Share Self-Help for Women with Breast or Ovarian Cancer, Inc.

Rating: 4.95 stars   116 reviews

Issues:

Location: 1501 Broadway, Ste 704A New York NY 10036 USA

Mission: SHARE helps people through the cancer journey, from diagnosis through treatment and post-treatment, offering the unique support of survivors who've been there.
Results: We're helping more people every day locally and nationally with supportive services, continually increasing the number of support groups we offer. We're reaching more states through our helpline and increasing services in underserved communities.
Target demographics: Everyone touched by breast or ovarian cancer, from diagnosis through survivorship, as well as caregivers and loved ones, and everyone seeking information about these diseases.
Geographic areas served: In-person support and educational programs in metropolitan NY area and helplines available nation-wide.
Programs: All of SHARE's programs are free of charge, including toll-free helplines staffed by survivors, support groups, educational programs, and public health initiatives. SHARE provides bilingual patient navigators at two hospitals serving low-income populations, and we send breast and ovarian cancer survivors to speak to corporate employees through our Pink & Teal Seminars program. Our services are provided in English and in Spanish, and our helplines are available in 10 other languages as well.
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EIN 13-3131914
1-212-719-0364,
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Community Reviews

Rating: 5 stars  

Toward the end of 1989 I learned I had breast cancer. I was in shock. I'd always been healthy, and that fall, about to turn 49, I felt better than ever. Thought I'd just sail into my 50s. But no. 1990 began instead with a lumpectomy, followed by chemo and radiation.

A friend told me about SHARE, then a much smaller organization, and SHARE invited me to join a small group of women just beginning treatment. For six weeks the group would be led by a woman who'd had breast cancer herself; after that we could decide if we wanted to continue on our own. Twenty-four years later we're still meeting. Not as often as before, but often enough to stay in touch.

What a gift, to have company through the miseries of treatment. My doctors were wonderful, my husband, children and friends loving and supportive, but the women in my group were going through what I was going through, and that made all the difference. We showed each other scars and bald heads; we laughed and cried together. Supported by SHARE, we pulled each other through. I will always be grateful for that.

If I had to make changes to this organization, I would...

If it were possible, I would include small, stable groups as an option as well as large ones with membership that changes.

How would you describe the help you got from this organization?

A lot

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2014

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1 previous review
Rating: 5 stars  

7 people found this review helpful

When I was newly diagnosed with breast cancer and beginning chemotherapy, I joined a small support group organized by SHARE. Our first six meetings were led by a psychologist, herself a survivor of breast cancer; after that we met on our own. Twenty years later we're still meeting. Several of us have attended lectures presented by SHARE, others have taken classes. I serve on the breast cancer hotline. We have helped each other through complications of surgery, new cancers and other health problems but also celebrated the good times in our lives. SHARE has grown since our group started, but it's still true to its original mission: to help women with cancer support each other. Nothing could be more important.

I've personally experienced the results of this organization in...

My breast cancer support group (see above), educational sessions for the wider membership, participation in the breast cancer hotline.

How frequently have you been involved with the organization?

About every six months

When was your last experience with this nonprofit?

2010-5-01

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Rating: 5 stars  

I don't know what I do without SHARE and the women who help make things happen. As a recent breast cancer survivor SHARE was the first place I called when I received word of my diagnosis. They immediately went to work and asked me questions and helped me calm down and assess my situation. They were able to refer me to a couple of doctors so I could get a second opinion - but mostly so I could get peace of mind that I was making the right decisions. Throught my recovery, I consistently called upon SHARE to ask questions about the process of my recovery and the treatment I was receiving. In each call they always took the time to listen and most of all to lend their hearts and support. I Still call upon SHARE for advice and to share my fears and frustrations. They are always there. I believe in SHARE so much that I am now on their advisory board - it is important that the women in New York know there's a place for them when it comes to breast and ovarian cancer. No woman should have to go through it alone and SHARE is definitely the best place to go. Anabel Evora

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2012

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Rating: 5 stars  

I came to SHARE 4four years ago diagnosed with Metastatic Breast cancer, I was afraid and alone feeling no one knew my pain. I was directed to a support group who later became my second family. SHARE is and always will be considered my family because when you see your sisters they know you by your first name and there is never any quarrels about who does what. WE ARE ALL EQUAL..........

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2012

Was this review helpful? 
Rating: 5 stars  

8 people found this review helpful

Just being able to share the very personal effects of cancer and treatment helped relieve my stress about the unkown. Sharing information was the main reason I joined SHARE but the very personal way that members reached out to me, helping me cope with the uncertainty of remission is what I treasure most. A friend of mine who was also ill said she would not join a group because it is so depressing when a member dies from the condition that she is trying to beat. Knowing that an individual you got to know at meetings had a relapse or did not make it even after remission is depressing, but hearing from other members, alive, and living well with this disease lifted my spirits and gave me hope.

I've personally experienced the results of this organization in...

SHARE gives and guides you to information needed to cope with breast and/or ovarian cancer.

How frequently have you been involved with the organization?

About every six months

When was your last experience with this nonprofit?

2010-1-01

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Rating: 5 stars  

8 people found this review helpful

Through SHARE, I was able to get support and information from other women going through treatment as well as expert facilitators who had already been in our shoes. It was an open, collaborative, positive place where we could "share" and help each other. It was comforting to know I had many of the same questions and concerns other women did. SHARE was also a great resource for information -- both their library and referrals to experts.

I've personally experienced the results of this organization in...

Helping me through a very difficult period. SHARE is FANTASTIC.

The kinds of staff and volunteers that I met were...

Outstanding. Everyone has been through treatment and come through. Now they're giving back. It's such an inspiration!

How frequently have you been involved with the organization?

About every six months

When was your last experience with this nonprofit?

2010-1-01

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Rating: 5 stars  

6 people found this review helpful

I learned about SHARE during my hospital stay for a modified mastectomy and reconstructive surgery in 1997. SHARE was truly an anchor for me during the years immediately following my breast cancer diagnosis. It was so important and meaningful to be surrounded by other women who were "in the same boat", physically and emotionally. I actually participated in THREE groups, and all of my group leaders were outstanding. Through SHARE I learned about the "sentinel node dissection" procedure, a method of tracking cancer cell migration without removing a cluster of underarm lymph nodes. Also I learned of physicians in the NYC area who pioneered this procedure. I attended lectures about the newest techniques in breast conservation and reconstructive surgery. I borrowed materials from SHARE's library of books, videotapes and articles. Eventually I volunteered for SHARE, helping with office work and with SHARE-A-WALK. I secured a screening location for the film "Out of Africa", which SHARE aired for a fundraising function a few years a go. I continue to donate to SHARE, and I have a good friend who I met in one of my support groups. It's wonderful to know that SHARE is there for me if I should need its direct support in the future.

I've personally experienced the results of this organization in...

Ongoing support, 1997 - 1999 Education about Breast Cancer

How frequently have you been involved with the organization?

About once a year

When was your last experience with this nonprofit?

2010-6-01

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Rating: 5 stars  

7 people found this review helpful

When I was diagnosed with breast cancer I knew nothing much about it. My oncologist told me about SHARE. It was very helpful to know there was a network of people who were going through something like what I was. I started with a support group. I fount the yoga classes with Roberta Shine particularly helpful as well as some of the presentations, especially the "Fireside chats" I've not been able to be involved recently and miss those contacts

I've personally experienced the results of this organization in...

the support of being within a community of women who were experiencing breast and ovarian cancer in its many forms

How frequently have you been involved with the organization?

About every week

When was your last experience with this nonprofit?

2008-1-01

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Rating: 5 stars  

7 people found this review helpful

I am a two-time survivor of breast cancer. The first was in 1997 when I was diagnosed with invasive, aggressive DCIS. My surgeon is on the Board of SHARE, and I picked up a leaflet in her office. I had important decisions to make, and was completely overwhelmed. The hot line volunteers were wonderful support, and referred me to resources. Also the educational seminars helped keep me informed about the disease and the treatment options. At the time SHARE also had many wellness programs like yoga, meditation, reiki, support groups,etc. All of their services are free, and available in outer boroughs as well. Most of the staff consists of dedicated volunteers, almost all of whom are breast or ovarian cancer survivors. They have to be commended for the excellent service they provide with very limited resources.

I've personally experienced the results of this organization in...

SHARE has helped me during and after my journeys with breast cancer.

If I had to make changes to this organization, I would...

Endeavor to get them more financial support to continue the great work that they do.

What I've enjoyed the most about my experience with this nonprofit is...

They are always there for me.

The kinds of staff and volunteers that I met were...

Very caring and giving

If this organization had 10 million bucks, it could...

Be involved in more wellness programs and seminars

Ways to make it better...

Cannot think of anything

In my opinion, the biggest challenges facing this organization are...

Lack of funding

One thing I'd also say is that...

I hope they are able to continue forever, or until there is a cure for breast and ovarian cancer.

How frequently have you been involved with the organization?

About every six months

When was your last experience with this nonprofit?

2010-5-01

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Rating: 5 stars  

6 people found this review helpful

I was diagnosed in 1996 and found Share through friends. It was a lifesaver in so many ways. Telephone volunteers gave me support and information about how to proceed, and allowed me to feel I was not alone. I participated in an ongoing support group after my surgery and then returned for groups on reconstruction and lectures on new treatments offerred by nationally known figures in the field. It is truly a wonderful organization doing a tremendous public service for its clients on a shoestring budget.

I've personally experienced the results of this organization in...

my participation in breast cancer support groups and reconstruction, as well as telephone support.

If I had to make changes to this organization, I would...

Expand its services to other forms of gynecological and general cancers.

What I've enjoyed the most about my experience with this nonprofit is...

its availability and accuracy of information.

The kinds of staff and volunteers that I met were...

Wonderful, giving people

If this organization had 10 million bucks, it could...

Expand to offer services for all types of cancer.

Ways to make it better...

it could be expanded to all types of cancer.

In my opinion, the biggest challenges facing this organization are...

financial.

One thing I'd also say is that...

it's great.

How frequently have you been involved with the organization?

About every month

When was your last experience with this nonprofit?

2009-9-01

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Rating: 5 stars  

6 people found this review helpful

I was diagnosed with stage-four breast cancer three years ago. Somehow in all my frenzy I was recommended to Share and to Roberta Hufnagel who ran a group for women with stage-four breast cancer. I went to the in person group she ran once because it is hard for me to get into New York City by train and then Share started a call in phone group specifically for women in my categorary. Since then I have called in every Monday at 4:00 pm almost all the time. I have missed very few sessions. During this time we speak about our own experiences, discuss medications we are on and how we are feeling emotionally. It is really a wonderful outlet for our feelings. The leader, Roberta Hufnagel, is very knowledgeable as well as very supportive. I look forward every week to my group but of course find it very hard when one of the members gets sicker or dies. In my case I have been doing well but now my markers are on the rise and the group has been there to support me. I hope that I can continue to be healthy and that I will have the services of this group to help me through the rough spots and that I will be able to help someone else too. Share is a wonderful organization helping people the best they can.

I've personally experienced the results of this organization in...

the group phone calls that I take part in every week.

If I had to make changes to this organization, I would...

give them enough money to accomplish every goal they set out to without making them have to worry about money.

What I've enjoyed the most about my experience with this nonprofit is...

being in touch with other women who have the same problem that I do.

The kinds of staff and volunteers that I met were...

kind, knowledgeable and understanding.

If this organization had 10 million bucks, it could...

Reach out and help more women suffering with cancer.

Ways to make it better...

they had a more convenient chapter in Brooklyn, NY.

In my opinion, the biggest challenges facing this organization are...

the lack of funding and the lack of advertising so that women know where to go for help.

One thing I'd also say is that...

How frequently have you been involved with the organization?

About every week

When was your last experience with this nonprofit?

2010-6-01

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