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May 19, 2010

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May 19, 2010

SHARE offers breast and ovarian cancer survivors a way to keep up with the ever-changing developments in cancer care with meetings and lectures featuring prominent oncologists, cancer survivors, leaders of major advocacy groups, such as the National Breast Cancer Coalition, and legislators discussing health-care reform. It also provides many different support groups, including breast and ovarian cancer, caregivers and lymphedema, to name a few. The organization also offers national hotlines to help breast and ovarian cancer survivors cope emotionally and get information on attending support groups in their area and phone numbers and websites on obtaining financial support, such as Medicaid.

The Great!

I've personally experienced the results of this organization in...

SHARE support groups and lectures have helped me to cope with my breast cancer diagnosis and understand available medical options. And as a hotline volunteer, it has given me a way to help other breast cancer patients.

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How frequently have you been involved with the organization?

About every week

When was your last experience with this nonprofit?

2010

May 19, 2010

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May 19, 2010

Women with Ovarian Cancer bonding together and sharing they're experience. The camraderie amongst these ladies informs me that I'm not alone. Tons of information is shared along with up to date health status. Also with women with breast cancer as well.

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I've personally experienced the results of this organization in...

I'm not alone

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How frequently have you been involved with the organization?

About every month

When was your last experience with this nonprofit?

2010

May 19, 2010

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May 19, 2010

When I was first diagnosed with breast cancer, SHARE volunteers helped me overcome feelings of fear, confusion, and aloneness, and showed me the strength of self-help, peer groups in developing a feeling of empowerment in the face of this disease. Later on, as a volunteer, I was able to help other women go through this same process. SHARE was a pioneer in emotional support for women, by women who had walked in the same shoes.

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I've personally experienced the results of this organization in...

Helping me to become empowered to face breast cancer and then to be able to help to empower other women, especially underserved Latinas in New Yo9rk City.

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How frequently have you been involved with the organization?

About every month

When was your last experience with this nonprofit?

2010

May 19, 2010

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May 19, 2010

they were very supportive when i was first dx with breast cancer. they gave me the strength i needed to keeping fighting, Alex and Ivis without them i could not have done it they were their 24/7 for me and so were the other survivors from the spanish support group. thank you Ivis keep doing the work you do for us at the latina share

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I've personally experienced the results of this organization in...

they helped me while i was going threw chemo and radition

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How frequently have you been involved with the organization?

About every month

When was your last experience with this nonprofit?

2010

May 19, 2010

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May 19, 2010

My first contact with SHARE was nearly 10 years ago when I was newly diagnosed with breast cancer and joined a SHARE-sponsored support group. Almost immediately I was thinking of ways to "give back," training first as a Hotline volunteer and then going through a series of scientific advocacy trainings. SHARE has taught me that there is more to do than worry.

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I've personally experienced the results of this organization in...

SHARE has enabled to feel confident enough to act as a consumer-reviewer and patient advocate in a number of medical professional venues that would have totally intimidated me a few years ago.

Ways to make it better...

If I had to make changes to this organization, I would...

Just give it more money so it could do more of what it is doing.

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What I've enjoyed the most about my experience with this nonprofit is...

the people.

The kinds of staff and volunteers that I met were...

knowledgeable and good people to deal with.

If this organization had 10 million bucks, it could...

vastly expand its staff and volunteer services, concentrate on service delivery and worry less about funds

Ways to make it better...

my experience is fine

In my opinion, the biggest challenges facing this organization are...

funding and the personal losses we all have to endure

How frequently have you been involved with the organization?

About every week

When was your last experience with this nonprofit?

2010

May 19, 2010

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May 19, 2010

My first contact with SHARE was through their survivor hotline. When I was first diagnosed with breast cancer, I felt so isolated and confused. It was shocking and surreal. Speaking to someone who was a survivor was a blessing. I am so thankful for the voice on the other end of the phone that helped me through this challenging time. She knew what I was going through and became a valuable member of my support network. I also thank my primary care physician, a breast cancer survivor, for recommending that I call SHARE.

The Great!

I've personally experienced the results of this organization in...

receiving valuable support during my diagnosis and treatment via their hotline.

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How frequently have you been involved with the organization?

About every month

When was your last experience with this nonprofit?

2010

May 19, 2010

more

May 19, 2010

It doesn't matter your educational level or how in control you think you are, when you hear the doctor say "cancer" your world seems to stop. The isolation and fear can be overwhelming for the patient as well as the family. What could be more comforting than to have someone say "I understand, I've been through it"---that is what SHARE is all about. There are many organization that focus on research and finding a cure but for the people going through it right now there is SHARE.

The Great!

I've personally experienced the results of this organization in...

The support is amazing; the generosity of these women to help others is a blessing.

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How frequently have you been involved with the organization?

About every month

When was your last experience with this nonprofit?

2010

May 19, 2010

more

May 19, 2010

I was diagnosed with late stage breast cancer and was set very much apart from ordinary life.I needed to learn more about the disease that was at the least changing my life drastically or at the most taking it completely. At Share I found an organization that offered the medical information I needed to understand what was happening to me within an environment that was emotionally nourishing. I also realized that my diagnosis put me in the position of being able to make a unique contribution to others. Share enabled me to do that by including me into their group going to Washington D.C. to lobby for medical research. In addition, I needed help to regain physical strength after very extreme surgery, chemotherapy and radiation. Once again Share came through as their exercise program was geared to do just that. I am now feeling well and involved in an active life. Every once in a while I come in contact with a woman who has been newly diagnosed. It is always the same-- this woman is scared, bewildered,demoralized. Share is there, Share will help, Share's reason for being continues.

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I've personally experienced the results of this organization in...

See my review

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How frequently have you been involved with the organization?

About every six months

When was your last experience with this nonprofit?

2010

May 19, 2010

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May 19, 2010

When I was first diagnosed with breast cancer in 1990, and then again when I got hit with both breast and fallopian cancer in 2007, SHARE was a mainstay of support and information. The 1990 experience included a support group of women like myself -- premenopausal with young children -- which helped to lessen my isolation as a younger person with an older woman's disease. In 2007, again I found myself in a minority, this time with a BRCA mutation. And again, particularly through SHARE's peer referral system, I was able to talk with women who had also been diagnosed with a mutation and had to deal with the cancers and multiple surgeries and procedures that followed.

The Great!

I've personally experienced the results of this organization in...

Support groups and hotline/peer referral services for women (and their partners) with breast and ovarian/fallopian cancers

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How frequently have you been involved with the organization?

About every month

When was your last experience with this nonprofit?

2008

May 19, 2010

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May 19, 2010

I joined SHARE soon after I was operated on for endometrial cancer. It was the link I needed between dealing with the fear and getting my life back. When I joined I believe I was the first hot line volunteer with EC. Helping others for the time I was involved helped me also. Great Great organization!!

The Great!

I've personally experienced the results of this organization in...

a few very important ways. I found helping others was good for me, being with woman who shared my experience was great. Being able to refer frightened women to a place where they can be directed and calmed was a gift for all.

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How frequently have you been involved with the organization?

About every six months

When was your last experience with this nonprofit?

2006

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