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May 18, 2010

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May 18, 2010

When I was first diagnosed with Ovarian Cancer in 1995, SHARE put me in touch with a survivor. At that time, I didn't know that women could survive this deadly disease. She gave me hope and support in those first trying months. Now fifteen years later, I do the same for others who call the Hotline.

The Great!

I've personally experienced the results of this organization in...

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How frequently have you been involved with the organization?

About every week

When was your last experience with this nonprofit?

2010

May 18, 2010

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May 18, 2010

I was diagnosed with breast cancer in 1993 and knew absolutely no one with the disease. By attending support groups at SHARE, I found so many women I could really talk to. The sense of community then and now is amazing. The level-headed information presented by speakers, by peer counselors and by patients, has helped all along the way. SHARE makes it possible for people to volunteer using their talents. I love this organization.

The Great!

I've personally experienced the results of this organization in...

I was a member of a support group upon a breast cancer diagnosis. Had the oppty to run a study group for those interested in natural therapies. Was also involved in advocacy.

Ways to make it better...

If I had to make changes to this organization, I would...

Find more money for them so they could serve ALL women with cancer - not just breast and ovarian.

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What I've enjoyed the most about my experience with this nonprofit is...

the genuine caring that takes place there.

The kinds of staff and volunteers that I met were...

amazingly helpful and very friendly

If this organization had 10 million bucks, it could...

expand its service to work with all women with all types of cancer.

Ways to make it better...

I didn't have to get breast cancer to be part of this group!

In my opinion, the biggest challenges facing this organization are...

lack of funds to do more services in the community.

One thing I'd also say is that...

They have the most dedicated volunteers year after year. I was first involved in 1993 and am still involved when I give a talk or attend a meeting (even though I now live in Florida, I still manage to get to some events each year).

How frequently have you been involved with the organization?

About every six months

When was your last experience with this nonprofit?

2010

May 18, 2010

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May 18, 2010

Share has been an amazing experience for me. Wonderful with warm caring women, provides current information and I am able to reach out and help.I am volunteer on hotline and occasionally volunteer on other outreach projects and advocacy

The Great!

I've personally experienced the results of this organization in...

Not feeling alone in my diagnosis. started by going support group For reconstruction to consider I was connected with peers who had been through the choices under consideration. I have been educated and have become an advocate

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What I've enjoyed the most about my experience with this nonprofit is...

meeting wonderful, intelligent, caring women (primarily) and being educated

The kinds of staff and volunteers that I met were...

extraordinary, knowledgeable and kind.

If this organization had 10 million bucks, it could...

provide greater awareness to larger numbers of the population. Worked briefly on an outreach project to help make medical practitioners aware of Share and the resources availble. There were limitations due to limioted resources

How frequently have you been involved with the organization?

About every week

When was your last experience with this nonprofit?

2009

May 18, 2010

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May 18, 2010

I have been familiar with the work of SHARE for many years. I know how many women the organization has helped. Many have said to me that SHARE saved their lives. My work with the organization was extremely satisfying and I continue to refer women to the organization whenever I meet someone who is going through breast or ovarian cancer or who has suspicious symptoms. There is nothing like peer support and having someone who understands what you are going through walking beside you.

The Great!

I've personally experienced the results of this organization in...

As a breast cancer survivor and as a former employee, I have seen the work of the organization up close. I attended a support group when I was diagnosed and then worked as a paid employee for 2 1/2 years.

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What I've enjoyed the most about my experience with this nonprofit is...

Collegiality and mutual support.

The kinds of staff and volunteers that I met were...

extraordinarily dedicated to the organization and its mission

If this organization had 10 million bucks, it could...

increase it services and get more p/r

How frequently have you been involved with the organization?

About every week

When was your last experience with this nonprofit?

2010

May 18, 2010

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May 18, 2010

Hearing women say "SHARE is saving my life" became a cliche, so often did I hear women, and some husbands, express their response to the support they were receiving from SHARE's many programs. As a long time breast cancer survivor and social worker, I experienced SHARE both as a recipient of its multiple services and as a volunteer able to evaluate its effectiveness. I found SHARE's educational programs invaluable, from quality of life self-care issues to cutting edge research presentations. Looking back, what stays with me most is the rich sense of community and emotional support I felt being with other women who struggled with the same things I had, and how vital I felt SHARE to be to my sense of well-being.

The Great!

I've personally experienced the results of this organization in...

I've personally experienced the results of this organization in my improved sense of wellness and fortified ability to cope with having had breast cancer as a woman in my thirties. I also learned much from SHARE's educational programs.

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How frequently have you been involved with the organization?

About every week

When was your last experience with this nonprofit?

2001

May 18, 2010

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May 18, 2010

As a breast cancer survivor myself I have found it very meaningful to talk with women who are going through the trauma of a breast cancer diagnosis. When I am able to be helpful it is very gratifying. I have found that Share has played a big role in the lives of countless callers who have found a lifeline in finding someone from the hotline or among our peers who they feel can understand what they are going through. The fact that Share offers support groups and educational programs at no cost is also gratifying to our members. I have found that my volunteer work on the hotline has been both meaningful and gratifying.

The Great!

I've personally experienced the results of this organization in...

my volunteer work there. As a retiree it is meaninful work which I look forward to.

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The kinds of staff and volunteers that I met were...

were unfailingly friendly and welcoming.

If this organization had 10 million bucks, it could...

expand its reach. Resume the health and wellness programs it had to drop because of budget considerations.

How frequently have you been involved with the organization?

About every week

When was your last experience with this nonprofit?

2010

May 18, 2010

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May 18, 2010

After a year or so of receiving their help, I became involved with SHARE's lobby program up in Albany, NY and in Washington DC. It was not just rewarding, but empowering to belong to SHARE! I was very happy to be able to give back for the sake of any who follow because I'd been helped. I don't currently volunteer, but it's an organization, a group of people I keep very close to my heart.

The Great!

I've personally experienced the results of this organization in...

I was diagnosed with breast cancer at age 53; luckly it was stage one/ treatment was successful. I'm now a 6th year survivor; very thankful to SHARE for their support. Thier newsletter at the Dr's off. brought me to them and I got the support needed.

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How frequently have you been involved with the organization?

About every month

When was your last experience with this nonprofit?

2007

May 18, 2010

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May 18, 2010

SHARE is a critical, invaluable resource for women who have been diagnosed with breast and ovarian cancer. The hotline allows you to call and be matched with someone who can help you through a scary, confusing time. The support groups are well-facilitated. The advice is current and thoughtful, and the information is reliable. Additionally, SHARE runs and connects you to programs and seminars discussing the latest research and findings. I recommend SHARE to anyone dealing with Breast or Ovarian Cancer, whether for themselves or ones they care about.

The Great!

I've personally experienced the results of this organization in...

through the support groups, I found excellent practical advice and comfort in helping determine the I needed to determine the best course of treatment. Also,I have been able to access library materials.

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What I've enjoyed the most about my experience with this nonprofit is...

The respect for volunteers and seeing an organization that uses volunteers so well.

The kinds of staff and volunteers that I met were...

Thoughful, knowledgeable, kind, and reliable.

If this organization had 10 million bucks, it could...

Reach even more people who need help.

How frequently have you been involved with the organization?

About every week

When was your last experience with this nonprofit?

2010

May 18, 2010

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May 18, 2010

I found Share Self-help to be a gusher (as opposed to fountain) of compassionate caring and crucial support during our time of need. We went to a variety of fascinating didactic educational programs; and one we found a speaker who we would eventually reach out to from Memorial Sloan Kettering Cancer Center who would eventually be her attending physician. We also had a chance to interact and benefit from their extraordinary executive director on various occasions. I unequivocally recommend this wonderful support organization to breast and ovarian cancer fighters and their caregivers and support system.

The Great!

I've personally experienced the results of this organization in...

During the lengthy time that my best friend was well enough to actively participate; and I went to various public lectures after she passed away. Please see my above comments.

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How frequently have you been involved with the organization?

About every six months

When was your last experience with this nonprofit?

2008

May 18, 2010

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May 18, 2010

I was diagnosed at age 42 with breast cancer in 2001. I didn't know who to turn to to get support or information until a friend told me about SHARE. Through their support group meetings and informational meetings about a variety of subjects, I got through the breast cancer treatment, a reaction to the post treatment medications and then a double prophetic mastectomy and the decision as to which type of reconstruction I should get. There was one informational meeting that I think saved my life: lymphedema. I was taught at that meeting that if I get a fever and redness in my affected arm, to go to the ER right away because it could be cellulites. Turns out, that's exactly what happened and if I had not known how serious it was, I would not have gone to the ER. I was told at the ER that I could have died from that infection (which turned out to be from a simple mosquito bite on my affected arm). None of my doctors told me about the dangers of lymphedema, but Share did. So I want to give a big THANK YOU to Share. Sincerely, Jen Serpenti

The Great!

I've personally experienced the results of this organization in...

see review

More feedback...

What I've enjoyed the most about my experience with this nonprofit is...

The information that I've learned

The kinds of staff and volunteers that I met were...

very, very friendly and helpful

If this organization had 10 million bucks, it could...

Help many, many more women and men.

How frequently have you been involved with the organization?

About every six months

When was your last experience with this nonprofit?

2010

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