding. We believe that proper medical knowledge and good health is lifelong power. We work to bring people who are looking to get help, are looking to give help, or those seeking to learn more about sickle cell together, connect them with the tools and resources they need.
Our goal is to enhance the quality of life for people suffering from sickle cell disease and their families.
September 12, 2013

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September 12, 2013

Sickle Cell Awareness Foundation Corp Intl, Was founded by Syd and Merlene Sotillo, we started this organization because he(SYD) and sister Cathy were tired of the treatment by ER and Hospital staff, Sickle Cell Disease can be devastating, people with SCD often experience debilitating pain episodes, entrapment of blood within the spleen, severe anemia, septicemia, meningitis, stroke, acute lung complications, acute chest syndrome, bacterial infections and other life threatening complications. It is a complex disorder, which can affect several of the body's system. It requires specialized comprehensive and continuous medical care to achieve the best possible health outcome for the individual. Currently, the most effective methods to treat or prevent the most severe complications are monthly blood transfusions, or where possible, a Bone Marrow Transplant. We provide Genetic counseling, blood drive, health fairs, 5 k walk/run, monthly support group, On April 20th of last year Syd passed away from complications of this disease, he was funny, loving, and a great motivator.

Ways to make it better...

If I had to make changes to this organization, I would...

I would design more educational programs, aim to increase awareness and enhance preventative measures of sickle cell. Collaborate with other community based organizations to participate in awareness programs concerning sickle cell disease.

More feedback...

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2012

June 30, 2011

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June 30, 2011

To my knowledge and what I know now about sickle cell, my cousin would have beeen alive as of today. I know that this organization "Sickle Cell Awarness Foundation Inc". is doing a great job of educating people in this world about this deadly disease which can affect anyone. It can be frustrating, tiring, and draining to each and every family who is going through with this diseases but with this organization existing will help family members to cope. Having good resources and strong support will help fight this disease. Hope the organzation will continue to bring awareness to those out there who are seeking for help because you are not alone.

The Great!

I've personally experienced the results of this organization in...

great

Ways to make it better...

If I had to make changes to this organization, I would...

nothing

June 30, 2011

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June 30, 2011

I believe that the Sickle Cell Awareness Foundation Int. is a great organization. It shows the views and struggles of people with this disease in a good manner. It also provides different ways in which people with this disease can get help. Sickle cell is a very hard and frustrating disease to live with. I hope that the research for this disease provides easier ways for people living with this disease to get help.

The Great!

I've personally experienced the results of this organization in...

which anemia can cause shortness of breath, fatigue and delayed growth and development in children. The rapid break down of red blood cells may also cause yellowing of the eyes and skin which are signs of jaundice. Signs and symptoms of sickle cell is caused by the sickling of the red blood cells.

Ways to make it better...

If I had to make changes to this organization, I would...

To make changes to the organization I would provide an emergency ID card program. This will aid in the quick response and treatment in the event of a sickle cell related health crisis. With my help I would be able to help expand the support footprint for this organization.

June 30, 2011

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June 30, 2011

sickle cell disease is the most common inherited blood disorder in the united states, affecting 70,000 to 80,000 Americans this disease is estimated to occur in 1 in 5,00 African American and 1 in 1,000 to 1,400 Hispanic American. The SCAF have found that there are great ignorance concerning sickle cell disease in general, and treatment amongst the general public and Medical providers. Currently there is no effective cure available for sickle cell disease or trait in the event of a crisis. We focus on distributing awareness and knowledge of sickle cell and the importance of early intervention, prevention efforts, Childcare, Pain management, and urgent treatment.

The Great!

I've personally experienced the results of this organization in...

I have personally attended a lunch and learn program at the Hospital where they explained the different types of sickle cell and treatment options, and the genetic aspect of this disease the objective of the SCAF Int is to faciliate sickle cell awareness through education by visiting hospitals, Nursing Homes, Community Multi Service Center which increase the general community's awareness of this condition.

Ways to make it better...

If I had to make changes to this organization, I would...

The SCAF Corp Int,should be given the opportunity to improve the quality of life, the unpredictable nature of this illness, with recurrent episodes of pain, and Hospitalization can have substantial impact on the individuals quality of life affecting school, work schedule, and self esteem, appropiate diagnosis,counseling and aducation are essential for individual affected and their family as well as proper and timely response for sickle cell patients at hospitals.

June 29, 2011

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June 29, 2011

I have known some people who were born with sickle cell and by volunteering to help out in the walk-a-thon, by giving out water and snacks to our participants, I help others to become more aware of sickle cell disease. My family and I joined on the walk around the park in the sickle cell awareness T-shirt and talked to local joggers about who we are and what we were doing. The sickle cell organization helps to provide scholarships for high school graduates and give out toys to children on Christmas.

The Great!

I've personally experienced the results of this organization in...

I have seen the joy on the children faces when they received the gifts at Christmas time. I have also seen how people are excited to hear about sickle cell.

Ways to make it better...

If I had to make changes to this organization, I would...

I would try to get more sponsors so that I can help children who are born with the disease to ease their pain.

June 29, 2011

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June 29, 2011

This foundation is most important and needed in the community and in all cities to bring awarness to families who may be suffering from this disease. I am a volunteer and Iearned a lot since I have been attending the meetings. I realize that there are many families who are not educated in the facts about sickle cell. Like any other disease, when people do not get the proper care and the correct information, many suffer needlessly. Educating the public is what this foundation does and they are grasping at very opportunity to get the word out to the public. I believe that with continued support and funds, this foundation will reach many who will not have to die from this disease. Hats off to the founders for the unselfish job they are doing.
Paulette Perry

The Great!

I've personally experienced the results of this organization in...

seeing people come together who are hungry for information by the questions they ask.

Ways to make it better...

If I had to make changes to this organization, I would...

be more available to offer my support and attend meeting.

More feedback...

Would you volunteer for this group again?

Likely

For the time you spent, how much of an impact did you feel your work or activity had?

Some

Did the organization use your time wisely?

Quite well

Would you recommend this group to a friend?

Definitely

What one change could this group make that would improve your volunteer experience?

none

Did your volunteer experience have an effect on you? (teaching you a new skill, or introducing new friends, etc.)

yes

How did this volunteer experience make you feel?

helpful

When was your last experience with this nonprofit?

2011

June 29, 2011

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June 29, 2011

The making of this foundation was one that is considered to be truly worthy for the public. It manages to bring millions of people together from different ethnicities to join in a positive fight to cater for those who have the disease and acknowledge the importance of what sickle cell means. Throughout the previous years since the making of S.C.A.F, I was able to witness smiles on the faces of children and their parents, especially at Christmas time for Toy Drives at churches or even Walk-A-Thons in parks or on the streets on regular days. This made people feel loved and happy to know that even though they may not be of the same family tree, there are people who are concerned about their health and well-being and are willing to help them and support them at the Sicklel Cell Awareness Foundation Inc.

The Great!

I've personally experienced the results of this organization in...

being able to do more in depth research for both myself and my extended family; this way, we would be aware if the disease was hereditary to us or not. It would also make us more alert as to the possibilities of it being transferred genetically among us and to our children or even their children in the near future.

Ways to make it better...

If I had to make changes to this organization, I would...

change nothing about it. It took its time to grow and develop into where it’s at today because of the hard sacrifices, love, support and great efforts of family and friends, who worked together to build this Sickle Cell Awareness Foundation Inc. for the benefit of those whom are living with the disease and don't know it and for those whom are aware of it and are now learning how to cope and care for it so that they may continue life as they were supposed to.

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