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May 18, 2010

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May 18, 2010

I was introduced to SHARE soon after I was diagnosed with breast cancer in 2001. I knew little about the disease & was very frightened at the prospect of surgery and chemotherapy. From the moment I spoke with the hotline director, I began to feel hopeful, as if I did not have to go through cancer alone and could have some control over the direction my life had taken. I joined a support group, attended informational workshops that gave me knowledge and support that empowered me to make treatment decisions and life decisions. My support group continues to meet several times a year & we will celebrate our ninth anniversary of being cancer-free next fall. I continue my connection SHARE as a volunteer on the hotline and in fundraising activities. SHARE operates on a shoe-string budget with a dedicated staff and volunteers. I have worked for non-profit organizations for 40 years and can honestly say that SHARE accomplishes more with less than any other organization I have ever seen.

The Great!

I've personally experienced the results of this organization in...

My own experience with SHARE includes being a member of a peer support group,attending informational workshops, and participating in advocacy efforts. SHARE gave me information & hope & has utilized my abilities as a volunteer & taught me to help others.

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What I've enjoyed the most about my experience with this nonprofit is...

The sense of hope and empowerment that I gained as a result of taking part in its programs.

The kinds of staff and volunteers that I met were...

Kind, knowledgeable, committed, and fun!

How frequently have you been involved with the organization?

About every month

When was your last experience with this nonprofit?

2010

May 18, 2010

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May 18, 2010

Calling SHARE was the single best thing I did for myself when I was diagnosed with breast cancer in 1993. Even though I had a loving family and wonderful friends, I felt terrified and alone in facing this crisis. A good friend urged me to contact SHARE, and I soon found myself in a support group with other recently-diagnosed women who knew what I was going through and how I felt, and with whom I could "share" my greatest fears and darkest thoughts without worrying about their reactions. The group was led by a breast cancer survivor who showed me that I could and would get past this crisis. This group was such a source of information, support, and inspiration for me, that I honestly feel that SHARE saved my life. I went on to become a support group facilitator myself and later a SHARE board member. With the help of a very small, dedicated staff, and a limited budget, SHARE makes it possible for legions of volunteers, most of whom have been through breast or ovarian cancer themselves, to help many others in need. SHARE is one of the few organizations where Hispanic women, women with ovarian cancer, and women with metastatic cancer can find help and support from others just like them. I only wish that SHARE had the resources to expand and extend its services to everyone who needs them.

The Great!

I've personally experienced the results of this organization in...

Participating in a support group, facilitating support groups, serving on the board

Ways to make it better...

If I had to make changes to this organization, I would...

Increase financing so that the organization could serve more people

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What I've enjoyed the most about my experience with this nonprofit is...

The wonderful staff and volunteers who give their time and effort so generously

The kinds of staff and volunteers that I met were...

Inspiring, hard-working, dedicated, caring

If this organization had 10 million bucks, it could...

Expand to serve women with other gynecological cancers, set up satellite organizations in other parts of the country, make their services better known to all who might need them, do more outreach to connect with hard-to-reach populations

Ways to make it better...

My experience was great -- Can't think of anything that would have made it better.

In my opinion, the biggest challenges facing this organization are...

Raising the funds needed to maintain and grow its services

One thing I'd also say is that...

Organizations that raise money for cancer research are better-funded, but women who are diagnosed with cancer today still need help!

How frequently have you been involved with the organization?

About every week

When was your last experience with this nonprofit?

2010

May 18, 2010

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May 18, 2010

Share helped me enormously as both a patient/client and then as a volunteer. Their counseling services and then their support groups helped me get through a very difficult and potentially life-threatening time in my life. I was so impressed with them that I subsequently became a volunteer and advocate, attending a training weekend in Washington. Thank you for empowering me and keep up the good work!

The Great!

I've personally experienced the results of this organization in...

2001- 2004

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What I've enjoyed the most about my experience with this nonprofit is...

their knowledge, support and authority

The kinds of staff and volunteers that I met were...

wide-ranging knowledgable and compassionate.

If this organization had 10 million bucks, it could...

help cure cancer.

How frequently have you been involved with the organization?

About once a year

When was your last experience with this nonprofit?

2008

May 18, 2010

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May 18, 2010

SHARE is an outstanding organization. I first heard about it from Elaine Lowenstein (may she rest in peace) in 1986. Gloria G.

The Great!

I've personally experienced the results of this organization in...

I've personally seen how enthusiastic and effective this organization is at all times.

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How frequently have you been involved with the organization?

About once a year

When was your last experience with this nonprofit?

2010

May 18, 2010

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May 18, 2010

This organization does amazing things for women (and their family members and others) who are dealing with a cancer diagnosis. I think that my group was the single most supportive and positive experience during the my treatment and recovery and was very helpful in dealing with the every day issues that arise. It deserves all the support it can get.

The Great!

I've personally experienced the results of this organization in...

see above

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How frequently have you been involved with the organization?

One time

When was your last experience with this nonprofit?

1997

May 18, 2010

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May 18, 2010

In 1995, I developed and directed the first direct service ovarian cancer program in the country which SHARE was starting as a new adjunct to its breast cancer program. It paralleled the breast program's services: hot line, support groups, wellness and educational programs. During my time at SHARE, we also started a project titled "SOS, SHARE OVARIAN SURVIVORS" dedicated to raising awareness for the need of early detection of a disease which was and continues to be difficult to diagnose in it earliest stages. Using ovarian cancer survivors/volunteers we spoke to groups in the medical community and the community at large (women's groups) about what it took to be diagnosed, what happened afterwards and where we were in our journey at that point. It was an extremely effective form of communication and a means of raising awareness for early detection. As we know, the experiential can be a very powerful tool to reach others.

The Great!

I've personally experienced the results of this organization in...

In the years that I worked for SHARE, I was able to see first hand its impact on women's lives and their families. For me personally, a long time survivor of ovarian cancer, now 38 years, I was given the incredible opportunity to become an early advocate

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How frequently have you been involved with the organization?

About every six months

When was your last experience with this nonprofit?

2009

May 18, 2010

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May 18, 2010

This extraordinary organization offers services free of charge with a hot line, education programs, peer support groups and patient navigators. SHARE provides comfort and support for those newly diagnosed, in treatment, post treatment and metastatic. SHARE provides evidence based information to women to help them with decision making in their treatments. SHARE also has volunteers who focus on advocacy through legislation and science to be able to inform women on evidence based medicine, and quality care. These advocates also sit on committees and boards in decision making positions on breast and ovarian cancer health care and research funding. SHARE has been in existence for over 30 years. it has a small staff and a dedicated group of volunteers serving over 30,000 women and their families each year

The Great!

I've personally experienced the results of this organization in...

my experience as a cancer patient calling the hot line, participating in support groups and attending education program. The kind compassion freely given to me as well as meeting other women with breast cancer was tremendously important to me.

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How frequently have you been involved with the organization?

About every month

When was your last experience with this nonprofit?

2010

May 18, 2010

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May 18, 2010

Share has been an incredible force in my life. The women that I have met there will always be great friends, confidants and sisters in the fight of our lives. We Share with each other and help each other to find information. As a young woman diagnosed with breast cancer, I found it incredibly empowering to meet other women so willing to share their experiences with me in order to make mine easier to deal with. I enjoyed giving back in the same way. And it was therapeutic for me to do that at that time in my life.

The Great!

I've personally experienced the results of this organization in...

The feeling that I can handle it because I know other women who have done so. I am now empowered to make the best of what I have to deal with.

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How frequently have you been involved with the organization?

About once a year

When was your last experience with this nonprofit?

2010

May 18, 2010

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May 18, 2010

When I was diagnosed with Stage 3 breast cancer more than 18 years ago, I was shocked, emotionally and psychologically broken, wrote a will and thought I was going to die. My partner had a friend who recommended SHARE. When I thought my days were numbered, SHARE became my lifeline, and I met the most caring, knowledgeable, empowering, supportive, loving women I could ever have imagined. I became attended support groups, shared my story which helped to help others advocate for themselves through the labyrinth of hospitals, doctors and insurance. My love of SHARE and what it has accomplished over the years has no boundaries. While I am no longer involved on a weekly basis, SHARE knows that they can count on my support anytime.

The Great!

I've personally experienced the results of this organization in...

the area of self help. It was one of the most empowering, affirming experiences of my life.

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How frequently have you been involved with the organization?

About once a year

When was your last experience with this nonprofit?

2010

May 18, 2010

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May 18, 2010

My oncologist told me about SHARE. I was very glad for the support it provided. For me, the yoga sessions at the office were especially helpful for the calmness and inclusiveness as much as the yoga itself. Roberta Shein was a welcoming a presence as anyone could have asked. I also appreciated the few workshops or presentations I was able to attend. The "fireside chats" with Dr. Larry Norton was particularly informative.

The Great!

I've personally experienced the results of this organization in...

My life. I've shared materials with others and encouraged others to contact SHARE

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How frequently have you been involved with the organization?

About every week

When was your last experience with this nonprofit?

2003

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